WELCOME TO HEALING BREAST IMPLANT ILLNESS

 

This site was created because it is the information I wished was concisely available to me while identifying and recovering from my own long term breast implant illness.  Experience is the foundation of wisdom and may the words of this site benefit you.  Please be advised I am not a medical or legal professional and this website is in no way medical or legal advice (please see LEGAL for complete website disclaimer information).  It does not take a medical degree to understand that two large bags of toxic chemicals implanted in the chest leaking over crucial organs and glands will cause profound illness in our bodies.   Please be advised that this website is protected under copyright law.  It cannot be copied, distributed or exhibited in whole or part without permission.

The focus of this website is not about proving how unsafe breast implants are but rest assured all the information and more than you want to know including the science is here in BREAST IMPLANT SAFETY .  Unfortunately, no matter how much information comes to light about the negative health consequences of breast implants, manufacturers and plastic surgeons are still peddling breasts implants as safe.  There will be many cases of breast implant illness in the future.

The focus of this website is on the timely identification of breast implant illness and then guiding you toward steps whereby you can hopefully recover your health.  The body, when treated well, has an amazing healing and regenerative capacity.  Trust in your body’s ability to heal. 

It is not a matter of if you will get sick, it is a matter of when you will get sick, as breast implants cause endocrine and immune system dysfunction and steadily deteriorate in your body since the first day of implantation and silicone particles and toxic chemicals and heavy metals in the silicone interact with your body tissues, glands and organs.  All types of breast implants cause illness, none are safe and especially not the cohesive gel implants which contain very aggressive chemicals and heavy metals.  How do breast implants cause illness?  What is silicone toxicity?  What are the symptoms of breast implant illness? Please see BREAST IMPLANT SYMPTOMS .  I  had many of these symptoms and women who have breast implant illness have these types of symptoms and perhaps others depending on the progression of the illness and the type of implants they have.

Unfortunately, you will not get help identifying breast implant illness from your doctor and especially not from your plastic surgeon.  This illness is not acknowledged by the medical community yet.  In fact, the medical community clings to the false belief that silicone and breast implants are safe.  Your plastic surgeon may even deny breast implants cause illness or refute your symptoms in order to avoid liability.  Mine did. Plastic surgery is big business built on silicone and breast implants are their greatest source of revenue.  Plastic surgeons will refuse to admit that breast implants are unsafe and will actively refute the truth in order to protect their cash cow.

Many women suffering from breast implant illness are misdiagnosed with other diseases that have similar symptoms and have been repeatedly told their breast implants are not causing their symptoms.  Some women will go on to develop serious diseases and may even die because their breast implants are not removed in time.  Don’t waste your precious time on misdiagnoses. Time is of the essence to your health.   You know what is right for you. Your body is telling you that the implants and the toxic chemicals in silicone are poisoning you.  Trust your inner wisdom. 

After identification of symptoms of breast implant illness, the next and most important step is timely and proper Explantation (removal).  Check out EXPLANT which goes into details you need to know.  Proper removal of your breast implants as quickly as possible is the most important step to your recovery.  Breast implants should be removed En Bloc (in a manner which does not contaminate you) and with a Total Capsulectomy (remove all capsule tissue).   You may hear differently from your plastic surgeon.  He may attempt to talk you out of removal and instead suggest replacement or a different kind of implant because he wants to make more money.  He may delay or refuse booking a removal.  Mine did.  He may tell you that a Total Capsulectomy is not necessary.  Mine did.  Do not believe this, in fact, we suggest not going to your original plastic surgeon for removal unless he readily acknowledges breast implant illness, silicone toxicity and insists on a Total Capsulectomy and is experienced at removing implants En Bloc. Here is a list of world wide plastic surgeons which are known to explant breast implants properly EXPLANT SURGEONS.

After proper explantation of breast implants, the next step is a clean, nourishing diet that supports detoxification of chemicals and heavy metals and elimination of bacteria, fungi, viruses, parasites in your body.  Because breast implants significantly impair the immune system certain opportunistic organisms such as bacteria, fungi, viruses and parasites can take hold and without elimination of the overgrowth of these organisms many women will continue to have symptoms after explantation.  Please see DETOXIFICATION for steps and suggestions to assist your detoxification process.

Thousands of ladies have breast implant illness and as such we created a Facebook support group Breast Implant Illness and Healing By Nicole where you can chat with 20,000 other ladies who have been through the same symptoms, finding a surgeon, surgery, recovery, detoxification and healing.  Or you can click the Facebook button at the end of any page of this website which will also take you directly to the support group.

Under RESOURCES we have compiled other supports and information which will assist and contribute to healing breast implant illness.  Step by step you can heal.  

There is breaking news in regard to breast implant litigation, please go here to BREAST IMPLANT LAWSUITS, lawsuits have been filed against Mentor Worldwide LLC due to illness caused by their silicone breast implants.

In March 2017, the FDA finally issued a warning confirming that breast implants cause BIA-ALCL cancer which is not breast cancer but rather a cancer of the immune system.  For important information on BIA-ALCL symptoms and detection please go here to BIA-ALCL BREAST IMPLANT ASSOCIATED LYMPHOMA.

Contrary to the current misconceptions about ease and safety of breast feeding with breast implants please go here to BREAST FEEDING WITH IMPLANTS which shows implants are impractical and destructive for mother and child in regard to breast feeding.

We welcome your comments and questions via the contact form below or directly to info@healingbreastimplantillness.com.  There is no need to login to leave a comment or question on this site.  Recent comments, after approved, appear first. Most questions  will receive a reply.  Best wishes in your recovery,

Nicole

 

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814 thoughts on “WELCOME TO HEALING BREAST IMPLANT ILLNESS

  1. Elizabeth

    Hello, I had textures mentor silicone implants placed 6 months ago. I’m experiencing throat clearing, pain in one shoulder, ringing in one ear, and anxiety which I’ve never experienced before. I believe these symptoms could be due To toxcicity from the implants but I don’t believe I’m ruptured. I go for explant next month as I haven’t felt well since I got the implants. A few questions.

    How important is en blok for me? My surgeon is willing to do a complete capsualectomy with the exception of having to leave some of Capsual due to it being suck to ribs. She said she can “vigorously” scrape any capsule left to try and break it down. Is that a good idea or should I just have her leave that tissue alone and let my body absorb it? Do my symptoms seem to be more related to toxcicity rather than silicone since I shouldn’t be ruptured?

    Reply
    1. admin Post author

      Hi Elizabeth,
      En Bloc/Total Capsulectomy is very important for you because you have textured implants and absolutely all capsule tissue should be removed. Please choose a surgeon skilled and dedicated to removing all capsule tissue as we know this correlates with healing.

      Reply
  2. Jennifer

    I live in California. I am being told that you legally can’t get the encapsulated scar tissue back, only the implant. Is this true? The Dr. said the medical system won’t let them give it to me. They can only
    give me the implant. They did say they would take pictures of it.
    -Jennifer

    Reply
    1. admin Post author

      Hi Jennifer,
      Your capsules should be sent to pathology after explant for testing and from there you should be able to have them returned to you.

      Reply
  3. NinaDuong

    Fortunately, I found this site. I applied to join the group on facebook with the desire to learn and plan to remove it. And I want to bring useful information to the people around me who are intending to lift the chest. May you accept me into the group. Thanks

    Reply
  4. Vicki

    I had a Bi-lateral Subcutaneous Mastectomy in 1986. I was told that my doctor did not use silicone, so I felt that my implants were “safe”. One year after my implants were inserted into my body, my whole immune system broke down, and I did not know why. Going from doctor to doctor, finally a doctor told me that I had systemic candida from all the antibiotics that I had been taking for years and years for my respiratory issues., I bought the diagnosis and tried to move on.

    In 1994, I noticed a large bulge right by my left arm pit and became very concerned. I called my plastic surgeon and then he met him at the hospital. My plastic surgeon did an Ultrasound and said that my left breast implant had ruptured! I then found out that I had the Double Lumen Implant (second worst implant on the market at the time!) which had silicone and saline bags in each breast! YIKES! I had both breast implants removed in 1994 and did not get another set!

    I have been going to alternative doctors since 1987 and doing detox. Ever since the end of May 2017, I have been going through the most intense detox I have ever been through in my life with the silicone and saline pouring out of my body! I will be getting more lab tests done in a couple of weeks along with silicone testing to see where my numbers are NOW!

    I would like to hear from women who are going through detox to support each other through the detox to recovery. My e-mail address is :
    azcelene@gmail.com

    Thanks!

    Vicki

    Reply
  5. Ashley Gostkowski

    Hi! I’ve had my implants for 12 years and have been thinking to remove them since I had my baby last Sept. And I’m still breastfeeding him. Does anyone know if this could be affecting my baby too? I had an mri done a month ago and they said no leakage

    Reply
  6. Teresa

    Has anyone been to Dr. James Butterworth in Kansas City for explant? He’s listed here but I can’t find any reviews for him anywhere, and he’s not even listed on Real Self, at all. Thank you!

    Reply
  7. Linda white

    This site is amazing. I been Have most of this issues stated but non of my doctors have even subjected it could be my implants. They are twenty years old and the problems started about twelve years ago.
    I have asked to join the Facebook group and I am calling my doctor in the morning.
    Thanks so much

    Reply
  8. Jess

    Hi Nicole, I am so glad I found this website, so thank you. Having had Textured Silicone implants for 16 yrs, I now realise the symptoms I have are most defiantly related. I have requested to join the Facebook group as I need to understand as much as possible what I might be facing. I set up a specific Facebook Account to join your group, but I fear as there is no history on it that you may decline my request. I can email you details such as my original Implant Operation notes, my Instagram account etc. Please can you email me when you get a chance. I am in Ireland, so I am really looking to connect with other people close to me. I fear my choices of en bloc surgeons will be limited due to my location. Previously had MRI to check for MS (Came back clear), Nerve Conduction Test (came back clear), Chest X-ray, courses of Antibiotics, swollen Lymph nodes groin and chest for a long time and still, fatigue, tinnitus, chest infections, pain in ribs (front and back), strange sensation in upper back every day, Psorisis, cold sores, sore throat……currently waiting on more blood work results for Celiac, Thyroid etc.

    Many Thanks
    Jess

    Reply
  9. Aj

    Hi. I had my BA a year 1/2 ago. I originally wanted saline, but my surgeon pushed me to get the gummy bear implants due to low scar tissue from breast feeding 3 kids. Ever since my surgery iv been experiancing major health concerns. I started getting calcified stones in the back of my throat around my tonsils (never had b4 in my life) i can taste metal in my mouth when i know theyre there. I now clean them out once a week. Severe night sweats, fungal inflections on my face, inflammed lymph nodes all along my throat, rashes on chest/back/arms, Nasty body oder, fatigue, no sex drive, head n neck pain, discolored circles are appearing on my left boob, pain on certain parts of my boib i cant touch, hair loss and worst suicidal thoughts! Im not me!!!!! I gad just went to my ob and ge even said something was going on just be looking at my skin! Hes been my ob for 17yrs and i trust him with my life!! I was referred to another surgeon which i see nov 20th. I know my body and my health and i know these toxic death traps are causing all my issues. Im just hoping this other sugeon will hopefully find something or know that these too are causing my ailments. My ob thinks it maybe an allergic reaction?? But when your doctor look at you and with the face of concer asks “why you went with silicone/gummy because most surgeons dont go near those kind in our area due to the issues they cause” makes me even more scared/ and concerned for what i potentially done to my body!! I was never warned or told when i was in consultaion, just asked if i googled them!! And was told they were 100% safe. I went back to my surgeon 10 months after w/ server pain and was told its part of the healing process. He sent me for a mammogram, i was told that was fine. My
    incision area is still not healed, bright red/pink to this day!! F***er just wanted get my money so he could open is “wellness” center!!!!!!!!!!!

    Reply
    1. admin Post author

      Hi Aj,
      Read every page of this website and it will give you all the information you need to explant those toxic bags properly and heal. It is early and you are catching this quickly and will heal quickly once the implants and the capsule tissue are removed. We live and learn <3

      Reply
  10. Claire Newby Comnick

    I’ve had my implants for a little over 2 years with complications with the left one. The left has been replaced 3 times. At the start of this journey not one person warned me about the toxic materials in implants. I’ve not been healthy for such a long time. I’m getting my explant December 15th. In just the past 48 hours I’ve learned so much. Soon I will be 100% me.

    Reply
  11. Wendy Carter

    I’ve had Kaiser for 25 yrs and they have never checked me for any of these diseases. How can I find out if I have hashimoto, fibromyalgia and these other issues? So far I have been diagnosed with chronic depression, gerd, ibs, unexplained weight gain, hair loss, joint pain, degenerative disc disease, herniated discs, bulging discs, arthritis, anxiety disorder, night sweats(now fully post menopausal) and deep chronic depression. My endocrinologist cannot find out what is causing my symptoms. She says I need more estrogen and sends me on my way. It’s not helping. I have an appt with her Dec 3rd. I am going to ask her point blank if it could be my implants and I will be recording this conversation. Anyone have suggestions on questions I should ask her?

    Reply
    1. Missy

      Wendy, I have many similar symptoms! I have 11 year old saline implants. Do you also have blurry or farsighted vision? I have nausea and reflux even though I’ve been on a prescription grade antacid for over a year! I’m currently on 2 antidepressants to combat the crippling anxiety and terrible depression. I am a fitness trainer so I workout regularly and eat a healthy diet. I’m only 39 but I feel like I’m 79! Joint pain and full on tendinitis in both elbows.

      Reply
  12. Karen Johnson

    Hi,
    I had a double mastectomy with reconstructive surgery two years ago. I opted for the “gummy bear” implants.
    Ever since I got these implants I have been sick. I have chronic fatigue, migraines/headaches, joint swelling and pain, insomnia, food sensitivities and more.
    Kaiser told me that it could not be because of the implants. My doctor felt that it was a psychological issue and put me on anti-depressants, anti-anxiety medication,
    pain medication and sleeping pills.
    I decided to go to an integrative doctor outside of Kaiser. He helped me get off all the medication. He diagnosed me with candida, Epstein Barr, Adrenal fatigue and Thyroid issues. I was able to get some relief, but, I am still ill and often unable to get out of bed.
    I used to be a very active person. Even through chemo I was able to ride my horses and workout. That has not been the case since my implant surgery.
    I’m not sure what to do now. I don’t think Kaiser will cover having my implants removed.
    I would appreciate any suggestions you have.
    Thank You

    Reply
    1. admin Post author

      Hi Karen,
      Your integrative doctor was very good as those issues he treated you for are common issues to ladies with breast implant illness. Go back to your integrative doctor and bring the website and ask him to recommend that your implants be removed. Gummy bear implants are very toxic to us as the chemicals and heavy metals they use to make the silicone gel cohesive are very aggressive and toxic to us. Also your insurance is required to pay to remove your implants. The medically approved reasons to remove implants are capsular contracture, rupture, pain and infection necrosis. I would approach on pain and infection (the candida infection). The reason that silicone implants cause systemic yeast and Candida are because the silicone chemicals damage our Thymus gland (located right between the implants) and so we have immune deficits in T-cells which control yeast int the body.

      Reply
  13. ashley

    I am desperate for some answers as to what is going on with my health. It’s causing me to become depressed and not who I normally am because I have been to so many doctors and specialists with them being concerned with everything from MS to the most recent “diagnosis” of diabetes (only based on having high glucose levels) and fibromyalgia. No doctor will even acknowledge breast implant illness and in fact I’ve been told that im just having anxiety attacks which at 31 years old would be an odd time to start having anxiety. I have had my silicone gel “gummy bear” implants for 10 years now and for the past 2 months I have been extremely sick. My symptoms include extreme joint pain, dizziness at times, anxiety (now bc I’m in pain) muscle spasms all over my body all day long, my hair is falling out more than the normal few strands on a brush, I’m weak and I do notice a difference in my implants. One feels very rippled not noticeable when you look but I’m told that gel doesn’t always migrate outside of the implant even if their is a leak. I feel like every dr tells me either it’s in my head or I have an auto immune disease but they just can’t seem to pin point which one. My mri and cat scans of my head were normal so no MS. Does this sound at all like BII??

    Reply
    1. admin Post author

      Hi Ashley,
      Please start planning your proper explant instead of wasting time on diagnoses and watching your health decline further.

      Reply
  14. Vanessa Park

    Hi i have saline and live in the uk.no on is linking my cfs and all the other symptoms to my inplants but me. Iv been trying to have them removed for a year now but through an ultra sound they tell me they are not leaking they are rippled thats why they swell and give me pain. And if saline leaks in ur body its safe. Are there others out ther with saline and health isues?

    Reply
    1. admin Post author

      Hi Vanessa,
      Saline breast implants cause all the same symptoms as silicone. I suggest you use pain as a symptom, pain of the breast, chest, neck, shoulders and back. Be relentless with expressing your pain to them so they put you on the list to explant. They have a mandate to get rid of pain in the all medical systems and they will respond to pain on the same level as a rupture.

      Reply
  15. Annette

    Very interesting article! Thank you…..I am having my 20 year old implants removed in 8 weeks. I was NEVER happy with them. They are saline implants. Is there
    a toxic problem with saline implants as well?

    Reply
    1. admin Post author

      Hi Annette,
      The shells of saline implants are silicone too and so yes are also toxic. In addition to the chemicals and heavy metals of silicone, saline have a port for the fill valve and this port can collect human fluids and tissue and colonize mold in the port which produces nasty biotoxins which are toxic to you and can cause a cascase of inflammatory symptoms.

      Reply
  16. Selena Bina

    I have Saline Implants, and I am ill. Last Friday, I had a doctor run most of these tests and today, they came back normal. I am still ill, and my eyes are swollen with blue marks under them. My lymph nodes are sore, and I have constant headaches. I am frustrated and don’t know what to do at this point as I haven’t enough money to get the implants removed. I am greatful to have found this website and also to know that I am not crazy or stressed.

    Reply
  17. Joanne Pilling

    Iam so glad I have come across this site i have been troubled with most of the symptoms i have read on here depression fatigue thyroid throat cramps muscle pain its been so bad for so long i think people think it’s in my head I have no energy what so ever and been on so many different pain killers its untrue all these hundreds of trips to the doctor wouldnt you think someone would realize something is wrong! Well back to the doctors i go with this list

    Reply
  18. Susan Garner

    I’m new to this group and so far am only seeing mention of silicone – mine is saline. Where can I find the most updated information on saline implants?
    Thank you so much. Susan.

    Reply
    1. admin Post author

      Hi Susan,
      The information of the website and the group is for both saline and silicone implants, the shell of saline is silicone and both types of implants cause these symptoms.

      Reply
  19. Cristin

    Hi Nicole,
    I just sent a friend request to you. I am brand new to facebook, and I hope I can join the support group because I need and want to have my implants removed. I would very much like these other ladies’ opinions and experiences with their surgeons.
    Cristin

    Reply
  20. Ann Narry

    I had a rupture in my silicone implants in 2014 . I had them removed removered and was told that they were silicone. I have health problems , no one seems
    to want to talk to me in regards to the implants. I have been to several doctors.

    Reply
    1. admin Post author

      Hi Ann,
      When you explanted your silicone breast implant in 2014, were the capsules (scar tissue that grows around the implants) removed too. From our experiences we know that in order to heal completely all the capsule tissue should be removed too because it is full of biofilms of bacteria/fungus, silicone particulate, silicone chemicals and heavy metals and it’s prescence continues to stimulate the immune/autoimmune response in the body and symptoms will continue if your capsule is left inside you. All explant should include removing all capsule tissue. Consult with your explant surgeon to ensure that your capsules were removed and even request a copy of your explant operative report to find out exactly what was done during your explant. Also ask about how much silicone contaminated your chest cavity and how it was cleaned out? Ladies that have been contaminated with silicone find Low Dose Naltrexone helpful in dealing with symptoms from silicone. Also supplements such as Glutathione, Alpha Lipoic Acid and NAC can be used to assist detox of silicone. Dr. Shanklin did studies that showed high levels of Inositol caused silicate to be excreted in urine and so Inositol can be used to detox silicone as well.

      Reply
  21. Susan Bazzell MD

    Hello Nicole, and thank you so much for including us (The Raad Taki Plastic Surgery Center) as a referenced explant center on your informative and well-composed website. Dr. Taki has developed a fact sheet which includes answers to your recommended questions for explant surgeons, and I have included a portion with answers to the anesthesia questions, if you are at all interested in including it on your site as a PDF next to Dr. Taki’s contact information. We are also collecting data from our explant patients related to chronic localized or systemic fungal infections that were present and treated while implants were in place.

    If at all possible, would you be willing to update your stated cost of explant at our center? It is listed as $2600 but that is incorrect. The actual price is $4000.

    Thank you so much,
    Dr. Susan Bazzell
    Anesthesiologist
    Raad Taki Plastic Surgery Center P.C.
    bazzell@takiplasticsurgery.com
    Tucson, AZ

    Reply
  22. Heather

    Please help.. Anyone in the New Jersey area have any recommendations on plastic surgeons? Looking to get explant and worried they won’t take all the skin around the implants out correctly. I’ll even go to PA I just want this done right.

    Reply
    1. Heather

      Also I am trying to call around and see who does the en bloc and so far they are saying they are not allowed to return e implant… I am so confused. I know that you suggest dr Brian Buinewicz and he returns the implants but he doesn’t have good reviews and i am nervous about that obviously..

      Reply
  23. nico

    hi,Nicole i am hoping to learn from other women about the dangers of implants.
    i had a bilateral implants put in in 2008 after breast cancer

    Reply
  24. Halina

    Hi Nicole. I have 19 yo ruptured breast implants. This is the second lot of implants that have ruptured. Has anyone in this same situation had success in having an enbloc/total capsulectomy? I am anxious that silicone will spread & further leak to my organs. I have had two consults with PS’s & am seeing another on Wednesday. I would appreciate any feedback. Thank you for your support and knowledge which has helped thousands of women. ❤

    Reply
    1. admin Post author

      Hi Halina,
      Those implants have to be removed asap. Lots of implants that ruptured are removed En Bloc. Please choose a surgeon that is skilled at En Bloc explants.

      Reply
  25. Chris

    Hello Nichole,
    Is there any way to connect with the Facebook community without having this information be public? I do not have a Facebook account but my sister does. She is very worried about the privacy issue if we use her account. I would be willing to open one but then my account would be too new and not have enough history. Both of us are going to have explant surgery soon and would like to know these other ladies’ opinions.
    Thank you so much,
    Chris

    Reply
  26. Kim murphy

    Hi
    I did not know about getting the capsules out when i had my implants removed a week ago. Just found this site today. I had them in for 20 years and have RA and hashimotos which im sure was caused by implants. Now im wondering if there is anything i could do now.

    Reply
  27. Arthur E. Brawer, M.D.

    The latest peer-reviewed manuscript concerning silicone gel-filled breast implants was published on September 5, 2017. To access it, google the journal “International Annals of Medicine” – this is an open access journal, and the PDF article can be downloaded without cost. The title of the article is “Mechanisms of Breast Implant Toxicity: Will the Real Ringmaster Please Stand Up.”

    Reply
  28. Wendy

    Nicole, please, how can i tolerate anesthesia and pain meds? Desperately need explant surgery, asap., I litterally can not tolerate any meds, supplements, etc ?

    Reply
  29. Michael O'Sullivan

    Hi Nicole, I wanted to say thank you for making this information available. I am writing for my wife who is Chinese; to ask if you are aware of any means (other than Google translator or other translating apps) to get the information available in languages other than English.

    Reply
  30. LILLIAN Kramer

    Yes I too need to find a Dr. Surgeon, Here in San Diego, Ca. not afraid of losing his license, to extract my implant, that is causing severe MS Type symptoms, now having to use a walker for mobility. Restless leg syndrome nightly with constant leg muscle pain, keeps me awake. Taking Tylenol 3 with Codeine, for pain, for years. ..ORIGINAL DOW IMPLANT “TRUST” ADDRESS…LEADS NOWHERE FOR PAST 15 yrs. for patients, might be a connected scam” address for Dow Chemical.? Thank You for this Web Site* and its comments.. Maybe now we LADIES will get action from a sincere trusted Legal Professional Organization that is not scamming $ off the top, while patients have died waiting for their proceeds and settlement $$ to come threw. Lillian. 8/31/17

    Reply
  31. Veronica M. Earnest

    OMG! I Have this! Iv have had two sets and the first were Mentor, Ruptured, and replaced. I’ve been sick ever since. I have a appt. tomorrow but ‘am very nervous as this office is the same office that put them in. Different doctor but, same office. I’m going to ask for a second opinion. I am so Overwhelmed! 12 years Iv been struggling, And there is no legal recourse for me. Good Lord. This is so Sad. My Life and body disfigured for ever. Wow….

    Reply
  32. Michelle

    Update on breast explant on July 28 – 2016. I received my pathology report back recently which states – benign fibrous wall capsule with focal multinucleated foreign body giant cell reaction . Was wondering if u could explain this diagnosis to me. My plastic surgeon doesn’t believe in breast implant illness – he just read the diagnosis matter a fact ly but didn’t explain any further . My husband looked up the diagnosis and said that it meant inflammation which is where I had many health issues of pain – on the right side of my body. I was hoping to find some answers on the net but didn’t really find much . Thanks so much

    Reply
    1. admin Post author

      Hi Michelle,
      I would contact your surgeon and phone the pathology lab that did the report and ask them to explain it to you. From my research it does mean inflammation which is common from breast implants.

      Reply
  33. Teresa

    Thank you so much for all great information! I am explanting with Dr. Barnett January 24, 2017 and am really looking forward to it!

    Reply
  34. Rhonda Haynes

    Just now reading about this. I have had a lot of these symptoms. I’m not sure what I can do at this time but I’m definitely checking into getting my implants removed.

    Reply
  35. Yvonne villagran

    Hi I just want to let you know my symptoms and could it be my implants.? Had them in about 5 years or 6 I have head pressure vision disturbance numbness tingling in hands when asleep my legs seems like tiny patches of white coloring severe fatigue my nose is always stuffy chest sounds raspy like there is congestion in there sometimes a feeling of burning anxiety has gone high always had it but became worst I feel doomed My left breast always in pain goes down to my arm and armpit sometimes but my left breast always hurts I scare myself and think it’s cancer what could be causing all this my implants? What are this symptoms? I live in Los Angeles anything near me if I want to remove them where do I start? Thank you so much🙏🏻

    Reply
  36. Heather Storer

    Can you recommend an explant surgeon in Cape Town South Africa?
    Thank your website and Facebook page!

    Reply
  37. abigail

    Hi Nicole, I was wondering if you could email me the list of surgeons in the UK that are recommended for ex plant surgery I don’t have a Facebook account so unable to get it from that group.
    Many Thanks
    Abigail

    Reply
  38. Bridgett

    Need help or support wth having ruptured implant removed and also removing one that isnt ruptured cause ive been having alot of lupus symptoms and being really really sick…need advice please

    Reply
  39. Sheryl Culwell Gilreath

    I would love to have all information on symptoms that are or could be related to silicone breast plants.

    Reply
  40. Yolanda Patiniotis

    Forgot to mention…your FB is so informative and encouraging!! Thank you… I spend all my free time reading comments about how these damn things made us sick. Even though I’m quite shy… if I have them removed and feel better… I will proudly post it all on the page.. to warn women against BA. Specially young women …my own daughter wanted it done until she read your webpage and scrolled though the comments.

    Reply
  41. Yolanda Patiniotis

    Hi. I have joined your FB page…thank you for accepting me and sit here astonished at the amount of women that explant. I didn’t know of its existence until a few weeks ago. I had silicone implants put in over 22 years ago. Since then, I have been constantly sick, and diagnosed with possible MS.. and definitely Fibromayalgia, rhaynards and the latest addition other than migraines, sever asthma. I am from South Africa, and went to see one of the two doctors you recommended on your list. I was expecting her to say I will feel better and yes I do have BII…but she was very vague but did insist that they must be removed. Further to that she didn’t suggest another set of implants or a lift ( however my best friend who also wants to explant that went with me, was told that she will replace the silicone with saline) This confused both of us and left us quite confused. I’m so uncertain as to what to do. I want to be healthy that I do know. But if the implants don’t leak, or have a don’t have tear.. do they still toxify us.. the words enbloc and capsulectomy wasn’t mentioned and I don’t understand the importance of it. She did mention the capsule but would only remove if it is damaged.? I am..as I’m typing this, sick with bronchitis for the 3rd time in two months …an ongoing situation in my life, I had to quit excercise because of the asthma and is in constant permanent pain. If there is a remote remote chance that I will be better if I have these implants removed I will do it immediately…I’m desperate.. I have quite a high profile job, and the ever exhaustion is affecting my work more and more over the years. Any advice would help please. I didn’t want to post this on the FB page for privacy reasons only. Have you had any ladies contact you from South Africa? Seems mostly from the USA.?

    Reply
        1. admin Post author

          Hi Yolanda,
          Implants don’t need to be leaking or ruptured to tox us. Silicone implants microscopically leak from very early on through a process called Lipolysis. Many implants are well leaking by 6 to 8 years. Not sure why she (surgeon) recommended to replace with saline to your friend, perhaps she felt that your friend did not have symptoms or illness from implants like you and did not want to do without implants and so recommended replacing with saline. Both silicone and saline implants cause symptoms and illness. Replacing silicone with saline won’t make your symptoms go away. Your explant must be En Bloc/Total Capsulectomy so choose a surgeon that is knowledgeable and skilled at removing implants this way and is committed to removing all the capsule tissue from your chest. Removing capsules correlates with recovery. You will regain your health with a proper explant, detoxing and time to heal.

          Reply
    1. Postal canary

      So sorry u r struggling.
      I have never understood changing the filling of the implant. If it’s silicone or saline. Either way, the implant itself is made of SILICONE!! It’s still in our body’s. It seems just the implant material itself is problematic. But I never see that mentioned.
      U might want to check ur home for mold. If u can afford one, a good airpurifer that u can roll from room to room would be very helpful as far as ur lungs go. Even help with feeling SPACY.
      Lots of people that have this breast implant issues also develop chemical sensitivity to everyday chemicals. Cleaning products perfume body gels and lotions laundry soaps make up. It’s not the smell it the chemicals that can make u feel really sick.
      One minute u might be ok. Then ur not. Ur kind of dizzy, ur eyes and face maybe burn.
      Ur muscles can start cramping. U may even feel instantly HUNGRY or just sick.
      Look around. See what changed in the last 20 mins. . Did someone walk into the room? Did u hug someone? Is a delivery truck idling outside? Look for patterns.
      R u more stuffed up in one room than another? Watch ur dairy intake. Dairy creates mucus.
      I now have Chem sensitivity, if I just sit in a chair that had someone sitting in it yesterday, that wore lotion or perfumes or used scented dryer sheets I get so sick.
      It transfers from their clothes to the chair to me. It’s miserable.
      Makes just going to the drs office miserable.

      Reply
  42. Rose Rees

    Nicole, thank you for your reply. I can look back now and understand why I was foaming at the mouth. For weeks, I had trouble speaking. Choking and foam kept coming out of my mouth. I would put a Kleenex to my mouth and see the foam in tact. I also would spit out foam into a glass. It was horrible. Now I know the implants caused this. I had no idea. My nipples both leaked out white clear fluid and my dr dismissed it as no big deal. I trusted my dr and he kept me on meds, more appts, more specialists, more tests……all the time implants were to blame. He knew…..now I know better. I am petrified of what Dr. MArtin Giuffre, plastic surgeon will tell me tomorrow. Sure hope he will set implant removal date. He has my implant info from April 29, 1982. Dr David Campbell was my original surgeon who is now retired – they worked together. It’s hard to find an explant surgeon. Educating myself has left me fearful of medical people. BII is new to me. Found your site 6 months ago. I was told implants were good for life, so I never thought twice about it. The 2 motor vehicle accidents in the last year have left me at a disadvantage. They collided into my vehicle both times. It was then, that I paid attention to my breast area, I felt that my left side had ruptured and my right implant was hard. Physio and chiro made me aware of the pain, my chest area is a 10 for pain…….. I am on overload. The mva took vision away from right eye and I am waiting for surgery – I would attempt to see Dr. FEng or Dr. Chun if I did not have to deal with that. I am blessed to have found you. Nicole thank you for all you do and for being there. You are an angel sent to me. I hope I get through explant safely and am able to tell you all about it. At age 65, I wonder how much more this body can take. Sending love and hugs. ❤️

    Reply
  43. Elinor Mcauley

    Hi, I just came across your site as was searching for implant allergies, I have mine some 5 years ago and seemed to be fine, however after 4 years of going to the doctor with chest infections, breathing difficulties, sharp stabbing pain in my breasts and in my head, tight chest-which they put down to anxiety, dysphagia, dizzy spells, IBS, pins and needles, my face sometimes feels numb on one side, diabetes type II or “supposedly” as the doctors say, I get large hives all over and most days I am literally exhausted and cannot think straight, much of the time i slur my words and even forget them. I have had so many tests over the last 4 years and again they put it down to anxiety because they cannot find anything wrong with me, blood is fine, a recent sputum test indicated that I was coughing up something nasty but they do now know what it is as my chest x ray looks clear. I am at wits end because there is nothing else it can be and it all started certainly within one year of having the implants. I am currently depressed and yes I do have anxiety but imho it is because i just feel so unwell all the time, I may have one day where I am not too bad. Can all this be because of my implants?

    Reply
    1. admin Post author

      Hi Elinor,
      Yes all your symptoms can be from your implants and are very common symptoms from implants. Please seek a proper En Bloc/Total Capsulectomy explant and start your recovery and healing.

      Reply
  44. Margret "Marte" Simpson

    Hi this is in reference to the CA group I lived in CA, had my surgery in Santa Barbara, CA & am considering having consultation with Dr Chun. My after care is being considered as have family & friends in CA who may be better at this than our 2 adult sons here in NV, husband working in NY & would not be available & i’d be home alone.

    Reply
  45. Bonnie

    I have lupus, arthrtis symptoms, hair loss, fybromyalgia numbness in my face, pins & needles in my feet & hands chronic fatigue & raging headaches all brought on by now i knpw my implants 😠

    Reply
  46. Bonnie

    Thankyou for the info i have had implants for 11yrs now & been ill for the most of that but never put it down to them untill now now i just want them out! I have an appointment at a local private hospital next thursday the 10th august 2017 & i have found what you have said about having the capsules out informative i didnt know that bit do now thankyou

    Reply
  47. Yvette Clary

    Dear Nicole…
    Please help me…I’m not sure what happened. I submitted a request to join your BI healing FB group and was accepted. Posted for recommendations in my local area and also joined Dr. Chun’s explant group to help me understand this journey better. But now I am unable to access your FB page and I don’t know why…😥

    Reply
    1. admin Post author

      Hi Yvette,
      Your profile is sparse and has no personal pics with comments on and so you were removed. Can you add a photo so we can see who you are. We have an approval process and we must be able to ensure you are who you say you are.

      Reply
      1. Yvette Clary

        Hi Nicole…Thank you so much for responding to my post. I’m so sorry you weren’t able to learn more about me from my recent FB posts. Sometimes I get so busy as a nurse and life’s challenges overwhelm me that I tend to just stick to more inspiring posts rather than personal ones. But today, in response to your request, I added some memorable moments of my life to my timeline so that you might consider reauthorizing my access to what has been one of the most resourceful and helpful FB sites to me at this time in my life. I’ve truly missed all the encouragement I have found on your site and the very insightful posts from those who are walking this journey before me. I have so much to learn and honestly can’t do it without you and our FB community. Thank you for being here for me…May God richly bless you for all you are and all you do.

        Reply
  48. Paige Delcambre

    HELP!!! I’ve been to 2 plastic surgeons that refuse to acknowledge that any of my symptoms are related to my implants, my pregnancy 2012 triggered a chain of events in my body, started with vasculitis rash on left breast & now random spots on body , no cancer (thank goodness) my list of physicians, primary, rheumatologist dermatologist, internal medicine, oncologist.

    Mentor saline year 2006

    I don’t want more implants…. I want to feel human again!! Not have “autoimmune” symptoms with no test confirming, except I’m ANA (+) very low titer

    Reply
    1. admin Post author

      Hi Paige,
      Don’t waste more time or money on doctors that won’t acknowledge breast implant illness. Go straight to finding an Explant Surgeon near you from the list on this website and start planning your explant.

      Reply
  49. Britni

    Hi,
    I just got BA in March of this year. I have always had back pain and anxiety. In the last couple months my whole body aches, severe hip pain…even hurts to touch or put pressure. I have had dizzy spells where it feels like I drank a whole bottle of alcohol. I went and got blood work done and my white blood cells and and lymph test are both off which is a new thing as last year it was fine. I was wondering if I could in fact feel these symptoms so soon? I love my implants and do not want to get rid of them. I fear I will get rid of them and no changes will occur and I will end up finding another cause of these symptoms and regret removing them.
    Any help is appreciated!!!!!

    Reply
    1. admin Post author

      Hi Britni,
      I had the same symptoms that you had from my implants and those are very common symptoms from breast implants. Consider this question, were you healthy before implants and did all your symptoms come on after getting breast implants? Nicole

      Reply
  50. Debbie Goad

    I am an older implant survivor. (61) had implants put in in 86 and out in 94 after being on explant list for two years due to waiting list. Was very fortunate to have Dr Marguerette Barnett do my surgery. Love her to this day!! So now I am wondering what all the older ladies dealing with? Besides chronic pain and fatigue……all my once healthy teeth are breaking at the gum line….

    Reply
  51. monica stinnett

    Hi, I was a member of your Breast Implant illness Group and for some reason im unable to access the group. Can you help me ? When I click on it from this page it says error. Today I added a lady that had messaged me from a post I had shared about the dangers of implants. She too had implants and was very interested in more info. I’m not sure if when adding her I somehow removed myself or what happened. I appreciate all that you are doing. I’ve def learned a ton and can’t wait to explant this summer! Have a blessed day..

    Reply
  52. Louise

    This is an update to my recent post of July 17…I forgot to mention that I was involved in a breast implant class action lawsuit against Dow Chemical, in about 1993, and it took 12 years to get a settlement. I was promised, in writing from the judge, that I would receive a settlement for damages of $500,000., but DowChemical, at the time called Dow Corning, filed for bankruptcy to protect themselves from the huge number of claimants, and I only received about $10,000. after many years of attorneys and endless paperwork. So hardly worth it. I was also on disability at the time for chronic fatigue syndrome, fibromyalgia, and other symptoms that my doctor felt were caused by the breast implants. Needless to say, if I had never had breast implants, I may have led a healthy, productive life and would never have had to experience such a decline in my health and finances.

    Reply
  53. Louise

    I had silicone breast implants when they first came on the market in the 1960’s. I won’t go into my long medical history, but just want to say ..do not get breast implants, even if they are the saline. You body will react to a foreign object, no matter what, and you have no way of knowing what that reaction will be. I had my implants replaced several times, due to encapsulation, rupture, infection, and finally beast cancer. I had breast cancer twice, and a left breast mastectomy, which is the side I had the first infection and rupture in. I also suffered from chronic pain and discomfort, and my entire body was painful and sensitive to the touch, and I was tired and irritable all time. I have been cancer-free for 10 years. Your life is too important to worry about what size your breasts are. Just be grateful if you are in good health, and be happy with what God gave you.

    Reply
  54. janbee

    Can someone woman please tell me there average time for draining after Explant? My right breast (old dow corning textured of course, was still draining for two months, and think it could have continued. I just couldn’t take having this drain which. I was aware of constantly. At one point the surgeon and I thought maybe I should go back in the hospital, neither one of us was really up for that one after the two months. My IQ is very low due to severe brain fog, and the other site, is hard for me to keep up with.
    I would be grateful for responses. (I had two cosmetic procedure) one breast implants, the other just come “safe cosmetic injections per the surgeon, that almost killed me” Warning.

    Reply
    1. Stacy

      I explanted 7 weeks ago and still have to go in every week to be drained! It is on the side thst i had the 1992 Allergan textured capsule left in too!

      Reply
  55. Krys

    Hi,

    I requested to join your facebook page twice but keep getting denied. I even explained in my 2nd request that I am a very private person and created a throwaway facebook account specifically for that reason and to join this group. I provided my personal e-mail in that request as well as offering to include my mentor memory gel serial #. Can you please accept me so that I can seek additional resources and support??

    Thank you.

    Reply
  56. Char

    I’m so happy for this website. It has brought awareness to me in so many ways. I have silicone gel implants and have had them for 7 years. I went to my explanting physician and he told me that I do not need to get a capsulectomy. He said he could tell mine was very thin and no need to complicate things. He said he would do it but it was unnecessary. That I was making a simple procedure complicated and it would be more pain for me that’s not needed. Is he right? Can I get full recovery without getting the capsules out? I am having the surgery in 2 weeks so please help me make the best decision so that I can finally rid myself of these horrible symptoms. Thanks in advance.

    Reply
    1. admin Post author

      Hi Char,
      You absolutely need the capsules removed. Plastic surgeons have no way of knowing how thick or thin your capsules are and most every woman has significant capsule/scar tissue and this tissue is full of silicone chemicals and silicone particulate and biofilms of microorganisms. Studies show capsules do not dissolve on their own and if left in you they continue to stimulate an immune response in your body and you will continue with autoimmune symptoms and diseases and capsules hold infections. Left over capsules can even calcify and cause great inflammation and pain in the chest and body. Left over capsules interfer with radiology too. Removing capsules correlates with recovery and leaving correlates with continued symptoms. Your silicone implants need to be removed En Bloc/Total Capsulectomy which means a special procedure and obviously your surgeon is not skilled or experienced with proper explant and I suggest you choose a surgeon that is so you can recover fully.

      Reply
  57. Kristy

    Some of these symptoms really hit home. I had my first set done in 95 and have had 4 replacements since die to capsular contraction twice, scare revision and when my pocket wasn’t made large enough for the implant to drop down into. I’ve since had to deal with vertigo and had a neurologist tell me I will suffer with it forever. Makes me think it could be from these nasty implants. I deal with pusitate tinitis in one ear as well. Have to take meds for it as needed depending on how bad it gets. Is there help with the cost of the explant? Can someone tell me what the cost is for this procedure? I would be very interested in getting this done and getting back to my normal self.

    Reply
  58. Rebecca

    Please help…I wasn’t GOOD enough for my ex…so at 20 I had great implants…silicon gel….I have had them over 40 years…..insurance won’t cover anything…and if it did….they don’t accept it!!…it has to be cash…..I am feeling my life ebb away…the pain is impossible….I’m scared…mammogram…broke them…twice….but sure they were broken before….they have moved up….one near under my arm…..,I cannot be in the sun….I was just givin antibiotics as a precaution for round rash on my neck…a circle….I’m in pain…..I have every symptom…but I’m in NJ….I wish SOMEONE WOULD CARE……I barely exist….tears every day…I’m trying one last time for hope….thank you for listening….Rebecca

    Reply
    1. Kim Roelke

      Do you have Medicare? They will pay for it. I had to give my doctor the correct codes to bill, but, it worked. You HAVE to emphasize the pain, NOT anything to do with BII. I have an email address of a lady in WashingtonD.C that helps make sure Medicare pays. Email me if you want it.

      Reply
      1. Debbie Fontenot

        Kim thank you for posting! I just got a referral from my Internist sent over to the surgeon I’ll be meeting with next Tuesday. I know in her report, she included pain but she also said she felt they needed to be removed due to being 39 years old and unable to do mammogram for risk of rupture and that she suspected Breast Implant Illness. Hope she didn’t mess things up for me! Please share the codes. Are these codes to be given to the surgeon???
        Thank you so much!
        Debbie

        Reply
      2. Judy Rodriguez

        Hi lady I’m interested in removing my implants bcz I got many of those symptoms, do you said Medicaid pay for that ?

        Reply
    2. Kristina

      Google explant financial assistance. There is help out there. My insurance covered the full explant/en bloc after having silicone gel implants for 25 years. The PS wrote it up as they were causing pain in breasts and leaking and submitted it to the insurance company and they approved the procedures. I am now 4 days out of surgery. The drains are terribly uncomfortable but overall I’m having a good post surgical experience. There is hope! Don’t give up.

      Reply
    3. Bonnie

      I my god you poor thing shame you are not in the uk they would have taken them out for you for free i can sympathise with you i have been ill for years & only jut realised it was my implants doing it all is there no charity based organization that can help with costs?

      Reply
  59. Charlie

    Hi Nicole, firstly I thank you so much for taking the time to put this information together and to communicate and support women who are sick, blessings to you! After being sick with almost all of the symptoms listed and no doctor being able to tell me why I made the decision to explant and had the surgery done just over a week ago. I think it is important to note that I had all the relevant tests done and was assured my implants were fine but at the time of surgery one was ruptured. I shiver at the thought of how long it may have been ruptured and I didn’t know. As yet I don’t have any obvious improvements but I am certainly looking forward to health. One of my strangest symptoms has been irregular heartbeats and palpitations, i have had extensive cardiac investigations and my heart is physically fine but it is all over the place and I am booked in for an ablation as a last resort, I am wondering how long it has taken for other women who have had irregular heartbeats as a symptom for it to correct, should it be instant or has it taken time for it to return to normal. I am concerned about getting an ablation if there is a possibility it could heal itself now that I have explanted. I appreciate any feedback as I don’t have the option of choosing Facebook to see others stories.

    Reply
    1. Veronica

      Have you had your thyroid and adrenals checked? Dysfunction in those areas can cause those heart symptoms. I have those issues occasionally with autoimmune thyroid problems (Hashimoto’s) and my doctor prescribed a beta blocker to use only during those episodes. Stress really seems to affect me, I haven’t had to take the meds yet…

      Reply
      1. Charlie

        Hi Veronica, yes have had extensive tests done on heart and adrenals, thyroid etc etc. have tried multiple meds and nothing was working which is why I thought it could be the implants.

        Reply
      2. Postal canary

        Chemical sensitivity makes my hearts race or skip beats. Hate it.
        Perfume and lotions on other people do it to me. Sitting in heavy traffic too from all the exhaust fumes.
        Weird but true. Lol

        Reply
  60. Jennifer

    If I have saline implants can that cause these symptoms? I have to figure out whats wrong with me. I cant live like this anymore.. Very frustrated.
    I have to find out whats causing me to feel so horrible. I cant gwt enough sleep if I do sleep I never feel rested.. I feel so weak and tired like a tired I have never felt before .I honestly feel like my body is dying. Please someone help!!!
    It kills me to think about losing my beautiful perfect breasts. I have modelled and have been very hard on myself over my looks but something has to give its been 5 years since I got my implants and I cant hardly take this anymore.. My hair is so thin and stringy. I cant stand to be in the sun I break out in a itchy red rash 2 to 3 days after I have had sun exposure. I just feel like im losing my mind. I have had trouble swallowing. I get panic attacks. It just has to ro stop. i cant live this way, if anyone can help or has info to help me I would greatly appreciate it.
    Jenn…@ inkedjaebae@gmail. ty

    Reply
    1. admin Post author

      Hi Jennifer,
      Yes saline breast implants cause the same types of symptoms as silicone, after all the shell of saline is made from silicone too.

      Reply
    2. Tammy

      Hi Jennifer
      I just wanted to share with you my daughters experience. She too modeled. One of her worries was loosing her beautiful perfect breast that she had in for 9 years. She became sick shortly after her implant were put in. She was very sick for a long time to the point she could no longer work. model or care for herself. We came across this site three years ago and realized she may be sick from the implants. She had her saline implants taken out by Dr. Kolb in Georgia three years ago. Many of her symptoms are gone but she still has some lingering issues that may never go away due to having them in her body for so long. But shes able to work again and she is still beautiful and looks great. She is very happy that the implants were removed. The longer you have them in your body your symptoms will get worse and possibly other illness will come.

      Reply
  61. Jen

    Requesting to join the FB group. My friend added me as I have had health issues she thinks could be attributed to my implants. She added me to the page

    Reply
  62. Mary B.

    Hello Nicole,
    Thank You so much for your help and resources to help women identify their illness and ways to heal. I recently had explant surgery in Michigan from Dr. DeRosa whose name I received from your list. Dr. DeRosa explained the whole process of before and after. Dr. DeRosa`s staff is really incredible as well. Dan and Tim are always there to guide, help and support. I am now two weeks post op and definitely feeling releif. I know it`s a process to heal so I am now working on the detoxification diet.

    Reply
    1. Cynthia S.

      Hi Mary B., How are you doing now? Could I learn of your experience with Dr. DeRosa? I am looking for someone in Michigan to explant….I look forward to hearing back. Thank you, Cynthia

      Reply
    2. Cynthia S.

      Hi Nicole, I went off of FACEBOOK in 2014….If I set up a new account, will you accept me even though it will look scarce? I am on Instagram and following Breast Implant Illness and others….Unwell for 10 years which is when I got my implants, many days bed-ridden. My Plastic Surgeon who implanted me said he would be happy to explant for $5K plus but would only remove tissue that he deemed necessary and not En bloc because you risk puncturing a lung and there can be a lot of bleeding involved. He also said for those he has explanted, that the patients have seen no marked improvement in health and that there are no studies to prove BII exists. I can see why no improvement in health when the toxic capsule is left behind. He also asked if I wanted to be considered for a segment on The Doctors or Dr. Oz because I have an interesting story and it is relevant to this time. They would give me a free ticket to LA or NYC and would have me tell my story, show me in OR and document my journey…I said I would like to share my story but would need to think this over. I knew a little about En bloc but then came upon your website and understood the critical need to perform explant with En bloc, I have silicone gel implants. I will not be accepting the offer to tell my story in that forum or utilizing this well known plastic surgeon. It’s like my healing and journey would be set up to fail and would be a feather in the cap for Plastic Surgeons and implant manufacturers because in fact my health would not significantly improve because the garbage containing all the toxins would be left behind… Please let me know and thank you for all you do. I look forward to hearing back… Cynthia

      Reply
  63. Ambrosia wilder

    Hi, I think I have breast implant illness and feel like I’m going to die. I’ve detox and detox and had got a lot better then my tongue started swelling and I started getting nerve twitches everywhere… now I have internal trembling. I started a facebook which I didn’t have so I could join your group but think the acct is to new for you to approve me.

    Reply
  64. Chuchie

    Just had my explant on 5/22/17 best decision I ever made I had all the symptoms I had saline implants done 2006 5 yrs later I started experiencing trouble swallowing then came the migraines, hair loss, joint pain in my knees, shoulders, feet back , neck. Brain fog, blurred vision, dry skin, inflammation on my hand feet, bloating stomach looked like I was 9 months pregnant, acid reflux, my eyes were so puffy in the morning and believe me I was constantly at the doctors office, I didnt have arthritis, he could find absolutely nothing wrong with me from all my symptoms. I came across this website and I decided to have the explant and let me tell you I feel great I did start detoxing I can now sleep which I had not been able to in about a year. All my symptoms are gone. My breast are a lil droopy since my implants were behind the muscle, but I don’t care I have my life back. I was a prisoner in my own body with those implants. I feel great and healthy, I honestly felt like I was going to die didn’t know what was wrong with me.

    Reply
    1. Bonnie Webb

      So great reading that your symptoms have gone ive got all the symptoms seen every consultant at my local hospital & just been pumped with lots of drugs that make me worse! Iam due to have these bads boys out in nov 2017 & hopefilly i will soon feel my old self again.

      Reply
  65. Valerie Fuller

    I am suspecting I may have breast implant related illness. In my research I have read where women have had the implants removed due to illness and they say they feel better but no definitive insights or research stating that it truly healed them over the long haul. Can I ask about your experience? Did you recover and get your life back? Thank you. I appreciate your website.

    Reply
    1. admin Post author

      Hi Valarie,
      Yes, I recovered the better of my health and most women who are explanted properly (En Bloc/Total Capsulectomy explant) do recover the better part of their health with detoxification and time for healing. Nicole

      Reply
  66. Michelle Aldredge

    Please May I join your support group . I have had many problems and sickness from saline implants . I have had them removed some of my illnesses have become less or better but I am still having many issues that have changed my life . One of my implants had a pin hole leak over a long period of time , I went to many many doctors finally my husband found a Website this discribed all of my systems , I went to visit a doctor and with in two days that took my implants out ….. most of my really horrible sickness of toxicity stoped and the rash that covered most of my eventually went away .
    Please if you read this I pray I can express the need to have regular exams by a caring doctor and you never face these health issues ~
    M ~

    Reply
  67. Jackie Hill

    I have had silicone implants for over 20 yrs. Both have leaked and are very hard. I even think there is a large lump of silicone to the right of my breast where the side breast would be (is that possible?) I am72 years old and figured I was too old to do anything about it, but when I got on the website and read all the symptoms I realize I have a lot of the same problems. Is explant a very painful surgery, especially for a 72 yr,old?

    Reply
    1. admin Post author

      Hi Jackie,
      We know several ladies in their seventies who explanted and are healing well. Nicole

      Reply
    2. Terri Hinojosa

      I am 44 years old, diagnosed with Rheumatoid Arthritis, Sjogrens and connective tissue disease. I had my saline implants removed (they were 15 years old and I had a grade 4 capsular contracture). Within three weeks of explanation and capsulectomy, I was symptom free! I have my life back and so thankful for all the information you gave! Bless you! Terri

      Reply
      1. Beth

        I have similar symptoms like rheumatoid arthritis but nothing ever comes back in the blood tests. Did your pain and swelling go away?

        Reply
  68. Robin wallace

    My breast are saline filled I had them done in 1989 I have had mammograms done no problems until this last year I had a swollen lymph node now I have swollen breast and feet and hands and thyroid disease. But I have a appointment with a plastic surgeon tomorrow to have them remove because I know they to can have issues.

    Reply
  69. Beverly

    I’m all emotional scared but most of all I’ve been sick for so long ,I got my breast in plants 1986. Thx you I’m ready to find out more

    Reply
    1. Beverly

      Doctors have put the label of Lupus on me I so stressed just got another molar pulled out becuz I’m alway have ear ache left side of my neck hurting head fog mist days HELP

      Reply
  70. Donna Henn

    I had bilumen implants removed after 7 years with the development of fibromyalgia and CFIDS. That was 23 years ago. I have flare ups of fibromyalgia and CFIDS since that time. For the last month I experience severe intermittent breast, underarm (left) and left shoulder blade pain and am wondering if this could also be related to the implant leakage. But this is new. Have ruled out cardiac and GERD issues. Has this been reported before after so many years? I welcome any feedback.

    Reply
  71. Joleen Johnson

    Need to find a more qualified primary physician that is board certified and knows about long term effects. Precancerous tissue removed in 1982, implanted silicone implants Nov. 9 , 1982. Explanted with the same implants in nov, 2005. My chest with gutted with clearing, the silicone. Still have a small about of silicone by my heart. To dangerous to remove. Still very sick . need a utah doctor to help me. Mine isn’t board certified anymore. Please help.

    Reply
    1. Christine Critchfield

      I went to Dr. John Hijjawi and had explant surgery at the Intermountain Surgical Center at Intermountain Medical Center, in Murray, UT. Dr. Hijjawi took extra time removing my explants, because the previous Doctor, who exchanged my silicone implants with saline implants, left behind some of the silicone implant. Dr. Hijjawi removed everything, and then flushed out the area. He did understand that my health issues could be caused by my implants. It took me long enough to figure that out, but hopefully, I’m on the road to recovery!

      Reply
  72. janbee

    Grass Roots thanks to Nicole and other women who didn’t back down. I got so sick from two type of implants, I was bed ridden for years, Apparently some men who have MD next to their name, didn’t know MD stood for Medical Device. No clue what I was walking into. This is more of a personal note of thank you for the woman who were able to carry the message, for me I got so sick I lost the last nine years of my life, mostly bedridden, going to a doctor to give them my $ for answers they didn’t care to think about.
    Reminded me of the code of Blue but in our case “blue scrubs”. Today at yet another doctors office, a good guy but couldn’t really help, I was “chasing” my health back, while waiting I saw a tv commerical, going the other way now ‘advertising’ to compensate breast cancer victims due to breast implants. This never would have been the case without this grass-roots effort. I have beyond brain fog, confusion, due to a special type of implants. Yes I know this isn’t the “right” place to write but inflammation and confusion gets so severe. While these surgeons profited, I lost close to everything I worked so hard for, sure all women understand that.

    Reply
  73. Marilyn Dillard

    I have had implants since 1998..second set..no problems.. I now have itching under my arm on rite side..also had cancer prior to implants..over that..cancer of lymph nodes an part breast..all on right side..now I’m having feaver in that same side an sticky mouth an metal taste..tests an several Dr later..no diagnosis..thought it was sugruens..nope..my implants are old but haven t bothered me till lately..had knee surgery an haven’t been the same since. Eyes nose mouth super dry..no energy constipated an use to be a 6mile a day walker..no energy an colon problems…food ex@erbates the metal taste…could this have anything to do with my implants?? My financed are exhausted…I’m 75 an been hi energy great health. .gone now.. Help please…want my good life back. Thanks…my breast surgeon is gone now…soo need info for Dr.here..I have Medicare..Thats it..

    Reply
  74. Rebecca

    Hi, first I would like to thank you for this site! Words can’t describe the gratitude I have. I have been suffering for the past 8 years. For the first 4 years my doctor told me I was just getting older, I was 33, and that was why I was losing hair by the handful, gaining weight that I’ve never been able to gain even pregnant, and losing all muscle strength. Then my hands began to swell and turn purple. He then ran blood work and I was diagnosed with mixed connective tissue disease. Since then I have undergone all types of medication, including methotrexate. I still got worse. Headaches, muscle aches, joint pain, shoulder pain, and about 95% of the other symptoms you list. I have been to several specialist who all chalk it up to the auto immune disease, fibromyalgia and raynauds. In my mind I knew it was something else. I even have an upcoming appointment with a functional medicine Dr. 2 days ago I had another flare up, which is severe pain throughout my body. I started looking up mold as I had exposure as a child. I found an article about mold in saline implants. I’m now certain this is the issue. I had my implants put in in 2002, 8 years ago would have put them at 7 years. It all makes sense now. I could never understand how I could only have a few symptoms from each of these diseases. I have been telling my husband for over a year I though it was some sort of fungal infection as I also have yeast infections more than not. After reading your website it’s been a rough 2 days. Lots of crying, anger and even depression. Yes, I’m slightly vain, that was why I got them to began with. I was 100 lbs and looked like a boy. My boobs made me feel like a woman and gave me the confidence to conquer my life goals. I went to college 3 times. I didn’t want attention so I got the smallest size, I just wanted to feel like a girl. I am now 40 years old and have 6 children who I can’t play with due to this. I have already scheduled an MRI and consultation to get them removed. I know my health is more important and this is the only option. I’m not getting new ones. But I have to admit I’m sad. But I think it’s ok to be sad, as long as I’m on the road to a solution nothing else matters. My questions for you are do you think it went too long? What are my chances to recover once my blood says I have this terrible disease? Can i do anything in the meantime to slow the progression? Again, thank you from the bottom of my heart for all the info. My family thanks You! My kids are so happy to have hope for once. And I am beyond words for describing my gratitude. For the first time in 8 years I have hope. Thank you.

    Reply
    1. admin Post author

      Hi Rebecca,
      I had my cohesive gel for seven years from 2005 to 2013, I explanted in 2013 and followed my detox regime on the Detoxification page of this website. I also found out that I am MTHFR positive which hampers my ability to detox by as much as 80 per cent. But I still detoxed and recovered, it just took me a lot longer than most and you will too. You will recover and heal but it won’t happen overnight, it will unfold over a few years. What is crucial to your recovery is that you have an En Bloc/Total Capsulectomy explant and then follow my detoxification advice on the Detoxification page. You will need mold treatment too, follow Dr. Richie Shoemaker’s protocol for mold removal and diminishing chronic inflammatory symptoms. I suggest also testing for MTHFR and supporting yourself with the proper methylated B vitamins and Hydroxy B12 shots which most of us will benefit from as toxicty depletes our B12 and low B12 really messes us up. Don’t worry, it is not too late.

      Reply
      1. Rebecca

        I just want to clarify, when I asked if I could recover I was referring to the autoimmune disease. My blood has shown positive for mixed connective tissue disease for 4 years. I still need to do tests for mold, scheduled with 2 Dr’s in 6 days. Have you seen anyone with this degree of infection heal? I know I might not, but is it possible or do you think the implants caused this incurable disease and I cant reverse It?

        Reply
        1. admin Post author

          Hi Rebecca,
          I was diagnosed with Unspecified Connective Tissue Disease too and it went away as I healed. So did my Hashi’s and my RA, it all went away after a proper explant and four years of detoxing and healing. Nicole

          Reply
          1. Elize van Vuuren

            Hi, I had my implants done in 1986/87 and since then I had problems, but not knowing that it could all be linked to the implants. I was also diagnosed with Lupus, RA etc a few years ago after suffering several years and not knowing what was wrong – I was told many times it is part of getting older, all the pain in the hands etc. Now I would like to know, after a proper explant did you still had to take medication for the Unspecified Connective Tissue Disease while detoxing and healing? Regards Elize

          2. admin Post author

            Hi Elize, I did not take medications for my Unspecified Connective Tissue Disease because deep down i knew it was the implants. By nine months post explant most of the symptoms of that autoimmune disease had subsided on it’s own as I detoxed and healed from the implants. I also had Hashimoto’s too and about six months after explant I dropped the Hashi’s meds and my thyroid started working on its own somewhat and then better and better over the months. Now four years post explant I have no autoimmune symptoms or diseases.

  75. sonia

    I had silicone gel implants in Jan 1975 and started having symptoms soon after. It took 36 years to get a doctor to remove them. I was sent for mammograms which don’t show rupture and even though I had painful lumps since 2002, it was a battle to get anyone to order an MRI of my breasts. Both had ruptured and were coming apart which could be seen on the MRI. The Dacron shield, which is on first generation implants, was almost totally detached.
    I want to file a claim for VA compensation since the implants were done while I was in the military by military doctors, but I need a doctor to state that there is a connection between silicone gel and autoimmune disease.
    Do you know of a doctor that I can see who believes that there is a connection? I have thousands of documents stating there is a connection, but it isn’t acceptable by the VA…I have to see a doctor who will fill out a specific VA form. All the doctors I saw back in the 80’s and 90’s are no longer practicing.

    Reply
    1. admin Post author

      Hi Sonia,
      Dr Yeshuda Shoenfield haas demonstrated the link between breast implants (silicone) and autoimmune responses in the body. Also Dr. Frank Vasey a Rheumatologist has a body of knowledge about silicone and autoimmune diseases. Sonia, it is well known in the medical community that silicone does cause autoimmune responses, symptoms and diseases, they put silicone in vaccines in order to increase the immune systems response to the virus in the vaccine. It is common knowledge that silicone is an adjuvant – something that stimulates the immunes system strongly.

      Reply
      1. sonia

        I saw Dr. Vasey but he is no longer practicing and I have not been able to contact him at all. The records from my visit with him are not acceptable by the VA. The Veteran’s Administration wants a special form filled out . Do you know where Dr Shoenfield practices?
        Thanks for the information.

        Reply
  76. Angela

    Hi i had my implants put in in 2006 within the 1st yr i noticed i was getting weak..brain fog ..i had them removed in 2011 ..not enblock..i live in he uk and my health is not good can you advise me what to do ….thankyou. x

    Reply
  77. Fiona

    Just now

    Ladies, I really need some advice. I explanted with capsulectomy 6 months ago and am still struggling with enlarged and painful lymph nodes. I have just returned from seeing my surgeon who wants to admit me to hospital to run yet another battery of tests, including ANOTHER biopsy on the lymphs. I had a biopsy done on the lymphs under my arms at the end of October and it came back disease-free (including ALCL) but inflamed. My question to you is should I undergo another battery of tests or wait and see if things start to settle down? I’m tired of being in pain and I feel I need answers. I had silicone under muscle for 26 years and one of them was leaking slightly. I am still struggling with sore joints, brain fog, colitis, stomach ulcer and the lymphs.

    Reply
    1. admin Post author

      Hi Fiona,
      Are you sure your surgeon removed all of your capsule. If you are sure and your implants were textured and you have swelling and swollen lymph then I suggest a test for BIA-ALCL just to rule it out, please see this page for more information: http://healingbreastimplantillness.com/bia-alcl-breast-implant-associated-lymphoma/. However it is most likely just detoxing. In general it takes a couple years for us to heal fully from decades with breast implants and while your body detoxes your lymph will be working hard. Also rule out the possiblility of a chest infection in the breast area and lymph. Nicole

      Reply
  78. Sharon Illman

    Hi

    I’ve had my saline implants for 16 years. Have been steadily getting sick and more ill over time.

    Read your information last week and realised just what the issue has been!

    I’m seeing plastic surgeon here in Adelaide next week. I’m booking in for explant/removal. I’m fifty soon but hoping to recover afterwards. I know it will be up and down but at least I will be recovering!

    I feel so sick.

    Just have to hang in til see surgeon and get them out.

    Sharon

    Reply
  79. Nadine

    I need help please. I have been experiencing most of these symptoms. I am struggling to get help in South Africa. Please may someone help tell me where I can get tests done that could tell me that my symptoms are caused by my implants. I have already done a heavy metal test and they show that I have high amounts. I would like to do a silicon test but don’t know where I can get this done.

    Reply
  80. Susan Swenson

    An employee of mine has Florida Blue..ACA.
    She had cosmetic surgery 37 years ago and has silicon implants. MRI has confirmed a rupture in both. One is leaking outside her body. She is in constant pain. She has been denied insurance to have them removed. I understand that insurance will not want to pay for either new implants or reconstruction, but how can insurance ethically deny the removal of implants that are leaking into hee body, causing pain, and making her ill? I am working with her to escalate this as medically necessary, but due to the pain, etc, she may just end up in an ER.

    Reply
    1. admin Post author

      Hi Susan,
      Some insurance polices exclude coverage for explant for implants placed for cosmetic reasons and some do cover explant for cosmetic implants. In general insurance covers for pain, rupture, capsular contracture and infection necrosis but some policies cover for more too. Most insurance denies the first time and ladies have to appeal and many win on appeal. Here are the codes you may need:

      Procedure Codes CPT:
      19371 – 50 Periprosthetic capsulectomy breast, the 50 is the modifier for Bilateral

      ProcedureDiagnostic Codes ICD10:
      T85.49XA – Mechanical complication of breast prosthesis and implant
      T85.79XA – Infection and inflammatory reaction due to other internal prosthetic devices, implants, grafts.
      T85.84XA – Pain due to internal prosthetic devices, implants and grafts.
      T85.44XA – Contracture of Breast Prosthesis
      T85.43XA – Rupture of Breast Prosthesis
      N64.81 – Breast Ptosis
      N64.4 – Mastodynia

      Reply
  81. Barb Benson

    I have the majority of these symptoms…
    Can you recommend a dr for me to go to?
    Is the removal surgery covered through insurance?
    OMGawd….I want them out. NOW!

    Reply
  82. Barbara

    Two questions:

    Please help if you are aware: If one was treated with radiation for head and neck cancer 5 years ago but had implants prior to that, will healing from explant surgery be impacted or will it take longer and perhaps cause more problems? (Unfortunately I had implants two years prior to being diagnosed)

    It is now May 2017. No doctor on the list is near me. Is the list of qualified explant surgeons updated.

    Reply
  83. Kathy

    I need advice I have so many if the symptoms you have listed. But I live in New Jersey don’t know who to go to to have the explant. I’m very afraid and don’t know what to expect having them taken out. Any advice for me ! I also read the article in the New York Times about implants causing cancer! Ready to get them out of my body.

    Reply
  84. jillian weaver

    There seems to be so many tests. Which is the best one to help see if there are any toxic levels in my body. I had my implants removed and am ready to start detoxification diet.

    Reply
    1. admin Post author

      Hi Jillian,
      We suggest a hair elements and hair toxicities test to show your mineral status and show heavy metals. There are not really many affordable tests for chemicals in the body and definitely not the array of chemicals in silicone. Fungus or mold biotoxin testing may be of benefit to you if you have that. Other than that I would not waste money on toxicity testing and rather spend it supporting your detox. Nicole

      Reply
  85. Wendy Mark

    Nicole,
    I was a member of the last group. My recommendation would be that type remain to the group as “founder” the same as the CEO of a large corporation may have to do in inststances of large corporations exposing of situations of these without legal backing or protection. People will always be able to make false identities and come on as trolls especially if they think they are losing money. Greed is a horrible thing. You may also be able to keep the other group up and quietly exit and create a quiet founder identity. The same people will find this group and come on as different people. You as your same name will not be safe. We have the second amendment to protect us and this group. Thank you. Wendy Mark

    Reply
  86. Lynn reno

    I believe I am a person with toxic symptoms. Do you know how and if it possible health insurance will pay for the removal? If so, please help with information as to how to go about .
    Lynn Reno
    lynnreno0@gmail.com

    Reply
  87. Carey Klain

    I began having extreme itching of my right breast in 2012 or 13 and asked my regular doctor, my gynecologist, and a dermatologistand all recommended a cream but I kept explaining it was under the skin. With increased significant illnesses/ symptoms I’ve had stress test, repeated CT scans MRIs, bloodwork etc. for numerous physical issues, I now see a neurologist for unexplained dementia/early onset Alzheimer’s (no family history). A friend recommended I check out this website and I just called Allergan to see if there were any recalls on my implants and to see what my warranty is. The representative actually had my name in their system and advised my warranty is for 10 years unless I paid for an extended warranty (I didnt) My 10 yrs will be up this September. They said they’d replace both implants if there is a rupture of either implant at any time, and that if it’s before the 10 year warranty expires, they pay $2400 for the surgery. I’m assuming I can have the surgery and just not receive the free implants but I didn’t think to ask and they didn’t say. My card shows my implants are an INAMED Device Allergan silicone filled breast implant – Style 15? I am trying to find a surgeon near Louisville/Lexington KY who does the explant w the Embloc ? I’d love to have this done before the 10 yr expiration. Can you advise any surgeons? Any and all information, insight, recommendations are greatly appreciated! Thank you!

    Reply
    1. admin Post author

      Hi Carey,
      In general the manufacturers do not pay the $2,400 toward your second surgery unless you are reimplanting which we suggest not to do.

      Reply
  88. Susan Malcolm

    I cannot believe I found this site. Everything I’ve read. Is everything single thing I’ve been experiencing. I know I’m over due and need mine removed, it will. E 17 years on 14 June 2017.
    Breast implants 2000
    Sick from bleeding 2007
    2008 thyroid problems–nodules
    Auto immune condition
    August 2013 gall bladder removal
    Oct 2013 Bell’s palsy
    2014 general anxiety disorders
    Chest pains, fatigue. The list goes on

    Reply
  89. Crystal

    I have saline implants that are about 21 years old. I am interested in viewing your list of symptoms, but could not figure out where to access it? Can someone provide the link?

    Thanks!

    Reply
  90. Nisha Tanna

    I have had implant following intensive breast cancer treatment and mastectomy. It’s difficult to know what the cause of illness/seroma is?

    I live in the UK and am not sure where to go/what to do..

    Reply
    1. admin Post author

      Hi Nisha,
      If you have swelling, pain, seroma, breast mass, capsular contracture or swollen lymph nodes and especially if you have textured implants please push hard for BIA-ALCL testing. Surgeons should consider the possibility of ALCL when they have a patient with late onset, persistent fluid around the implant (peri-implant seroma). When testing for ALCL at the time of explant, surgeons should collect fresh seroma fluid and representative portions of the capsule and send for pathology tests. The test is called CD-30 Immunochemistry and few plastic surgeons are knowledgeable about BIA-ALCL at this point so it will be up to you to educate your plastic surgeon and persist in getting the test if you have any symptoms and/or textured implants. Nicole

      Reply
  91. Donna ward

    I’ve had my breast implants for 10 years and sick on and off for the last 2 years body aches muscle aches headaches chest pain fatigue headaches I need to know if anyone knows a doctor to take them out I live in Fort Mohave Arizona I had my implants done in Havasu City thank you this was a real eye-opener for me with all of my pains in my joints sometimes I can’t stand on my legs with pain I’ve laid in bed with so much pain and always thought if it could be my implants please help if you can thank you

    Reply
  92. Saray

    Thank you. I had a consult with a PS for facial laxity and he talked me into getting gummy bear implants. I was excited for sure but had done no research prior because I had never considered breast augmentation. I will cancel the breast implant surgery, everything you say resonates with truth. In particular about the medical community’s refusal to accept certain illnesses, been there and done that with Celiac. 8 years of symptoms and doctors just giving me pain pills, one even called me crazy when I complained about knee and hip joint pain. A rheumatologist finally diagnosed me. Autoimmune symptoms are debilitating to say the least, brutal if left unchecked. I wish all you ladies the best.

    Reply
  93. Diedre

    Could I please get the medical codes for the explant procedure? I would like to move forward with getting these taken out. I appreciate your help and information.

    Reply
  94. Joanie Walker

    Nicole,
    I had a bilateral mastectomy 15 years ago at the age of 34 because of cancer. I had reconstruction and saline implants placed under the muscle.
    I was diagnosed with cancer again in 2013 and doctors were concerned about implants and radiation to my chest.
    Just this last year I have been diagnosed with Lupus.
    All my symptoms go along with BII.
    I have a June 1st date to have implants removed.
    The plastic surgeon wanted to do a 10 hour plus surgery with my own tissue for reconstruction. I know I am not strong enough to go thru that.
    I have told the surgeon that I just want the implants,scar tissue and any hardened areas removed and this pain in my chest to stop.
    I ask the surgeon if she believed the implants could be making me sick and she said that there was not enough medical studies and info to prove that. So she said”No not really”.
    I to!d her I was not willing to risk my life on that info.
    I really have no other surgeon options with my insurance.
    What do I need to tell this surgeon to do to ensure proper removal to help me get well?
    I don’t care about having breasts anymore. I just want to be healthy again and get my life back.

    Reply
    1. admin Post author

      Hi Joanie,
      I am so sorry for all you have been through. Just tell your surgeon that you want your implants removed En Bloc/Total Capsulectomy meaning removed in manner that will protect you from contamination from silicone and remove all the capsule tissue for your best recovery. Nicole

      Reply
  95. Kerry maclean

    I could not believe it when I came across this site , I have been suffering now for approx two years with over 70%of the symptoms , I had implants which one ruptured so they replaced them then I got notified that my new implants were pip implants which again got exchanged I was them told both of my sets had been pip and had leaked I now have replacement implants in! I am currently under the doctor for various symptoms and cannot seem to get well they thought I may have lupus but reading this site I cannot believe the coincidence just do not know what to do pr we’re to go I just want to get well and feel like myself????

    Reply
  96. Fran

    Nicole,

    I had my breasts injected with silicone back in the early 70’s without any encapsulation to try and correct a birth defect . That Doctor is dead now. I suffered with most all the symptoms mentioned on this forum . I need to remove the silicone. Does this list of explant surgeons also apply to this situation? Any recommendations?

    Reply
  97. Shawna

    Hi Nicole,

    Thank you for making this website, it has helped me realize what has been going on with me medically is likely my implants…
    I have a consultation scheduled with a plastic surgeon, and I would love to bring in those insurance codes you mentioned in another comment below. Would you be able to send those to me as well? I would truly appreciate it!

    Reply
    1. admin Post author

      Hi Suzanne,
      Yes saline implants are made with silicone shells plus saline have the added feature of valve ports which collect tissue and body fluids and then become colonized with micro-organisms which can pass through defective valves and colonize the inside of the implants leading to biotoxicity from mold. Nicole

      Reply
  98. Dixie Belle

    Nicole, I am just now getting acquainted with your very needed information.
    My implants were put in the early 1980’s. I am now 73 years old. I have avoided mammograms for several years now because of the fear of rupture. last year. At that time I was under a lot of pressure from family members to get a mammogram.
    I got the mammogram and shortly thereafter receiived a phone call saying “everything is normal”.
    Then, exactly one year later, I was at my Dr.’s and he asked me if I had seen my mammogram report, and I said no, I had to reschedule. He then said, no I mean last years. I told him they said it was ok and he said no it is not ok.
    He said he would order a MRI of my breast and when they called me a week later, I was told that I had to have a mammogram before I could get a MRI. I told them that I refused a mammogram so she said she would call the doctor, which she did and he said to skip the mammo.
    When he received the report back, he scheduled me an appointment with a plastic surgeon. I am now waiting for approval from my Medicare insurance. In the meantime, I received a check back from the mammogram lab for $275.00 and when I inquired, I was told that I overpaid for my MRI. I told them, I did not overpay, but was overcharged. This is where I am today.

    Reply
  99. LaChablis Patterson

    Nicole,
    Thank you​ so much for your response. I greatly appreciate it.
    I hope you have a great day.
    Chablis

    Reply
  100. Ann Stutts

    I got my implants 40 years ago and have suffered ever since. I don’t know if fatigue is one of the symptoms or not, but I believe the implants caused it. Also, the encapsulation Has caused severe discomfort for all these many years. I never had the money for removal until I finally got a college degree and entered the work force at age 50. More than anything that anyone could wish to afford, my wish was the removal of these horrid implants. I saved some money found a surgeon and allowed him to discourage the removal claiming terrible disfigurement. He recommended removal and replacement with saline. They hardened in scar tissue also. I resigned myself to accept my misery would be my lifelong consequence for bad judgement. I’m glad to learn that I am not crazy for believing the implants were the cause of so many ailments. I now, more than ever believe in my intuition. Thank You

    Reply
  101. LaChablis Patterson

    Nicole,

    Thank you for all your efforts to inform and educate all who have implants or know someone with implants and the toxic effects implants have on our bodies.
    I have tried to join the Facebook group and don’t know if I am not doing something correctly so I can join, or if I am not being patience.
    I have had my smooth saline implants for almost 14 years. Oh my, I had not realized that until I just did the math! I have symptoms, just as every woman with implants has, and in reflection, they began early on. I am very blessed that they are not as severe as other women’s, however, I have noticed in the past couple of years that the severity of my symptoms have increased, dramatically. My implants have not ruptured, thank God.
    Since mine have not ruptured, if I understand it correctly, I do not need an En bloc, just the encapsulation removed along with the implants?
    I have not gone to any doctors for my symptoms as I chalked them up to the stresses of, a divorce, leaving my children in childcare for the first time, getting married again, combining families, dealing with ex’s, new babies, moving, allergies, getting older, and life.
    I have looked at your list of doctors and I desire a recommended Dr. that other woman in my area have used, Utah, to do the removal of my implants.
    Thank you again for all that you do on behalf of women.
    Chablis (phonetically Shab’lee)

    Reply
    1. admin Post author

      Hi Chablis,
      Your implants may not be ruptured but they are very likely degrading and may be colonized. For saline implants Total Capsulectomy is sufficient. Total Capsulectomy means that your surgeon will remove the implants nd go back in and remove all the capsule tissue. Ensure that you choose a surgeon that is dedicated to removing all capsule tissue from your chest as leaving capsule tissue may prevent full healing. Nicole

      Reply
      1. Carolyn

        I am in same situation, 14 year old saline implants with the usual cocktail of symptoms. Met with a surgeon today that does Enbloc however he says there are some cases where he has had to leave a very small part of capsule attached to chest wall (i think that’s what he said). Was not safe to remove due to proximity to pleura. Any thoughts on this?

        Reply
        1. admin Post author

          Hi Carolyn,
          It does happen for some that a small piece of capsule is stuck to the rib and a surgeon chooses not to damage the rib and leaves it. That is fine the body will detox a small piece of capsule like that. Nicole

          Reply
  102. Art Varga

    Nicole, my sister had saline implants about 14 years ago. For the last six years, she has had many of the symptoms for implant illness. She’s seen many doctors and has been told that everything is normal, but has been diagnosed with all kinds of “other” diseases. I sent her a hard copy of the Breast Implant Illness Symptoms portion of your website. She denies that her problems are related to her implants. I am very worried about her. She does not have a home computer, but she might respond to a text inviting her to join your Facebook group. Her name is Audrey. Please send a text to her at (708) 307-3693.

    Reply
    1. Joan

      I know how you feel. My cousin’s health has continually gone downhill the last few year and I’m positive it’s from her breast implants. I think she’s in complete denial and doesn’t want to think that they have been the cause all along. She has Colitis-Crohn’s disease, gets bladder infections frequently, random body aches, poor immune system, always complains about being tired and feeling weak, insomnia, and horrible horrible anxiety. Her anxiety is borderline crazy. I’ve brought breast implant illness up to her before but she gets really strange and weird about it. It’s almost like she knows but doesn’t want to believe it? I want to help her but she doesn’t want to listen so I’m at a loss on what to do 🙁

      Reply
  103. Doris

    So what are some of the signs and symptoms of the Brest illnesses I had my implants for 10 with know problems then in November this year I got sick and have been hurting it’s mostly in my neck shoulder and under my arms I can’t lift my arms above my head can this be a sign of the illnesses are could it be something else

    Reply
    1. admin Post author

      Hi Doris,
      Yes pain and inflammation and frozen shoulder is a symptom of breast implant illness, please see the rest of the symptoms on the Symptoms page of the website. Nicole

      Reply
  104. Shannon

    I feel like the light bulb just went off! I just found this website and am still in shock that it never occurred to me that my implants from 2005 are making me sick. I have almost every single symptom listed above.

    Reply
  105. Joseph Parks

    I am a plastic surgeon in Jacksonville Florida with a broad experience with breast implants and explantation. I am very familia with many of the scenarios described on your website and would like to be added as an explanation surgeon. It looks like there are no others listed in Florida. Please let me know what I can do to help support your site. Thanks-
    Joseph Parks, MD
    Board Certified by the American Board of Plastic and Reconstructive Surgeons

    Reply
  106. Carolyn Jones

    Hi…I would love to join the Facebook page but not sure what my settings need to be on to be approved. I have friends only right now. Do I have to make it public and if so for how long?
    Thank you! And thank you for this site!!

    Reply
    1. admin Post author

      Hi Carolyn,
      We need to see your facebook temporarily to ensure that you are a woman and who you say you are. Then you can adjust your settings back. Nicole

      Reply
        1. admin Post author

          Hi Carolyn,
          Change your settings so we can access your facebook profile and to verify who you are. Nicole

          Reply
  107. Brandi Morrell

    Hey all,
    I am so glad that I stumbled across this website. After reading a number of your posts, I soon realized that I am not alone with this. In September 2015, I had a breast augmentation. I chose the silicone breast implants because they looked and felt more natural to me. However, since my surgery, I have been extremely ill. I have had 27 staph infections from head to toe, my immune system is extremely low causing me to catch anything and everything, developed a latex allergy, constantly suffer from joint and muscle pain, my knees, ankles, feet, back, and wrists constantly swell up and cause a burning sensation, I have headaches all the time, and my ADHD medicine does not affect me whatsoever anymore causing me to drift all over the place. I had to get braces in February and two weeks later I had an emergency appointment to have them removed because the infections had spread inside my mouth. I wasn’t able to eat or really drink anything for three days. Since then, I have seen 9 ER doctors, 5 dermatologists, 3 primary care doctors, multiple walk-in clinics, an allergist, psychologist, psychiatrist, etc. I was even seen by an Infectious Disease Specialist at Vanderbilt. Each physician has sent me home with an antibiotic each time and basically throws me off and never has an answer for me. I don’t know how many times I have cried my heart out to doctors and nothing seems to change. I have been severely allergic to 3 of the antibiotics and the steroids have made me gain 35 pounds within the past year. I also graduated from graduate school in December 2015, and since then I have lost two jobs due to illness. I am finally going back to see my plastic surgeon in the morning since everything seems to add up in time. I just pray I don’t get ignored, rejected, or told that he has no idea what could be causing this. Nothing has shown up in my blood work for physicians to be concerned about. If anyone has any advice for me, I would really appreciate it. All I want is to have my normal life back, and to be physically, emotionally, cognitively, and socially healthy once again.

    Sorry for long post, it’s been a terrible year and a half for me.
    Thanks,
    Brandi

    Reply
  108. Holly Andersen

    I just had my breast implants removed. I have not felt well for a long time. They came out completely black in both sides and I am waiting on the test results to find out exactly what caused them to turn black. The scar tissue was also very thick and my surgery lasted over 4 hours. I had en bloc procedure. It has been a few days now and I am still very tired m, but glad that part of my life is over.

    Reply
    1. admin Post author

      Hi Holly,
      Get your implants tested for mold, often when they are black it can be due to mold. A couple labs test saline implants for mold Mycometrics or Real Time labs in the US. Nicole

      Reply
    2. Melanie Bradbury

      I’m sorry to hear you are going through so much. I’m with you when it comes to having toxic implants in our body. What kind of implants did you have? Like manufacturer name? And when did you originally get your implants put in? We all have to be our own advocate. Thank you for sharing. God Bless you!

      Melanie

      Reply
  109. Christy Bogs

    I am seeking breast implant explant. I have so many aches and pains from the implants. Neck, back, shoulders….tingling and numbness. I am on Ambien to sleep, antidepressants for being so depressed, Vyvanse to focus!! It is endless! I am against pain medication because I do not want to travel that road. I simply just want the implants out. Unfortunately it will cost a lot and I will require a lift due to the 525 cc’s that I chose to implant into my body. If anyone had any information that will help me with insurance please advise. I am seeking medical attention for RA, nerve damage, and depression. All of my blood work came back good which is a blessing!! Thank you Jesus!

    Reply
    1. admin Post author

      Hi Christy,
      Get a copy of your full insurance policy and read how you may be covered for explant. In general insurance covers for rupture, capsular contracture, pain and infection/necrosis and you have pain and that is often the best symptom to approach them with. Sometimes some insurance policies have exceptions and some do not cover if your implants were for cosmetic reasons. I will send you the codes you will need via email. Good luck!! Nicole

      Reply
      1. Rachel

        I would love to get the codes via email as well! I’m needing to get mine explanted soon, I’ve been dealing with all these health issues for years and I’m ready to be done! If insurance could help cover in any way, that would help a lot. Would you email me the codes?

        Thank you!
        Rachel

        Reply
      2. Fran

        Nicole ,
        Please send me the codes . I have had suffering since the early70’s when they simply injected the breasts with silicone. Chronic Fatigue, dizziness, pressure in the head, digestive issues,brain fog, dry mouth, sleep issues waking up a lot, skin issues, lyme, slow starting in morning, short term memory loss, etc. Looking to do explant surgery.
        69 years old on Medicare with Blue Cross(texas)
        Thanks for your list. Currently experiencing pain, swolleness , and fever in the breasts along with pain between the shoulder blades. Can you please send code recommendations to help get Medicare and insurance coverage?

        Thanks
        Fran

        Reply
    2. Rikki L.

      Hi. I was hoping to join the Facebook group in the hopes to get more support and education. I just made a new Facebook account only to join this support group (not big on social media). I hope I did the request right???? Anyhow, I’ve been interviewing doctors and am so nervous to act hastily. I feel I was impulsive with getting these nightmares and have lived that consequence for nearly a decade. Nicole, I can’t thank you enough for all the hard work you have put into this website and what you are doing for those of us who thought we were just sick and that was the way it was just going to be. I have fought tirelessly for the last two years to regain my health, thinking it was maybe my diet or lifestyle. I’ve never cared so much for myself as I do now and the frustration comes every morning when I shower and have to untangle more hair from fingers. Not to mention the debilitating pain that runs from shoulder to finger tips in my right arm. And many other symptoms, that I’m now understanding, is due to implants that I never enjoyed to begin with. The frustration. The anger. The fear. It’s real. And I’m not alone. And I am so grateful for this site. The vanity in me is scared to see my loss of curves but my desire to really live, and feel alive again, is what brought me here. Thank you

      Reply
  110. Kym R

    BTW, I would like to express my sincere thank you for all the invaluable information on this site. It has truly been a godsend, there’s so much pertinent information that I would never have known about especially what to communicate to the explant surgeon. Again, thank you so much from the very bottom of my heart for sharing all you know about this life altering, dream stealing, death seeking, horrible disabling ‘silicone incompatibility’

    Reply
  111. Jennifer Billman

    Thank you for your consideration. I have been dealing with a multitude of illnesses due to breast implants. I reached out to Mentor 7th times about issues that I’ve been dealing with with no response back from them. I received my first set of implants in 2005. They were smooth, round, and saline, 270 on one side and 300 on the other. I had them for about 9 years before I started to develop symptoms. I starting having serious difficulty breathing at all times, and especially when laying down at night. I could not get a deep breath. My PCP checked all labs and my heart and lungs and everything was normal. This was something physical. I also developed tingling and pain in my hands and itchy palms and a numb right thumb. I had a foggy brain and extreme fatigue and difficulty concentrating and depression. Finally, I developed a goiter, an adrenal problem which is a documented adverse reaction to implants.

    I had the implants removed at the end of 2015. Immediately, my breathing was cured! I no longer had shortness of breath. I know it was the implants pushing on my chest, due to the capsular contraction. They were hard as a rock from the beginning and extremely uncomfortable. The other symptoms were almost completely gone.

    I decided to try silicone this time because they are suppose to be softer and I figured they would not press on my chest and make it hard to breath and maybe I would not have a bad reaction to them since they are silicone and a more updated FDA approved medical device. Immediately and every day since my surgery 3 weeks ago, I’ve had ALL of the same symptoms reappeared. I want them removed as soon as possible because I know they are toxic and my body is reacting to them.

    There should be some kind of warning about the dangers of breast implants. I’ve read stories and studies about how the outer shell is full of toxins and heavy metals and silicone that leak into the body. I’ve been reading endless stories online and I know it’s what is making me sick, esp since I had them removed for a year then new ones implanted.

    This has cost me a lot of money, pain and suffering, both mentally and physically, not to mention my now destroyed breasts and self esteem.
    Even my surgeon said there is nothing that can be done to fix the muscle deformity left after explanting. So I feel ruined for life. This should be a warning as well, that you will NEVER have even slightly normal breasts after removal. It destroys your pectoral muscles so you can never work this muscles again 🙁

    I even reached out to J&J and the FDA because Mentor never responded. J&J said they would forward my story to Mentor and the FDA never responded. This all seems so criminal.

    Thank you for your time and listening.

    Sincerely,
    Jenny

    Reply
    1. Christy Bogs

      That is what I have is mentor. I have saline and I had mine for 12 years. I just recently started noticing a multitude of problems and one of my instructors from college shared her story. The first thing that caught my attention was the fact that she had ringing in her ears. So did I from about 5 years previous!! Things have started to come to light. I have everything you mentioned and all of my labs came back normal as well

      Reply
      1. Melanie Bradbury

        I have mentor too. Saline, I got implants in around 2002. I am dying slowly. I just want my life back.

        Reply
    2. Tamara

      Seriously, don’t worry about a lift, the surgeon can mold those babies up in nice tight bra , allow body to heal tissue to contract and wear a support bra maybe a t shirt bra, let your natural beauty show…Then if later, you can revisit a lift.. but,it’s possible you won’t even need it… I know several ladies, that thought they would be ruined…But no , they had beautiful natural breast.. After implant removal. Right now it’s about getting those posion bags out and your body healthy

      Reply
    3. Tamara

      Not true, many women get implants removed and get pretty close to their before appearance, there is even an option of fat/stem cell augmentation that can be done after your body has time to heal. Make sure to wear proper post surgical bra to help mold and shape

      Reply
  112. Danette

    Hello Nicole, Can you please email the Guidelines and Indications for Breast Implant Capsulectomy document to me? I see Dr. Schembri in Edmonton Alberta Canada on Wednesday March1, 2017.
    Thank you,
    Danette

    Reply
  113. Frances M.

    Hello, I have had my saline over the muscle implants for 16 years now. I have been detoxing for the last 1.5years under a holistic doctor’s care because I have had a number of health issues. I never thought they could be related to my breast implants. Do saline implants cause the same toxicity in the body as the others you have mentioned? Do I need to get mine removed?

    Reply
    1. admin Post author

      Hi Frances,
      Yes saline are the same as silicone, the shells of saline are silicone too and further saline are sometimes colonized with mold and other organisms.

      Reply
    1. admin Post author

      Hi Marie,
      Yes saline or silicone the symptoms and the illness process are the same. Saline have silicone shells and also get colonized with mold and other microorganisms due to faulty valves. Nicole

      Reply
  114. Arthur E. Brawer, M.D.

    The ASIA criteria (Schoenfeld’s syndrome) has been discredited in 2015 by the special masters (judges) in vaccine court in Washington, D.C., and they will no longer allow it to be referenced by any experts testifying on behalf of vaccine injury claimants. Investigators who utilize the ASIA criteria to define and/or report on silicone toxicity are well-meaning in their desire to verify the existence of silicone-induced disease, but the ASIA criteria will never withstand the white hot lights of scrutiny in any court case litigating this matter. There are at least two dozen mechanisms causing silicone toxicity, virtually all of which disrupt the body’s biochemistry, and virtually all of which have nothing to do with autoimmunity. The ASIA criteria are a gross oversimplification of what is clearly a much more complicated problem, and Dr. Pierre Blais is in agreement with this. You might want to read a 1998 peer-reviewed published manuscript in Medical Hypotheses entitled: “Silicon and Matrix Macromolecules….” As an example, at least 75% of symptomatic silicone recipients have markedly dry eyes and dry mouth, and Schirmer tests are quite abnormal in these patients. However, their biopsies of salivary tissues are completely normal, because this ailment is likely due to dysfunction of the receptor for acetylcholine (which normally stimulates these glands). As another example, silicic acid (which is a breakdown product of silicone) crosses the blood brain barrier and can chelate neurotransmitters (such as dopamine) – hence, cognitive dysfunction occurs but MRI scans are normal. As a third example, silicon forms four bonds like carbon but behaves like a metal at times. You cannot expect energy production and energy utilization in mitochondria and the interior of cells to proceed normally after silicone exposure, because phosphorus is metal-ion-bound in energy systems. Hence, weakness and fatigue occur, but muscle biopsies are normal. As for joint pain and arthritis in silicone recipients, any synovial fluid analyses reveal less than 1,000 cells (non-inflammatory) – think of substance P in nerve endings, and also think of the matrix macromolecules in cartilage. The most recent peer-reviewed manuscript on silicone breast implants was published online (ahead of print) in LUPUS on January 29, 2017, entitled “Destiny Rides Again: the Reappearance of Silicone Gel-filled Breast Implant Toxicity.” Its sister article, also published in LUPUS in 2012, is entitled “Bones, Groans, and Silicone.” After reading these, you probably will appreciate that (1) silicone gel-filled breast implants are indeed quite toxic to the body, and (2) scientists with a PhD degree in biochemistry need to get involved in the research. Arthur E. Brawer, M.D., Associate Clinical Professor of Medicine, Drexel University School of Medicine, Philadelphia.

    Reply
    1. Sheila

      I am a colleague. Love to talk to you in this matter. Would you kindly contact me at my email address.

      Sheila

      Reply
  115. Alex

    I found a more recent published scientific I’d like to share:

    http://www.eenvandaag.nl/uploads/doc/asia-syndrome.pdf

    Also would love to get some of this info onto wikipedia if possible. Silicone toxicity and breast implant illnesses aren’t even on there, with the breast implant main page under complications saying that illnesses and platinum toxicity are simply “alleged” which really just made me so angry because so many uniformed people will read this and continue to perpetuate the lie that they are safe.

    I’m not an article writer but I already sent a request for this SIIS study to be added. I really find so much info on this website to be helpful and informative (and freaking scary) I think if you can get any of the scientific articles or info on wiki it would just help spread the word faster and to more of the ‘disbelievers’ who are too arrogant and stubborn to read this website and get informed about REAL implant/silicone issues happening to women everyday…

    thanks & love to everyone dealing with the sh*tshow that is breast implant illness. the struggle is real :/

    Reply
  116. Judith Malitas

    I AM SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO UPSET WITH THESE BREASTS….OVER THIRTY SOMME ODD YEARS WITH THE SILICONE IMPLANTS……MY original plastic surgeon said he would not even charge me for removing them only the operating room and anesthesia…..he changed his mind on his price from nothing to five hundred dollars to a grand of which I cannott afford and my insurance won’t cover the operation….I AM DESPERATE….I AM READY FOR MY GRAVE…I AM 7O YEARS OLD…….I am alone living under my x-brother inlaws deceased parents house or I would not even have a roof over my head!!!!!!!!!!!!!!!!!!!!! AND even if I did have the operation….I have NO ONE to help me AFTERWARDS!!!!!!!!!!!!!!!!!!!!!!!! I had an MRI done and they found ruptures in both breasts….and EVERY DAY I AM IN DISCOMFORT if you can call it that……PLEASE….PLEASE HELP……WILL THIS BE “THE DEATH OF ME” I ask myself…..do not know WHERE TO TURN TO????????????? i LIVE IN Phila Pa…….I am not even sure where to find a surgeon who is able to do this kind of surgery properly??????????

    Reply
    1. Casey

      Hi Judith
      I’m so sorry to hear you are very ill from your implants. There are many women in your same shoes, fighting for their health, and Dr’s telling them it’s all in their head. Do you have a facebook account? There is a wonderful support group of over 15,000 women who have become ill, or think they are becoming ill from breast implants. The group is https://www.facebook.com/groups/Healingbreastimplantillness/?ref=bookmarks
      I’m sure the many women on their could help you and give you suggestions on how to get the explant covered and possibility find you help for after surgery.. Hang in there!

      Reply
    2. Kym R

      Please speak with your insurance company, many of them are paying for explanation. I heard even Medicare will pay for explanation. They rather pay for explanation than for a lifetime of medical bills and test and medicines. If your insurance declines at first, seek an appeal and fight it until they pay for it.

      Reply
    3. Kym R

      Judith, I also have been sick for six years now. I am waiting for my explanation. I’m not sure how much more you can endure but once I get even a little bit of energy back, I would be willing to help you somehow.

      Reply
  117. Cindy

    after doing much research, I believe my 27 year old daughter is suffering from Breast Implant disease. She has them 5 years and was diagosed with Lupus a year ago. I need to know the specific tests she needs to undergo to prove if she is suffering from this disease. who can help me?

    Reply
    1. admin Post author

      Hi Cindy,
      There are no specific tests to prove definitively that her breast implants are the cause but they are. I bet she has cohesive gel/gummy bear implants and these implants are highly toxic due to the aggressive chemicals that they put in the implants and they make us sick very soon. Most of us once we realize go right to explanting and we start healing and recovering. Nicole

      Reply
  118. Victoria Dunn

    hi Nicole. I called dr fengs clinic today and waiting to hear back but they are booking in September. Since Christmas night I’ve been having fevers, nausea, brain fog, cold hands feet, high blood pressure(im 5’qand 115lbs never had bp issues before) my blood pressure has been running 140/90, headaches and fatigue, neck pain, dizziness, passed out and had to call 911 I have been tested for every auto immune disease, CT of my abdomen and MRI of my brain an echo of my heart Everything has been normal. My questions for you are, I am pretty sure it is my implants what do you think ? My second question is do you think I will last until September or should I try to find a different highly recommend a doctor to do it sooner ? And last after the removal will my blood pressure go back to normal and will I feel normal again ?

    Reply
    1. admin Post author

      Hi Victoria,
      Yes it is your implants. I would try and wait for Feng, she is one of the best surgeons, surgery with her is as good as it surgery can be. I would try and get on a waiting list if I was you and perhaps they can get you in sooner if someone cancels which happens often. Yes your blood pressure will go back to normal. We don’t heal overnight but we do heal after we do a proper explant and detox. Nicole

      Reply
  119. Rita

    Hi Nicole, my insurance denied the request for preauthorization for my explant. I thought I read in the documents that you would share procedure codes which might get the procedure approved. I would appreciate having the codes. I am proceeding with the surgery, but it would be nice to have the insurance pay for the procedure (over $11, 000 with the mastopexy and lift).

    I sent a request to join the FB group.
    Thank you.

    Reply
  120. Wendy

    I’ve had a root canal crack which lead me to pull tooth since then I’ve gotten more symptoms…I’ve had three surgeries on extracted tooth still have so much nerve issues and burning mouth I saw a dentist that specializes in muscle testing of your body…..he said that its my silicone breast implants and by muscle testing its in my jaw,joints,spleen,and nervous system…I’m very confused I had silicone implants for about seven years following breast cancer…have you ever heard of implants causing nerve issues in teeth,jaw,and burning mouth and mouth numbness and joint pains?

    Reply
    1. Janey

      yes I have exactly that now. I live in the uk and been struggling for the last five weeks. It’s happened all of a sudden and my nervous system has been affected. Im going to travel to see dr feng and hoping she can help me but not sure I’m even fit enough to fly.

      Reply
  121. Mary-Jo

    Hello, and thank goodness you are here and I found you!
    I have had one set of implants from 1985 to 2005 when I found out through a mammogram that one of them had a leak. I had them removed and replaced with another set in 2005 and then in 2007 had one removed and replaced with a breast lift. I am now 61 years old and for the last couple of years have been contemplating to have them removed.

    About 10 years ago I started to notice that I had memory loss, foggy head, dizziness, neck pain, shoulder pain, back pain, and heart palpations. I was in school at the time and working full time and had just lost my husband to brain cancer; I chalked it up to stress and severe depression. As the years progressed I have had severe neck pain, should pain to a point where I could not move my neck and my arms without screaming out from the pain. The aches in my joints and muscles, cramps in my feet and toes, hands aching and stiff, have been close to intolerable. My memory has been getting worse and worse over the years, to a point where I have been so scared that I have early onset Alzheimer’s disease. Constipation plagues me.

    The last four years have been the worst. I have been to my doctors, physical therapy, psychiatrist and cardiologist complaining about all of these symptoms with no relief. My MD took a number of blood tests to check for autoimmune diseases and they all came back negative. He finally diagnosed me with fibromyalgia because he couldn’t come up with a definitive diagnosis. The orthopedic doctor couldn’t find any reason why my shoulders were frozen; at one point I could not lift my arms above my waist or pull on my pants. I had 3 MRIs and countless X-rays. There was nothing found wrong with my shoulders, although they did find some degeneration of the cervical discs in my neck. I went for cognitive testing and they found no reason why my memory and recall has been getting progressively worse. My cardiologist cannot find out why I have palpations, and says I do not have arrhythmia. Despite all that has been going on, my doctors tell me I am in great health?

    It has been maddening. My doctors’ think I am nuts, and honestly I thought I was kooky also. I am so troubled by all of this. Most of all I have been scared about the memory loss, because it doesn’t get better. It has been affecting my job. I have days where I am able to have a conversation without consistently searching for words, and I call that a good day. Other days I come across sounding like a blithering fool. The pain is always present, but gets worse as the days progress.

    I cannot believe that all of these symptoms are happening because of the implants. I have already made appointments with two surgeons for consultation. One of them I found on this website that was highly recommended, the other is the surgeon that has done my implants.

    Has anyone reported back regarding memory loss correcting after removal of implants? I am very concerned.

    I cannot wait until I talk to these doctors and schedule the surgery. I want these toxic waste vessels out of my body.

    Thank you so much for being here for me, for us.

    Reply
  122. Melanie Bright

    Hello. I am fairly new to this site (about 1-2 months) and I feel blessed to have found it. I received my first set of implants in 1990 (saline over the muscle). In 2000, I had them replaced with textured silicone under the muscle. I have decided to explant because I have at least 21 of the BII symptoms. I do not know the manufacturer of my implants and my PS is no longer practicing so I have no records. Does anyone know if any of the recommended doctors on the explant list are highly recommended in Texas? Specifically, Drs. Boynton or Yarish in Houston? I’m in the Houston area so If there’s a doctor that comes highly recommended/specializes in BII, I would prefer to have my explant done here. If not, I’m willing to travel to Dr. Barnett (15 hours away from home). I understand there’s a list of questions on the site to ask potential surgeons. Thanking you in advance for your advice and/or recommendations. May God bless you all during your journey to better health!

    Reply
  123. Kim

    Hi, I’m only just looking into this ex planting again, and come across this site. I had my 1st set I had at age 28, they were the PIP implants, the scandal all over the news. I still have an ongoing court battle over this, my left one ruptured and leaked under my armpit into a lymph node. I went to a surgeon and he talked me into having another set saying the reconstruction surgery is horrific I’ll be totally flat chested and at my age ( 38 at the time 41 now) the recovery is horrendous and you have a 2 year old to care for etc etc, my mum also said to get another set you’ll hate having no boobs again when you want to wear nice dresses and bikinis and so I guess I felt scared of the explant because it sounded so terrible! And vanity played a part as I was a double aa b4 the surgeon said id literally have zero breast tissue left. However I now feel I wish id gone with my initial gut feeling and explanted. I’m always unwell and blame my endometriosis but just lately I’ve been getting a ‘feeling’ just something telling me it’s them they need to go.
    I’d like to hear from those that explanted about recovery period (I mean actual operation not detox as such) excess skin removal, how long is it before your up,and about and able to be mum again? I’m at college at present studying anatomy and physiology because I’d like to know how my body functions better, so need time off for that too?! I’m so scared about all of this and I also want to ask: can implants affect our babies during pregnancy? My boy of 5 now really suffers with constipation and is dairy intolerant, he also shows signs of sensory processing disorder. Thanks in advance xx
    I’ve also asked to join you facebook page please

    Reply
    1. Kym R

      I understand your questions and concerns Kim, but honestly you’re looking at it all wrong ! your first and foremost priority is your HEALTH, never mind how long everything is going to take, if you going to have sagging skin or not. What you want to know is that you will be HEALTHY and available for your children. Everything else is subsequent.
      Take it from me, I have been been bedbound for six years because of these implants and lost some of the most important years with my daughters. I would do anything to get those years back now, even if it means being flat chested with sagging breasts (which is why I got the implants in the first place) so listen to all of us on these pages and get your explant done ASAP

      Reply
  124. Amy Gardner

    I have had implants for 8 years since I have been diagnosed with Hasshimotos thyroiditis. Had syncope spells and also recently diagnosed with Chiari malformation. I was having seizures and they noticed the malformation on my MRI. I was in great health before my implants. I never would have thought my im take may be making me sick until I came across this on Facebook.

    Reply
  125. Tania

    P.S I would like to thank all the brave woman who have posted on this site and for sharing your stories. Nice to not feel all alone and helpless. I wish you strength and love to get through this. You will get through this and regain your health and life back. Be dilligent with the diet and care for you self. tell your self every morning that you are healthy and getting better every day. Keep all negative thought away. Your ciells listen to your brain. no matter how crappy you feel, just keep teliing your self your are heakthy and healing. Reread this website to it’s entirety and click on all links. The information is so good and answers almoat all questions. We have a long ways to go but we can do this. I look foward to sharing a success story with you in the future 🙂

    Reply
  126. Tania

    Hi Nicole,
    Thank you so very, very much for providing this excellent website with such a great source of information, understanding and knowledge. You are changing lives and I feel mine will change now for the better. I just found you after brainstorming all my illness and deteriating health. Long story short…
    I had silicone rough textured oval implants in april 2014 at age 48. With in 8-10 months, anxiety, fatigue and slleepness crept in. With in 1 year (April 2015) I was taken over chronic yeast indections. I experience all the symtoms on your list and all my doctors said I was crazy and prescribed AD’s. I said no way. Now 3 years later in 2017 January , I have been diagnosed with Chronic Mono, Hep B, CMV, Severe candida overgrowth. My body is full off toxins, virus, baceria and fungi. I’ve been to a functional doctor here in Naples fForida who treats me with glutathione, B-12 and now starting Ultra Viiolet Bloodd Irridation to treat these. Had no Idea that it was my implants being the cause of this. I was completely healthy and energetic before the implants and never filled with illlness untii after implants. Feel like I’m dyeing. I have completely change my diet to a Candida Diet and Paleo. No alcohol, coffee, sugar, gluten or dairy or yeast ,wheat etc..
    Thank you so much for the Angel that you are. I have booked an appointment with your recommended surgeon in Sarasots FL to have my implants removed ASAP. Their 1st appt is not availble until end of April for my surgery. I look forward to getting these nasty things out of my body and getting my life and health back again. I’m not happy to be flat chested again. just like others,…But….Who cares!!!! Right? I want to live the rest of my life happy, healthy and get back to being me and get out of bed and the house due to sickness. I would never have had this understanding and choice if it were not for your great knowledge and information you shared. Thank you from all that is me .and I’ll keep you informed on my progress. God Bless 🙂

    Reply
  127. sad Emily

    My heart just stopped when I read Sarah and your comment below about getting Crohn’s after getting implants. I also was diognossd with Crohn’s about 2 years after getting my implants in. But now that I think about it I didn’t feel the best a year before the doctor told me what I had. I never linked the 2 together. I feel crappy and tired, anxious, depressed, just plain weak a lot. I don’t sleep well. I just figured it is from my Crohn’s. Has anyone else gotten Crohn’s after they got their implants? I’m in such shock right now 🙁

    Reply
      1. Angela

        I have a friend who just got colitis out of the blue shortly after she got her implants. Coincidence? She’s a miserable mess now.

        Isn’t colitis a lot like Crohn’s?

        Reply
        1. admin Post author

          Hi Angela,
          Implants can cause Colitis, Crohn’s, IBS and SIBO, they wreck our gut health. Gut problems are listed as a possible risk of implants in some of the patient information from manufacturers.

          Reply
  128. MIMI

    Hello!!!! Nicole
    It finally happen i got my Explant Surgery on 1/26/17 it is 6 day’s today everything went well and after 6 hours did not needed any more pain killers , but i still had the drains and that is uncomfortable to sleep with…. they where removed on Monday
    Every day is a new day looking forward to my healing , but is great relieve to me to know they are out of my body
    My breathing has improved and when i walk i feel like a feather
    I’m changing my diet because my gut is very damage , so i started the beef bone broth twice a day , and is working already
    I must say it was not an easy path , but the worst is over Thank You Jesus
    Love to u all MIMI

    Reply
  129. Jamee

    Hello and thank you for your sight. It is incredible. I am anticipating getting my highly cohesive implants removed within the next couple months. I put them in three years ago s/p mastectomy. Naturally I have tons of symptoms within 2 months of implant. I also have the MTHFR gene, leaky gut, diagnosed with Hashimotos since implant and the list goes on. I have been on a cleansing program and taking supplements, probiotics, AIP diet for the Hashimotos . Somehow, miraculously, i stumbled upon your site! I have 9 amalgam fillings, but upon metal testing I come up low thankfully, Slightly elevated Cadmium (not sure what that is from? -IMPLANTS?) in any case, i started adding spirulina in my supplements. I home made capsule a day. Then I read not to take chlorella if you have fillings. Is that the same for spirulina? You have shared the same knowledge as my functional medicine doctor with me. You are one smart cookie! Any advice is appreciated. I am to over detox. Also, recently my extremities and tongue are quite swollen and my histamine levels are super high. Any advice about this? Would love to have as much info prior to my PS appointment to have explant consult. Will see PS 2/23 for consult.

    Reply
    1. admin Post author

      Hi Jamee,
      Very happy that you found the website and I hope you will come to the facebook group. You are getting your implants out soon which is good! Please ensure that all the capsule tissue is removed when you explant ideally En Bloc/Total Capsulectomy. Right now, I want you to order and read Andy Cutler’s book called Amalgam Illness. Then, I want you to plan to have your mercury amalgams removed about six months after you explant or so. A test low in mercury means very little for several reasons which you will read about in Andy’s book. Find a holistic dentist that removes mercury fillings using proper mercury removing protocols which means a separate air source for you and a dental dam and very little drilling (just quickly scoring the filling down the centre with the drill and then quickly popping it out and cleaning up the tooth after and refilling using resin). Follow Andy’s detailed but easy method for detoxing mercury using oral low dose chelation. You will have mercury toxicity with nine amalgams and MTHFR, no doubt in my mind, I did with eight amalgams and MTHFR. Amalgam mercury does not show up in either hair testing or unprovoked urine or blood testing. You have to provoke mercury from its storage places with a chelator in order for it show up on testing. Do not take chlorella or spirulina now, later in your detoxification they may have a place but right now they will most likely cause inflammation in you. You have to periodically empty your histamine bucket by avoiding histamine foods and doing green veggie juicing for a few days. Fungus will also be a factor for you with implants and mercury, watch for yeast/Candida in the gut and else where and you may have to take antifungals. Nicole

      Reply
  130. MIMI

    Hi! Nicole
    I wrote back in September telling you how i had to canceled my Explant Surgery
    Well!!!… after a a long and very stress full 4 months of nothing but frustration after frustration from back in September to now, still having to have more clearance from this Dr’s , I was giving clearance from my PCP but the Pulmonary DR, who really only found an infection like a Broncattisis and has no idea where is coming from gave me antibiotics and almost all clear with the antibiotic… but since the source still there meaning the [THE BREAST IMPLANTS] is not going to go away completely .
    All right … yesterday I called the PLS and now have a surgery day for 1/26/17 , BUT…. this is another BUT… he got all the clearance faxes from all the DRS my PCP is recommending a fallow up with the Pulmonary DR before the surgery
    So I have a PRE-OP with the Pulmonary DR on 1/18/17 OK… how ever when the PLS was discussing my situation he mention that my be,… it will better for me to have anesthesia by injection instead of the tube and gas in the mouth you know …..
    Nicole I think the injection is the way to go in my case , but not sure what do you think???? and how effective it is? I have some concerns .Please do you have any info about this???

    I Thank Y and waiting for you reply
    MIMI

    Reply
  131. Kay Pearson

    Dear Nicole –

    I have been very sick for the past 6 years. My implants are silicone and they are 30 years old. I’ve been to multiple neurologists and gastrointestinal doctors from Mayo to UCLA. I’ve had migraines that started after I first got the implants but the headaches are now everyday instead of once a week. I have been through numerous medications that have not helped but did change the way food and drink tastes and that has left me in a fog. I have had botox injections in my neck and head on two occasions that insurance would not pay for. I have had massages, physical therapy, acupuncture and more and there has been little improvement. Unforunately I had to stop working due to the headaches and extreme fatigue.

    I also have been diagnosed with idiopathic gastroparesis, and I have undergone procedures to inject botox into the opening of to my small intestine and various drugs. At best I can now only address through a very bland diet (no fiber) and I struggle to maintain any weight.

    We have asked our doctors many times if the implants could be causing my poor health. They always stated quite matter-of-factly that they are not causing the problem. I have had mammograms over the years and at least one MRI that indicated that supposedly everything is okay with the implant.

    My niece, talked to someone who had some of these symptoms and conditions and had her implants removed. Her health improved dramatically and her story of success is inspiring.

    Obviously, as the implants are 30 years old and need to be removed regardless, I have made an appointment with a doctor in Mesa, Arizona recommended on this site. My consult is in 3 weeks.

    I have one question that perhaps you could speak to. I was so flat when I had implants that they were put in through my armpits and under the muscle. When the are explanted will their be any complications because of this for the doctor or procedure.

    I will keep you posted as we move along. All of this was typed by my husband, Ken as I am not very tech savy and I avoid computers as much as possible. If the facebook group sees a friend request from Ken Pearson, that is my husband so please let him join the group on my behalf.

    Regards – Kay Pearson

    Reply
    1. admin Post author

      Hi Kay,
      Please have your husband add your name on to his facebook profile too so it would be Ken Kay Pearson and change the fb profile sex to female so we can approve this profile into the group. We don’t allow men into the facebook group. Your surgeon should have no complications explanting you. In my humble opinion, incisions under the breast give the best access to explanting properly. Nicole

      Reply
  132. Marcia Shell

    Hi Nicole,
    I came across this site when doing research on symptoms related to breast implants. I am 54, turning 55 on 27 January and have had the same saline implants since 1992. I am scheduled for a mammogram on 23 January and afraid they might rupture because of their age. I’ve been pain free until recently and concerned they need to be removed. Please advise when you have time! Marcia Shell, Marcia.shell@nnsa.doe.gov

    Reply
    1. admin Post author

      Hi Marcia,
      Breast implants are recommended to be replaced every 8 to 10 years. You have had a good, long run with them and if I was you, now that symptoms are appearing, I would get them out and be done with it. Please ensure that your explant is Total Capsulectomy which means the implants and capsule tissue is removed from your chest. Nicole

      Reply
  133. Elaine Anscombe

    My name is Elaine Anscombe, I’ve just had my inplants removed by a NHS sergen. She and my doctor have denied that they can make me I’ll. They have. I have alot of the Illness. please can you help me. How will help me to get better or is it just to late for me now .please contact me on 07907645023 as not good conputer. Thank you so much.

    Reply
  134. Grace greene

    I have ruptured implants for two years or so, I’m always unwell now, headaches nervousness, parasites in skin, kidney infections and a smell of metal coming out of me I feel like I’m loosing my mind what will I do

    Reply
  135. Terry Manley

    Dear Nicole,
    Thank you for all your amazing work in gathering all of this critical information for women suffering with implant sickness. I cried as I read through your site that I am not alone! I have suffered for many years and am ready to have them removed ASAP. I have scheduled a consultation with the Sarasota Doctor that is recommended by women here on your website.

    I had my original silicone implants put in about 30 years ago. They were just replaced in 2013 because one had ruptured and the other one was leaking. I was totally ignorant and can’t even come up with a good excuse of why I waited so long. I had suffered a fall about 10 years before they were replaced but because the breast still looked the same (didn’t feel the same though) I didn’t think it had ruptured. So who knows how long the silicone was floating around inside of me.

    6 months after the old ones were taken out and new saline implants were put in I developed a mysterious infection in my left breast that was very painful. The doctor said I had mastitis. I went from the family doctor to the gynocologist to a breast specialist and was just put on antibiotics over and over. Finally I did feel better. They did an ultrasound and everything looked good. Or so they say, not sure how much shows up on an ultrasound.

    I went back to the plastic surgeon who did the explant and implant and he was “highly offended” and defensive when I told him about the infection. So that went nowhere.

    Almost two years passed and although the left breast felt better, I was still sick a lot. Just two months ago I came down with another case of “mastitis” and am still on antibiotics. And feel a little better – now the breast is just tender to touch. They did another ultrasound and said everything looks good.

    I feel sick overall as if I have the flu, just want to stay in bed, plagued with cold and cough symptoms, and much more.

    I will definitely have them removed as soon as I can. I see the doctor in about a month for a consult. I was wondering if women ever have a mastectomy while having an explant if breast cancer is in the family on the maternal side. I am ready to just be done with breasts altogether. I would hate to have the implants removed and down the line be told I have breast cancer and have to have a mastectomy later. Especially with silicone in my body for years and years, I would think my cancer chances are a little higher. Just wanted to ask if this is something that women do too, appreciate your feedback.

    Terry Manley

    Reply
    1. admin Post author

      Hi Terry,
      Usually it is plastic surgeons that are explanting and so I have yet to hear of a mastectomy being done at the same time as an explant by a plastic surgeon. If a mastectomy is desired likely a breast surgeon would be what you are looking for. Personally I would just properly explant and anticipate the best but here is a link to a listing of breast surgeons if you are interested: https://www.breastsurgeons.org/new_layout/index.php. Nicole

      Reply
    1. admin Post author

      Hi Diane,
      Breast implant illness applies to both saline and silicone implants. There are no safe implants. Nicole

      Reply
  136. Holly Stoddard

    Would you please email me whatever will be helpful in getting my explant approved. I am under Medicare. I had a double mastectomy in 2001 and reconstruction with Mentor Saline implants. Although I did not have cancer I had severe fibrocycstic breast disease, dense breasts, many needle and surgical biopsies, and calcium deposits. A oncologist recommended the double mastectomy as they could no long properly diagnose if or not I had breast cancer. It would also be helpful to know if there are any surgeons in Wisconsin that have done this procedure.

    Reply
    1. Marcy Saad

      Yes please me as well im in california and on medicare also i have silcon one is ruptured one capsul contrapture i havent been feeling well for awhile i have had other issues not from the implants but the pain i been feeling for quit sometine leads me here and to beleive this maybe my problem..i called dr to get them out then i was pregnant so surgery canceled just recently called them again and told them i want them out but they are trying to get me to just replace i want all the way out im tired of the pain in hips back shoulders knees thank you in advance

      Reply
  137. Leah

    Hi Nicole! I recently found this page while searching the internet. I’ve been getting progressively sicker and think it could be from my implants that I’ve had for about 4 years now. I hope I can be accepted in the Facebook support group. Thank you so much for bringing awareness to this awful thing!

    Reply
  138. Crystal Brubaker

    I got my saline implants in 2006 and I have been sick since 2010… been to hundreds of doctors visits and the doctor pretty much told me I was insane and tried to push antidepressants on me… (and other drugs which Ive always refused until 2016) I was finally referred to a neurologist in 2015 and have been diagnosed with ms… arthritis and fibro as well… supposed to see a rheumatologist but I can’t really afford it… I have so many symptoms, some that coincide with these illnesses, yet some dont… I just feel like I’m dying… and I believe it’s my implants!!! I’ve had extreme fatigue, extreme muscle and joint pain, muscle twitching and spasms, feet and hands are numb and tingly, from elbow to fingers are tingly, nerve damage, extreme headaches in the back of my head, neck pain, upper back pain, chest pain, eye pain, eye dryness, mouth dryness, skin dryness, kidney infections, kidney stones, bladder infections, frequent urination, yeast infections, cuts heal slowly and sometimes get staph, hair doesn’t grow and has become thin, I’ve aged horribly in the passed 3 years, I have a horrible taste in my mouth, my glands hurt, sore throat, digestive bowel problems, weakness all over, trouble walking, shortness of breath, brain fog, memory loss, heart palpitations that hurt at times, and the list goes on… I feel like I’m dying… and my neurologist seems to not give a damn… he sees me for 10 minutes, writes me a new med (which I refuse to take most) and sends me on my way… he doesn’t like explaining anything to me… I have a million questions and he just doesn’t listen… This sickness has ruined my life!!! My life, my children’s life… and my poor husband has to do everything for us, because I’m bound to this house by this disease, or whatever it may be… I’ve seriously contemplated suicide a million times, but I could never do that to my family… I just hate suffering and not getting answers… :'( I do have an appointment with a new doctor on Jan 10th and I’m going to suggest all the tests recommended for BII… My husband and I have come to the conclusion that either way, if tests say I am contaminated or not, that we will have them removed to see if there is any improvement… which they’re due to be changed out anyway… I’m just ready to be me again!!! Ready to not be sick and in pain every day…

    Reply
    1. Kym R

      Wow, I feel like I could’ve written that. I have just about everything you have mentioned and very similar experiences with the MD. I have silicone implants and I am hoping to have them removed within four weeks. Best of luck to you, I hope you find health and happiness soon.

      Reply
  139. Danielle Valoras

    Nicole,
    I have been seeing a structural massage therapist that has seen / worked on many women with breast implants and he often finds that they have similar (negative) symptoms. He would like to talk with someone so he can further formulate his findings – gain more understand and ideally get published and bring awareness to the breast implant community.
    Would you be willing to talk with him and/or provide contact information to some one he can reach out too.
    I look forward to your reply.
    Kind regards
    Danielle Valoras
    His name is Tom Archer

    Reply
  140. Sarah

    I have had my implants in for about 12 years now. About 10 years ago I was diagnosed with Crohn’s disease. I feel weak a lot. I also have battled tiredness and also terrible spurts of insomnia. I always thought these symptoms were from my Crohn’s.
    I’ve had friends tell me my symptoms sound like breast implant illness but I don’t want to believe it. Is it possible my implants gave me Crohn’s disease or that the doctors misdiagnosed me?

    Reply
  141. Florence Dellapenta

    My silicon implants burst after 16 years; I waited about 2 years to have them removed. I had been experiencing severe joint pain all over my body. I had the burst implants removed and the joint pain I had been experience was totally gone. The surgeon told me he thinks he got all the silicon out of my body. He also replaced the implants with saline implants which are still in my body today but were deflated since then at my request. About 5 years later I noticed a fatty mass on my upper chest below the collar bone. I had it looked at and the surgeon told me it was just a fatty mass and he recommended not removing it. Since then, I have been experiencing severe joint pain again for the past two years. I had been told it was arthritis. I had a mammogram that was diagnosed as such “possibly residual silicon as a result of my bursted silicon implants.” That was it. On Jan 3, 2016 I am having another mammogram and will ask the doctor about my concern that this is in fact displaced silicon and is the reason I am experiencing such severe joint pain as I did years before. I will let you know what comes of this. Hopefully I can have the residual silicon removed from my body and my pain will go away as before. Stay posted. Any comments or suggestions would be appreciated.

    Reply
  142. taylor

    OBAMA CARE caused me to loose my insurance ( didnt mean to shock you! ) i had a wealthy boyfriend/ politician who had a “thing” for big boobs…lets just say he put a lot of miles on them in a short period of time. Well…one leaked completely….bet you cant guess what happened next? 1) he slowly became distant and 2) its been 6 months of misery…physical mostly. Im scared, my mom is dieing and doesnt care if i go with her to say the least and i have no resources..Sure…i understand responsibility and living with choices but I still have the right to be angry, bitter, scared, and disappointed. I have been researching and asking questions hoping for a miracle but nothing. If anyone that reads this has had any luck with this issue please share. Would the e.r. take them out???

    Reply
    1. Kym R

      As an E.R nurse, I can tell you with certainty that they will not remove implants in the E.R.
      As Nicole, has stated you want the explanation done correctly and by a surgeon with explanation experience.

      Reply
  143. Leslie

    Hello,
    I have had saline implants for just over ten years, and have been gradually thinking more and more about removal. I am having pain around and under my breasts daily, not severe, but strange and disconcerting. It’s difficult or impossible to find a locus for the pains, but I suspect my implants.

    I want to see a surgeon for a consult about my options. Like someone else said, I can’t imagine going back to life as a flat chested woman. I went from a AA to a full C, and it completely changed my life. Finally, I looked normal, felt like a real woman, and didn’t feel insecure and inferior. I would love to know if there are any safe ways to augment the breasts. I never cared whether they were large (in fact I chose the size I did partly because I was pressured by the surgeon. I wanted to be a full A or a B cup, like I was while breastfeeding).

    Anyway, I’m just getting started researching. I would join the fb group but I wouldn’t want my friends to see that… it doesn’t appear to be a private group, just closed.

    Thanks for listening.

    Reply
    1. admin Post author

      Hi Leslie,
      All posts and communications of the group are private and only seen by members of the group. Fat transfer seems to be the safest option but even it is not without risks. Nicole

      Reply
    2. Kirsteen

      Hi I’ve just started researching breast implant illness, my health also has been deteriorating. I have had mine for 7 years. It never crossed my mind that implants could be causing all these symptoms. Morning stiffness, achey joints pain in the left side of my back daily. I feel like an old woman and convinced I’m delevoping some sort of disease. Heavy chest in the morning shortness of breath, palpitations I could go on and on! I also went from an A to C cup and can’t imagine having them out let alone the cost. It is really frightening all this information but also a relief that this is possibly the cause of all these symptoms

      Reply
  144. Marie

    I had implants placed and after 3 months started to develop horrible panic anxiety, fatigue, dizzy/lightheaded, general unwell feeling. I was hospitalized at which time they found thyroid nodules small no need for treatment, and extremely low cortisol levels. I explanted 3.5 months after having them implanted and still haven’t paid that bill off and could not find anyone locally who would willingly remove the capsule due to risk of complications like bleeding and having such little breast tissue, side note I also developed capsular contracture stage 4 in one breast. With such a short time in the body will I still end up needing more surgery to ever get better again?!! Doctors do not think the implants caused this however this is the only change and deep down I know this is what it was!

    Reply
    1. admin Post author

      Hi Marie,
      Likely not so much capsule tissue was built up that it would not dissapate on it’s own so give yourself some time to recover from the surgery, detox and heal. You should recover without additional surgery but if you do not after approx six months, write me back. Nicole

      Reply
  145. Laura

    Hi I had a breast implant 1 year ago. My eyesight has deteriorated. I now have to wear glasses. I also ocassionally have migrains and itchyness all over my body which is like an allergy. Could this be cause by my implants.

    Reply
    1. admin Post author

      Hi Laura,
      Yes, those can be symptoms of breast implant illness. Many ladies with bii have a decline in vision, headaches and all over itchiness plus other symptoms as listed on the Symptom page of this website. Nicole

      Reply
  146. Sarah Chiling

    I have saline implants for 9 years . My symptoms started 4 years ago constant fatigue, my lymph node hurt on one side of my neck. I went to all kinds of doctors and they did all kinds of tests first they thought I have autoimmune disease then they said I don’t after so many other tests. But my titer was coming in high they thought I had lupus then rules out I don’t. I have been to a hand full of doctors and they can’t diagnose me. Now I get pain under my armpits, overall weakness, stiff muscles, lower back pain and immflamation always show ups on my blood works. I just had a mammogram they found a lymph node on one of my breast but after additional ultra sound and repeat mammogram they said I am cleared for the year. I still have all these symptoms that either mimick lymphoma, fibermayalgia, and autoimmune disease. I am so scared that I have something seriously wrong with me. I want to do a mold test and my doctor reffered me to an allergist. This is my last resort. The thing is my lymph nodes are not swollen but they hurt lasting 2-3 days with those other Symptoms and it goes away. Then it comes back and forth. Can you please refer me to an good explanat doctor Please. I live in the Los Angeles area. I had my implants done in Glendale CA.

    Reply
    1. admin Post author

      Hi Sarah,
      Please see the Explant Surgeons list on this website for a list of surgeons known to remove implants properly. Nicole

      Reply
  147. Katherine

    I had my first implant surgery in 2005 and had to have them removed in 2012 because they had become completely encapsulated. The doctor assured me that that did happen from time to time but was nothing to worry about and recommended that we swap the old implants out for new ones. So now I am on my second set of implants which were NOT supposed to become encapsulated but have. Not only that but I have been able to extract a sticky brown substance from my right nipple, both breasts are starting to feel itchy, I have chronic joint and back pain, fatigue, depression, my hair has recently started falling out, I have chronic bladder irritation which is not an infection, hypo thyroidism and I am seriously worried about my memory and brain fog. I have not wanted to think about removing my implants because I was always completely flat chested and hate the thought of going back to that. I need some moral support which is why I decided to leave a comment. : (

    Reply
  148. Andrea

    Hello! I originally had saline implants put in back in 2000. Then in Dec 2014 I had them replaced with silicone implants. Prior to the silicone I had dizziness and headaches. Since the silicone I still have the other supmptoms but I’ve been having joint pain, muscle pain aching pain in my arms, hands, shoulders and neck. I just don’t feel well all the time. I’m tired constantly. I get sharp pains in my breasts too. Ive had all kinds of testing done and my ANA came up positive and they thought I had lupus but it came back negative. I’m scared and not 100% it’s my implants but what are your thoughts? ?

    Reply
  149. Kristi

    Hi Nicole,

    I had BA in April 2014 by Dr. Whidden in Calgary. I saw Dr. Whidden about explant last week and he insists it is not necessary. I told him I am going to meet with Dr. Sinclair in Canmore and Dr. Whidden suggested he won’t be able to get 100% of the capsules out and I’m putting myself at higher risk by doing that. I am so confused/worried/drained. Please help.
    Thank you for this wonderful site.

    Reply
    1. admin Post author

      Hi Kristi,
      Most placing plastic surgeons will refuse to take out implants they placed because doing so is an admission that they are causing problems for you and it infers liability on them. Most of us have to find another surgeon to remove our implants properly which means En Bloc Total Capsulectomy. I am not impressed with Dr. Sinclair lately, he is leaving too much capsule in ladies. I am thinking I will remove him from the Explant Surgeon list. I assure you that the greatest risk to your health and life is leaving those toxic bags inside of you. Get them out now, properly before the do too much more damage. I left mine in for seven years, I had three pages of symptoms and was diagnosed with two autoimmune diseases and was bedridden. I wish I had taken mine out after a few years. I explanted in 2013 and it has taken me just about four years to regain my health back. Some of us have permanent damage too. Nicole

      Reply
  150. andrea monotya

    Please comment on breast MRI’s that show no gross leakage from the implant? Do you still think there is micro leakage?
    What metals do you think are released?

    Thank you very much!!

    Reply
    1. admin Post author

      Hi Andrea,
      Yes MRI’s, mammogram and ultrasound all miss the microscopic sweating/bleeding that occurs from very early on from silicone and saline breast implants. We always suggest to pass on the mammograms which are well known to rupture implants and spread silicone through the body. We suggest to pass on the gandolinium contrast that is used in MRI’s as it is a real toxicity for us. Ultrasound and Thermography appears to be the safest radiology for us however it regularly misses that actual leaking and ruptures that occur in breast implants. If you are symptomatic just have them properly removed. Various metals are used in breast implants, platinum and tin are two known ones but the recipes contain all sorts of metals. Have a hairtest that shows metals and see what comes up. Nicole

      Reply
  151. Claire Meredith

    Please send me the information I need to get the right explant done. Ive flt concerned for some time now that its he implant causing my increasingly poor health asI’m getting sicker even though im looking after myself better. Thankyou for starting this page.
    Warm regards
    Claire Meredith

    Reply
    1. admin Post author

      Hi Rene,
      I know an organization that is working on a study and I know a facebook group too. The organization Birth Defect Research for Children Inc is collecting data on disabilities that may be related to breast implants through an ongoing research project, The National Birth Defect Registry. To contact them go to http://www. birthdefects.org. Also there is a facebook group that I sent your info too and they will reach out to you. Thank you for all you are doing in regard to kids affected by toxic breast implants. Nicole

      Reply
    1. admin Post author

      Hi Heather
      Look on the Explant Surgeon list on this website, you will see Dr FN Schutte of Netcare Hospital in Sunward Park, Boksburg, South Africa. Nicole

      Reply
  152. M

    Has anyone been to doctor Eileen Black in Metairie, la for there explant? I have been having symptoms for three years seeing multiply doctors but all say I am extremely healthy all blood work perfect. After doing research I now know it has to be the silicone cohesive gel implants I have. I went to see my PS who put them in and he says that they do not cause problem and he will only remove them not do enbloc. I have made a appointment to see Dr. Black hoping she believes this does cause problems and will remove them the proper way. Wanted to get some advise and also see if anyone knows any PS in New Orleans area who believes women can get silicone sickness and has experience doing explant properly.
    Thanks M

    Reply
    1. admin Post author

      Hi M,
      I think Dr. Eileen Black is a very good choice in a surgeon for explanting. She is very knowledgeable about breast implant illness and explants properly and tests for possible microorganisms. Nicole

      Reply
      1. michelle

        Thank you very much Nicole! I am looking forward to my consult with her ,as well as having my implants removed and praying that I will feel better.
        Thanks, M

        Reply
      2. M

        Hi Nicole,
        I had my consult with Dr. Black and felt so much relief she is very knowledgeable about breast implants illness. I am looking forward to getting the ok from my primary care physician so I can have my Explant. One question I have is the nurse from my pcp called me with my last lab results of my thyroid it show I now have a Normal TSH 1.33 but Low Free T3 1.2 could the implants be the cause?? I have had multiply thyroid test done this year all were normal until now. Any information regarding this would be greatly appreciated.
        Thank You, M

        Reply
        1. admin Post author

          Hi M,
          Yes, several of us suffer from thyroid T3/T4 conversion problems. Get a full thyroid panel done by someone that understand how to treat thyroid. Nicole

          Reply
          1. M

            Thank you for everything !!! I explanted yesterday with Dr. Eileen Black in Louisiana and everything went well she is a amazing doctor. I already feel better just very sore which is normal. She did proper removal. I am so happy to have them out and everything looks good!! Now ready for my journey to heal.
            Thanks M

  153. Cindy

    Hello! First, I would like to thank everybody that has shared their stories. I was nearing rock bottom when I stumbled upon this site and reading about all of your life experiences with implants was quite comforting, to say the least. I have been told that my concerns with my implants is unfounded and that there is absolutely no connection with them and any of the symptoms that I have been experience. Chalk it up to timing, they say…coincidence, perhaps!?

    Here is part of my story… I had my first augmentation in the late 90’s after several bouts with mastitis while tandem breast feeding my daughters. I was reassured that the saline implants that were to be used, “were perfectly safe” and that there were very few complications that could occur. Around 2000, one of my implants ruptured and I became physically ill, vomiting a black substance for a few days. I made an appointment with my surgeon and he informed me that the very best thing to do would be to replace the implant and that he did not think that my vomiting episodes had anything to do with the implant and blew it off.

    I hesitant, but scheduled the replacement surgery. After this surgery, while I was still waking up, the PS told the person that brought me that he had found a large amount of a yellow substance in my breast tissue and cleaned some of that out, but all was good because he made my breasts even larger than before (which I had stressed that I really did not want since the size I had now sometimes seemed to large for my neck and shoulder to support). When I woke up, the PS told me about this mysterious yellow substance as well. After my surgery, I seem to be sick all of the time and completely exhausted. I continued to question my PS and General doctor about the implant that ruptured inside of me, since that seemed to be a changing point in my life, at least as far as my health was concerned. The answer always seemed to be the same, “you had saline implants and there is nothing in a saline implant that could have possibly caused any of your issues”. Since the time of my implant rupture, I have been extremely ill. I have spent numerous days and hours with doctors and specialists who can’t seem to explain what is wrong ith me. I have since been diagnosed or developed vertigo, heart palpations, macrocytosis, sinus disease, bowel and stomache issues, trouble swallowing, pains throughout my arms, chest, and legs, low grade fevers, migrane headaches, blood pressure changes, enlarged and painful lymph nodes, irregular and erratic menstrual cycles, Joint and bone issues, vitamin deficiencies, my hair falling out, and nightsweats (to name a few). I have been tested numerous times for Thyroid Issues, Auto-Immune Dieases, Lyme Disease, TB, HIV, Kidney and Liver Function issues. blood disorders, leukemia, cancer, etc. I have had CT scans, MRI’s. Ultrasounds,and even removed part of my reproductive system. Gallons of blood have been removed and tested! I have now, in the past few years developed capsular contracture and these hard bands that run from the middle of one of my breast all the way up to my throat and under my arm…this band is VERY noticeable and extremely painful. My PS told me thata he has never seen this before and recommended yet, another replacement surgery and the use of silicone implants this time. He proceeded to tell me that the band on my chest was very noticeable and NOT very attractive! I told him that I was not concerned about my body cosmetically, I was cond=cerned about my health and needed to live and wanted the implants out…I am a single mom with 3 daughters and I am the only person that my girls have in this world…his comment completely rubbed me the wrong way! I used to be a very active person and have worked in the construction industry for years. I had to leave my job a few years ago, due to mobility issues and not being able to lift or put my hands above my head. I have now been trying my best to sell anything I possibly can to raise the money to have explant surgery. I have gotten quite a bit of slack about deciding to go with explant surgery and opting out of having the implants replaced. My apologies for this book, but your stories, have truly made me feel that there might actually be a glimmer of hope, afterall! Thank You~

    Reply
  154. Aubrey

    Hello Nicole,
    I am the office manager at Tarola Plastic Surgery, and we have had several patients contact us due to your site so thank you for listing Dr. Tarola as an explant surgeon. For accuracy purposes, our fees are closer to $5,000 rather than $6,500 like you have listed for removal of implants/capsulectomy. Of course, it is time dependent, and every case is different. However, $5,000 is the median cost.

    Thank you for your time!
    Aubrey Preston

    Reply
    1. Cindy

      Aubrey,
      Is this price for an En Bloc Explant? I am desperately looking for a highly recommended surgeon anywhere near NC. I cannot seem to find many PS’s that actually believe that BII exists or that can remove my implants using the En Bloc Method.

      Reply
  155. Cecilia Hernandez

    I have mentor breast implants and since I had them notice a number of symptoms like dizziness palpitations panick attacks and don’t know why. I have gone to the ER several times primery doctor and no answer I don’t have the money to get another surgery since they where a gift from my husband which was aginst my dissition at that time don’t know what other step to take

    Reply
  156. Angie Blake

    Hi Nicole, I’ve been trying to join your FB group but have not yet been accepted. I’m planning on having my salines removed within the next few months (hopefully no later than January), but need recommendations on en bloc surgeons in northern Virginia/Maryland/DC area, or in West Tennessee (Jackson or Memphis area). I also have questions about if others have total body numbness from their implants like I have experienced for 3 years now. 26 specialists couldn’t figure out the cause, expect that it could be from Lyme. After 1 year of Lyme treatment, the numbness has not improved, and I suspect it is he implants. I really need to join the FB group to discuss and learn. I’ve joined other FB explant related groups, but they are not as good as yours according to some people. Please let me know what I need to do to be accepted. Thank you very much!

    Reply
    1. admin Post author

      Hi Angie,
      The only reason that you would turned down is because your facebook profile is too sparse to prove who you are. We look for profiles that have been in existence for years, have pics of yourself and family and that you have friends. All of that proves to us that you are who your facebook says you are and we will let you in. Nicole

      Reply
    2. Felicia

      my surgeon is in Richmond Va, name is Dr DeWire. He is amazing. Not sure if its allowed to recommend a doctor here, just found this site, but he has a full LARGE website

      Reply
      1. Kelly Sherman

        Hi Felicia, Dr. DeWire did my Transax Saline implants 3 years ago. Did he do an explantation for you? Does he believe in BII? I don’t think I would go back to him for this, but I was happy with my outcome before I became so ill.

        Thanks, I’m looking for any info! Just found this group.

        Reply
  157. Sally

    At this very moment I am in hospital on heavy duty antibiotics. I’ve been here 5 days with no end in sight.
    For months I felt unwell, dizziness, fatigue, aches, pains, overall just BLAGH.
    My augmentation was rather unplanned.ill break it down;
    1.Breast cancer
    1a. Mastectomy
    2. Chemotherapy
    3. Radiation
    4. Breast reconstruction.
    All of this took 5 years. I thought I could at last put it all behind me; Finally! But no. My breast implant is leaking and I’m confined in this darn hospital until God knows when.
    I’m not getting many explanations from from hospital staff. It is very much a ‘ wait and see’ ethos. I on the other hand can’t afford to take that approach. I want to start living again.
    What on earth do I do? My questioning is met with brick wall responses.

    Reply
    1. admin Post author

      Hi Sally,
      Many women are starting to explant their breast implants in order to clear up these infections and in order to regain their health. Inquire with your reconstruction surgeon about explanting you. Please ensure that you are explanted En Bloc/Total Capsulectomy to ensure your best recovery – all capsule tissue must be removed. If your reconstruction surgeon will not explant you, you may have to find another surgeon to do it. The body is not meant to have two bags of toxic chemicals in it. Nicole

      Reply
  158. Andrea Rose

    I am wanting to support my cousin who has recently joined by also joining your group. I myself have not had breast implants but think that there isn’t enough information for ladies wishing to have implants and the risks they aren’t told about, before having surgery! I hope this is ok!

    Reply
  159. Tina

    I had saline implants over 15 years ago they have been so awesome and I have absolutely no scar my surgeon was awesome for the past 10 years I have had a strong fatigue which seems to get worse daily it is so bad that I have no desire to do anything but sleep and I have insomnia too I have been to every doctor there possibly is and all tests have been negative I have spent 1000’s of dollars on energy fixes it has really affected my family especially my young children I never thought it might be my implants they are just water I went back to my surgeon for a checkup and he said they were beautiful so I am going to a breast surgeon next week she has said that she would replace them and since it was medically necessary my insurance will pay I have gone from a double a to a c cup and don’t know if I can have them totally removed for good what have other women done after haveing theirs removed

    Reply
    1. Felicia

      I am having a multitude of symptoms. Ive had my saline implants for approximately 16 years and I want mine replaced. I cant imagine having them removed totally. Just curious how its considered medically necessary for insurance to pay for it. I have great insurance and am hoping maybe mine can be seen as the same. My fatigue is so profound, I can barely function, the night sweats, just not feeling “right”, etc. Can you PLEASE tell me how insurance can view this as medically necessary? I am hoping to have mine replaced. I dont want larger, I just want healthy implants. Thanks.

      Reply
    2. Lisa

      I would have them removed and look into fat transfer where they liposuction fat from other parts of the body and put it in your breasts. It’s a much better solution

      Reply
  160. Flat & happy

    I had my explant surgery 5 days ago. Besides feeling a little sore and tired I feel good. I feel light and free.
    I can breathe deeply, I didn’t realize how constricted my breathing was before.
    I have noticed that my mild bladder problem seems to be gone! Pre explant I would go to the bathroom before getting in bed. Almost as soon as I would get comfortable I would feel like I needed to go again. I would get up and go, barely anything would come out. I drank plenty of water throughout the day, trying to make it better but it didn’t help. I also had occasional bladder leaks. Hopefully that is gone as well.
    My question is how were the implants effecting my bladder? I have read about this before but I can’t remember where. I am not on Facebook anymore. Thank you for your hard work!

    Reply
  161. Faye emordeno

    Where can n I find info. On how Bils effects the joints and why it causes deteriation in the joints hips, knees, shoulders , neck ect! I’ve been explanted and part of the group but I can’t remember where I read the info. On the joints

    Reply
    1. admin Post author

      Hi Faye,
      It must be in the files of the facebook group. I know that many of us get diagnosed with Nonspecific Connective Tissue Disease, RA and Fibro, their are many studies showing the link and these symptoms are even listed in some of the patient information that comes with implants. Nicole

      Reply
  162. grammie711

    I am looking to have my implants removed in Denver Colorado and am taking the steps to find an excellent surgeon specializing in explantation.
    I am 68 y/o and have had the implants since I was 35. They are making me Ill.
    Thank you!
    Sara

    Reply
    1. Em

      I can not recommend Dr. Linda Huang in Demver enough! I traveled from another state to have her do my explant. I just had it done August 30. She is amazing and an absolute expert. They even needed an additional hour to complete my surgery because she wasn’t satisfied with the results at the end of the estimated time and she stayed in there until it was finished which I know a lot of surgeons would not do. My results were unbelievable in a good way given how bad my breasts were before. I would go to her a thousand times over. She is the best. Also I heavily researched an interviewed surgeons all over the US for a month before I decided on her and I am so glad I did.

      Reply
  163. Bernadean Picard

    Good morning

    Just wondering why some doctors on this list are highly reccomended while others are only reccomended and some are not either? How do they qualify for recommendation on this list?

    Thanks
    Bernadean

    Reply
    1. admin Post author

      Hi Bernadean,
      In order to be on the list the doctors must be able to do En Bloc/ Total Capsulectomy explant of breast implants. Highly recommended means many ladies have recommended that doctor to me, recommended means some ladies and not recommended means that so far no one has recommended that doctor to me but the doctor is known to explant properly via other implant awareness sites. Nicole

      Reply
      1. Em

        I want to say I just explanted with Dr. Libda Huang in Denver on August 30 and she was amazing. I can’t believe how well my results turned out as I was a mess before. She could not have been better. She even stayed an extra hour in the OR because she wasn’t satisfied with the results after the estimated surgery time. I know a lot of other surgeons would not do that. She is a true artist in this work.

        Reply
  164. MIMI

    Hi Nicole my explant surgery was schedule for 9-29-16 but my PCP ordered a chest X ray when I went for my Pre-Op and came back with this results.
    The chest bilaterally demonstrates parenchymal infiltrates predominating on the left there appear to be multiple granulomatous appearing densities and bilateral increased interstitial lung markings with thickening of the horizontal fissure. There is relative sparing of the apices bilaterally.

    So my PCP is referring me to a lung specialist . What is your advice ? Nicole
    this is adding stress on top of stress, the PLS Postpone the surgery till I get clearance from my PCP
    I’m scare that I will not get clear for surgery I know that what ever is in my chest and lung is been caused by the breast implants , BUT…. and this is a big BUT…. this DR’s are not connecting the dots
    Please let me know what you think I can’t eat or sleep is like a bad dream
    Thank You

    Reply
  165. Amanda Walczak

    I’m not on Facebook and am an RN with many breast implant illness symptoms. I just flew to Cleveland Clinic and MS was ruled out. I have an appointment tomorrow back in Florida with a PS to discuss explantation. I’d love to speak to someone (Nicole). Thank you for creating the page to help others.

    Reply
  166. Elizzabeth

    Hi, I got my implants silicone under the muscle not sure that makes a difference? In 2008… I’m actually very upset with my RA dr. He signed off that I could have this surgery and I all ready had RA and I’V treatment every 30 days it was so bad. Knowing silicone immune diseases I don’t understand how a Dr does this? I did not know this until I found this site. I started researching when my husband came to me and said I think your implants are why your so sick. I pretty much have been sick most of my life with different issues had RA and FMS B4 surgery, had hysterectomy at 26 and 4 sinus surgerys hand surgery and 3 feet surgerys for RA issues. My ovaries and ependix out. But by 2009 I was even more ill I starting losing weight was down to 80lbs my IBS became so bad I would go 40 to 60 days with out going to the bathroom. I have terrible CFS , insomnia,depression, had to have my sinuses reconstructed. Got blood on the brain and lost almost all the spinal fluid out of my spine had a spinal head ache for 4 months. None of my RA treatments were working anymore the pain and flares are out of control so in 2011 had to start pain managment. In 2012 I lost my large intestines and have a ileostomy my colon just died. My back is deteriating and herniated and bulging disc they placed a spinal stimulator in 2014 but my body rejected it litterly it was protruding out my back and I had emergency surgery my spine as infected in 3 places and I had to have I’V antibiotics for 4 months at home. I keep going down hill day by day I have logs and pictures of the flares . In 2015 I started with hives all over one day I woke up and my whole body was covered eyes and tongue so swollen I couldn’t swollen went to ER was kept over night. They sent me to allergist and I was given tons off needles to check NO allergies no reason for Chronic hives so they just call it CHS… I’m on 2 prescription drugs and one over the counter for the hives. In April I fell and couldn’t breath a few days later went to the ER and my lungs were filled with blood clots and pneumonia. I also get infections over and over sinus, strep, UTIS kidney infections.
    My flares in my joints which they always call RA flares are 4 to 7 times a week. I either can’t walk can’t use my hands or my elbows or my back no matter what parts of my body are swollen ,red and very very painful and 99% of the time I did nothing because I can’t do anything if I even cook dinner I can’t move the next day. I have wanted to kill my self for the past 2 years but I have 2 son’s one 26 and one 14 and a husband of 28 years, but I have NO life at all and I am just making my family’s life miserable every day. I can’t have sex with my husband because not only does it hurt my whole body but my cervix closes up almost like it’s in flamed to . I can’t do this much longer and I’m not sure removing my implants will help?? I’m terrified I will have them removed and nothing will change and then I will take my life and my family will suffer, I don’t want that pain for my family we have had 2 suicides in 10 years in our family. I had my surgery because all I had was skin I didn’t have it just to be bigger. How do you go from 8 years of having breast back to just skin? Do they fix you or just so you up and leave you? Please anyone who can help in anyway at all I tried to join the support group on FB but it didn’t go through. I’m so lost so depressed I don’t know own what to do anymore.
    Another thing is I live in MD I noticed the surgeons listed don’t say they are extraction surgeons they just say surgeons 🙁 also one works with my plastic surgeon and I know my surgeon does not believe they hurt you. Also if there is no way for me to detox the poison there is no help for me no hope. And can some one please tell me what the talk Bouton the mercury fillings is ?? What do they have to do with this and how do we know if we have any?
    Thank you

    Reply
  167. Adri

    Pls Everyone I need help! Silicone Breast Implants done in 2009. R breast pain, swelling along with hair loss and very heavy menstrual period. An MRI WITH and without contrast was ordered.. The contrast gave me horrible side effects Headache numbness in my head that travels around my body, my vision is becoming blurred, and I can’t function.. I am not my self.. pls help.. my plastic surgeon is saying she has never had any patients with those symptoms… really? none of them never have any kind of pain or swelling? Also she said that the capsule is not always possible to be removed.
    want to remove them asap. I live in New Jersey
    Thanks so much
    God Bless all of you

    Reply
    1. admin Post author

      Hi Adri,
      You have gandolinium toxicity from the contrast. Contrast is very contraindicated for ladies with implants and even after they are explanted, as we cannot detox the gandolinium like healthy people. I am so sorry you were toxed, please try and find a doctor to help you detox gandolinium. And find another plastic surgeon that is committed to removing all capsule tissue when you explant, you implants are silicone and so your explant should be En Bloc/Total Capsulectomy. Nicole

      Reply
  168. Patricia McHugh

    I’m hoping to help a friend who needs explant surgery. Can you recommend a surgeon in Sacramento, California? Or San Francisco? Or Northern California? Thank you

    Reply
  169. Debra Nickerson

    Hi, I had breast cancer in 2010. Double mastectomy. Reconstruction. I live in Red Deer Alberta. Can you recommended a Dr in Edmonton or Calgary . Thank you.

    Reply
  170. yvonne

    Hi Nicole my name is Yvonne and I need your help on how to begin explant process
    I have saline breast implants by naturalle for 6 years. I am so sick and know they have to get out
    or I am gonna dye. Please help me thx Yvonne

    Reply
    1. admin Post author

      Hi Yvonne,
      The first real step is to find a PS that removes implants properly which means En Bloc/Total Capsulectomy. On this website is a list of Explant Surgeons that are known to remove implants properly. Nicole

      Reply
  171. Karen

    Hi there
    Is there an actual forum for the where ladies can talk to each other please?
    I have a ruptured silicone implant that I believe gas been leaking for possibly 5 of the 7 years I’ve had them and I’ve just learned that it is now in my lymph nodes and I need them out ASAP.
    I have complications due to a recent medication reaction that has made me extremely ill so I actually cannot take any anti fungals or anti biotics at the moment. Infact the only drug that I can have is the propofol to put me to sleep 🙁
    I am guessing it will still be worth having them out though even though I can’t take these other meds ?
    Also I am going to have an uplift- can anyone pls tell me if I will be able to bare the pain without many or any pain meds pls?
    I’m also allergic to local anaesthetic so again I won’t be numb when I come around:(
    Thank you very much for any comments .

    Reply
    1. admin Post author

      Hi Karen,
      Yes the forum is a facebook group called Breast Implant Illness and Healing By Nicole. Please come to the facebook group where we will coach you one on one. Nicole

      Reply
      1. Sue

        Hi, I have a question about joining the Facebook page please. Will my friends be able to see that I am a member of this page? I know that I’m not supposed to feel ashamed of my surgery but I would prefer not to have it known so publicly so thought I should check to see if it will show up in my liked groups list. Thanks

        Reply
        1. admin Post author

          Hi Sue,
          The facebook group is closed so your friends on facebook will not see that you are a member and they will not see your interactions in the group. You will see the posts of the group on your newsfeed but your friends will not see them. Nicole

          Reply
    2. Em

      Ask for a long lasting local injected while you are still under and following finishing surgery. I used this and all I needed was Tylenol and an occasional Valium to sleep for the first 4 days. This what I did and I was sore but very beatable. I can’t use narcotica because I become extremely ill. I had an explant lift and fat transfer so I had a lot done and this pain management strategy worked wonderfully.

      Reply
  172. MIMI

    Hi! I’m a 69 year old woman who is in need of a Explant surgery yesterday i founded your site by calling Dr Feng office in OH.
    And for the past week all I done is research and read reviews about PS’S in my area found 3 PS that more or less have a good background so…… yesterday was my first consultation with one of the PS
    Not too make it too long and pain full, but let me start with this THE MAN defended silicone implants as well as saline, said that the capsule if… is left inside will not cause any harm that with time it will dissolve in the body , during the course of the consultation became aggressive,defensive and argue with me. I had 22 Q’S for him i was prepared…. AND FLAT OUT HE TOOL ME he was not going to answer 22 Q’S for me

    When i got home i was very upset and depress to hear this PS talking this way about such a sensitive subject to a woman like that he is completely disconnected’ i think it took him by surprise he was not ready for me
    I have another consultation tomorrow i need the surgery very soon, having pain inflammation on my left breast feeling like i’m going to get the flu but i don’t my ears are hurting me and more….. the PS from yesterday toll me he will charge 4300. dollars ,is this a good price ? Please let me know

    I don’t have the money for this surgery i have a fix income if you know of any organisation that can help with finance will help me a great deal.

    I really like this site and thank you for helping women find the truth about breast implant illness, now i know the POISON INSIDE OF ME !!!!

    Thank You!!!!

    Reply
  173. Kristin Devine

    I’m new to the “Breast Implant Healing & Illness by Nicole” on FB. I want to ask the group for advice about my illness, but I don’t want my FB friends or family to see my comments, since they do not know I have implants. Is there a way to ask the group questions w/o my FB friends seeing my comments on your fb page. I desperately need help & am really sick. Thank you!

    Reply
    1. admin Post author

      Hi Kristin,
      The facebook group is closed which means that your friends on facebook will not see your posts or comments in the group. You will see the information from the group in your feed, but your facebook friends will not. Nicole

      Reply
  174. Caroline

    Hi!
    Thank you for this website. Do you know the prices for European doctors? Also when you write “recommended”, what is it based on?
    Thanks
    Caroline

    Reply
    1. admin Post author

      Hi Caroline,
      No I don’t know the prices of explant in Europe however, I will add them if they are shared with me. Recommended means that ladies have recommended their surgeon to me to add to the list. Nicole

      Reply
  175. Ellen Reynolds

    Just wondering how long ago this was written.
    I need to have mine taken out because I’ve been sick for years
    and suspected the implants and no one will listen to me about it,
    meaning the Dr’s. I have never been able to afford to have this
    done and wanted to know if the $5,000.00 was a total bill.
    Thank you,
    Ellen

    Reply
  176. Ann

    So in regards to Mercury fillings …I have one ….does it need to be removed first or can it be done have explanation surgery?

    Reply
    1. admin Post author

      Hi Ann,
      You can remove your one mercury filling after your explant, make sure you go to a dentist that is knowledgeable about the proper protocols for removing mercury safely from your mouth and follows them. Nicole

      Reply
  177. Samantha

    I have breast cancer and i have been treating it for the past 2 years. I went for different therapy sessions, took different drugs but there was no cure . Until i contacted a doctor that treats cancer and he sent me cannabis oil (marijuana) and gave me instructions on how to use it, and after a few months of usage the lump in the my breasts dissolved completely and vanshed . You can reach him via email on davidcancertreatment@gmail.com

    Reply
  178. Diana

    I am sick and tired everyday can barely get out of bed. Went to a naturopath and after doing testing was told my body is toxic with what would amount to soaking in a tub with pesticides. Have no $$$ to have explanted, any info on resources ? Thank you????????

    Reply
  179. K

    My mother needs explant surgery as well as Mercury filings removed. She is having the Mercury fillings removed (correctly) first. How long should she wait to schedule the explant surgery? Can she do the surgery 2 weeks later or will that send her into too much of a detox? Thank you!

    Reply
    1. admin Post author

      Hi K,
      As long as her mercury fillings are removed properly and without contaminating her with more mercury, it should be okay to remove her breast implants two weeks after. Her explant should be En Bloc/Total Capsulectomy, please ensure that all capsule tissue is removed. Nicole

      Reply
  180. Lisa S.

    Hi, I am 54 years old and have had my saline implants for 20 years…they look great (although a little bigger than i wanted) and no problems. I have many of the symptoms listed on this site, but never believed they could be from my implants…I just thought I was getting older and going through menopause. How can you tell the difference?
    I have terrible back pain with degenerative changes due to age, spinal stenosis, etc. and thought that maybe my implants could be aggravating that. So I had a consultation today with my original plastic surgeon that placed them. He said he would remove them but only remove the anterior capsule. He also said I would not need a lift, which I am happy about. All seems good, but I am having trouble making this decision….
    I am afraid that I won’t see any change in my physical symptoms and be sorry I have two empty, droopy sacs on my chest! What should I do? I could potentially have the surgery on Aug. 18th. Please help!

    Reply
    1. admin Post author

      Hi Lisa,
      You likely won’t see any change in your symptoms if you do not ensure that all the capsule tissue is removed along with your implants. Nicole

      Reply
      1. sarah

        I’m just curious because I am trying to make the decision on how to best get my implants out but how do you know for a fact that removing capsule enbloc is the ONLY way to relieve BII. There are only a handful of Dr’s that are claiming this. I’m not disvaluing what you say I’m just trying to find hard evidence that pores this is so. I have smooth saline 13 year old implants.

        Reply
        1. admin Post author

          Hi Sarah,
          There is lots of information available as to why capsules need to be removed for your highest and best recovery. I will send you some via email. Nicole

          Reply
  181. Gloria

    I call the plastic surgeon that did the silicon surgery 9 yrs ago and explain the systoms look into my file and mention the surgeon could not do the removal because he no longer remove implants that I had to find other surgeon. Any recommendations plastic surgeon.

    Reply
    1. admin Post author

      Hi Gloria,
      Please see the Explant Surgeon list on this website for a long list of plastic surgeons known to remove breast implants properly. Nicole

      Reply
  182. Michele Amos

    breast implants cause endocrine and immune system dysfunction….

    Do they cause Hashimoto’s disease?

    Reply
  183. morgan austin

    Any recommendation on a good explant surgeon in Lincoln or Omaha, NE? thank you for all your work and information.

    Reply
    1. Em

      Hi Morgan,
      I also live in this area and I am going to Denver to Dr. Huang. That was the closest expert in en bloc I found and she does a ton of these and has for years. Wishing you the best!

      Reply
      1. Taylor

        Hi Em, wondering if you have gone to see Dr Huang yet? I live in Colorado and want to get an explanation due to all the pain and illness i am certain is from my silicon implants. I’m very scared and wanted to see what you thought of her. Thanks, Taylor

        Reply
  184. Angie

    If your PS will not take your implants out and insists on replacing them, WALK OUT! You are not with the right surgeon!!!
    Explant surgery with fat transfer on August 9. I had a bilateral mastectomy in 2004 with silicone implants… First rupture in 2009-replaced them and now feels as if there may be another. I am very sick and praying that this is the answer, IT JUST HAS TO BE!

    Reply
    1. Eva

      How was your surgery? Do you feel better? I had mine put in 2007 due to double mastectomy and wondered how it was to take them out and do fat transfer instead.

      Reply
  185. mOLLY

    I had some breast work done and I used the Dr Max Powers Scar Serum on one breast and the scar treatment they gave me at the doctor’s office on the other breast. The Dr Max Powers Scar Serum worked so much better I wish i would have used it on both sides now!!! I didn’t use it on both sides because I didn’t know what the reaction would be on an semi open wound ( stiches). I am using it now however and it is working…but its taking much longer to fade the scar.

    Reply
  186. Vicki

    I had my Breast Implants inserted in 1986. My left Breast Implant ruptured in 1994, and I immediately went into Adrenal Exhaustion due to the Silicone going throughout my entire body! I was truly in a “Life Threatening” situation after my left Breast Implant ruptured! I had both of my Breast Implants removed after my left Breast Implant ruptured and did not get another set of Breast Implants!

    I have been working with Alternative Medical Doctors since 1987 trying to remove the Silicone from my body which has saved my life! I would like to connect with other women who have had their Breast Implants removed and are using Alternative Medicine to heal.

    My e-mail address is azcelene@gmail.com

    Thanks!

    Vicki

    Reply
  187. Vicki

    Just diagnosed with leakage of very old silicone implants. Wanting to hear about any recent experiences with Florida surgeons as soon as possible. Greatly appreciate this website.
    Thank you.

    Reply
  188. Lili Kramer

    Thank You Nicole and Ladies for opening up this Web site, which is long over due. I am in this Dow Chemical Law Suit for over 20 years now, when Big Money Corporations has a Law suit pending, the breast implant victim could and does pass away before she sees any compensation for her inflicted injuries…which are atributed to numerous diseases and health problems. It will be interesting to hear from the thousands of women being put on hold, involved with this Dow Chemical lawsuit and their health problems and sacrifices in their lifestyle from toxic implants. I have acquired PLS, a pre ALS condition from having a saline implant in my left breast after a Cancer scare, Family history of breast cancers instigated this “scare” which Dr’s suggested a mastectomy, after surgery, mass was found to be benign Yes most Dr’s won’t enter into treatment or give a healing plan, or even sign a diagnosis pertaining to implants causing their health problem..For fear of losing their license. AMA…. and Big Pharma does control how LIFE is lived with the nation. To survive Women have to be assertive and persistent in their healing program… Lili from San Diego, Ca.

    Reply
    1. BETTY F. LEET

      You need to get them as much bad publicity as possible. That will hit them in their deep pockets too. And…it makes them want to settle a bit faster.

      Reply
  189. lili

    Hi Nicole, I am in a dilemma, I have two implants of silicone, inner legs thighs 2004, and BI 2005, I heard a lot of breast explanation and I happy to learn about it which is great!! I will persue to do soon. I urge to explant both they bother me a lot . how difficul is the leg ecplantatoon ad what type of surgeon should perform the leg surgery? i am sorry I do not know who to ask, Thanks for your answer.

    Reply
    1. admin Post author

      Hi Lili,
      I assume, a plastic surgeon implanted the leg implants too and should be able to remove them as well. Please ensure that any capsule tissue is removed from the legs as well. Nicole

      Reply
  190. Roxanna spencer

    Does all this information pertain to saline as well? I have had implants for over 30 years. The right one shifted upward about 5 months ago, and now, just 2 days ago, the right one has either ruptured or has deteriorated bc I have quite a bit of a light yellowish sticky substance coming out. My daughter is coming now to take me to er. Is this where I should go? I’m in houston Texas.

    Reply
    1. admin Post author

      Hi Roxanna,
      Yes, all this applies to saline implants as well. The shell of saline is also silicone and further saline implants are regularly colonized with microorganism due to defective/leaky valves allowing in human fluids and tissues and providing a home for bacteria and fungus to thrive. Those microorganisms produce biotoxins which are highly toxic to us. Saline are no safer than silicone. Nicole

      Reply
      1. roxanna

        update: I thought I had saline, they were silicone. About 4 months ago, my right implant shifted upward. I ignored it. About a month ago, I noticed a sticky substance under my right breast, didn’t have a clue what it could be, guess I wasn’t even going to allow my mind to entertain the thought that hey, you have implants, maybe one ruptured. Shortly after that, I noticed it again. The next morning I got up to go to work and couldn’t. I was running a fever. Daughter took me to er. They discovered my right implant did rupture. I had surgeon remove both, but I didn’t know to ask about capsule tissue? Its been 2 weeks since my surgery, I go tomorrow to get stitches out. What should I be asking the surgeon? And how do I test my body to see if I have silicone throughout my body?

        Reply
        1. admin Post author

          Hi Roxanna,
          Enquire with your surgeon if he completed a Total Capsulectomy on you which means removing all capsule tissue. Ask for the operative report which should describe exactly what he did and ask if pathology was done on your capsules as pathology should also describe the capsule tissue size, shape condition. Ask what he did to clean the silicone from your chest pocket. I think you can assume that you do have silicone throughout your body. Inositol removes silicone from the body. Nicole

          Reply
  191. Julie McDonald

    Hello Nicole! I am a previous member of the yahoo implant support group and a new member to your FB group. It’s awesome and such a great resource for women!! I am interested in starting a website of my own to tell my story and have another resource for sick women. I was wondering if you have any advice, tips, suggestions, etc. for me. My father is a computer programmer and is going to handle the technical aspects of creating the site. I have never done anything like this before, but after being sick for many years, explanted, and better now, I feel compelled to do it! Thank you in advance!!
    Julie M.

    Reply
    1. Nina

      Julie, just my opinion, but why start a new website? I say strength in numbers and not “dilute” our strength! Consider staying on “our” fb page and this website and work through them. I’m just a member of the fb page and not one of the administrators, but I feel THIS website saved my life! Maybe you can contribute your story/info here. Or, perhaps add some other social media for more exposure and direct people to this site/fb page. Best of luck!

      Reply
  192. Roxanne Burk

    My 16 year old daughter just informed me of this. I have had every symptom you can think since 2006 few,months after I got implants .. Everyone is uncertain of what the cause is for everything . is there anyone in the Cleveland Ohio area you suggest

    Reply
  193. Anna

    Hi Nicole, would you mind telling me who you used for your explantation? I’m in Vancouver BC as well, and having trouble finding a surgeon. My original surgeon does not want to remove them without replacement.
    Thank you! ????

    Reply
    1. admin Post author

      Hi Anna,
      For my explant I used Dr. Thomas Sinclair in Canmore, Alberta. I cannot recommend him highly enough, he is a very skilled surgeon and has a wonderful bedside manner. Nicole

      Reply
  194. Elisa

    Hi,
    I just learned about Breast Implant Illness. If it wasn’t for Crystal Hefner’s story I would have never of heard about it. Reading her story was like seeing a light of hope go off. I have been extremely ill and all symptoms indicate Breast Implant Illness. I just found out that I need to have my implants removed. Although this is a medical necessity, it is also a huge expense that is way beyond my budget. Please check out my story by going to the link below. I am not one to share such personal information about my life but this is journey is one that requires support. Thank you Nicole. Best of luck to everyone women out there desperate to get better like me. My surgery is within a week with Dr. Kusuma in Florida. Has anyone used him before?
    gofundme.com/2fptdbhg

    Reply
  195. JGolds

    I have had a breast implant since I was 16. I am now 42 and have all of the symptoms listed. I was diagnosed with Fibromyalgia at 19! I have struggled with fatigue and joint pain my whole adult life. I now have severe pain in my right shoulder above the breast that has the implant. I have had MRI’s and xrays that shows nothing is wrong with me. I have went to specialists that insurance did not pay for to try and figure out the source of inflammation in my body. I have Adrenal issues which also keeps me up all night and has created insomnia. I have been miserable for a long time and feel much older than I am. If I have this implant removed, I will not have a breast on that side. I did not develop correctly. Can they reconstruct me a breast from my own tissue and are there risks involved because of the damage from the implant?

    Reply
    1. admin Post author

      Hi JGolds,
      You can have reconstruction that does not include an implant or even better consider fat transfer which is producing beautiful results in the ladies I have seen in the facebook group. Nicole

      Reply
      1. Cerys

        Hi. What is the reconstruction surgery without implant called? I have never come across it in the UK. I can think of anything more depressing than having my implants removed and going back to my flat chested self. I’m not as lucky as many women who at an A or B. I literally have nothing there and it really effected my life so if love to har of any other ways to increase size even just a little. Thanks xx

        Reply
  196. Maris B.

    I have silicone Mentor implanted 2010. I’m a RN who went from working full time, volunteering, riding a bicycle 40+ miles a day (religiously), & being both extremely cheerful while giving of my time & being very socially active with our friends & family alike to being basically isolate & strictly home bound. Heath challenges were not new to me. I’ve had numerous surgeries in the past including including several 360 degree spinal surgeries one in ’06, ’12, ’13 with an abdominal surgery falling in there somewhere (my memory…I can’t recall). I’ve always bounced right back. I do have titanium hardware but no problems presenters until this. The majority of dabilitating disorders are post strokes. The one I have the most difficult time with is pain. Having always had such a high pain tolerance that every time I was pregnant the dr stressed to my family & myself the importance of my coming in at the onset of any pain what-so-ever as he feared I wouldn’t recognize the onset of labor (sans water breaking) until it was too late for a hospital delivery. Two things stand out to me here while typing this 1) I only went to the dr if I was pregnant or needed some type of surgical intervention. Now it feels as tho we have weekly appointments with… Hepatologist, liver biopsies are no fun. Neurologist, Hematologist, Opthamolagist, Allergist, Physical therapist & the list just goes on. The 2nd thing that stands out is I’m allergic to basically every narcotic as well as other meds. We had a Metabolic Panel Study done I order to find a med because it was thought the strokes were caused by the high blood pressure who chic was being caused by the inability to control the pain. Going in these Drs offices …each time being asked to fill out a stack of forms cause me such great anxiety… Anxiety that I never had before. I might recall it one minute but forever it the next. I have such brain fog it’s nearly intolerable and beyond embarrassing. My brain constantly feels as tho it’s going to spontaneously combust. I take medication in an attempt to prevent the migraines that more days than not, still present daily …so intense I become violently ill. My vision is so bad at times I just simply close my eyes rather than have them open. Not a day has passed since I can recall not feeling like I have the flu. Flu that makes every bone, muscle, hair & all your skin hurt. It takes everything I have just exist some days. For me to get dressed & go to church or anywhere for that matter takes hours & the saddest thing is I can’t believe I ever found joy in outings & gatherings. We miss a lot…& it’s so unfair for my precious husband! I have not driven a car further than 30 miles in over a year…most days I just go from the bed to my chair, to the shower & back to my bed. Repeating it all the next day. I look at the calendar knowing I’ll need a full days rest in between doing anything. Going to the dr in Houston will literally wipe me out. Five years ago, if I told my normal self this was going to be my life I would have 1) not believed a word of it 2) Said this is classic hypochondriac behavior …However, I’d have to ask this question… Why on earth would anyone give up my fabulous life to sit in a chair & wither away?! Who would give up spending as much time as possible with their precious recently retired parents who treasure each one of their three daughter’s as much as they do them? Who would trade a second of time they could spend with their tall handsome husband on the back of his Harley, wind in your hair, riding all the way to absolutely no where…& both loving every second of just being together. Who would miss out on spending every second they could with the greatest gift her son & DIL Ever gave her…their little miracle baby who calls you GiGig? And lastly but most certainly not least… Who on this Earth… Who in this Universe would trade a single solitary moment of sitting in a chair or being in a bed when they could be spending time with their gorgeous daughter. An angel on earth who lives five hours away completing her education but will drive or fly home just to help clean a closet. It was my adorable 23 year old daughter that found this site & in all capital letters she sent the words READ THIS NOW MOM!!!!! She so desperately wants her Momma back …
    I’d love to consult Dr Feng but with my medical history I’m not exactly sure how she would feel. Until I talk to someone…I feel I need to be in Houston near my Drs. & close to the medical center. Just a side note in case anyone is wondering… I do have full clearance to have the explant surgery done.

    Does anyone have a referral in Houston? A Very Highly Recommended one.

    Reply
  197. Syndi

    Hi there, I just became aware of this illness YESTERDAY and I can’t believe it. I’ve been unwell for many years and have had implants for 10yrs this year as I had tubular breast deformity as well as 2 hernias in each breast that prevented the development of breast tissue! Dr said that once he removed the hernias I would only have a nipple left. At 23yrs of age, this was horrific to hear … So we discussed implants and went forth with the procedure. I don’t want to be sick any more, but I don’t want to have just nipples at the age of 33. I’m feeling extremely defeated and confronted.

    Reply
  198. Shannon H

    I have had my implants for almost 6 years. I began having hip pain and elbow pain and I chalked it up to excercising. The last year I have been experiencing extreme fatigue, chest pain , joint pain……my doctor done blood work and my ANA test was positive therefore she sent me to a rheumatologist who do e more testing and he seems to think I have Lupus. I also have hypothyroidism. I’m convinced after reading this article that my problem is the implants. It’s scary but at the same time I almost feel relieved to have a answer

    Reply
  199. Karen Hetu

    Thank you so much for this information. I had my implants removed (as best as the doctor could) 2 years ago. I learned that both silicone implants had ruptured at some point about five years ago, but had trouble finding a plastic surgeon to remove the silicone.

    I finally found one, but he couldn’t get it all because it was spread all over. He also did a breast lift at the same time. I am so glad to have most of the silicone out of my body!

    Reply
  200. Dawn

    Will insurance pay for explant?

    I have all these same issues, BUT I did test positive for Lyme disease, hashimotos, 2 kinds of arthritis, adrenal fatigue, so how do I know if the implants caused any of this?
    I don’t want to explant if I don’t have to not to mention I don’t know where I’ll get the money if insurance doesn’t pay

    Reply
    1. admin Post author

      Hi Dawn,
      Some insurance plicies cover for rupture, pain of the breast, chest, neck and back, capsular contracture and infection/necrosis. Read your policy and see what they cover. Insurance usually does not cover for autoimmune diagnoses as they got a waiver for autoimmune diseases related to implants because there is a direct link between autoimmune and breast implants and the patient information warns of autoimmune symptoms and diseases from implants. Nicole

      Reply
  201. Amanda

    I only got my gel implants 5 months ago. Slowly symptoms such as ibs, digestive distress, brain fog, fatigue & depression have cropped up. It seems most on here experience symptoms later on. Are these symptoms most likely due to the implants, and is a recovery possible? How long do you think it would take to heal given I’ve only had them a couple months. Thanks.

    Reply
    1. admin Post author

      Hi Amanda,
      The earlier you have your breast implants removed, the easier and quicker you heal. Please ensure that your explant is En Bloc/Total Capsulectomy. All capsule tissue should be removed for your best recovery and choose a surgeon committed to getting it all out. Nicole

      Reply
  202. Concerned Woman

    Hi,
    I recently got my explant done. But I have a major reason to believe that the doctor left the capsule inside, eventhough we agreed he would take it out entirely implant and capsule as a whole.
    He never showed me the capsule after surgery he said he disposed of it. There is no way to know if he really extracted it. I am extremely concerned that the capsule that was left inside is still contaminating my body as i’ve had a severe headache since surgery. I’m not sure what to do. Any one have any recommendations or has been through this?
    Thank you!

    Reply
  203. Shelley

    I have been suffering with most of these symptoms since probably 2 yrs after getting silicone implants! The past 2+ yrs have been nearly unbearable, with debilitating, multiple joint pain, insomnia (I only sleep a total of a few hrs per night) dry eyes, fatigue. I have been to multiple doctors and had every lab test possible, only to be told time after time that my labs are normal and there’s nothing we can do for you except pain meds. I cry myself to sleep most nights, have had to give up basically all hobbies and exercise due to the pain, and have nearly destroyed my relationship with my husband because I never feel well. I’ve been put on high doses of Prednisone because is the only thing that gives me relief so may times, that I now have Avascular necrosis in both of my hips. I must admit, the thought of the culprit being my implants has crossed my mind and occasionally over the yrs, since my symptoms all started after getting them, I never really gave it any serious thought until today after seeing a woman from California who specializes in alternative medicine. I have been researching this topic since I got home and am now very concerned that it’s the implants, however I am also excited to think I may finally be able to get help after soon many years of suffering!!

    Reply
  204. Lindsay

    Hi everyone, I had mentor smooth saline placed in 2003, in 2012 I started getting real sick, though thinking back the chronic fatigue and interstitial cystitis may have been associated too. Since 2012, I have been diagnosed with fibromyalgia, refractory dermatomyositis, relapsing polychondritis, and ankylosing spondylitis. I am only 35. I am scheduled for explant on August 10. I was wondering if anyone else has had so many diagnoses and if after explant got any better. If so, would you be wiling to talk with me about it? My email is dakota288@msn.com.

    Reply
    1. PSwolfie

      Hi,
      I just was explanted 5 days ago. I had saline Mentor also for 26 years. I got interstitial cystitis months after the implants. I didn’t get a diagnosis for at least 5 years at first and really just stumbled on all this info this year. Well, 5 days in, I feel some IC symptoms today. Not sure what’s going, trying to join the facebook page to learn about detox. The silicone bag/case bleeds into your system supposedly. I will keep you posted. I am also on real self PSwolfie.

      Reply
      1. Twiggy11

        Hi I have talked to you on real self. So glad you are done with your surgery. I had to step away for awhile just so consumed with what to do next with healing. Good to be back looking forward to sharing our journey.
        I too have IC and was hoping that out of all my symptoms that breast implant removal would help. Happy some symptoms subsided but unfortunately still having bladder issues and food sensitivies. In fact day after surgery I had a new symptom! A swollen stomach that won’t go away! I’m Thinking it is from Candida getting worse from meds etc that I needed for the surgery. I started 5 wks after surgery taking anti fungals and probiotics which are helping with bladder symptoms. Looking forward to hearing your progress.

        Reply
  205. susan

    thanks Nicole. I have seen Dr. Izzadoost here in Houston and will be having an explant procedure on January 9. I really didn’t want to wait but because of trips and business am having to wait. I hope you are doing well. thank you so much for your site.
    Susan

    Reply
  206. Racel

    I had just gotten a double mastectomy with with immediate reconstruction and was involved in a small fender bender. I instantly did not feel right but couldn’t describe what was wrong. Was then taken by ambulance to the ER and there they did ex rays and found 3 broken ribs. Which nothing could be done about. 24 hours later I notice cle as r reddish drainage through my right breast incision along with complete swelling of my right breast that was double in size compared to my left. I called my surgeon and told them what had happened and they informed me to go to the hospital and to prepare for surgery and not to eat or drink anything any longer. So they went in and stop the bleeding cleaned up the breast implant and then went ahead and we closed it. When I went home to sleep. Woke up 8 hours later and was itching like crazy. Couldn’t figure out what was wrong I know is that I hadn’t ate or drink anything you haven’t took in any form medication that would have caused an allergic reaction. So I went ahead and took Benadryl but Benadryl wasn’t doing it I had to go to the emergency room once again where they administered with some type of cocktail to help with the itching and hives and anaphylactic reaction that I was having. I was sent home with a dose prednisone and 3 rounds of those over next couple weeks. That has been 3 months ago and I am still dealing with the rash hives on a daily basis I’ve been taking Allegra instead of Benadryl because that does seem to help better but no one can explain to me what it is. Is there anyone out there that can help me or let me know if this is some type of autoimmune disorder that I’ve sir come to after this fender bender?

    Reply
    1. Raquel

      I have had implants put in (gummy implants) and about 3 days from the surgery I broke out in hives and the most horrible itching. The surgeon refused to belive it was the implants and told me I had scabies. After passing out twice and my chest started swelling I started researching. Dr. Barnett in sarasota fl is well known and helped me explant. It has been a year now and I know for a fact what I was dealing with was my implants

      Reply
  207. Beth Poore

    Hi and thank you for making this information available!! I was wondering if anyone else has also had silicone lip implants? If so, what was the outcome? I’m concerned about how they can fix this and what my lips with look like after. I’m also worried about how my chest will look but am better prepared since I know more about the explant in that area. I hope I’m able to have fat transfers to both areas!
    I am also concerned about being on Humira for Crohn’s and Rheumatoid arthritis. This is supposed to make my immune system weak so my body will stop fighting against it’s self. My concern is if I stop the meds I will be sick n deformed if I dont stop I’m afraid my body heal wont heal well after explant! I was diagnosed with Ulcerative colitis before any implants about 30yrs ago. It’s most likely Crohn’s instead. (Long story) My son has Crohn’s n my mom was never diagnosed but I’m sure she did too. My concerns about having autoimmune disorders and not knowing which ones are hereditary and which are from the implants n what meds are best… so confused. .. I will be looking forward to your response, ~b

    Reply
    1. admin Post author

      Hi Beth,
      First I would like to ask if you have a mouth full of mercury fillings that may the initial cause of your Ulcerative Colitis, leading to Crohns and RA? Second, I suggest testing for all the genetic variants of MTHFR which hampers our ability to detox toxins and heavy metals and may make the difference as to why your family is getting autoimmune diseases which in general are from toxins. Approx 40 per cent or more of the population has MTHFR genetic variants that interrupt/block our ability to detox by 30 to 70 per cent and so those people collect toxins and eventually come down with autoimmune conditions and other diseases. Secondly, I would also look for an underlying fungal/microbial condition in your gut too and treat it asap. Next I would remove all the silicone from your body properly ensuring that all capsule tissue is removed too. I would then get off the Humira so you can heal and recover. Specifically, I don’t know much about removing silicone from the lips. Nicole

      Reply
  208. stacie

    I recently read an article stating the longer the implants have been in, the less likely you are to recover. I have had mine 16 years and am going to consultation next week to have then removed. Have you found this statement to be true? The percentage was something like only a 30% chance of recovery after that amount of years.

    Reply
    1. admin Post author

      Hi Stacie,
      Of course the longer implants are left in the more damage they do however some ladies have silicone or saline implants for decades and have very few symptoms so it is not a given that indwelling time will affect healing. The article may be referring to ruptured/leaking silicone implants if left in the body for years may spread silicone and cause an autoimmune disease that will continue even after the ruptured implants are removed as the silicone is difficult to remove. For the most part most will improve/recover after explant and continue improving for months and even years. If silicone implants are suspected of leaking or rupture they should be removed as soon as possible. Most silicone implants are found to be leaking and or ruptured around the six to eight year mark after implant. Nicole

      Reply
      1. stacie

        I have the Mentor smooth saline implants. I know they have the silicone shell. I was just discouraged to read that. I’m having them removed and hoping to start healing. Thank you for your reply. That helped encourage me.

        Reply
  209. Christina

    I am 31 and because of a friend and suicide I do not use Facebook anymore. Is there another way I can join the support group? Are you able to email me directly? Thank you, I am suffering greatly and never ever thought it could be my implants. The system is so flawed it’s terrifying.

    Reply
    1. Paula Lawrence

      Hi Christina,

      I don’t do Facebook either but if you would like to call me or email me directly my numbers are: cell 715-205-4255, home 715-865-2925 or email chaslawg@gmail.com. I live in Central time. I had my explant surgery on 5/9/16 and am doing great!! It’s always nice to be able to talk to someone????. Paula

      Reply
  210. Susan Redwine

    Does anyone know of an explant surgeon in Mexico that is also educated in replacing implant with fat and lift. Also using alternative treatments such as hyperbaric, stem cell and/or plasma? Thank you.

    Reply
  211. Jill Heshka

    Hi Nicole,
    I can tell you are a very busy lady keeping up with all these questions and comments! Speaking of comments, I posted one about a week ago asking about a private phone consultation. You mentioned you’d contact me by email. I was going to respond to the comment but now I don’t see it. Just wondering if we can still connect? Thanks so much for your time and I look forward to hearing from you!

    Reply
    1. admin Post author

      Hi Jill,
      Sorry, it slipped my mind. I will email you privately later today. Thanks for your patience. Nicole

      Reply
  212. Glenda

    Grateful that I found your website. I got the implants several years ago and need to get them removed. I do not want to get any other implants. Was wondering if you know of plastic surgeons in Arizona. Thank you for your time.

    Reply
    1. admin Post author

      Hi Glenda,
      Yes there are several surgeon in AZ, please see the Explant Surgeon list on this website. Nicole

      Reply
  213. Stephanie Van Doren

    Hello my name is Stephanie,
    My mother in law has found all of this info as I have been very sick. I have saline implants for 9 years and in January I thought one started leaking. I went to the cosmetic surgeon who said he thought it might have a pin hole leak. It’s still in there. I have had all over pain, swollen lymph nodes, joint pain, swelling of my pituitary gland, spontaneous milk production of my breast, distorted vision, pain in the abdomen, spine pain, extreme tiredness, weight loss and migraines. I have had MRI’s of my brain, spine, neck, chest , CT- of my chest, abdomen, and pelvic area. All showed incidental findings nothing to make me this sick. MRI of breast was clear but was hard to breath due to engorgment. No one listed spontaneous milk production Endocronologist said prolactin level was normal. Anyone will milk production?

    Reply
    1. admin Post author

      Hi Stephanie,
      Yes, lactating and other abnormal breast discharges are a symptom for some. Come to the facebook group and talk to other women who have had this same symptom. There are over 3000 of us in the group. Nicole

      Reply
    2. Gina Barkley

      Hi Stephanie,
      I am also having problems with milk production or so the ER Dr has said. He blamed my ovary (only have 1 left), that has 3 cysts on it, for “tricking” my body into thinking i was pregnant and therefore needing to produce milk but im 45 and more menopausal then pregnant. I have had tubual ligation with oopherectomy of my left ovary and dont think my body is telling my milk ducts that im needing milk and therefore a clogged milk duct because I can’t produce milk!! The infection isn’t coming from the nipple, it is coming out of the side of my boob and on the aereola. I was so swollen and red from all the toxins, that I’m assuming, may be stemming from the implant. The Dr instructed me to do hot compresses on my breast. Well that only made matters worse because the compresses actually made my “little white spots” of infection burst open and now they are a continual open sore but just ran across this information and now wondering myself if my implants are the cause of my ovarian cysts with cancer cells?? Not from clogged milk ducts…my breast implants have been in 10 yrs and do not want to have them removed but the constant draining of nasty yellowish blood stained smelly liquid oozing out of my breast is very painful and inconvenient as well as debilitating to the point of not being able to wear any clothing or bra. I have to miss work and stay in bed due to fatigue, lower abdomen pain, back pain and very tender breast to say the least..I haven’t been diagnosed as of yet but hope to get more information soon!! Please let me know if you find out anything concerning milk production.
      Best of luck,
      Gina Barkley

      Reply
  214. Svenja

    I have my explantation next week.
    My surgeon said he maybe can’t remove the whole capsule because my implants are submuscular and maybe the implants stuck in my ribs. I am so afraid that my symptoms will stay forever and I’m still sick when the implants are out.

    Reply
    1. Judy

      I had the exact same thing happen to me!!!!! PAIN, gosh! Awful. There was “gunk” attached to my ribs, lymph nodes, down my arm, everywhere .. My doc scraped and scraped to remove it all. I could feel the hard ball of saline and whatever the outside was made of. It reminded me of a contact that had closed together. Recovery was hell…. For days.

      Reply
  215. Robbie

    Please accept me on website. I am so very sick, I have silicone implants for 30 yrs. I have been extremely sick for seven years. Had MRI and it shows implant leaking on the left side unnder arm the implant scar pocket rupured, right leaking within scar pocket. I have been searching for a surgeon and not found a syrgeon who accepts Medicare. I am receiving social security disability due to illness. It continues to get worse and I’m not sure what to do. Please I need help!

    Sincerely,

    Robbie

    Reply
  216. Alison Kendall

    Hi , I live in the uk and am amazed that there are hardly any UK based websites like this one. It feels like the UK is not allowing this information to be traded by women in the UK. I hope my story helps someone. I had mentor saline breast implants in 1999. I was told that they are not lifelong devices but, at that time, I did not let that worry me and went ahead as I was told that saline were safe. I was young with a 32a bust and had no self confidence at all. I must say that I didn’t have any problems until about 12 years after implants when, out of the blue, I got a Seroma on one side, a huge one!! I went to a ps who immediately advised removal and replacement with just a 5 minute consult… No exam, no medical history, nothing. I was totally unhappy with this and immediately felt uncomfortable. He would not even say WHY this had happened. My insurance paid for a scan and the sonographer showed me the fluid collection and then said he could drain it. He did this and after that things went pretty much back to normal and I got on with my life. At the back of my mind I kept wondering why this happened but was constantly assured it was nothing to worry about. A year and a half later I felt a lump had developed at the front of my right implant and went to my dr who sent me for a scan at the local hospital. They insisted that it was just the port of the implant which must have moved round over time … I knew this was wrong as the implant was fixed by the capsule surrounding it!!! But no dr would believe that anything was wrong!! I kept going back as I was so worried and I was also feeling that my right arm was pulsating!! Finally it was noticed that my underarm lymph nodes were very swollen and eventually I had to have 2 removed which were the size of walnuts!!! I was told that it was just an infection which had nothing to do with my implants as they were ‘intact’. At this point I started to google all this stuff and of course came across ALCL (lymphoma). I took all this info to my doctor who completely dismissed it, as did every ps and dr I saw after that. I was told to just get on with my life as everything was fine. I continued to live with the doubt but, I’m sorry to say, even after all this, was too scared to even consider getting the implants removed… So, I stuck my head in the sand, and tried to forget all about it. Fast forward to March 2016. I had regularly still felt that pulsating in my right arm (even spoke to my dr about it a few times and was always dismissed). I woke up one morning and I could feel my right implant had become hard overnight! No other symptons at that stage. So I started to Look at ps’s for replacement. It was nigh on impossible to find someone who would exchange with saline. I was continually told that no one uses it anymore as silicone is the best and 100% safe!! I could not believe my ears. At this point I was still under the impression that saline was safe… A week or so later a great big painful red rash appeared under the right breast in the crease line. I went to my dr who did not even examine me and was referred to a private breast dr a week later. He took one look and said I had a nasty infection which could lead to scepticaemia and necrosis. I spent 4 weeks on very strong antibiotics… But it could not be shifted. He said the only way to treat it was by removing my implants… I was gutted but knew it would come to this. He said I could not replace them for 6 months and that if I do replace that I should have silicone !!!! So, three days ago he explanted me. They are both out including capsulectomy. When I woke from the surgery and put my hands on my chest I was devastated. BUT… after now reading everything I can find on the internet I actually feel relieved … My breasts are as flat as pancakes but I am relived to have them out… I really had no idea how toxic they were and I am so grateful that I have not had all the other complications and illnesses I have read about. I am traumatised that I obviously had mold and bacteria in my body (although I know that no dr will ever confirm this). This stuff must have been floating around in there since at least when I got the Seroma all those years ago and I feel ashamed that I have done this to my body. I have other friends with implants and I want to shout them from the rooftops about all this … But the problem is, when you have them and you don’t think you have any problems, you mistakenly believe you are all ok and it’s the others that are unlucky…. You kid yourself that you will never have any problems like the others had. I have realised that it is all a conspiracy, a cover up, a money making machine for ps’s. No one tells you the truth and you are supposed to be able to trust these people. It is a travesty and one day it will all come out… But in the meantime thousands of woman (and men?) will be affected and have their health ruined. My heart bleeds that this can be allowed to continue. Woman that have gone through the trauma of Brest cancer, reconstructed with these toxic devices, destined to go though more surgeries and more trauma… Seriously… What is wrong with these doctors, the companies who make these devices … The government!!!! When will it end… When will they be banned for ever!!???

    Reply
    1. Sue

      Thank God I found this site and the BII group in fcbk ..I had my silicone implants done in the Philippines 2007 And now I know why I’m so sick … I have a very low pain tolerance and so scared to undergo any kind of surgery but then I want to get well so I decided to go ahead and call Dr Chun as he’s highly recommended. No wonder I’ve been very sick trying to cope up w my everyday life…I just need to help myself to be strong and to have courage to do it …
      Again I’m so thankful I’ve found this site and hoping that I will be able to pass this stage of agony in my life …never thought there’s so many of us who are sick because of these implants …may God help us …

      Reply
    2. Shelley Hart

      Hi Alison I’m also in the UK & having many health problems since having cphesuve gel silicobd implants 2011.
      Need them out now. Have been reseaeching and trying to fnd a reputable surgeon who will guarantee taking them out en bloc. So far none want to undertake this.
      Can you message me the surgeon who did your removal & would you recco them please???
      Would really appreciate. Thanks so much.

      Reply
  217. Laura

    Hello,
    I’m looking into getting my breast implants removed including the capsules, I am symptomatic, one implant feels deflated and feels like it has air bubbles, I laso have a small cyst in the chest are that my doctor feels is not related to the implants but I wonder about that. I recently had a mammogram and ultrasound that didn’t show abnormalities according to my doctor. My implants are around 25 yrs old I believe saline, behind the muscle. I’m in the Southern California area, I was looking into Dr Gyu S. Chin in Ontario CA, he is on your list. I’d like to know if anyone has a personal testimony they can share regarding Dr Chin or another doctor they recommend in the area.
    Thank you,
    Laura

    Reply
  218. Jennifer

    Like so many of you ladies here, I have been experiencing breast implant illness. In 2 wks. I will finally be explanted, en bloc, capsulectomy, and lift. I found a wonderful breast cancer surgeon who agreed to do the surgery…I believe she will be saving my life. In 2005, I was implanted w/ smooth saline (everyone said they were very safe). I had a rupture in 2012 and should have been explanted then (though at the time, believing the plastic surgeons, may have opted for replacement). They said there was plenty of time and a saline rupture was fine since it was “sterile.” I have since had growing symptoms, which I am finally realizing are all tied into these toxic implants. I have chronic chest pain, shortness of breath, adhesive capsulitis (frozen shoulder) as of 3 months ago, neck problems, nerve problems, etc. I finally realized I have had infections going on in my chest wall for years (though plastic surgeons have always told me infection is impossible since the skin is sealed…bullshit, the infections started the second they placed the implants in 2005). My body has been screaming at me for years that there is a big problem, and for 11 years I was placated by plastic surgeons who said to just replace them when I am ready. At last I have realized the truth, am listening to my body, and counting down the days until 6/14 when I will begin to recover my health and my life. Damn all breast implants (and saline are NOT SAFE)…women are beautiful as they are and I am going to be a part of sharing my story so hopefully other women don’t have to go down this road to hell. It has been a nightmare and I just want it to end. Plastic surgeons kept telling me they were safe and they said Dr. Kolb was a nutcase.

    Reply
    1. Judy

      You are the First Lady I have run across having some of the problems I have and are quickly dismissed by doctors as just part of having so many chronic illnesses. I had my shoulder “unfrozen” couple years ago. Said it was from blow drying my hair!!! Chest soreness never leaves me. Weird headaches. Etc. My memory scares me at this point. I will be 60 in December , but a young 60! Ha. I noticed u mentioned nerves….I have started this involuntary shaking from head down. Mimics Parkinson’s , even though I know it probably isn’t . Do u have that?

      Reply
  219. Pam Godfrey

    Scheduled for August!! Can’t wait!! I couldn’t wait to get them, not I can’t wait to GET RID of them. Good lad, will be such a relief!! Thank you so much of this site!!

    Reply
  220. SHARON CORNWALL

    Hi, I had breast implants 9 month ago and 5 weeks after the op got out of bed one morning and my lower legs were aching badly. I had been out dancing the night before and put it down to the exercise but they have never gotten better. They ache in the night and day, stiff, really hard to walk at times, stairs are a nightmare. If I sit on the ground I cannot get up without hanging on to something, even trying to sit, get off the toilet is very painful. The pain is always there I don’t get a rest from it.
    I take pain meds to function. I have always been very healthy until this happened.
    I have no other symptoms mentioned just the lower legs but am worried if I don’t have them removed it will spread to other parts of my body.
    This is making me very depressed and was wondering if anyone else may have a similar story.
    Sharon

    Reply
    1. Jennifer

      I would have them explanted a.s.a.p. Besides the symptoms, they are proven toxic infectors and will be ruining your immune system over time. You may feel it is a waste of money and worry about have a small chest (like I did), but women watch their health decline and their immune systems weaken…read their personal stories…some even die from their implants, though they may call it a lung infection or something else. In no way does the body benefit from implants, and in fact it suffers every day from the chemicals, infection (which do enter with the implantation), and a weakened immune system. I wish I hadn’t waited so long to make the right decision (my explant will be in 2 wks.).. I want my health and my life back and you should too. Women must love their natural bodies and appreciate their natural health…no breast implants are safe!

      Reply
    2. Tina Pellegrino

      Hi Sharon I am going through the exact same thing. If you can please call me as I don’t have a computer except for my phone and I don’t know how to use it very well. My phone number is 508-450-7181. Thank you Tina

      Reply
    3. Sue

      I have the same situation and been having a hard time coping up w it.., lower back pain hips and weak legs … Hard to get up when I lay down sit and even standing for a long time … Shooting pain too and tingling … although I’m scared to have these implants taken out I think I have to otherwise i know it’ll get worse …

      Reply
  221. Ruby

    Hi, I am a mother of 3. I accidentally found this site while searching for the causes to my recent being diagnosed with hypothyroidism. Though its under the mild elevated level, but I do hv symptoms of fatigue, dizziness and more so I hv saline breast implant 8 years ago. Being a very health conscious, I do hv mammograms early of this year and result shows normal. After reading all yr experiences, I am scared and do concerns about what if My implant causes this symptom. First. Who should I consult with? I had flat chest before implant, if I opt explant, I don’t know how it would look like. So concerned now.

    Reply
      1. Ruby

        I tried to join the Facebook group but it came back as ” the page you requested cannot be displayed right now. It may be temporarily unavailable, the link you clicked on may have expired, or you may not have permission to view this page.” Not sure why.

        Reply
  222. Kay ardilonge

    I have Celine implants and I really would like to have them removed can you give me any advice of any doctors that are located in the Lake Worth Florida location that would do this for me

    Reply
    1. admin Post author

      Hi Kay,
      Please see the Explant Surgeon’s list on this website for a list of surgeons in your area. Nicole

      Reply
  223. Carolina Darling

    After years of hell, especially last 3 years, I had the implants removed 5 days ago, had almost all of the symptoms, looking forward getting my life back.

    Reply
  224. Maria

    So what are you supposed to do when you need a masectomy? I am in that situation right now and was planning on going straight to implant.

    Reply
    1. kim

      If I had to do it all over again, I would not get implants. I am having mine removed. I will be flat chested, no breasts. But I won t be sick. It is worth it.

      Reply
    2. Robbi Nuss

      I would like to see the response to this question, however, I’m thinking the answer would be to opt out of having implants. I’m having a double masectomy and plan on reconstructive surgery. I have already had the consultation with my surgeon. I’m starting to wonder if that’s not a good plan. I’m praying about it and reading this group of ladies comments. With the number of women testifying it’s hard not to take note.

      Reply
      1. Leslie Tanner

        Hi Robbi,
        My name is Leslie and 2 years ago I was in your same shoes. I went for it all.. Bi lateral mascestomy, silicone expanders, Chemo and finally Silicone implants. After 25 months of MISERY 6 days ago I had my explant surgery. Within 24 hrs so many of my symptoms were gone. My advice to you is get all the facts from your plastic surgeon, then straight from the manufacturing of the best mplant the Dr will implant you with. Your mind will be crystal clear after reading the facts. Cancer and Chemo were a breeze compared to breast implant illness.
        Best of luck
        Leslie
        P..S. Your health looks way better than fake boobs..Flat is Fabulous

        Reply
    3. Jen

      Women who undergo mastectomy should especially avoid implants. My grandmother had a double radical mastectomy in the 60s and (being the smart woman she was) declined the offer of reconstruction (which were, at the time, silicone). Silicone and saline are all toxic and they both cause tons of symptoms, poor health, and even possible death. They mask any future growths. My grandmother had a mastectomy bra, silione gel inserts that went into pockets (she was a D, but really could choose whatever size she wished for comfort). My grandfather loved her and didn’t care one iota about her breasts….he loved HER. They were married 50 years (until his death) and she, my smart and amazing Nana, lived until 92. I don’t believe she would have lived nearly that long had she opted for reconstruction. Not worth it. Health is #1!!! Women are BEAUTIFUL and they are not their breasts! Nobody will ever know, either, if they have a bra w/ inserts. Nobody knew about Nana’s inserts except her family, and we were always so very proud of her (and loved her w/ all our hearts).

      Reply
    4. Vicki

      Marie,

      I had a Bi-lateral Subcutaneous Mastectomy in 1986 and had Breast Implants put in at the same time. I was told that my doctor did NOT use “Silicone” so I felt that I was “Safe” with saline. In 1987, my immune system started falling apart! It was not until my Left Breast Implant ruptured in 1994, that I found out that I had Silicone in my body! I almost died after my left Breast Implant ruptured due to Adrenal Exhaustion!

      If I known then what I know now about Breast Implant Illness, I would NOT get Breast Implants for medical or cosmetic reasons.! If you do not have your health, you have NOTHING!

      I have been doing Alternative Medicine for years which has saved my life to help remove the Silicone that has gone throughout my body!

      If you would like to communicate privately, you can e-mail me at azcelene@gmail.com

      I wish you the very best!

      Hugs!

      Vicki

      Reply
  225. Marianne Fazioli

    Hello Im a little worried Ive recently noticed a dent in my left breast, I have gummy bear implant for the past 8 years and really never had a problem with them before. Im uncertain if this problem is my natural breast or my implant. It doesnt hurt it feels more like a sensation like a tugging. im going to get a mammogram to rule out anything serious. My question here is does a mammogram detect if something is wrong with the implant at all? The last time I had my mammogram done which was a year ago they pulled the implant away from the natural breast so I’m not sure how they can tell if it’s the implant ruptured. Do I need to pay a visit to that plastic surgeon that did the operation.

    Reply
    1. admin Post author

      Hi Marianne,
      Sounds like you have capsular contracture. Please get it checked out by your PS. We highly suggest removing breast implants and not replacing. Please ensure your explant is En Bloc/Total Capsulectomy. Nicole

      Reply
    2. Jodi

      A mammogram is to detect breast cancer it is not to check for a ruptured implant, you actually have to sign a waiver because a mammogram can cause the implant to rupture. your doctor can probably tell by looking at and feeling your implant.

      Reply
    3. Joani Andros

      I am 73 years old and have had my implants for 34 years. 3 years ago, I had a mammogram done, the technician was rough with me, as she was doing whatever to put more pressure on the paddles, it really, really hurt, but yet, I didn’t stop her, I endured it.!! The results of that test was that the left breast implant was ruptured. Went to a plastic surgeon, conferred with my primary doctor, who told me that it would encapsulate if I just left it alone. I really didn’t have the money. I always felt, that the ruptured occurred as a result of that mammogram. I had one mamo after that, and made sure that SHE would not be the technician! Down the road I read somewhere, that implants should not be subjected to a mammogram. A few months ago, felt a large mass on the top of R breast. Had an ultra sound test done, which showed this implant is ruptured. Have been to a plastic surgeon, who feels they should be removed asap. Upon her examination, she said my breasts are full of scar tissue, which a tumor could form. I am waiting now for my surgery date. I am going to have to beg and borrow enough money, $4500.00 which I don’t have. After finding out my first rupture was present in the L breast. I researched and found alot of manufacturers of the implants were paying for removal and replacement. However, in my case, the corporation that made mine, and closed off any more claims. I am being told now, yes, it is medically necessary, but my insurance won’t cover it, due to my implants being put in was for cosmetic reasons. Dr’s office told me that I had to pay up front, that they will bill my insurance but do not know if they will pay. It was suggested that I could call my insurance and ask, but they couldn’t, said insurance would not give payment information to them. I am trying to raise the money, and have decided I am not going to call the insurance company, perhaps it will serve as a red flag to them. I asked the office if the doctor would write a letter, was told thanks to Obama Care, everything is done by “codes”. Any opinions out there for me? Joani

      Reply
  226. Joanne Tomlinson

    I was in a mva and my implants were ruptured.aug will be 2 yrs.since the accident.my lawyer has let me be like this until my case is settled.im getting so sick .i know if they dont help me im going to die.

    Reply
  227. April

    My sister-in-law had nearly every one of these symptoms. She was on so many pills we couldn’t keep track. She died at 50. Her implants were put in for reconstructive purposes after being burned. One ruptured was replaced then she had it removed because she was so sure it was the reason she was so sick.

    Reply
  228. Asma

    Hi Nicole ?

    I thinking about having breast implant . I have been told that the gummy bear implant is much safer and I can have rest of life !
    That’s confusing for me…..
    I found one co worker whom works with the surgeon in Turkey.
    She said stop researching on the net because then you will be confused.But I want to make the right discission for having a breast implant.
    The new generation implants are they safe ?

    Reply
    1. admin Post author

      Hi Asma,
      All breast implants cause profound illness and by far the worse kind are the gummy bears or cohesive gel implants. The chemicals used to make the silicone cohesive are very aggressive and toxic to our body and damage our endocrine, immune system and gut health. If you must augment get Fat Transfer instead. Nicole

      Reply
  229. Karla simpson

    I have experienced severe illness for the last twenty years after implantation of the “Meme” implant was inserted. It is fibrous and fuzzy feeling on the outside. The idea behind these is that the breast will adhere to the tissue in the area and prevent sagging over the years. I was young , flat as a board and stupid. I worked for a plastic surgeon who put them in for free. He was board certified.
    Dow Corning manufactured these meme implants and after five years on the market women began to get sick. They were yanked off the market quickly.
    I was not symptomatic at the time until five years later. Mildly symptomatic and scared I had saline implants placed instead. My surgeon at the time was president of the American Academy of Plastic Surgery. I though he’d be able to help me but he didn’t believe me.
    A lfamily friend who was an attorney involved with a class action suit against Dow Corning contacted me and urged me to opt in. I did. After five years of fighting we opted out to a personal case as my symptoms were progressing and the implants I had were in question. Dow Corning filed bankruptcy to get out of the suit and then opened back up shop under another division name. I ended up with $56,000.00. That was not near enough to treat a now lifelong progressing illness that would slowly take my life away. My attorney advised that we could not continue to fight such a large and powerful company and win. The costs would be too much. I settled out of court with my tiny little bit of money but things were about to get really bad.
    Back to the removal surgery. I had the best surgeon at least but removal was difficult because the implants had adhered to my breadt tissue and muscle underneath. I basically ended up getting a mastopexy which is basically scrapping the implants out of the tissue leaving deep pits and deformities. I looked terrible. People stared and thought I’d had breast cancer or an accident. I wore a prostesthis and spent a lot of money on special bras. I couldn’t even go to the pool with my three children. I was in pain too.
    I finally had the same surgeon remove the scarring the best he could and place saline implants because he assured me they were safe and if they leaked my body would absorb the “salt water”.
    I got very sick in the next year loosing my job. Visit after visit to doctors with no diagnosis. It mimicked rheumatoid so I got a rheumatologist. He sent me to the head rheumatologist at Mayo and UAB. And they just said it was fibromyalgia and chronic pain syndrome. I became bed ridden. Home bound. In and out of the bed. Rarely getting to do much at all. I won’t go any further than to say that I am not well today but after trying everything in the world f medicine. Nothing worked and still no real diagnosis. I don’t know how I was able to raise my children. I was denied for disability three times because there was no diagnosis.
    I am still in severe pain in all my joints and connective tissues. I heal slow, have autoimmune disease and many many other terrible issues. Depression set in too. No one believed me. I was on my own and still am. I will stop there. My whole story would take an hour to tell. I fear I will only get worse over time bum at a loss.

    Reply
    1. leticia garza

      To whom it may concern,
      I have had my implants since 2000, right now I’m so sick I can’t ask for help and longer..I feel as if in the brink of dying..I have all symptoms ..including diagnosis..including am at the point that I only have a discounted rate at a University of San Antonio medical Hospitals. .I have to to quit work and,be placed on full disability..my implants ruptured in September of 2015. I am in a urgent turmoil with decrease of functions..I no longer have appetites,and have been asking for help from many people.. Again, I am in the brink of extreme pain constantly and have been placed only on pain medications.
      I need assistance and do not have any longer the strength to do so..I feel as if I am giving up and letting my body die off ..this has been extremely depressing and I feel no hope for me but a statistic..I have called the manufacturers and was told since its,passed 10 years and I have been symptomatic since 2005. I have no more strength to fight this..
      If anyone can assist me would be a brink of hope for me cause I just can’t anymore and feel at a complete loss.

      With all sincerity

      Sincerely,

      LETICIA GARZA
      Letgarza6990@gmail.com

      Reply
  230. Paula Lawrence

    Dr. Arthur Brawer, Rheumatologist from Long Branch, NJ contacted me regarding the damaging truth about silicone. He is tirelessly working as an advocate for us with implants. He is trying to get law firms on board to help us get justice. He is sending me more information regarding breast implants via the mail. He wants this information to go viral. PLEASE CONTACT DR. BRAWER SO WE CAN PUT A STOP TO PLASTIC SURGEONS NOT DISCLOSING THE TRUTH TO US ABOUT THE HISTORY OF AND WHAT BREAST IMPLANTS ARE MADE OF. IF YOU ARE INTERESTED IN CONTACTING DR. ARTHUR BRAWER PLEASE CALL 732-513-2577 (cell) or his office at (732-870-3133). If you’d like to contact me: (715) 205-4255 (cell), (715) 865-2925 (home), chaslawg@gmail.com. Thank God, my explant surgery is 24 hours away!!

    Reply
  231. Karen

    Hello Nicole:
    My name is Karen, I don’t know if you remember me, I was in the Facebook group too. But I decided stop Facebook and all social media for now.
    I have a question I hope you can help me. I was taking Liposomal Gluthatione for 41 days, at first I felt so good but after a month I started to feel more allergies. I was sensitive to everything and my asthma got worse and depression. I stopped taking Liposomal Gluthatione for 7 weeks and I still have many symptoms but the worst is depression. I have appt tomorrow to treat depression because I can’t handle it.
    I feel so sad. My question is is it normal that Lipo gluthatione cause all this effects? Can Liposomal Gluthatione drag mercury from my amalgams and cause toxicity? I have 4 amalgams left just wondering!!

    Reply
    1. admin Post author

      Hi Karen,
      Yes, Liposomal Glutathione will detox mercury, other heavy metals, chemicals and biotoxins. It is probably the heavy metals detoxing which is causing you the increased symptoms especially the negative mentalism. I would continue the detox however at a pace that you can manage it symptom wise. Nicole

      Reply
  232. Danielle Farris

    Hi, I had silicone implants placed on May 6,2015. A few months later I started to develop a hard capsule on my right breast. Now that I’m almost a year out from my surgery, my doctor is recommending replacing my implant and putting in Alloderm to help not develop another hard capsule. During he past month, I have joint pain throughout my entire body and fatigue. It has been happening once to twice a week and lingers from 2-4 days. The last thing I want to do is remove my implants but I do not want to go on feeling this way. I’m wondering if replacing the implant will help with my symptoms. if I do a removal at such an early point in time, is an ENBLOC removal necessary?

    Reply
    1. admin Post author

      Hi Danielle,
      We do not recommend replacement of your implants because your problems will not go away but rather increase. Please ensure that your explant is at least Total Capsulectomy, En Bloc is the most ideal however Total Capsulectomy (removing all capsule tissue) will probably suffice as your implants are only one year old but will have a developed capsule by now. Nicole

      Reply
  233. Karen A. Henderson

    I have joined the face book site and am very grateful to be able to read and share with others who are suffering from and hopefully recovering from Breast Implant Illness. I have been sick for at least 5 years and had the exact same experience of one M.D. specialist after the other tell me that I was within normal limits in their testing. About a year ago I asked a rheumatologist, after he told me my immuno-globulin tests were below normal, could I be toxic from Silicone. All he ever said is yes you probably have it in other places. He never went any further in his explanation. I have asked several other Doctor’s
    the same question even after I was diagnosed with Hashimottos. I was always
    told how controversial it is and there was no concern. I was never led in the direction that the implant could be the offender. I went through many G.I. tests and CTs scans. Finally, I was contacted by a very distant acquaintance that had heard how ill I have been. I live in Florida and she Lives in Texas and I have only met her once. She shared with me her experience and told me
    about Dr. Susan Kolb and her book. Dr. Kolb did her explant over a year ago and she said she has almost totally recovered. Her implants were Saline and had been in for over 30 years. When they were explanted they were black with mold! Her testimony and Dr. Kolb’s book opened up an entire new world to me.. I had arrived to a point of illness that I have been disabled in any quality
    of life and had become fearful that I was dying. My husband was extremely
    concerned when my weight dropped to 95.5 lbs. The intestinal disorder has given me malabsorption and many food sensitivities. After reading Dr. Kolb’s book, The Naked Truth about Breast Implants, I became alarmed and felt urgent to get my implants out. I could not find a Dr. in my area that thought
    there was a problem. I did have a plastic surgeon order a MRI and both implants were leaking.so he agreed to take them out and asked if I wanted to
    replace them. I was desperate to be done with this poisoning and was not sure if he would do enbloc removal. I called Dr. Kolb’s center in Atlanta and was told they could see me not until June. That was too far away for me
    because at this time it was the first of March. So I scheduled with the local surgeon. But then a week later I was told Dr. Kolb had a cancellation and I was
    scheduled for March 24. I am now 4 weeks today post-explant. She took out 4 nodes under my arms also and they were negative for cancer. My implants were Silicone gel. and the cultures were negative. However, the fear I have
    now is due to having received my first implants in 1984 (after weaning my last baby. ) Unfortunately, I went years with the right breast encapsulated and finally found out it had ruptured. No Doctor, during my annual breast exam for cancer, ever alerted me to a problem. So, 21 years later I scheduled a replacement. The surgeon said he had a difficult time cleaning out the silicone
    but never expressed a concern about the possible effects. He warned me of none. He replaced them with Mentor silicone gel in 2005. Strangely, 6 years
    later I suddenly became ill on a family vacation with high fever and becoming barely responsive with severe vomititng. I was air lifted and was soon diagnosed with herpes encephalitis. My family was told I was critically ill and I
    might not make it. I was in a coma for 2 weeks. I also remained in the hospital for 42 days. A year later we thought I was on the road to recovery but I began to manifest other symptoms. We thought it could be related to the encephalitis right temperol lobe injury. But over time I began to become progressively more ill with other autoimmune symptoms. We now wonder if the encephalitis
    was the beginning signs of my compromised immune system? So since 2011 I have been slowly becoming sick with a “mysterious” illness. After my
    explant on March 24th, Dr. Kolb sent me home a week later on a massive amount of supplemnets for detox. I have been doing my best to follow her advice.. However, I am still not feeling very well. I still have the same digestive
    problems, ringing in my ears, body and joint aches, disturbed sleep and “brain fog’. I have heard so many testimomies of explant improvement and keep
    hoping things will begin to improve for me. I still have to have hair tests for metals and wonder if there is hope that these toxins and metals can begin to move from my brain. I was exposed to silicone for 32 years. Now I am
    concerned if the Mentor implants exposed me to Platinum or Tin. I would love to be guided through this very difficult time of detoxing. I am sure my age is a factor to slower healing. I will turn 69 this April 22. But I am hoping for the restoration of my health. I am thankful for your attention and will be grateful for help.

    Reply
    1. Nancy Coleman

      Dear Karen,
      Could you look for a Functional Medicine doctor in your area? This kind of doctor is educated in detox and many other forms of care.
      I see one in Boulder, CO. I also see a chiropractor in Longmont, CO.
      When I do my explant they both will help me with the detox.

      Nancy

      Reply
  234. justine havens

    I’ve had implants since 2008. I have a feeling inside that my health is getting worse . how can I get help now. People act like I’m crazy when I mention this.

    Reply
    1. admin Post author

      Hi Justine,
      Don’t waste time and energy trying to convince others such as family members or your doctor. Just start planning your explant and get your breast implants properly removed which means En Bloc/Total Capsulectomy. Please ensure all capsule tissue is removed. Nicole

      Reply
  235. Diana

    Linda, do you know if the surgeon who preformed your removal in Alvin is still practicing? I looked up surgeons in Alvin and the only one I thought may possibly be the one is Dale Messer. Is this possibly the right one?? I’ve been sick for 14 years with Lyme disease. I Got my implants 6 months before I got sick. ???? Have often wondered if I would feel better if I had the implants removed. I’m almost convinced I would.
    I didn’t get implants to have bigger breasts, my breasts were literally deformed.
    Think I need to really consider getting them removed and will not do it without a referral to a dr that did a great job from someone who has actually had it done.
    Thank you, Diana

    Reply
  236. Amanda

    Hello, I have done my research and am scheduling soon to remove my 20 yr old saline implants after declining health. Im not sure if I have a slow leak and was wondering if anyone would recommend a MRI, 3 D mamo or ultrasound to investigate. I have never had any and I am 39yrs old. TIA

    Reply
    1. admin Post author

      Hi Amanda,
      We don’t recommend mammograms because they can and do rupture implants. MRI’s are fine as long as you don’t have the gandolinium contrast with them which will become toxic to you. Ultrasound is best in our opinion. Nicole

      Reply
      1. Amanda

        Thank you. I will have my Dr order an ultrasound before I schedule surgery, if there is anything abnormal I am hoping to get insurance to help out. My Dr is writing a letter to recommend removal along with my history and symptoms. Any other suggestions to get support from Ins co??

        Reply
    2. Linda

      If you are in a support group, some should know of doctors who still believe breast implants are dangerous..why would dow pay the first ill lady $25 million, she moved away and no one was to contact her. I did, but did not know I was not supposed too, I got a call, a threat, not to ever call her again, a different b i lady. This is why dow and other b i manufactures had to get a class action lawsuit started, they could not pay all the ladies that much, for the women left, this is what they did.
      I had my silicone implants from 1977 to 1994, at the very start, I could tell things were not right, worst things, first, I hand NO energy. Then other things started to happen, was at a doctor’s office about every two weeks.
      AMANDA: There is a test where the tech will place your breast into breast like forms, there is no pressure, looks like a ultra sound machine. No mamo ! No pressure ! More than likely you do have leakage, the silicone envelope leaks small amounts of silicone every day, the saline will lose it’s strength, it will be bacteria and fungus in with the un-strengthen saline. All needs removed, you may have different kinds of illness when taken out, but I had two doctors from Houston, TX. tell me: “if you do not get them out, you will die”. My last delima, I could not walk, I went to my foot doc. he sent me to a foot specialist, they could not find a thing wrong. This was the last draw. I do walk now. I had several close b i friends to leave this cruel world when it came to breast implants. I had a GENERAL SURGEON remove my implants. He took out the implants where they were put in, under the breast. Back then we were told they were not dangerous, but they really are. Many b i ladies have been paid settlements for their illness, but our health is more important. Please get them removed and not by a plastic surgeon, I went to a plastic surgeon, he told me “i will be sunken in where the implants were, scars..for me to come back for saline implants, then I met a lady who went the the General Surgeon, I went to him also. I was very pleased with the out come of his surgery ways.
      This was in Alvin, Texas. God Bless us all who got into thinking we needed or wanted bigger breast, now I can be little or I can be big, Walmart has air bras, water bras, Victoria Secret, Fredricks, they will help you with the right fit. DO NOT BREAST FEED IF YOU HAVE BREAST IMPLANTS, more generations are ill now, people still having implants put in, young ladies, who will want to have children, have b i’s, there is NO MILK in the breast ~ I wish you all the best of health but the implants must be removed. Thanks for reading some of my years living with the dangerous implants.

      Reply
      1. Amanda

        Linda, thank you for your story and all the information. I had saline under the muscle 20 years ago and was fine for many years or so I thought. Did have trouble breast feeding my 2 kids and had to stop at 6 weeks for both. About 2 years ago weird things started to happen but I was under a lot of stress so I just dismissed it all until I was made to search for answers. I am not as bad as some women, I have been diagnosed with a mold infection, candida, adrenal fatigue, food sensitivities/leaky gut, allergies, estrogen dominance which caused severe eczema type rashes all over and low thyroid ect. All while going into menopause at 38 yrs old. Can not wait to go to the other side and get these darn things out! Thanks again for sharing.

        Reply
  237. claire

    Hi Nicole,
    I am trying to sign up for facebook, but have never done this before, can you please guide me on how to sign in to facebook for your support group, thanks

    Reply
    1. admin Post author

      Hi Claire,
      You need a facebook account. If you have a facebook account you can go directly to the group by clicking the link to the support group on the welcome page of this website or clicking the F button located at the bottom of any page of this website, both will take you directly to the group. Otherwise you can search the group by searching Breast Implant Illness and Healing By Nicole. Nicole

      Reply
      1. Merita Haley

        Hi Admin: I found this page on a Google search for autoimmune and saline implants; I have both. Just put in a request on your Facebook page.

        Reply
  238. ccccccc

    I have brest implant for three years. I explanted today. Since I have got it, I made an peculliar asthma, I have anxiety since one year. I felt this is somethig wrong with my implants, because I was healty before.
    I hope symptoms will disseapear.

    Reply
  239. Andrea

    Hi Paula,
    I sent a phone text to the # listed inquiring when would be a good time to call you. Maybe your # is a land line? If you would still like to talk let me know. I am excited for your upcoming surgery to renewed health. ????

    Reply
    1. Paula Lawrence

      Hi Andrea –
      Yes, that is my land line – I am on central time and I will be home on Friday, Saturday all day and Sunday afternoon if that works for you – I’m an early riser so call when it works for you 🙂 Otherwise, my cell number is 715-205-4255. Looking forward to talking to you! Thanks, Paula

      Reply
      1. Andrea

        Hi Paula,
        I left a text message on your land line #. Glad we figured it out. Let me know if you prefer I call your land line or cell and at what time. I will call this weekend. I look forward to talking with you. I am at the horribly chronic stages of this illness right now, but am pushing forward…barely. Knowing each day brings me closer to my Explant on June 1st is the only thing that is keeping me going! Talk to you soon. ????

        Reply
        1. Paula Lawrence

          Hi Andrea – if you want to call me at home 715-865-2925 tomorrow at 10 that would be great – but try anytime that works for you. The waiting for our appt is agonizing – I so agree with what you said!!

          Reply
  240. Susan Tedrahn

    I have had my saline implants for about 8 yrs. They both ruptured about 3 yrs. ago. I have never had any acute symptoms. Anything that was happening to me I chaulked up to just getting older. I’ll be 69 this May Any Dr. I spoke to told me that as long as I wasn’t having any symptoms there was no rush to have them removed. That worked for me because I didn’t have any money to have them removed. Now that I know better I’m trying to rectify the situation

    Reply
  241. Emily Thode Valdez

    My name is Emily Thode Valdez and I’m a reporter with the ABC affiliate in San Diego. I am looking for someone locally who has suffered and become sick from her implants, ruptured or not.
    If anyone knows someone, please call me at 619-455-2791.

    Thank you!

    Reply
  242. Linda

    My name is Linda, I had silicone B Is’ put in the year of 1977. I slept two weeks sitting up, or trying, the worst pain, I was with a bandage for two weeks wrapped around me, the implants were put in under the muscle. Over the first month after the bandage was removed they started to get HARD, the one on the left would contract upward if I was in a stressful situation. I would not recommend Silicone (chemicals), Saline (saline in a hot body will lose it’s strength, therefore causing bacteria and fungus, check on bags of saline in hospitals, look for expiration date. (I would advise not breast feeding with any implant), saline with antibiotics: all the implants leak daily into the body, the antibiotic/saline; the antibiotics will become immune to your system therefore, if you ever need antibiotics for whatever reason, your system will be immune to the antibiotics ~ fat from your tummy section to place in breast: this fat rarely catches onto what is there for the fat to cling too, the fat more or less will just be a clob in your breast ~ any foreign object in the body will form encapsulation, such as implants, it is not know, as for me, why other implants like pacemakers do not cause diseases or encapsulation I do not know? I was told to squeeze the implants so they would not get hard, this was just one of the instructions which should not be given, the silicone is in a silicone envelope, the silicone also leaks from the envelope, this is one reason the implants get hard, if there are other reasons, I am not aware. I had my B Is’ taken out in 1994 this was after years of going to many, many doctors, for yeast infections, I was diagnosed with rare connective disorders such as: lupus, MS. I was NOT diagnoised with scleroderma (the worst of bi patients diseases, hardening of the skin and organs) MS. Fatigue, Chronic inflammation, colds, deep pain in arms and legs. etc. “ONE” doctor, a Rheumatologist in Houston, TX., he yelled at me saying “if you do not get the implants removed, you will die”. I did not then, I went for a annual physical at my workplace, the doc. there could not believe his eyes and told me I sure should have them removed. Before these two doctors, I did not realize my problems were from the implants, I waited a couple years more, still being ill, used all my vacation and sick days the last year of my employment, what got me to have them taken out, one day I got up from my desk and I could not walk. I had to drive myself to the foot doctor as it was my feet causing this, he could not explain, he sent me to a specialist., he could not explain ~ after test and x-rays. This was the final draw: In 1994, I met a lady at one of the rheumatolgist , who believed implants were/are a problem. She was with her spouse, I was with mine..We started talking ~ she told NOT GO TO a Plastic Surgeon for the removal of implants. She showed me her breast, and said they were the way they looked before she had hers put in, no scars showing and same size ~ both the lady and mine were taken OUT (mine in 1994, had them for 23 years and ruptured) where they were put in, under the breast, she advised me NOT to go to a plastic surgeon, they are only looking for you to come back for more reconstructive surgeries or talk you into a different implant. She gave me her surgeon’s name, was in Alvin, Texas, I called his office, mad an appointment with him, he removed the implants, I too look the same as I did before BIs’. Plastic surgeons are looking for patients for more money, general surgeons are for you to be well and have much to do without a patient coming back for more surgeries. In BusinessWeek magazine dated Oct.. 2. 1995, there is a article written by, I am sure by now a former employee of Dow Chemical located in Houston, Texas, The front page: TRAPPED. His wife was suffering from the results of breast implants and here John Swanson worked there. Instead of telling all the bad which comes from BIs’, his point was to get the Informed Consent form signed from the doctor, the plastic surgeon. He also wrote a book: Informed Consent, what this book is about the end line, is the doctors should inform the patients of the risk of BIs. They don’t, they do not tell ladies (some men have then also), they have to be replaced ever ‘5’ years, and problems which will come, if implanted.
    I thank the good Lord I have a wonderful husband and daughter who have put up with me when I am not up to par most days..as for detoxing, I found a doctor in T J, Mexico who treats with chelation IV, gluethyeon (spelling ?)IV and Live Stem Cell shots. Mineral foot baths are good for detoxing akso.. I live in California but people go to this doctor all over the world for treatments, not only Breast Implant patients, but cancer, many other illnesses. When the doctors give up on you in the US or other countries, they go to him.
    You will find when and if you have your implants taken out; doctors do not like to hear these two words: Breast Implants. In fear of a lawsuit. I still have my implants in my garage: they are in a plastic bucket like with skull and cross bones. I believe all lawsuits have been filed and paid the first payments, then in 2014 there was a partial, now there is another partial to come and if the early BI patients get worse, they can file for another disease, if worse. My disease is General Connective Disease. You might phone the manfacturer who made your implant and see if they will pay to have them removed. After a lady from Houston was paid $25million, the manfacturer figured they cannot pay all BI patients this much so there was a classs action lawsuit. There was about 5 catagories of diseases which one would have to meet the criteria, we needed medical records, the manufacturer who made your BIs, and a Rhumatologist and Neurologist will be needed for a catagory, or was needed. Please check with the manufacturer, if you do not have the money to pay for explant, ask them to pay. Keep all medical records.
    I don’t know what my life will become in the future, my main problem now is fatigure, deep pain in my legs and arms. I have a friend who went for a Mammagram recently, they told her she has silicone still globs in her breast, her implants have been removed, but they had ruptured.
    I feel for each of you! I lived in Houston, TX. most of painful years, there were many BI ladies there, many were/are my friends to this day. Some are o k, some are bedridden some of my very close friends did not make it through this tragic ordeal. One of my best friends was given a check to sign on her death bed. GOD Bless you all, just get them out, the longer they are in your body, the worse it will be for you. I could write more, but I feel I have written too much as it is. We did everything to stop ladies from getting implants, some did listen, maybe some never thought to ask? This was in 1994.
    NO PLASTIC SURGEON!
    One other thing, don’t always trust the people who have never had implants, they could be working for a plastic surgeon or an attorney. If I can be of help, please let me know. Linda

    Reply
    1. Linda

      Ruth, contact the manufacturer of your implants, hopefully they will pay for removal. I wish you well <3
      You will have to give them the I D number of your implants, which will be on your doctor's record who implanted you ~

      Reply
  243. Ruth LEONARD

    Hi, i kept having pre-cancerous tumors,
    coming faster, larger , & harder than the previous ones before. 3 different m. d. stated i should have a double mastectomy &. reconstruction surgery.
    That procedure were completed in the mid 1980.
    I had Saline Implants. Both have burst. the implants are still in my body. I am on disability/Medicare, & do not have the money to have the implants removed.
    I am suffering from GERD, IBS-D,
    Ankylosis Spondolitis –
    ( Rheumatoid Arthritis -HLA-B27 positive ), OsteoArthritis, COPD with Chronic Bronchitis , NASA Cage with Titainum Plate & Screws,
    2 Anyurism , 3 Strokes, Cataract Replacement Lens (Both Eyes) , Right needs TKR,
    Migraine Headaches,

    Reply
  244. Susan

    Also you listed all physicians at Baylor Houston – you just listed the entire department. What physicians would you recommend at Baylor? Many thanks

    Reply
  245. Susan

    Who would you recommend in Houston? Saw that dr. Fortes has no recommendation after his name. also can you please email me the Guidelines & Indications for Breast Implant Capsulectomy? Thanks for all this info.

    Reply
  246. Susan

    Hi! Wow finding this site blew my mind! Thanks so much for your information.
    I am 59 years old. I had my first silicone implants in 1984 and a larger set in 1993.
    So I have silicone on my chest for over 30 years, same set for 23 years.
    I have never had any capsule formation or problems with the implants that I could see or feel. So I just went on with life with the “if it ain’t broke don’t fix it” attitude, even though as time went on they felt grossly overblown, clumsy, difficult to fit clothing, painful during exercise, and with 25 pound weight gain I totally felt like a fat whale. As I matured, I came to realize how dumb it was – what the heck is wrong with small breasts? ? Life is NOT about body shape – it is about ME, my love, family, intelligence, etc.
    The plastic surgeon never discussed pros or cons. What would happen to these foreign bodies in me over time. Nothing. I never heard of FDA warnings, no public statement of silicone leak hazards, no media news broadcasts to advise women to get checked asap if they have breast implants.
    I never even thought about the silicone that may be hurting my health!
    My symptoms increasingly over the past years of brain fog, severe cognitive impairment, frequent upper respiratory infections, fatigue, depression, low motivation, general malaise were attributed to old age, menopause, weight gain, etc. Many trips to doctors. No medical professional ever connected my implants to all my symptoms.
    Now that I know – I want them out RIGHT NOW!
    Ok thanks for listening – I need an ex plant surgeon Philadelphia area please. I looked at the lis and the closest is Hershey.
    I am positive my pcp, plastic surgeon and other hcp’s will think I’ve lost my mind
    Help!
    Susan

    Reply
    1. Marlene

      Hi my name is Marlene and I had silicone implants in my body for 29 years.
      July 2015 I had them replaced with new silicone implants my plastic surgeon told me that he removed all the silicone from my breast area. Three weeks after my surgery I had this burning sensation in the bottom of my right breast I had an ultrasound month prior to my surgery that show that I had a silicone leak in the right implant, last week I had a mammogram, ultrasound and MRI it shows that he left chunk silicone in the right breast. And my plastic surgeon has been on The doctors 2020 and Barbara Walters interviewed him Dr. Oz The view entertainment tonight the list go on. He’s wrote books on plastic surgery. He won’t except responsibility of leaving that silicone chunk all he says is when I go see him all the time they look so beautiful I did a good job. Now that I got that MRI done now I need to do something about it!

      Reply
  247. Holly Dauphin

    Hello – I have been very sick for about 18 months. I was recently diagnosed with Shjogres and arthritis. I was hospitalized last summer and initially everyone thought it was lupus. I get rashes with, have heat sensitivity, pain on my right side under breast in rib area, muscle weakness, joint pain, mouth and nose ulcers, dry everything, brain fog, neuropathy in limbs, vertigo and the list goes on & on. I have been sent to a rheumatologist, dermatologist, Gastrointologist, Endocrinologist, Opthamologist, and now immunologist all in the past 10 months. I keep getting sicker & put on more meds but no one can come up with a root cause for all my symptoms. I am only 46 years old and wonder how all of this could happen to me in less then 2 years when I was always a healthy person. Oh I also now have high blood pressure, insomnia, food sensitivities & stomach issues. I learned of breast implant surgery from a member of my Sjögren’s syndrome support group. I have had my implants for about 8 years they are saline. I saw a dermatologist in November because I devolved a raw raised itchy rash on my left breast. She biopsies and it came back inconclusive some type of psoriasis with unknown cause. I went for my annual mammogram in January and the tech asked if I noticed that my right implant was smaller then the left, I hadn’t but told her I had pain under it near ribs, she took extra films and then shouted radiologist to see if ultrasound was needed. She said he said no, I didn’t question it at the time. I believe my illness is due to my implants and that all my mysterious symptoms are tied to this illness. My insurance company is BC/BS & Breast Implant removal is listed as Required for Pre-authorization. I need to find a doctor who can diagnose me with this illness and tell the insurance company removal is a medical necessity to prevent further illness. Can you help me locate a doctor in Connecticut. Please I am so sick and tired of being sick & tired…any assistance is appreciated.

    Holly Dauphin

    Reply
  248. Linda barbano

    Hello my name is Linda I would like to join the group please I had mcghan breast implants put in in 1993 and I’ve been suffering from one ruptured 10 years ago and I can’t get any help either. This is such a terrible occurrence it’s changed my life extremely I have health issues I feel awful and disfigured I certainly hope some time before I’m gone we can get help with this matter

    Reply
  249. Marie Davies

    Nicole,
    Thank you for this site and info!! I’m 53 years old & have had silicone implants over 25 years. I’ve had multiple sinus surgeries, including fungal infections, and I’m very sick now. I had to stop working to try to find out what’s wrong with me. I’m usually very energetic & now I have to stay in bed all day on some days. I have chronic post nasal drip and thought I might need another sinus surgery. The rhinologist & ENT say I don’t. Then I looked into mercury fillings; I don’t have any. I’ve been to SO many doctors and I still do not know what is wrong with me. When I read this, I thought this might be my answer. I recently started going to a naturopath & had thermography done & other testing. These are some of the results: severe sinus problem, severe lymph block, severe breast blocked spot, inflammation, my sinuses & entire right side of my neck lymp are severely blocked, severe global immune stress, adrenal stress, severe systemic virus, allergies, vitamin deficiencies, food sensitivities, etc. ; I’ve tried so many doctors,etc. such as acupuncture, acupressure, chiropractic, lymph drainage, essential oils, ENTs, etc.

    Does this sound like it could be the implants to you?

    I mentioned it to naturopath & she said:
    ” Silicone is “inert” and thus it is asserted that it is harmless, but anything can trigger the immune system. We are going to continue to improve your lymphatic circulation and reduce the stress on your immune system… getting you to a better level of health!”

    Will an MRI confirm if my implants are unhealthy for me? Are there other ways to confirm? If I have the implants removed & continue my alternative treatments, should that “fix” me?

    I would appreciate any advice!! I live in Plano, TX.

    Sincerely,

    Marie

    Reply
    1. admin Post author

      Hi Marie,
      I recommend explanting properly asap which means an En Bloc style Total Capsulectomy – all capsule tissue should be removed for your best chance at healing. Your symptoms are very common to breast implant illness. With a proper explant and support of your detoxification you will recover your health in a few years. Nicole

      Reply
    2. Marlene

      I had an MRI and they will confirm what’s going on if they’re leaking and what’s going on with your breast tissue.

      Reply
  250. Andrea

    Hi Paula,
    Your generosity & kindness means the world to me. More than you will ever know…Thank you for your support. I will reach out to you. I am going this journey alone so I am beyond blessed & forever grateful to have found support & kindness from people like yourself & this group/site.
    Andrea

    Reply
    1. Paula Lawrence

      Hi Andrea,

      Yes, please call me so we can actually talk – there are very few people I can actually talk to as well. I am excited for you to have your surgery with Dr. Feng. Each day gets us closer to our explant date! (715) 865-2925. Paula

      Reply
  251. Christie

    I wish I could afford the explant. One implant recently burst and I’m fairly sure that my severe skin rashes, , itchy liquid filled bumps, hive looking bumps and perioral dermititis are linked to this somehow. I went to a plastic surgeon yesterday for a consultation and before I left I agreed to let him deflate the other. He jabbed a needle 5 times into my breast while making large circular motions to do so. I almost passed out from the experience.

    Reply
  252. Andrea

    I see the link where I need to join Nicole. ????

    Nina-thank you so very much for your post. I have 360 cc as well. They have doubled in size since implanted over the muscle 18 yrs ago. First surgery was with mentor textured saline that my body started rejecting as I was coming out of anesthesia in the hospital! I just found out I have the MTHFR gene. The replacement allergen textured silicone implants have become swollen obviously due to scar tissue & probably leaking/possible rupture as I have a protrusion poking thru my skin on my top right breast. It looks like an arrow. I have been told by countless doctors & PS it is only cosmetic even tho I am bed ridden except for going to work and straight home!! Everyone would only exchange not Explant. My whole being kept saying NO!!! I am scheduling my Explant today with Dr Feng in Ohio. I am traveling a great distance by myself to see her. Very excited. Your post gives me great comfort. I can wait to walk for miles and workout like I used to. I can’t wait to live again and be free of these toxic deadly bags that are not only trying to take my life, but make me look like a 45 yr old “Barbie” wanna be. I am excited to see the world again!! I have been very symptomatic for the past 7 yrs and debilatingly ill for the past 3. I am excited to live again!! Thanks again for your post Nina.

    Reply
    1. Paula Lawrence

      Hi Andrea,

      I am having my explant done by Dr. Feng on 5/9 – we can stay in touch if you’d like – my number is 715-865-2925. I’ve had my implants for 11 years and, like you, can’t wait to get them out and just be me and get back all of my energy. Please call if you’d like to talk! Thanks, Paula

      Reply
    2. Linda Beug

      Hello Andrea- I live in the Cleveland area and have a consult app with Dr Feng on 4/26. I found this site 2 wks ago and made up my mind immediately to have my 26 yr old implants removed. I’ve been diagnosed with RA 12 yrs ago and fibro 3 yrs ago and know in my heart that the implants are mostly to blame. Anyway if you want someone to confer with or maybe meet you when you fly in to Cleveland I could possibly be available for you. My name is Linda and my email is lbeug70@yahoo.com

      Reply
      1. Andrea

        Hi Linda,
        I am excited for your consult. I’ll reach out to you via e-mail. I am counting down the days to June 1st. Never thought I would be so excited to go to Ohio! ???? I will be there for extended stay from May 30th thru June 6th. I am doing ultrasound & mapping there as well. I will leave earlier if drains are removed, but doing my whole care there. I have no room for chances anymore & want Feng to remove the drains. Talk to you soon. Andrea

        Reply
  253. Andrea

    Hi Nicole, WOW!! I read through this website top to bottom over and over again all last weekend. This website is how I put 2 and 2 together about my horrible illness with my 18 yr old toxic implants. I would have never made the connection without all this information. What are the support groups I should join again?? This is you ???? ????

    Reply
    1. admin Post author

      Hi Andrea,
      The facebook group is called Breast Implant Illness and Healing Official Group. See you there. Nicole

      Reply
  254. ashley

    I just had my implants removed. I’m still feeling tired, moody and so on. I need help detoxing now. How do I start this process? I have three small children. I need to get myself back.

    Reply
  255. Sheri Prejean

    Thank you for sending me this. I do believe I suffer with some of the symptoms. Unfortunately I do not have my husbands support as he doesn’t think any of this is true. My PS nor Gyn don’t believe it exists either.
    I will continue to read up on all of this and act according to my belief for my body!

    Reply
    1. Nancy Coleman

      Dear Sheri,
      I’m sorry you don’t have your husband’s support. Move forward anyway. There are most likely more ‘things’ for you to learn through what you’re experiencing. Go inside of yourself, ask “what is there for me to learn about myself?”, and move forward. Stay with your convictions….and most importantly find your personal power and stay with it as best you can. Don’t be too hard on yourself. It’s an experiencing and learning process.
      Best to you and your health.
      Nancy

      Reply
  256. Rio Duro

    Hello
    its been less than a year since I started noticing problems, had mentor, saline implants with mya uk in 2013. First started noticing aches in my back, hip and pelvis which then felt like trapped shooting nerve pains in groin and hip area and lots of bloating. things started to improve for a month or so only to come back a whole lot worse. I then began to get pins and needles in my legs with awful nerve pain and pain around pelvis attaching muscles, plus awful back pain asthough it wernt sitting properly, also the dizziness and shakes appeared on and off. The chronic back and leg pain carried on only then to have neck problems, trapped nerve pain and muscle aches on and off. then I suddenly began to get nerve and muscle pain down arms and hands and have developed raynauds recently; however what’s proving most scary atm is ive developed a shudder whenever I move any bones especially in my back and neck! I feel so weak and my limbs feel floppy and shaky. Infact forgot to mention been getting numb hands/arms during the night for almost 2 years, plus anxiety/panic attacks, skin rashes. I have gone from working 11 hour days running my own business to not being able to the supermarket in the space of months. Seen doctor countless times, they have now referred me to neurology with a huge waiting list! Sure there are other symptoms I have missed too but can’t think of right now. I had no idea implant illness existed until a matter of days ago, I’m not sure what to think to be honest but im so worried and just wanted to put my story forward, thank you, Rio.

    Reply
    1. Sharon Ribando

      I was where you are one year ago! EVERYTHING ! This illness is life changing became completely bedridden before i found this site.

      Reply
  257. Anne Hultin

    I’ve had my implants for over 30years.lately I feel like I have Body aches, back aches, whenever I bend over when I come back up I get dizzy and feel like I can’t breathe. I want them out but can’t afford the surgery. Does insurance cover implant removal.?

    Reply
    1. admin Post author

      Hi Anne,
      Some insurance does cover removal of implants. Pain and capsular contraction Bakers IV seems to get covered the most. Check out the link to insurance information on the Resources page of this website. Nicole

      Reply
  258. Penny

    Hi , I just found your group and can not thank you enough! I have had implants for over 20 years. Starting experiencing capsular contracture about a year ago. My health had been “delicate ” for many years but I am high functioning so always pushed ahead. But over the last year my health has been deteriorating. Finally diagnosed with fibromyalgia. Does anyone know of a surgeon in CT who performs explanation en bloc? I called Dr James Lyons office in Westport and spoke with his assistant. It does not appear that he believes in this illness since they said that usually they do not “need to take the capsule out with the implants”. Thank you. Penny

    Reply
    1. admin Post author

      Hi Penny,
      Most plastic surgeons will not admit that breast implants cause illness because they derive so much income from placing breast implants. The most important is to choose a surgeon committed to removing all the capsule tissue which we knows correlates to a good recovery. Nicole

      Reply
  259. Allison B.

    I am having explant surgery next month and have questions with the detox process? When should you start the detox and is there an exact program to follow telling me what to eat?

    Reply
  260. claire

    Hey Paula,
    Thank you for the blessings for my surgery, I am counting down the days. Wishing you the best on your surgery also, hope it is a blessing for both of us.
    Thanks again, Claire

    Reply
    1. Paula Lawrence

      Hi Claire,

      Only 6 days until your surgery! If you would like you can call me at 715-865-2925 so we can stay in touch. Thanks, Paula

      Reply
  261. Kristi

    I need a really good Doctor in Southern CA. Los Angeles, Newport Beach, San Diego areas. I am having a myriad of symptoms. I want someone that is good at implant removal. Thank you.

    Reply
  262. Paula Lawrence

    Hi Nicole,
    Do you know if there are any plastic surgeons in Minnesota that you would recommend that do explants? I’m waiting to hear from my P.S. in Edina, MN – one of his nurses said he doesn’t do a lot of those…so I’m a little leary about going back to him for that – but I have a consult appt on 3/11 to discuss. In the meantime I looked at the explant surgeons you recommend on this site – but I thought I’d double check to see if you know of any in MN? Thanks, Paula

    Reply
    1. Paula Lawrence

      Claire, I am so happy that your explant surgery is on 2/24! I just got my explant date with Dr. Feng on May 9! It seems like an eternity to me. The worst symptom that I have is migraine headaches which before I realized my implants were the cause I’ve been trying to figure out the cause through diet for the past 9 years or so! Ugh – this is a nightmare – but I know it could be worse. Blessings to you for a wonderful surgery! Paula

      Reply
  263. Claire

    Hi Nicole, Thank you for our website and all the information you have provided for the many women like myself who are suffering from implant toxicity. I am scheduled for explantation on Feb 24 and looking forward to getting my health and my life back. Recently had MRI of breast which indicated implants are intact (silicone which were inserted in 2009 replacing saline originally inserted 1992 S/P bilaterally mastectomy), PS doing explant with capsulectomy. Due to my declining health, extensive body mass loss and wt loss, PS unable to do fat transplant or flap at this time, but at this moment I just want to be healthy again. Besides being dx with Hashimoto’s in Sept I have been experiencing increased neuropathy, headaches, fatigue, palpitations, blood pressure fluctuations, itching all over my body and intense itching under chest wall/implants. PS denied implants cause autoimmune disease but did state he has seen these similar symptoms in 4 women who he removed implants and had significant symptom relief, so I am hopeful. I have been on gluten free diet since dx of Hashimoto’s in Sept and PS has recommended vitamin therapy and protein shake supplements prior to surgery. Would appreciate any information/advice that will help me prior to surgery, I have read your detox protocol for after surgery. Do you know if the physicians ever start patients on antifungal therapy prior to surgery, the itching worries me that I may have fungal infection. My primary care MD, endocrinologist, cardiologist, allergist and neurologist have all ruled out underlying causes for my symptoms and admit they had no idea implants could be the cause and encouraged me to follow thru with PS.

    Reply
  264. Anne

    Hello-
    I underwent surgery in May 2015 for cohesive gel implants. All was well until the first part of December when I experienced a highly inflamed lymph node in my arm pit area. It has since settled down but is still somewhat enlarged two months later. Approximately one month after experiencing the inflamed lymph node I noticed a tightness from my arm pit to my elbow and every now and then it continued to my wrist. It felt like scar tissue that prevented me from full extending my arm. That has since subsided but I do have a sore spot on my lower – interior bicep muscle. It’s primarily one sore spot that gets my attention when I press on it. If I extend my arm out to the side and press backwards I can feel a soreness in my bicep muscle. Has anyone experienced similar symptoms? I’m wondering if the ‘scar tissue’ feeling was drainage from my lymph node? Thank you in advance for any information you may be able to provide.

    Reply
  265. Debra

    Hi Nicole,
    I had my forty five year old silicone implants removed six weeks go, and I have a question about the detox program. I have been tested for heavy metals and mold with nothing being out of order. My biggest concern is the difficulty I have in walking, weakness and wobbly sensation. I don’t know where to begin in the detox, I’m completely overwhelmed with all the suggestions online. Do you happen to know where I should begin considering this very disabling symptom, or what protocol is being used for this?

    Reply
    1. Dollie Bush

      Debra,
      I am where you were probably 2 or 3 months earlier!
      I’m just starting the process (consultation appt) on explant…mine are also 45 years old!
      Needless to say I’m trying to do research and feel scared. My age isn’t helping (76). My referral is to a General Surgeon not a Plastic Surgeon.

      Reply
      1. Janice phillips

        I am also 76 have had them since 82 .I have many of same illness as most women with implants.I feel as tho I need to have them out. I cannot bring my self to do this. Do I believe I would be better off without them. Age and expense is also a factor. Thanks for reading

        Reply
  266. Tara

    I got my implants in September 2014. I am suffering several of the symptoms (foggy mind, memory loss, extreme hair loss, heart pulpitations, mood swings, anxiety, lathargic and joint pain), however i had the copper IUD inserted  6 months ago and have been reading these are all symptoms of copped toxicity also so i don’t  know  if it’s  the IUD or the implants. I had bloods taken for my copper levels last week but all “normal” According to my GP. I have  been to a naturopath  and he said heavy metals hide in your tissue not blood, so blood test results wouldn’t show this accurately? He said I should have the copper IUD removed straight away.

    I get strange pains in my left implant (armpit)  and they feel as of they have shrunk dramatically  in the last 3-4 months  (i have also lost 6k while traveling so i know ive lost alot of natural breast tissue weight)
    Any advice is greatly appreciated
    Thanks in advance 
    Tara

    Reply
    1. admin Post author

      Hi Tara,
      Both your breast implants and the IUD need to come out. I would get the IUD removed asap and then come to the Facebook group and learn more about breast implants and copper toxicity. In the FB group we have a file on copper toxicity as some of us that that too due to high estrogen correlating with high copper. You can join the our facebook group Breast Implant Illness and Healing Official Group by searching us on Facebook or clicking the F button at the bottom of any page of this website. Nicole

      Reply
  267. Steph

    Hello I had a breast implant put in my left Breast 6 years ago I was lucky enough to get full sensation back and everything seemed fine. 6 months ago I noticed I had lost all feeling in the breast. Iv been to the doctors who said I will receive a letter to go and see my surgeon. What could this be im worrying and can’t wait any longer for some answers.

    Reply
  268. Nina

    I am 4 weeks post explant. My “fibromyalgia” symptoms are better, and the best way of describing my overall feeling is that my body feels a lot less stressed. I’d compare it to having an allergen removed after years of reacting to it. I’ve been following the detox diet and supplements and have been trying to get to the steam room in my gym as often as I can. My worst symptoms have been the fibromyalgia, joint pain and foggy brain. I am hoping that staying with the detox diet (raw organic foods, unprocessed, grass fed, etc.,) I’ll be able to keep improving. I felt so sick pre explant that honestly I didn’t/don’t even care what I look like, but surprisingly it’s a great relief to be back to an A after being a small D with the implants. Pre implant I was a 34A, had 360cc implants which made me a 34D and now …. well, I’m a small A and LOVE it. If feels great not having those things stuck on my chest and feel that my clothes fit much better. I love the natural look! Wishing the best of luck to all of you suffering and for those who are thinking of getting implants – DON”T do it!!! Read about how many of us got sick from them.

    Reply
  269. Stephanie

    I am 6 days post explant, (January 11) capsule removal and lift. My implants were silicone under muscle and had been in for 25 years. I used my local plastic surgeon, the same one that placed them so long ago. I was in surgery 2.5 hours and have been on the mend since I got home. I have not had much pain, just a little soreness. I have been wearing a sports bra, and sleeping elevated on pillows. I am to do this for 10 days.

    My pre implant breast size was 34 B, post explant 34D,, and now I am not sure. I think I will be 34 B+.

    Before I had the explant I had many unexplained symptoms (brain fog, joint pain, back and neck pain, tired all the time, psoriasis, afib, just to mention a few) Since I awoke from surgery I have had absolutely no neck, back or joint pain. The psoriasis on my leg is better. Not sure about the afib. Don’t want to take a chance and get off meds just yet.

    Having my implants removed was the right decision for me. I had a lift and so my breasts started out looking like flat donuts, but each day gets better, and they are beginning to soften and drop a little. I am sure in a few months, they will look awesome.

    This is a short synopsis of my story. Hope someone out there finds it encouraging. I would love to hear from anyone who has had their implants removed with lift. How do your breasts look 1 month out, 3 months out and then 6. Also when were you able to resume sleeping on your side or stomach.. These are the questions that I need answers to most.

    Thank you

    Reply
  270. Claire

    Hi Nicole, can you or anyone recommend an experienced surgeon in the New Orleans, La are to perform explantation?

    Thank you

    Reply
    1. admin Post author

      Hi Claire,
      There may be one there but I don’t know of him/her yet. Please read the Explant page of this website and see the Explant Surgeons page for a list of surgeons we know remove implants properly. Nicole

      Reply
  271. meredith edwards

    Dear Nicole,thank you first for your imformative text,it was the first imformation that allowed me to acknowledge that I did have breast implant illness.Yesterday I was explanted after having my textured coesive gel implants in for 18 years,the last 6 months have been a living hell,and I hope now I can start my healing,I won’t go into all my symptoms,as the list is too long.Today is the first day after explant,yes I’m sore normal,but I have an excruciating headache,maybe because of all the toxins racing through my body.I want to heal,should I be taking anti fungal treatment straight after my op,or any other medication,I shall eat organic and do what I can nutritionally,should I make an appointment to see a toxicogist,as I’m sure I have heavy metal poisoning as well.Thanks again for making me realise the gravity of my illness,and I wish you very well,and hope that you are fully recovered.I feel sadenned that there are many women who when they decide to implant,are blind to what will happen to them,and that one day in the future,all implants will be banned.best wishes,meredith edwards.

    Reply
    1. admin Post author

      Hi Meredith,
      Come to the Facebook group Breast Implant Illness and Healing Official Group where we can coach you through your detoxification. Nicole

      Reply
  272. Kimberly Simpson

    I have been sick for about 3 years and the recent year my symptoms have gotten worse. I was watching a TV show last night with Yolanda Foster in it and she just had her implants removed by the surgeon listed #1 on your list of explant surgeons. I asked my husband if he thought my implants could have anything to do with all my illnesses. He googled symptoms of implant illness and found your site. He then began to read to me all the symptoms of breast implant illness and my mouth dropped! I have pretty much every single symptom listed with exception of a few. Your site has been very helpful and I have to say I’m a little terrified of what my next few months entail. My one question to you is after the explant surgery, did you have a lift? I’m wondering if reconstruction will be needed or does the surgeon just remove and patch up? I’m not concerned about the size, a perky A cup will be fine with me as long as I get my health back. Thanks for all you have done in helping so many ill women.

    Reply
    1. admin Post author

      Hi Kimberly,
      I did not need a lift and many don’t but some do. It depends on the size of your breasts, the size of implants, aging, weight loss and gain. Your surgeon will tell you if you need a lift for the best result. Many ladies get lifts too and they turn out well. Other than lifts for those that need them no reconstruction is needed after explant. Nicole

      Reply
  273. tammy

    HI, I have a few questions. I have had silicone breast implants for 8 yrs now. I am 40 yrs old. Since getting them, I have developed arthritic changes in my joints, fatigue, menopause, flu like symptoms once a month or two months,and depression. I have been tested for lupus, RA, both negative. Sed rate normal. I have bone spurs in my back, one taken off my shoulder. In the last month I have begun having burning, electrical tingling in both breast with intense itching. Not to mention, a skin rash on torso and arms with no explanation. Im looking for an explant doctor, hoping my symptoms will go away. All illnesses that I have started after my implants. Just curious if anyone else has experienced any of these things.

    Reply
  274. cheryl

    I am in the pain category now. Its Sunday. Last week i had xrays for possible broken ribs from coughing so much. replaced 22 year old implants march 2009, with silicone. Heathy as can be except for the past two months (and last year same chest pains with flu symptoms)

    pain is radiating from my left breast area rib cage everywhere. this morning i woke up with left-sided numbness and tingling in my head and arm going down from my breast to my stomach. my mind thinks its silicone just dripping down my ribs and chest wall/ body. i told the doctors last year when similar pain from coughing happened it was happening again. last year had MRI, CT Scan, Mamogram, Ultra Sound. all came back with no implant rupture. my doctor says i have costochondritis. they gave me second round of anti-biotics, norco for pain on monday. i have only taken 3 of the norco as i don’t like pills. self medicating with alcohol.

    Los Angeles area. called and emailed doctor today. waiting for MRI to be scheduled for tomorrow. almost every post i have read today is the same as i am going through. what are the odds if the silicone has leaked that it can all be removed? i read that if it goes into your lungs it can never be removed (how would it get in there) i am i writing this i have a sharp pain my left temple when i open my mouth. should i go to emergency room or wait for monday morning? UUGGHHH

    Reply
  275. Madelin

    So glad I found this site! I’ve had hives since August. I’ve been to over 5 dermatologists, a hematologist, allergist and last being treated by a university of miami dermatology research doctor. All tests performed come back negative. No food or environmental allergies, no liver issue, no auto immune disease which is all great but I still keep getting rashes and continuous itching. I’ve spent over $4,000 in a 5 month peruod on copays for doctors and medicines. Just last night I thought of researching if my implants could be the cause, since my rashes only occur in my torso area from my breasts to pelvic bone. I’m now convinced this must be the problem. I had my saline implants put in, in march 2001, however I was told my implants don’t ever need to be replaced after 10 yrs. I would love referrals for doctors in the Miami area that explant and are familiar, and honest, about implant illnesses. Still surprised a class action lawsuit is not in place at this point. Thanks Nicole for this site and to all who comment to help others out.

    Reply
    1. tammy

      I have developed a skin rash in the last month or so. It is on my torso and arms. My breasts itch as well as my body. My breast feel like they are on fire with tingling. What have you done for your rash?

      Reply
    2. Tracy

      Madelyn,
      I too have been experiencing major allergies to everything. I’ve done all the allergy testing (and cat scans and MRI) and blood work and it comes back with nothing. About 2 weeks ago I broke out in a rash that started on my chest and has spread to my whole body but my face. It is not itchy. This rash is only one of the issues that I’ve been having for the last 6 months. (Extreme headaches, dizziness, anxiety, depression, not “myself”, and allergies to everything.) I’m starting to believe that it’s my silicone implants (2 years old) that are causing all of these problems. I believe that I live in your area and would love to know if you find a doctor that specializes in removing implants.
      Thank you!
      Tracy

      Reply
  276. Sheila

    How do we get sick if capsule forms around the implant? We have mold, biotoxins and lots of chemicals, heavy metals, etc. But, if the capsule is enclosed,, how does this cause our health problems like autoimmune disease, burning from inflammation, brain fog, disabled, etc.
    My plastic surgeon said it’s impossible to get sick from them because of the capsule. I KNOW they cause illness. I’m convinced. But, don’t understand how. Thanks

    Reply
    1. admin Post author

      Hi Sheila,
      The capsule tissue is not impenetrable rather it is permeable and silicone particles, toxic chemicals and micro-organisms pass through the capsule tissue all the time and even aided by our own immune cells called macrophages which attempt to carry these particles away. Plastic surgeons are ludicrous. On one hand they tell women you don’t need to remove capsule tissue because it is thin and will disintegrate and on the other hand they portray capsules as impenetrable and holding all the toxicity of breast implants inside the capsule which in reality is untrue. Plastic surgeon will say anything to keep their cash cow rolling at the expense of women’s health and lives. Nicole

      Reply
  277. Luba

    HI, I had a breast implant surgery done on 12/31/15, following mastectomy and lymph nodes removal on 12/11/15 with tissue expander inserted. It lead to excruciating pain and infection, therefore tissue expander removed and implant placed. However, a capsular contracture developed and I was recommended massage therapy , but not sooner than at least two weeks from 12/31/15. Will the massage therapy help? or the implant should be removed right away? Or should another implant placed above the muscle (usually not recommended after mastectomy)? Also, I was told that the healing process can take up to four month (for all the swelling to go away)?!! Hope, not too many questions at once… Thank you.

    Reply
    1. admin Post author

      Hi Luba,
      If it were me, I would remove the breast implant as soon as possible and not look back. Nicole

      Reply
  278. krista

    Hi I’m new to the site. Serious problems going on need some help if any. I am 49 years old. In 1991 I had silicone implants put in and still have them. I never ever knew I should of had them removed. I now am so ill and wondering if that could be due to my implants. I have developed a very serious skin disease that is the most painful thing ever. Huge sores deep, bleeding and looks like my blood is crystallized and blackish reddish clumps come out in my blood. My upper back pain is so severe along with the left side of my chest. I sweat constantly, my weight loss is ridiculous. Nausea. Always feel feverish it’s just crazy.

    Reply