RESOURCES

REPORT BREAST IMPLANTS

It is important that we report what breast implants have done to us to the FDA in the US at: Medwatch Online Voluntary Reporting Form and to Health Canada in Canada at:  Health Product Complaint Process .  It is also very important that we report what breast implants have done to our children.  The organization Birth Defect Research for Children Inc. is collecting data on disabilities that may be related to breast implants through an ongoing research project titled The National Birth Defect Registry. To report go to http://www.birthdefects.org/.  Please note the form does not have a specific category for breast implants, so Mothers are asked to enter information in the “Other Exposures Not Listed” at the end of the Maternal Exposure section.

BREAST IMPLANT ANALYSIS FOR FAILURE AND PROBLEMS AS MEDICAL DEVICES

If you would like your breast implants analyzed for identification of the manufacturer, implant failure and analysis and extensive details about how and why your implants caused symptoms and illness in your body that you may be able to use for legal purposes, please contact Dr. Pierre Blais who is the world’s foremost expert on breast implants as failed medical devices:

Dr. Pierre Blais
Innoval Failure Analysis
496 Westminister Avenue
Ottawa, Canada
K2A 2V1
Phone (613) 728-8688
Fax (613) 728-0687
[email protected]

Update:  Dr. Blais is not accepting specimens at this time due to a backlog.  No decision as yet as to when they will be accepting new specimens.  

Dr. Blais has written several articles in regard to the failure of breast implants based on his analysis and findings during examining thousands of implants here:  Articles By Dr. Pierre Blais

TESTING SALINE BREAST IMPLANTS FOR COLONIZATION BY MICROORGANISMS

If you would like the saline fluid in your implants tested for fungus or other microorganisms, Mycometrics and Real-Time Labs are two microbiology service laboratories specializing in the identification of fungi (molds), bacteria and viruses from the environment, food, pharmaceutical or biological products.

DR. DIANA ZUCKERMAN IS LOBBYING FOR INSURANCE COVERAGE FOR EXPLANT IN U.S.

If you live in the U.S. and have been affected negatively by breast implants and need help convincing your insurance to cover your explant, Dr. Diana Zuckerman would like to hear from you.  Please see this link about the ins and outs of insurance coverage:  http://www.breastimplantinfo.org/insurance-coverage-for-breast-implant-removal/.  Get a full copy of your insurance policy and read how you may be covered for explant.  In general insurance may cover for rupture, capsular contracture, pain and infection.  Some policies have exclusions and some may cover for other situations.  The codes you need for claiming explant on your insurance are as follows:

Insurance Procedure Codes CPT for Explanting Breast Implants:
19371 – 50   Periprosthetic capsulectomy breast, the 50 is the modifier for Bilateral

Insurance Diagnostic Codes ICD10 for Explanting Breast Implants:
T85.49XA – Mechanical complication of breast prosthesis and implant
T85.79XA – Infection and inflammatory reaction due to other internal prosthetic devices, implants, grafts.
T85.848A – Pain due to internal prosthetic devices, implants and grafts.
T85.44XA – Contracture of Breast Prosthesis
T85.43XA – Rupture of Breast Prosthesis
N64.81 – Breast Ptosis
N64.4 – Mastodynia

OTHER FINANCIAL ASSISTANCE AVAILABLE FOR EXPLANT

If you are from the US and have silicone breast implants and need fiancial assistance with explant,  please contact The Explant Financial Assistance Program here:  httpExplantassistance.com 

EXPERTS ON BREAST IMPLANT ILLNESS

Dr. Lu Jean Feng of Pepperpike, Ohio in the US is one of the world’s foremost explant surgeons with many educational video’s regarding proper En Bloc/Total Capsulectomy explants and breast implant illness here:  https://www.youtube.com/results?rearch_query=Dr.+Lu+Jean+Feng&page=&utm_source=opensearch and has also conducted clinical research and studies here:  https://scholar.google.com/citations?user=LevHwEIAAAAJ&hl=en&oi=ao 

Dr Arthur Brawer is a Rheumatologist and silicone toxicity expert and has carried out studies and written several papers on the toxicity of silicone and breast implants here:
Mechanisms of Breast Implant Toxicity (2017)

Autoinflammatory Syndrome Induced by Adjuvants (ASIA) Syndrome is Misguided (2017)
Destiny rides again: the reappearance of silicone gel-filled breast implant toxicity (2017)
Bones, Groans, and Silicone (2012)
Amelioration of Systemic Disease After Removal of Silicone Breast Implants

Dr. Professor Yehuda Shoenfeld is another expert who published AutoImmune/Inflammatory Syndrome Induced By Adjuvants – ASIA Syndrome in regard to breast implants here:  https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-118

Dr Frank Vasey is a Rheumatologist and has written about the dark side of silicone implants here: http://www.nyjsm.com/Medicine/Rheumatology/Silicone_Syndrome_Frank_Vasey_MD.cfm

HEAVY METALS TOXICITY FROM DENTAL AND BREAST IMPLANTS

If you feel you may be heavy metal poisoned from dental, fish, breast implants or another source please read Andy Cutler’s book:  Amalgam Illness: Diagnoses and Treatment .  It is an excellent read about detoxing mercury and other heavy metals safely using oral chelation.

PALEO AUTO-IMMUNE PROTOCOL DIET

If you have auto-immune symptoms, the Paleo Auto-immune Protocol Diet could be very helpful in minimizing your symptoms and modulating your immune system responses while healing and recovering.  Information on the Paleo Auto-Immune Protocol Diet can be found here:  https://www.thepaleomom.com/start-here/the-autoimmune-protocol/

MTHFR GENETIC DEFECT 

In 2003  the Human Genome Project revealed an important gene to our detoxification, the MTHFR, is defective and mutated in many people.  When it’s working correctly the MTHFR gene produces the MTHFR enzyme.  The MTHFR enzyme works with folate vitamins (B9, folic acid), breaking down and converting to the amino acids homocysteine and methionine which is used by your body to make proteins, utilize antioxidants, and to assist your liver to process fats. Methionine helps with depression and inflammation. It also helps convert estradiol (E2) into estriol (E3).  Methionine is converted in your liver into SAM-e, which is anti-inflammatory, supports your immune system, helps produce and breakdown your brain chemicals serotonin, dopamine and melatonin, and is involved in the growth, repair and maintenance of your cells.  So a proper methylation pathway means you will be able to eliminate toxins and heavy metals easier than if it is defective and mutated.

When it is not working correctly the MTHFR gene only functions at 40% to 80% of its capacity which means you won’t break down toxins or heavy metals very well and you could find yourself accumulating toxins and heavy metals.  The defective gene does not break down folate vitamins properly which can cause high homocysteine and homocysteine is poorly converted to glutathione which is your body’s master detoxifier and so you are more susceptible to toxin buildup.

How to treat it?  You can’t change a defective gene but you can help it do its job better and minimize problems.  Some find their folic acid lab test levels are high (it’s one of several folate vitamins) since a defect in the gene prevents your body from using it, it goes high.  The recommended solution is avoid supplements and many processed foods with folic acid.   Healthy foods that contain folate should be okay, as would be the active form of folate called methylfolate as a supplement, also called 5-MTHF (5-methyltetrahydrofolate).  B12 might also be high, so patients tend to avoid the synthetic supplemental version of B12 called cyanocobalamin and instead favor the more useable methylcobalamin (methylB12), which will help break down those high levels. But the methylB12 will be used by your body in detoxing you from toxins, so you may need to start low to avoid detox side effects like fatigue, achiness, etc.  Another good B-vitamin is the methyl version of B6, called P-5-P.

Dr. Ben Lynch feels that “repairing the digestive system and optimizing the flora should be one of the first steps in correcting a methylation deficiency”and that especially includes treating candida because of the toxins it releases, inhibiting proper methylation.  Some experts recommend eating clean, such as Paleo or the GAPS diet.  Avoiding exposure to toxins is important. Minerals play a key role in several enzymatic functions. Vitamin C helps reduce oxidants.  Molybdenum (500 mcg) helps break down excess sulfates and sulfites

High copper and low zinc is a common finding when you have an MTHFR defect–a high level of copper, which will conversely mean your zinc levels will fall. And since the ratio of these two metals is highly important, correcting the problem is crucial, since high copper can be related to hyperactivity, depression, headaches, acne, frequent colds due to lowered immunity, sensitive skin and/or bruising, worsening hypothyroid, adrenal stress and more.

Here are some great resources about MTHFR:

1.  MTHFR.net  by Ben Lynch, ND an Expert on MTHFR gene mutations

2.  Knowyourgentics.com by Dr. Amy Yasko where you can download her books and numerous information to learn how to support yourself with MTHFR and other SNP’s.

3.  Resources – MTHFR Support

4.  Video and talk by Dr. Ben Lynch, ND.

  More coming soon.

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19 thoughts on “RESOURCES

  1. Dawna Hole

    Are there any studies on radiation effects on implants. I know the manufacturer says “cautionary “ but that didn’t deter my doctors. I explant in September 25 and would love to donate my implants to a study if possible.

    Reply
    1. admin Post author

      Hi Dawn,
      We are not aware of any studies on the effects of radiation on implants but its likely not good.

      Reply
  2. Caroline

    My implants are known as gummies bear implants I have been diagnosed with several of issues from that list since I’ve had my implants I even take Ativan every night to keep from having panic attacks I was left with nasty scares and no matter what type of bra I wear it feels like my sholders are going to cave in they constantly hurt even without a bra I also ended up with nerve damage down my left arm that occurred a month or so after I had the implant surgery I feel horrible that when I went for my consult these side effects was not covered

    Reply
  3. V604

    Hi All,

    I actually did a private email to the admin to tell my situation with PS here in Vancouver BC, but that was about a month ago and no one reached out; so I thought I’d post here.

    I’ve had my implants coming 18yrs now. They are saline under the muscle done through the nips. I’ve not had any major symptoms and can technically leave them in (they do still look fab after having 2 kids and a shitty milk production, but did produce). However, I’ve just been feeling its time to come out because its OLD and my left side kind of squeaks when I massage them. I still do that time to time. Pre-plants I was a lop-sided A (AA on the other) due to rib deformity! Post-plant full B possible small C when menses.

    Now, I went to my original PS which is listed here in the Vancouver Canada surgeon list, but she doesn’t seem to care to much for how I am feeling or my concerns of explant, I went to see her 2x and paid 2 consults. It rung a bell, as its very similar to when I had them done; SHE DIDN’T care and $$$ (Plus I didn’t ask the correct questions in my 20’s)

    Fast forward to the last few months..I met with another PS from the list Dr. Colin McInnes and he’s answered a lot of my questions and was/is very patient. He emailed me back with extra answers from questions I forgot to ask from the 1st consult and additionally called me on top of that. Mind you, I have only done 1 consult with him ($100 fee which can go towards explant should you do with him) the surgery itself is about $8000 plus GST for explant only (anything else done would be additional) he also prefers to not do a lift at the same time, only because things can change during the healing time. (which does suck b/cus its again another surgery/healing time)
    So, I am booked to explant June 10..its so fast that I am somewhat not ready!!! 6 weeks from my 1st consult.

    I have anxiety, a small portion is the scarring but the main one is beginning incredibly FLAT and SAGGING SKIN/NIPS, my family doc said I have absolutely 0 breast tissue!

    My questions to this forum is 1 has anyone had explant done with Dr. Colin McInnes? (can we correspond privately or here?)
    Next for ladies who were originally blessed with being the 1st letter of the alphabet and had 0 b.tissue how was the look/sag after removal (ladies that did not perform a lift, please)

    Lastly, for the ones asking about payment. There is a payment plan you can do with Dr. McInnes if you are unable to pay the whole amount.
    Look froward to hearing back from this lovely community.

    V
    **possible typos, run-ons etc

    Reply
  4. Dawna Hole

    May 2018 I had double mastectomy with immediate reconstruction. Mentor Memory soft side gels with Alloderm sling. No radiation was expected prior to surgery. Biopsy showed radiation was needed. 30 days post op radiation was started, 25 treatments two directions right breast only. For a year I have said things were wrong. I have seroma, around both implants and I feel like there is a pocket under the left implant (I feel it upon inhale), under arms and along bra line around the back have seroma that are visible pockets of fluid. I also have lymphedema (sentinel node removal both sides). Proposed surgery: En Bloc explant, DEIP flap primarily for lymphatic and seroma drainage. Removal of all skin from mid shoulder blade across chest to mid shoulder blade and lymph gland transfer. I plan to ask them to test BIA-ALCL but how do I get the implants tested for deterioration due to radiation? What if my situation can help determine if radiation is damaging to the implant? Also, do you have any details on the risk of other cancers with breast implants being radiated? I went on the FDA website and filled out all the information on my BII but would love to participate in any studies regarding radiation and implants. Any suggestions are recommendations are welcomed. Thank you for what you do.

    Reply
    1. Christy Avila

      Yes, radiating implants is contraindicated by the manufacturers and should NOT be done. Their literature states this. (It happened to me too.) Yes, radiation has an affect on implants. Yes, I think it likely causes secondary cancers like small cell lung cancer. Can you explain what you mean by “DIEP flap primarily for lymphatic and seroma drainage” though? I’m not clear and how those two would even be related. And what is the reason for the proposal of “removing all skin from mid shoulder blade, across chest, to mid shoulder blade?” I have never heard of such a thing? Where would that skin be going? Have you considered “going flat” after explant? Please search my name in the search bar of Nicole’s Fb group “Breast Implant Illness and Healing by Nicole” and on Fb to read my public posts about implants and reconstruction. Please also consider joining a group I started specifically for breast cancer survivors explanting called “Fierce, Flat, Forward.” Best of luck to you going forward and please feel free to reach out to me with any questions.
      ~Christy Avila

      Reply
  5. Bonnie

    Newbie here! I joined your facebook group, but cannot find a place to post my questions, can only comment on others.

    Reply
    1. admin Post author

      Hi Bonnie,
      Make sure you are inside the group and go to the top of the wall and you will find a place to post.

      Reply
  6. Susan Clanton

    For people with varying degrees of the MTHFR gene mutations, there can be a significant difference between the tolerance of synthetic folic acid and natural folate. Dr Ben Lynch does a good job of explaining these differences in his website. It’s worth reading up on and having yourself tested.

    Reply
  7. Tracy Nesom

    Hi
    Thank you so much for all this info!!! Is there any funding resources that you are aware of in Canada? It looks like there are some doctors that do the removal in Vancouver but can cost up to $8000 and then Im left empty breasts.

    Thank you so much

    Reply
    1. admin Post author

      Hi Tracy,
      You may be able to be explanted on your provincial health care and generally the reasons health care would cover you for explant are due to a rupture, bad capsular contracture, pain or infection/necrosis. Other than health care there are currently no funds that pay for explant in Canada or elsewhere.

      Reply
  8. Liz B

    Sorry if it’s outlined in an obvious area on your webpage, but could you kindly point me in the direction of where I could find a list of questions to ask an en bloc surgeon tomorrow during my consult? I’m still so new to the explant world but have suffered severely in cognitive decline over the years – exponentially I would say. Resorting to taking CNS medications that I don’t believe in but have been desperate to get my cognition back. I’m unable to think clearly, make decisions like I used to, I get lost often (very unlike me), and am constantly forgetting things, mixing my words up to the point of embarrassment. In addition, I have to wear a bra 24/7 bc my implants are so beyond uncomfortable that when they are unsupported, they fall to the sides and pull on my tissue/muscles. My hair is thinning with bald patches interspersed along my hairline. I just want me back and these implants the hell out me. Oh yes, and the woman I spoke with on the phone at the surgeon’s office said that I’m required to get a mammogram. That just seems odd to me. Is that common prior to explanting? Thank you

    Reply
      1. Sandra

        Hi Liz- my name is Sandra and I’m going through the same cognitive issues as you!! Among many others and the one that’s affected me the most is thinking clearly and making decisions. I just found out I have the MTHFR mutation which makes things worse. Please let me know if you find any other easer. I feel better knowing I’m not alone in this.

        Reply
  9. Sol

    Hi, i´m from Argentina. Thanks so much for this information, i didn´t know anything about this. I have to explant my implants and i
    I find myself disoriented, so thats why i´m reading here. I will really apreciatte if you can email me with advice . Is there the possibility of economic help?

    Reply
  10. Nad

    Hello Nicole, I have saline breast implants since 2012 and I want to remove them as soon as possible, the problem it’s because I’m 3 months pregnant. I started to feel pains muscle and spams in 2014. The doctors did me some tests but they
    nothing found. I also did an IRN because of the spams, but there was nothing unusual.
    Then I started having food intolerance, difficult digestion.I consulted a gastroenterologist. After doing tests, he told me that I had a ulcerative colitis. Since then, I take anti-inflammatory. I feel taken
    traps with this baby in my belly. I’m really scared it’s going to make an impact on my baby . I could not breastfeed this baby. Do I keep this baby while taking the risk of waiting to give birth? Do you have any advice to give me?

    Reply
    1. admin Post author

      Hi Nad,
      Please stay calm. You have saline implants from 2012 and you should be okay to proceed with your pregnancy and breastfeed and then after you wean your child then you can explant your breast implants properly which means En Bloc/Total Capsulectomy. Saline are the least toxic breast implants.

      Reply