EXPLANT

EXPLANT BREAST IMPLANT REMOVAL

A timely and proper explant (removal) of your breast implants and the capsule tissue that grows around the breast implant is the most crucial step to your recovery from breast implant illness.  As soon as the implants and capsule tissue are properly and thoroughly removed, you will likely notice a reduction or clearing of some of your SYMPTOMS.  However, some symptoms may linger and even return until your body has completed a DETOXIFICATION process and had a chance to heal.   Many thousands of women who were symptomatic and had proper explants feel that they recovered their health within one or two years after removal of implants however some women heal faster than a year and some take longer than two years to heal.  Unfortunately, there are some women who do not recover their full health or quality of life due to breast implants and some women who develop deadly disease due to breast implants.

CHOOSE THE RIGHT SURGEON WHO IS EXPERIENCED AT EN BLOC / TOTAL CAPSULECTOMY EXPLANT AND IS COMMITTED TO REMOVING ALL CAPSULE TISSUE

No matter what you read or are told from your plastic surgeon about explant of breast implants, if you are symptomatic ALL BREAST IMPLANTS SHOULD BE REMOVED EN BLOC IF POSSIBLE AND ALWAYS WITH A TOTAL CAPSULECTOMY NO MATTER THE TYPE OF IMPLANT.  En Bloc is a breast implant removal technique first developed in France which prevents contamination from the contents inside the capsule such as chemical textures, silicone, silicone particulate, silicone chemicals, heavy metals and microorganisms known to grow in capsules.  En Bloc means the surgeon leaves the capsule tissue sack intact around the breast implant and carefully dissects around this capsule and implant without disrupting the capsule or the implant so as to avoid the contents of the capsule from contaminating your chest cavity.  Here is Dr Lu Jean Feng explaining and demonstrating an En Bloc Total Capsulectomy explant.  If you are symptomatic it should be obvious to you and your surgeon that the tissue capsule around your implant is contaminated and an En Bloc/Total Capsulectomy explant is necessary.  Proper removal of your breast implants is your best chance at recovering your health.  Even if you are not symptomatic and you have silicone or textured implants an En Bloc/Total Capsulectomy explant should be done for your utmost health because there will likely be contamination in the capsule.  If you are not symptomatic and you have smooth saline implants then Total Capsulectomy may suffice which means the surgeon will remove the breast implants and then go back in and remove all capsule tissue.  In all cases of explanting, all capsule tissue should be removed from the chest which is called Total Capsulectomy.

In addition to breast implant illness, there are many other reasons that a Total Capsulectomy is recommended when removing or replacing breast implants and this is well known to plastic surgeons.  Leaving capsule tissue in the chest can cause pain, inflammation, calcification, infections, interference with radiology, swollen lymph nodes, continuation of symptoms and continuation of autoimmune responses and toxicity.  Many women in our community have had to undergo second surgeries to remove capsule tissue that was not removed when they explanted only their breast implants in order to finally get well.  Please ensure that your explant is En Bloc and or Total Capsulectomy so you are able to heal.  

In the case that your implants are only a couple weeks old, an En Bloc removal may not be necessary as there would be very little opportunity for contamination and very little capsule tissue built by your body in the couple weeks of having implants however any capsule tissue that is there should be removed by your surgeon and it is possible that capsule tissue can grow within a few weeks or a few months and we have documented that in the facebook group.

Do not drain your implants before explanting.  Draining saline implants before explanting is relatively new and being suggested by plastic surgeons and we highly advise against this.  Silicone chemicals and particulate from the shell and biofilms of bacteria/fungus from the capsule may be washed through the capsule into your body and may cause a serious health decline.  Several women in the group have noted a marked decline in their health right after draining implants prior to explanting.  There is no benefit to you whatsoever in draining your implants prior to a proper En Bloc/Total Capsulectomy explant.  Please for your safety don’t drain your implants prior to explantation.

THE REAL REASON PLASTIC SURGEONS AVOID TOTAL CAPSULECTOMY AND EN BLOC EXPLANTS

Some plastic surgeons argue against En Bloc/Total Capsulectomy removal saying it is unnecessary as they do not believe implants cause illness, or unnecessary due to thin capsules or it carries undue risk to the patient.  Again, if you’ve had your implants for two months or longer you will have capsule tissue and if you are symptomatic, it should be obvious that your breast implants have contaminated the surrounding capsule and an En Bloc/Total Capsulectomy explant is necessary.  The real reason some plastic surgeons avoid En Bloc/Total Capsulectomy explant is because it takes a high level of surgical skill, attention to detail, more time and requires a general anesthetic which carries more risk than a local anesthetic.  Your placing plastic surgeon will not make much money from the removal of your implants and so they prefer to do as little as possible such as a short 20 minute procedure, in their office, under a local anesthetic simply cutting you and pulling out the implants leaving the contaminated capsules inside your body.  Easy for them.  Bad for you!  Leaving the capsules in your body whether thin or thick means all the contamination within the capsules will be left behind and eventually taken up into your body which results in a longer and more severe illness for you and even substantially hampering your recovery.  Some plastic surgeons even rupture the implant while removing it causing additional contamination.  Some surgeons suggest draining your implants a few weeks prior to surgery which will also cause contamination to you.  Some plastic surgeons will argue that an En Bloc/ Total Capsulectomy explant could result in disfigurement of your breast but this is mostly untrue.  A skilled and experienced explant surgeon will be able to avoid further disfigurement than the disfigurement already caused by implantation.

If your plastic surgeon does not acknowledge breast implant illness, silicone toxicity, argues against a Total Capsulectomy or cannot prove their En Bloc/Total Capsulectomy skills and experience to you via photographs of removed implants and intact capsules, we suggest not using him/her for your explant.

DON’T BE CONFUSED BY THE DIFFERENT TERMS CAPSULECTOMY AND CAPSULOTOMY

Have your surgeon explain to you in step by step detail exactly how the explant procedure will be done and then record the details in writing for you so you both can sign off on it.  Ensure that you both sign off on the correct procedure using the words Total Capsulectomy on your contract.  Keep a copy of the signed document for your records.   Do not get confused by the terms En Bloc, Total Capsulectomy, Capsulectomy and Capsulotomy:

En Bloc – is the French term that references the proper procedure developed in France for removing silicone and textured breast implants in a manner to avoid contamination to you.  En Bloc means the surgeon leaves the capsule tissue intact on the breast implant and dissects around this intact unit without disrupting either the capsule or the implant so as to avoid contamination to the body.  An En Bloc/Total Capsulectomy explant will take at least two hours and should be done with an under the breast incision.  Very few surgeons will be able to do En Bloc/Total Capsulectomy through the nipple as the surgeon does not really have enough access to do a proper En Bloc through the nipple. All silicone and textured implants should be removed En Bloc/Total Capsulectomy for your highest well being.    

Total Capsulectomy – may be your surgeon’s reference for an En Bloc explant and capsule removal but please clarify this with him.  Total Capsulectomy usually means the surgeon will remove the implants and then go back in and remove any and all left over capsule tissue.  

Capsulectomy – is a procedure in which the capsule of tissue surrounding a breast implant is surgically removed and this procedure is generally used to fix capsular constracture but does not necessarily mean all capsule tissue is removed.   

Capsulotomy – there are two types of Capsulotomy:  Open Capsulotomy is a procedure in which the capsule is surgically released and/or partially removed through an incision within the breast area.  Closed Capsulotomy refers to a procedure where the surgeon breaks down capsule tissue while leaving the implant in place using vigorous compression.  Closed Capsulotomy is not recommended due to risk of rupture of the implant and voids the warranty on most breast implants.

WORD OF MOUTH REFERRALS FOR GOOD EXPLANT SURGEONS

A good way to find a surgeon for explant is by word of mouth referrals from properly explanted ladies. Here is a list of world wide EXPLANT SURGEONS  which we gathered from ladies recommending their surgeon to us in our facebook group.

Thousands of ladies have breast implant illness and as such we created a Facebook support group Breast Implant Illness and Healing By Nicole where you can chat with 90,000 other ladies who have been through the same symptoms, finding a surgeon, surgery, recovery, detoxification and healing.  Or you can click the Facebook button at the end of any page of this website which will also take you directly to the support group.

OTHER IMPORTANT THINGS TO KNOW IN REGARD TO EXPLANT

READY YOUR BODY BEFORE SURGERY – Depending on the time frame before your explant, you can prepare your body by nourishing yourself as well as you can, fueling with extra high quality vitamins and minerals to support healing and improving your gut health through an organic, wholefoods diet and lots probiotics.  Your surgeon may request that all supplements be stopped at least two weeks prior to your surgery so as not to affect the actual surgery itself.

OBTAIN A COPY OF YOUR IMPLANTATION OPERATIVE REPORT – Obtain a copy of the operative report for your implantation from the placing plastic surgeon.  The operative report will help the explant surgeon and will be helpful if you decide to get your implants analyzed and or explore legal avenues.

OBTAIN A COPY OF YOUR EXPLANTATION OPERATIVE REPORT – Obtain a copy of the operative report for your explant from the explanting plastic surgeon.  The operative report will explain in detail exactly what the surgeon did during your explant.

OBTAIN WARRANTY INFORMATION AND SERIAL NUMBERS OF YOUR IMPLANTS FROM THE PLACING SURGEON – Breast implants have serial numbers so they can be tracked because they are classed as medical devices.  The serial number is on the breast implant itself and should be recorded in your placing surgeon’s files.  Breast implants usually have a warranty of ten years and the manufacturer may cover some expenses of surgery due to a ruptured, leaking or defective implant.  However, please be aware that you may have to sign away your right to future legal proceedings if you accept warranty reimbursement.  I suggest getting legal advice to protect your rights before considering signing anything from implant manufacturers.

INSIST ON PICTURES OF THE EXPLANTATION – Good surgeons will video tape their explant procedure or take various photos of implants once removed with the capsule tissue still on to prove they were removed En Bloc/Total Capsulectomy.  Ensure there are side photos showing the posterior of the capsule is also present.  Secondly, a set of pictures of the implants themself without the capsule tissue on the implant.   We have several pictures now of moldy and colonized implants taken right at the time of removal.

PATHOLOGY – Discuss pathology with your surgeon, the costs and what you both feel is necessary or not. Ideally, if you have textured implants and any symptoms of BIA-ALCL (or even perhaps not) you should be or may want to be tested for BIA-ALCL using a CD-30 test.  A CD-30 test will include your surgeon capturing fluid from inside your capsules if it is present and sending the fluid samples and representative pieces of your capsule to pathology to be tested for BIA-ALCL.  Further, and aside from BIA-ALCL, your capsules and implants should be sent to pathology where the state of your implants should be carefully documented and recorded (are they ruptured, leaking, are there shell or patch defects, are they discolored or colonized) by the pathologist and your capsules should be carefully examined for textures/silicone which may have leaked or be present in the capsule.  Then the pathologist will study your capsules and the cells of your capsules noting the tissue types and cell types, cell characteristics and any cell pathologies that may occur in capsule tissue.  Then, pieces of your capsule should be cultured using sensitive broth cultures to see if any infections grow out that you may need treatment for.   Bacterial infections grow out sooner than fungal infections.  Your surgeon will order your pathology and so you need to discuss all of this with him and which of these tests you want and the costs, some of this may be very expensive and even unnecessary depending on your circumstances and what your surgeon sees during explant and so that will be a factor in your decision. Whether you get your implants back or not is up to you, some want to see them, if you are pursing legal check with your lawyer about how your implants should be handled in order to preserve your case.

LYMPH NODES – At this time the following quote and research by Dr. Lu Jean Feng is the best research on the subject of breast implants and lymph nodes:  “I have done extensive research on silicone lymphadenopathy over the last 20 years as a result of breast augmentation. As a result, I have published a peer-reviewed paper with scientists from the Armed Forces Institute of Pathology in Washington, D.C. as well as from Case Western Reserve University in Cleveland. Silicone in the lymph nodes can be diagnosed by ultrasound and by needle localization for precise removal. The polyurethane covered gel filled breast implants are associated with extensive silicone lymphadenopathy in the axilla, retropectoral, internal mammary, and sometimes neck nodes, but never in nodes below the diaphragm. The saline implants are never associated with silicone lymphadenopathy. Ruptured gel implants are only sometimes associated with silicone lymphadenopathy.  Silicone-laden lymph nodes, if they need to be removed, should only be removed after needle localization by a radiologist experienced with the technique. I have removed many silicone laden lymph nodes after needle localization in the past, but I have stopped due to the fact that the removal makes little difference in patient’s recovery from implant illness. In addition, there are always risks of lymphedema of the arm, numbness in the arm, and seroma in the axilla. I am not aware of any medical literature showing benefit of lymph node removal in implant illness.” http://www.fengclinic.com/files/2014/10/PathologyofLymphNodesimpants.pdf

BREAST IMPLANT ASSOCIATED ANAPLASTIC LARGE CELL LYMPHOMA – Anaplastic Large Cell Lymphoma is a type of non-Hodgkin’s lymphoma, a cancer of the cells of the immune system that can be caused by breast implants.  The main symptoms of BIA-ALCL are persistent swelling or pain in the vicinity of the breast implant, seroma, breast mass, capsular contracture and usually are associated with textured implants.  These symptoms may appear after the implant surgical incision has healed and often years after implant placement.  If you have swelling, seroma, breast mass, or capsular contracture and especially if you have textured implants please push hard for BIA-ALCL testing.  Surgeons should consider the possibility of ALCL when they have a patient with late onset, persistent fluid around the implant (peri-implant seroma) before and during explant or exhibit symptom after explant.  When testing for ALCL at the time of explant, surgeons should collect fresh seroma fluid and representative portions of the capsule and send for pathology tests.  The test is called CD-30 and few surgeons are knowledgeable about BIA-ALCL at this point so it will be up to you to educate your surgeon and persist in getting the test if you have any symptoms and/or textured implants.

DECIDE IF YOU WANT YOUR IMPLANTS BACK – You paid for your implants and by law they belong to you and should be returned to you directly after explant or after pathology if you want them back.  Don’t let your plastic surgeon keep them, dispose of them or tell you they cannot be returned to you because of hospital rules.  Plastic surgeons are rewarded for returning breast implants to the manufacturers and so they make up all kind of excuses that implants cannot be returned to you.  In Canada, some of the capsule tissue does have to go to pathology for cancer testing but the implants do not have to go to pathology.  You may want to inspect your breast implants yourself after their removal.  Mine smelled strongly of chemicals and that is how I realized that chemicals bleed through the shell and are toxing us.   You may want to send your implants to Dr. Pierre Blais of Innoval Consulting, under RESOURCESfor analysis to understand why your breast implants failed and caused you symptoms and illness.  You may need your breast implants for future legal proceedings.  If you are interested in legal please seek advice from your attorney on how they recommend your implants be handled by your surgeon and pathology after explant in order to preserve your case.

YOU MAY WISH TO CONTACT THE IMPLANT MANUFACTURER FOR WARRANTY AND EXPENSE REIMBURSEMENT – If you obtained your implant information from the placing plastic surgeon or if you received your implants after explantation you will be able to determine the manufacturer.  If you do not have an interest in legal action, contact the manufacturer to see what is available to you in regard to warranty or reimbursement for surgeon fees.  Again, please be careful talking with and signing anything from the implant manufacturer so you do not sign your rights away.  In general manufacturers make you give up the implants and your rights to legal proceedings in return for a little money.

I wish you the very best in a speedy explant and full recovery of your health.  If you have any questions or concerns, please contact us below.

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166 thoughts on “EXPLANT

  1. Julie

    I’m about 3 months away from finishing chemo therapy and then receiving bilateral mastectomy and reconstructive surgeries. Is there any types of implants that are safe??

    Reply
  2. Gun Ekström

    Hey! I am a woman from Sweden who has a question to which I have not received an answer. Operated my implants in January and they had no marking at all except 350cc. I wonder what this might be. Did not get paper on variety or make with me home when they were inserted. This was 2003.

    Reply
  3. Luigina Salerno

    Dear team, I am in the UK and have explanted but do not have a Facebook account.
    Is there any other way of communicating with or joining a group?
    Best regards
    Lu

    Reply
    1. admin Post author

      Hi Luigina,
      Please set up a facebook account so you can join our group, there is even a UK group too where you will likely be able to find ladies to meet up near you.

      Reply
  4. Tracy Abdallah

    I had breast implants are breast cancer and a bi-lateral mastectomy 3 years ago. I have experienced many of these symptoms but I also had my ovaries removed which has a whole lot of symptoms anyway. I have read lots of information and none of it refers to women in my situation, only women who had implants with their own tissue intact. Where do I go for this information?

    Reply
    1. admin Post author

      Hi Tracy,
      Please come to the facebook group, many ladies are explanting reconstruction breast implants due to symptoms and they will speak with you.

      Reply
  5. Ali Campagna

    It looks as though Dr. Daniel Thomas in Chico, CA has been removed from the recommended list. I’d like to know why because I was planning to schedule with him. If there have been bad reports, I’d like to know. I live in Fortuna, CA and need my implants out. Before he was taken off the list, his price was around $4000-$4500 ( I can’t remember exactly) but I am wondering if his price was so low because he did not perform Total Capsulectomy. Any other recommendations for a doctor anywhere close to Humboldt County would be appreciated. Also, I cannot afford $10k for surgery, and I am having painful symptoms, so I don’t have much time to save money. Dr. Thomas’ price was about what I need. Thanks!

    Reply
  6. Anna acuna

    Hi there
    I undergo en bloc surgery 9 days a go ,
    I am feeling better little by little , still have drains on me , I have stop taking prescription antihistamines for the first time in four years and i feel blessed for it.
    I still don’t have pictures of my procedure or evidence of how my implants looked , I ask my surgeon if he could see the serial number and maker of my implants since I wasn’t given an implant record card 19 years a go but he said the implant did not have any serial # or maker ?
    Is this posible ?
    Also they won’t give me the implants back
    Is this a normal procedure ?
    I appreciate a reply
    Thank you

    Reply
    1. admin Post author

      Hi Anna,
      It is possible that your older implants were made before the requirement for breast implants to have serial numbers. Legally your implants belong to you and if you request to have them back they must be returned to you.

      Reply
  7. Beverlee Cholewa

    What an excellent article! I have the implants that are being recalled right now. I’m very nervous and they say that if my MRI comes out fine they just watch it. That scares me!!

    Reply
  8. Deborah

    Why can I not locate an Explant Surgeon in my area of Birmingham, Alabama? Is this not something doctors wish to do? I am debating whether or not to contact the plastic surgeon that did the Implant surgery. I trust him as he has also performed a facelift and tummy tuck on me in years past. I am just not sure if he is experienced in Explant surgery. I really need this surgery and have no idea how to proceed to be sure I get the correct En Bloc/Total Capsulectomy procedure. If anyone has any information that might help me, it would be greatly appreciated. Thank you.

    Reply
  9. Frances Semas

    Do you know any great surgeon in Sacramento Ca that will remove mine ? I’m at a lost trying to find one.

    Reply
  10. Beatriz montoya

    My daughter from Rome Italy had her implants removed last Saturday at Gemelli Hospital where she had breast cancer surgery and implants two months ago. After a week she developed an infection, redness in one of the breasts then it went to the other side. She has been on antibiotics and fungus Candida medications. She has no fever and no pain.
    We didn’t we could have had the implants back?

    Reply
  11. Elisa lueck

    Please let me know experienced surgeons in the Washington DC metro area for explantation surgery. I have been so sick since getting these implants in February and need them out!

    Reply
  12. SuAnn Cannon

    There are no “highly recommended” surgeons for Utah, just “recommended”. Any highly recommended ones to add? Thank you for this most helpful website and all this vital information!

    Reply
  13. Carol Powell

    I had silicone breast implants for augmentation in 1974. Yup, my implants were 45 years old. Had explant total Capsulectomy on June 17, 2019. I did a lot of research prior to the surgery and found an excellent plastic surgeon. Of course insurance wouldn’t cover it unless it was medically necessary. Plastic Surgeon Team worked with me and appealed. I had never had a mammogram because of fear of my implants rupturing however I needed the surgery so I had mammogram done. The Technician and Radiologist were awesome and handled me with great care. There was ample evidence and Doctor submitted appeal for Baker IV Capsuler Contracture. Insurance approved. My surgery was scheduled. Since 1974 I have had a lot of health issues that may or may not be related to the implants. Chronic Urinary Tract Infections including chronic kidney infections. Lots of antibiotics, finally they put me on low dose antibiotic daily for a year. I recently was diagnosed with Chronic Kidney Disease Level III, the doctor said it was related to my hypertension. In the 1980’s I was diagnosed with Severe Irritable Bowel Syndrome. It was so disabling that I had to get a FMLA filed with my employer to keep my job as IBS doesn’t “go away”. I have had Chronic Candida for decades. Doctors have tried everything to get Candida growth under control but it always comes back. The drugs simply don’t work for me and they are hard on the liver so I decided to live with it. I have had Hypothyroidism for decades after implants. I had Hepatitus A and B in my “hippie days”prior to implants so I try to protect my liver. I don’t drink or do recreational drugs except for marijuana which has helped with pain over the last four decades. I have had allergies which I didn’t have prior to implants. Chronic fatigue and brain fog have been a part of my daily life since implants. I would get sick, lay in bed unable to get my strength up to merely function. I am very stubborn and I would not allow my ailments to control me so I fought hard and long to try to figure out what is wrong with me. No doctor EVER discussed the possibility that my implants could be causing my immune problems. I wish doctors and FDA would research and educate themselves regarding Breast Implant Illness instead of hiding their heads in the sand. I do not want to sue anyone or point my finger at anyone but the evidence is plentiful if they will open their minds and listen to the women and men that have lived with this terrible condition caused by the materials used to manufacture silicone and saline implants. Today is July 6, 2019. I am still recovering from my surgery. My doctor explained to me both implants were previously ruptured. He was able to remove the implants and capsules together and found no evidence of leakage. He said the capsules were “very interesting “, he had never done an Explant and total Capsulectomy on implants 45 years old. He took pictures which I will see at my next appointment. He is an excellent Plastic Surgeon, i never discussed immune issues with him as it was more important to show medically necessary evidence to insurance company and they do not recognize immune issues caused by implants. My 1974 implants were so old that there was no legible identification on them. It is my opinion that silicone has leaked into my system over the years and caused my immune system to go into hyper gear to save my body from the silicone and other toxic chemicals found in the 1974 implants. I strongly feel this is the case and now my body can heal. Since the surgery I have had NO symptoms of Candida which was growing on the outside of my body last time I went to the OBGYN. I will address it with my family doctor if it becomes an issue again. I have had diahria off and on since the surgery. Very foul odor, tummy cramps (similar to IBS symptoms) it is my opinion that my body is trying to detoxify and has been for years. I continue my journey of healing. I will be careful with my body detox and try not to overwork my damaged kidneys and also my liver. I am a 68 year old Grandma, married 51 years to my awesome husband. My family and friends support me. Our daughter goes to every appointment with me and took care of me after my surgery. She has the patience of Jobe, an Angel with a kind, loving heart. Our son made sure I had good nutrition and checked on me from work every day. He works two full time jobs but still found the time to help as much as he could. Our two grandchildren do everything they can to help. Our granddaughter has taken on all the cooking, cleaning and household chores while I recover. I cannot stress how important it is for family and friends to support women and men that have lived with BII. We are not speaking out because we are trying to point fingers. We are speaking out for our love and compassion for anyone that has gone through this with the hope that doctors will start listening and the FDA will finally open their eyes to the reality of thousands of people with the same experience. We will stand together in our pursuit for justice for all the women, men and children that have been affected by Breast Implant Illness.

    Reply
    1. Deborah Headley

      Dear Carol, thank you for your informative post about breast implants and the removal process. I am 68 years old also and married to my husband for 48 years. We should similar in age and situation although I only have one son and no grandchildren. My dilemma is I am trying to decide if I should have implant removal. My first implants were in 1982 and replaced in 1992. I had a leak in right breast and had it replaced in 1995. So my implants are approximately 27 and 24 years old. In the past six years I have developed lupus and sjodrens autoimmune diseases. The sjodrens presents with extreme dry eye and dry mouth and chronic pain and fatigue. My life has been stolen by these autoimmune disorders. I no longer have a social life and spend most of my time in bed suffering from extreme chronic pain and fatigue. Not one of my doctors has offered breast explant removal advice. I am convinced that 90% of my problems stem from aged breast implants. I have regular mammograms and have had to have needle biopsies in both breasts after the last two mammograms because of suspicious tissue. Luckily, I do not have cancer; but I cannot help but believe the implants are causing me multitudes of health problems. Do you offer advice on whether a person Should have explant removal? I hate to ask you this; but I would like to know if you are satisfied with your breast appearance after the removal surgery. Honestly, I am not extremely concerned with appearance if removal could improve my health condition. I would be so thankful if you could offer me any advice.
      I hope your are feeling better and it sounds like you are blessed with a wonderful support system. Thank you for listening. God bless you and yours.

      Reply
  14. Richard Ryan

    My name is Rick .My friend Jessica is having explant surgery.I am so worried about her.Is this going to help her.She has been sick for about a year and a half.Is there anything I can do ahead of time to prepare for after surgery? I love this woman and I want to bring the shine back to her eyes!

    Reply
  15. Alisande Vazquez

    Your page helped me so much. Thank you. I found Dr. James Koehler here and finally ended a difficult chapter after explant with a lift.
    He is an excellent doctor with a stellar staff and office. The care I received there is nothing I experienced before and I was a Surgical Technologist before.

    Reply
  16. Dolores Geisner

    I had my left implants removed 4 days ago, due to one rupturing. I was told that the other one would be drained before removing and was not given any thing other than the area was injected with a numbing solution. When the surgeon removed the one rupture he was able to squeezed it where he found the area that rupture. The other was pulled and jank and pulled where it was painful to me. I don’t believe the surgeon took precautions to prevent infections and did minimal care to removed everything needed to be removed. I wasn’t given instructions on what to do next or place in a support bra nothing. I told I could go back to doing what I di before and shower with no problem, I don’t think what they did for me was right and I am worried about my health.
    Right now my right breast hurts inside and I am afraid something is wrong inside. My surgeon was only concern about not ruining the warranty on the breast she he could get paid. What can I do now.

    Reply
  17. Katie

    I only know that I had them back in the early 80’s so have no idea how to find who did them and get serial numbers ☹️ Just started to explore having them removed although I’ve been wanting them out for years

    Reply
  18. BB Boblio

    How can we get them back when they say we can’t have them? Do I need a letter from my attorney? I’m seeing Dr. Matthew Stanwix and they had to switch surgical centers due to reasonable beyond my control. . But the surgical center treating me Now is the one that won’t give them back. What Do I do? If legally they need to give them to me how do I get them to give them to me?

    Reply
    1. B Lee

      So, what surgical center did they send you to? I am explanting with Dr. Stanwix on Sept. 30 and am now worried. I’m being sent to the VA Physicians for Women Center. I was already concerned when I signed my consent forms and there was a clause that stated the implants would be returned UNLESS the clinic or surgical center would not allow. There was also a paragraph that stated the center would be allowed to discard all materials taken from my body! The papers I signed were much different than the information Dr. Stanwix and his staff had given me. I’ve already paid for my surgery so there’s no way to cancel now. I feel like I’ve been misled and deceived. Sounds like you have as well. I wonder how this has happened? Dr. Stanwix was highly recommended. Please comment if anyone else has had this problem. Thanks!

      Reply
    1. Amy Buxbaum

      I just had explant surgery with Dr John Lettieri in Spartanburg. I went today to have my bandages removed. I am quite pleased. I chose him after meeting with 2 others in ATL. He had a completely different approach. En bloc removal, no lift. The entire office staff is amazing.

      Reply
      1. sherry

        May I asked what he charged? I’m hoping to have mine out, en bloc, no lift. I don’t care what they look like. I’m in Greenville.

        Reply
  19. Michelle

    Hello, thanks to your website I just had my explant. En bloc was not possible on me but he did total capsulectomy. He provided pictures, pathology, and returned my implants. My surgeon was very attentive and thorough. I got his name from your site. Its been two weeks now and I no longer feel like I am dying! My only concern is what if he didn’t get all of the capsule? Does scar tissue grow back after all the scraping of the first capsule? How would I even know if some was mistakenly left in there?

    Reply
    1. admin Post author

      Hi Michelle,
      The only real way to know if a surgeon removes your capsules or not is too see photos and read the explant operative report.

      Reply
  20. Amanda

    Hello, Thank you so much for this website and information. I luckily stumbled upon it one evening while trying to understand illnesses that kept ‘mysteriously’ popping up. I recently met with one of the doctors from the recommended list (the doctor in Mexico City). However, he seemed quite dismissive to the possibility that I have BII. This worries me that he will not make every effort to remove all of the capsule/give me a Total Capsulectomy . Is this a valid concern? Because he is on the recommended list is it safe to assumed that he has experience and success in explanting ? Would it be possible to know how often he has been recommended for explanting? Thanks so much.

    Reply
    1. admin Post author

      Hi Amanda,
      Hmmm, I would ask him to supply photos of implants/capsules that were removed En Bloc / Total Capsulectomy to prove that he can and does remove that way. Ask him to commit fully to removing all capsule. I would be worried about a surgeon that is dismissive of breast implant illness too.

      Reply
  21. Marcia Lash

    Hello! And thank you for all this wonderful information. This is all fairly new to me but I have been sick for sometime now. This last year has been the worst of it. My mentor saline implants are 22 years old and honestly I think I was fine the first 16?! Not sure now exactly when this all slowly creeped up. I’m set for explant next Thursday May 2 with Dr Chris Williams in Lonetree Colorado. I corresponded with a gal on here who used him and was happy. He specializes in breast reconstruction. He said he will do a Total Capsulectomy but likely not enbloc. Is that not safe. All the other dr’s in the area that I have seen on the fb threads are a ways away or have long waits. And it appears that know one really believes in BII. At this point I just want someone skilled. Any input appreciated! Thank you!

    Reply
    1. Sue

      Hi Marcia…just read your post from April 26th, 2019…how are you feeling today? May 16th? I’m in the same boat as you…I’ve got 19 year old Mentor Saline implants and are considering getting them out! I’ve had some minor health issues and figured it was my age. Like IBS, tired…insomnia at times. I have an appt with a surge Ron on June 3rd….and I’m pretty sure I want them out and a lift done along with it. Just a little worried on how I will feel or even look after…thanks for any post operation fin you may want to share…thank you! Sue

      Reply
  22. Julia

    Hello, my relative is a victim of PIP implants. I found a website that called pip implant world victims association. Is it legit association? Can I trust them?

    Reply
  23. Jolene

    I live in Alaska and Dr. Cole is the only surgeon on the list from Alaska. She is part of the only PS clinic in Alaska. My implants were put in 7 years ago by a PS who recently retired from the same practice. I would prefer to explant locally and recover at home rather than having to fly someplace if possible. However, I have concerns about this clinic due to a not so positive experience with the initial surgeon. Could you please provide any information you have on Dr Cole and what criteria you used to include her in your list of surgeons. Thank you!!
    Jolene

    Reply
    1. admin Post author

      Hi Jolene,
      Dr Cole was recommended for explant by a member of our facebook group which is why she is on the Explant Surgeon’s list but I have not seen a photo of En Bloc from her. The determining factor in choosing a good explant surgeon is can they remove implants En Bloc and are they dedicated to removing all the capsule tissue. If they state they can remove implants En Bloc then ask for photos of their En Bloc / Total Capsulectomy explants as proof.

      Reply
  24. Steph

    Hi, my name is Stephanie. I have had tons of crazy symptoms ever since the 2nd set of implants. My skin rashes around my face started 2 years after I had them redone. I have Mentor smooth silicone high profile 450 CC. Every time I would flareup the allergist would test me for foods etc, and the test would come back not allergic to anything. In year 5, I stop jogging my hips would be in so much pain. So to keep in shape I just lifted weights and tried staying health this way. I’m in year 11 of having them. It’s been a year that I have been sick now with Sinus infections, Bronchitis, Walking pneumonia and I did get Whooping cough. And every time anyone around me has a cold I tend to get it and laid up for a few days. I have never been on so many different antibiotics till this past year and steroids for the swollen sinuses. But the doctors say I have no allergies it is just environmental allergies. This my left breast started having sharp Shooting pains through it, As almost like the pain of milk coming in but worse. So the doctor had chest X-rays, ultrasound and a mammogram. And the results came as nothing ruptured. The pain isn’t as bad now but if I try to lift weights it comes back. I had a Consultation with Dr
    Roee Rubenstein out Thousand Oaks, I found him through your website. He Was very informative and explanatory of what to expect and what not to expect which has been great. Now I’m just looking to schedule for the surgery to have the removal done and I start feeling better.
    Thank you 🙇
    Steph

    Reply
    1. admin Post author

      Hi Ashley,
      Please email me directly at [email protected] to contact me. Surgeons are added only after submission of En Bloc / Total Capsulectomy photos and recommendations from their patients who explanted with them in our facebook group.

      Reply
  25. Debra James

    I m having my explant May 1st with one of our surgeons on our site, I have had saline textured in me for 17 RA and the doctor who put them in said he had no information on them because it’s too long ago!
    I am very sick with probably 40 or more symptoms all blood work normal, Mri on neck normal, X-rays normal, nerve damage and sore joints have progressed to me not walking good with out a cane , but I can do yoga 👍and I’m a fighter legs stiffness swollen feet and hands, blisters on hands , migraine, sore lower back, fell more then once, breast hurt by bottom ribs , I talked with a attorney and said all they can help me with is if I get cancer! What about doctors saying you might have ms or als I’m very scared and you have helped me so far I have a feeling after explant I will still need t do physical therapy, but I just want to live ♥️🙏

    Reply
  26. Fatima

    It’s been two months since I’ve had my explanation surgery and I’ve never felt better! I had saline implants over 14 yrs ago and from the moment I woke up I hated them. They were way too big for my frame and shortly after my health slowly started to decrease. Luckily I didnt have any severe symptoms like some others I have talked too. I was always tired, had major anxiety and sharp chest pains. Everyone told me it was my hormones or from being a mom but as my symptoms progressed something in my gut told me it was more than that. Thankfully for social media I was introduced to the possibility that my implants were making me sick and it all clicked. I knew in my heart I had to take these toxic bags out ASAP. My next step was researching as much as possible to find a doctor who can help me. This website has helped me in soo many ways. I used the questions to ask your doctor and had multiple consultations. My first consult with Dr Clark in granite bay, CA had me doubting my choice to explant. I hate to name drop but with all the info coming out about the effects of implants I feel that I should share my experience. She basically told me what I was feeling wasn’t due to implants because they’re completely safe, that she doesn’t believe it’s necessaey to remove the capsule, and that she wouldn’t hold it against me if I return after to get the implants back in because they will look deflated. The stories from woman on this website and Instagram gave me the courage to continue on my search for the right Dr. I live in Northern California and didn’t want to travel far to get this surgery so I used this website to research. Dr Mohebali was on the list of recommendations and he was also highly recommended by other bloggers who spoke about their breast implant illness journey. Once I had my consult with him and his team I knew right away I was in the right hands. His whole team was sensitive to everything I was feeling and his nurse had actually gone through the same procedure. Dr Mohebali explained the whole procedure to me in detail and never made me feel like my symptoms weren’t due to implants. He believes in taking out the entire capsule through enbloc when possible in order to heal correctly. I booked my surgery date that same day and was ready to move on. From the moment I woke up from surgery I felt like a ton of bricks were lifted from my chest. Like everyone said you notice how much better and deeper you can breathe immediately after. My recovery was soo much easier than when I initially had my implants in. I honestly didn’t care how my breasts would look after because I just wanted to be healthy again and I’m soo impressed with how they turned out. I went from a 34 DD to a 34 B cup. My energy level has improved the most. Even a few days after my surgery my husband noticed the color of my eyes and skin looked more vibrant. I hope my story helps other women debating on whether they should remove their implants. I would also highly recommend Dr Mohebali to others who want to explant.

    Reply
  27. Jayne Mansfield

    Hi your page is very helpful. I’m in Australia and have Allergan textured implants. It is my intention to have them removed. I’ve had capsular contraction on my left side most of the last 10 years. After having had multi focal breast cancer, chemo, radiation and hormonal treatment. After reading your information I feel armed with some degree of confidence in seeking explant. I can ask qualified questions and I think that’s very empowering.

    Reply
  28. angelina

    hello, I have got my implants for two months: sebbin, round textured, high profile, 205ml under gland, above muscle, with incision underneath.
    I have already booked removal surgery in a few days. my PS told me he would only remove the capsula under gland and leave.capsula.above muscle.
    I am really really worried about it.
    I just want them out of.my body, I want my natural.body back e.health back.
    I am so regretted of augmentation, my previous.PS didn’t explain me that my asymmetry won’t be corrected by augmentation.
    the PS who will remove implants told me he usually doesn’t use drains.
    please help me, I don’t know his plan is good for me.
    after reading your article, I don’t know what to do. I am having them out in.these two.days.
    looking forward for your kind reply.

    Reply
    1. admin Post author

      Hi Angelina,
      All the capsule tissue needs to be removed no matter where it is located and good explant surgeons do remove it all. You may want to schedule your explant with another surgeon if your placing surgeon will not explant you properly.

      Reply
  29. christine reynolds

    My implants are coming up on the ten year mark, as I don’t believe I’ve had any symptons, I am concerned that I was attacked by a pit bull last year, that bit my right breast, I’ve had a Mri and doctor said implants not leaking, now I have a trust issue since reading about all this new information. Not to mention I underwent rabbis vacinations due to the dog being 6 months behind on his , ugh, please advise. Thank you

    Reply
  30. Tami

    Looking for a PS in CT to do explant with en bloc. Has anyone ever used Dr Wilfred Brown for this procedure?

    Reply
  31. Melissa Frye

    Hello,
    I am interested in knowing who is the number one surgeon , the very best in the United States?
    I have read the list state by state . Is Chen or Feng better ? I want the total enbloc/ capusulectomy , lift and any other things needed to make me look not deformed and flat. Some of the photos posted have shown not so good surgery results. I was married to an abusive man and he forced the implant surgery in the first place and he’s willing to pay for the best. I live in southern Indiana. If possible can you rank who is the best micro surgeon by top 5 in nation and their states they perform the surgery in. I am thinking Frng is closest to me but again I want the very best surgeon. They are under the muscle and most likely stuck to the ribs, ( I think they are smooth saline with silicone outer) I don’t want to face a punctured lung or have vessel damage or capsules left behind because I didn’t get the best. If you would be so kind , please email me with a ranking of top 5. Starting with the very best – Thank you very much.

    Reply
    1. admin Post author

      Hi Melissa,
      Dr Feng has been doing explants the longest and she has done well over 10,000 explants which is by far the highest number of explants of any surgeon. Dr Feng centered her practice around explanting many years ago, she has the longest term studies show explanting improves symptoms too.

      Reply
  32. Ana Coelho

    Hello!
    Do you know any good explant surgeons in Portugal?
    Thank you so much for all the information. Feeling overwhelmed but and the same time so grateful to know this.

    Reply
    1. admin Post author

      Hi Ana,
      We do not know of surgeons yet in Portugal. If you are looking for a surgeon in Portugal make sure they do En Bloc / Total Capsulectomy.

      Reply
  33. Crystal

    Please send me a copy of guidelines. I have had my cohesive gel textured implants since May 2015. Found out in December on mammogram the left was ruptured (I had no idea and no problems). Went in for remove/replace of left side 2 weeks ago and surgeon elected not to replace since there was about 2 cc (very scant amount) of “muddy fluid” per surgeon which he cultured and was negative with no organisms and showed only a few white blood cells. Did not have any signs of seroma prior to surgery. PS also scraped inside of capsule and sent for pathology just to be sure and showed chronic inflammation, no evidence of malignancy and macrophages. So very inflammatory. He wants to just replace implant, but I have want to have them completely removed now. I don’t want to worry anymore. I am pushing for full capsulectomy of both with an en bloc removal of the right. PS is hesitant so I am trying to find another. The one your site says is highly recommended here for Colorado (Linda Huong) doesn’t have an appt until June. So I am lopsided with one implant out and one still in and just sick over all of this. Wish I would have had en bloc capsulectomy of both but PS made it sound so simple to just remove and replace. Feel so stupid. I have had some inflammatory issues in last year (not horrible sx) but I think is now related to all of this. So how do I go forward and get this mess cleaned up and out of me in the best most efficient way possible?! Am particularly so worried that left capsule opened and ruptured implant removed already with capsule that showed obvious inflammatory changes still sitting there. I want everything out now.

    Reply
    1. Montana

      I need to explant in Montana but leary of Dr’s here that don’t truly believe in BII. They don’t list explants on their websites either, which I do not like. They don’t seem committed to the health aspect, just money to be made on a bunch of complaining woman. I am afraid they won’t take it all out like the experienced Dr’s.
      Does anyone have experience with Dr. in Montana to trust?

      Reply
  34. Gemma

    Thank you for this website it is so helpful and informative. I have cried and cried reading over all the info I have discovered the past 12 hours, I now understand all my symptoms and want to go for explant, but I am feeling so worried about the whole thing. I am in the UK am trying to research recommended surgeons, I have requested to join the Facebook page, I need to chat with others who have gone through this, am awaiting confirmation 🙂

    Reply
  35. Anisa Marie

    I need to speak in person with someone who has been through this explant en bloc surgery. I am in Oregon City , Oregon. I am at risk for Non-Hodgkin lymphoma and my breasts are giving me shooting pains several times a day. I have no relatives and my close friends have moved away from Oregon during the 2007-2009 economy crash. I am totally alone and scared and I am over age 60. Is there anyone I could meet soon? I feel so lost with only keyboards to talk to. I have met two Oregon explant surgeons who have greatly distressed me. Please, can someone with experience call me and tell me what to do? I have some complications that I need to talk about in person. Thank you,

    Reply
    1. Bonnie Falkowski

      You can call me at (530) 921-7151. My name is Bonnie. I live in Palm Desert, Ca and I just had explant surgery after my 30-year implants ruptured and had formed massive scar tissue in both breast that acted like vise grips that made it difficult for me to breath. Call me anytime. I will be keeping you lifted up in my prayers. It is terrifying to know you have silicone implants that could be slowly killing you. I know only too well how you are feeling. I am so sorry you are going through this alone. A friend of mine came down from Redding, CA to stay with me and help me and my daughter for the first 3 weeks after surgery. I have no idea what I would have done without her. CALL ME. I will help you in any way I can.

      Reply
      1. Esther

        Hi my name is Esther and I am a Christian too.
        I also want to remove my breast implants, can you recommend a good surgeon in Los Angeles area ?
        How about your surgeon, is he good at removing your implants?
        I am looking forward to your reply
        Thank you !

        Reply
  36. Meimei

    Hi, I’m looking for any information on any great doctors in Hawaii that do the total en bloc surgery & also for any information regarding insurance claims available for getting explant surgery. Any help would be appreciated. I’m have an appointment set up with the doctor on the recommended list for Hawaii so far, but as of now he doesn’t take insurance and it’s out of pocket & when I asked about the returning of my implants & pictures taken during procedure I was told by an assistant in his office that I could maybe get the implants back the next day & she wasn’t sure about pictures being taken 😖. Need to get mine out for sure, definitely suffering from BII. Painful.

    Reply
  37. Terri Johnson

    I had my saline implants removed 10 days ago and I am finding the recovery to be much longer than expected. Fatigue, light headed, shaky. Has anyone else experienced any of these symptoms post surgery and/or a longer recovery???

    Reply
    1. admin Post author

      Hi Terri,
      You just had major surgery with anesthetic and likely other medications and you need to rest now. Recoveries are different for everyone.

      Reply
  38. Angie Andrews

    Just had explant/en bloc/total capsulectomy on 2/22/19. My capsules were attached to muscles and ribs and removal was difficult. PS does not use drains nor binding/wrap. I checked with PS at first post-op visit about swelling and he assured me it will resolve itself in 4 to 6 weeks. My breasts are as large and almost as full as before explant. I decided to start wearing a tight fitting sports bra hoping some compression would help. I am taking Bromelain and drinking plenty of water. Is this swelling normal when drains are not used? Is there anything I should watch for or should I just be patient and allow my body to absorb the swelling? Thanks so much in advance.

    Reply
    1. admin Post author

      Hi Angie,
      Please check in with your surgeon and continue to use compression. Normally there is some fluid but compression should take care of it and it should diminsh over the coming week or two.

      Reply
  39. Chelsea Supernak

    Hi there.

    I have smooth saline mentor implants. My Dr. is on the list of Enblock Dr.s. He says he will do a total capsulectomy, but says because they are saline, they are okay to drain. He says he can make less of a scar this way and better see around the the last third or backside of the implant for capsulectomy. Is this safe? he said it is just Saline in there. I read the above article. Wondering if I don’t have symptoms of candida or mold if this can be done? Thanks1

    Chelsea

    Reply
    1. admin Post author

      Hi Chelsea,
      We highly advise against draining implants prior to explanting and women that did this had a marked decline in their health. There is no benefit to you whatsoever in draining your implants prior to your explant. It disturbs the capsule and the contaminents and microorganisms inside the capsule and spreads them into your chest. Saline implants can be full of mold too and that can contaminate you. Don’t take a chance with your health.

      Reply
  40. Sue

    I requested to join the Facebook group yesterday. I wasnt accepted , it says please join ,again. so ive requested again this morning, not been accepted yet

    Reply
      1. Rachel

        I don’t have a full Facebook page because I don’t like fb and don’t want all of my personal information out there for everyone too see. This doesn’t make me a man, I just don’t want strangers seeing my kids or myself and I don’t like to have friends on my page. I use it for selling items and being part of groups that interest me. I wasn’t accepted either. It’s very difficult to get info on this from google. And I’ve had two consults with plastic surgeons and BOTH have told me it’s not necessary to do an en bloc and I’m scared to have someone cut inside me like that if it’s not totally necessary. I’d like to know if any women have had improvement of symptoms with JUST removing the implants and not capsule.

        Reply
        1. admin Post author

          Hi Rachel,
          If you have symptoms from your breast implants, leaving capsules behind when you explant is going to hamper your full recovery. We know for sure that removing capsules correlates with full healing and leaving capsules in will likely stall your healing and full recovery.

          Reply
  41. Meryl

    This info is so helpful. I’m about to have my explant by NHS.. they haven’t spoken to me at all about the procedure. The breast surgeon is busy and I’ve been on waiting list for nearly 4 months. I have only had contact with a breast consultant. I have an enlarged auxillary lymph node for biopsy and have been informed my nodes are “full of silicone”. Would my breast surgeon approach the operation as advised above in terms of en bloc removal? I’m not suggesting the NHS approach will be substandard, but I hadn’t realised it was such a complex procedure. Thank you.

    Reply
    1. admin Post author

      Hi Meryl,
      Please have a discussion with your surgeon NHS to ensure your explant is done properly so you heal well and as quickly as possible.

      Reply
  42. Lauren

    Two of the doctors recommended in NC said that the extracted implants could not be released to me due to OSHA regulations. Am I being lied to or is this a new development?

    Reply
  43. Stephanie Modling

    I have just started researching BII and BIA-ALCL. I had bilateral mastectomy in 2013. I had the new textured gummy bear implants from NATRELLE 410 Highly Cohesive put in 2014. I had problems with the left implant from the start (not healing or swelling). I actually had to go back to the surgeon from a burst stitch. I healed and felt pretty good. In 2016 I went to my GP doctor complaining of tightness in my chest. She went straight to heart tests and every thing turned out fine. 2017 I went back to the doctor (and saw her PA) complaining of the tightness in my chest and I asked if it could be scar tissue from my implants and she sent me for more heart tests and it was revealed that my left ventricle was enlarged due to my blood pressure medicine not working; I changed meds and have been fine. Sept. 2018 I went back to my Plastic surgeon for some tweaks for my implants (mesh was put in the right implant and the left had puckering dimpling underneath my arm. Ten days after the surgery I began to feel bad and had redness at the site where the surgeon went into repair. I had had cellulitis in my left breast 2015 so I knew that was it was so I called my surgeon who put me on a strong antibiotic which I was on for 4 days and the redness got worse spreading over the beast, sore and hot to the touch. I called the doctor and he gave me another antibiotic to take in conjunction with the other. I got worse and was hospitalized for 2 days with more antibiotics and then released for a 2 week PIC infusions. I had been on antibiotics since Dec. 2018. I am back on antibiotics for bronchitis and another yeast infection has started. I’m scared that I might have something more. I have many of the symptoms on the symptoms page. Will insurance pay for the removal of implants?

    Reply
    1. admin Post author

      Hi Stephanie,
      I’m so sorry you have suffered so much. Insurance may pay to remove your implants, you will have to check with your policy but because you are reconstruction insurance should pay. Please ensure all mesh is removed too. We also have broad fungal infections due to implants too as they impair our immune system and all the antibioitcs you’ve taken will really exacerbate they fungal overgrowth in you so make sure you treat that too. Fungal overgrowth can and does cause some of our symptoms including chest and sinus symptoms. The bottom line is toxic breast implants should not be in healthy bodies.

      Reply
    2. Kelly Davis

      Hi could you please send me a copy of the Guidelines and Indications for Breast Implant Capsulectomy. Thank you.

      Reply
  44. Kandice Trojan

    I want to pursue legal action. Is there a law firm you know of that is taking on these cases? Also, can the pathology be done during surgery, or is it necessary to send them elsewhere and, if so who do I need to arrange to do this?

    Reply
  45. Gia

    Hello ladies! Did some of you have saline implants in the past and was fine with the implants no symptoms of BII and then had explantation with the capsule left in and had problems later on because the capsules were left in place? Thank you.

    Reply
  46. Mandy Carmel

    Hi there ,

    This website is absolutely amazing and has educated me so much. I had gummy bear implants put in about 2.5 years ago. I have a couple of the symptoms for BII but have never been that ill , I have been wrestling with the idea of removing them anyway. I cannot afford to do it right away but the idea of these implants sitting inside and potentially making me sick is terrifying. As someone who has gummies should I be rushing to remove them or is this something that should be dealt with only if you suffer from many of the symptoms ? Thank you so much for your time and thank you for this wonderful community you’ve built.

    Reply
    1. admin Post author

      Hi Mandy,
      Glad to hear that you are being proactive. With my gummies, I experienced a few unusual symptoms in the first couple years like my kidney/adrenals not functioning well, my thyroid started underfunctioning, various infections occurring, noticeably diminishing female hormones, then in a couple more years very noticeable symptoms came on such as marked fatigue/low energy, bad cognitive dysfunction (brain fog, memory loss), headaches, joint and muscle pain, hair loss, more and recurring infections, swollen lymph nodes and glands, rashes, IBS, new and sudden allergies to foods and digestive problems. In my opinion if you are experiencing any of these symptoms its time to consider explant. Many ladies with gummies have many symptoms by 6 years with them.

      Reply
  47. Linda

    Do you or anyone know of experienced surgeon for removal of extracapsular silicone (has infiltrated body) near Chicago, IL? Thank you.

    Reply
  48. Cerrianne Yeend

    Thank you so much for the wealth of information. Even though the surgeon I have been referred to isn’t on the list supplied, I feel prepared and informed for consultation tomorrow.

    Wish me luck
    So very grateful
    Cerrianne

    Reply
  49. Mona

    Hello and thank you for sharing such valuable information I am a first time mother of a 9 month old and he has been suffering from ezcema forthe last 2 months. I have saline implants that are close to 20 yrs old. My son’s gut health is very poor & although I don’t have too many symptoms my gut health is not good either. I have spent a great amount of time & money in trying to find the source of our issues & we informed today that it appears that I have plastic toxicity. I don’t drink or eat out of plastic & was surprised by this discovery. The Chiroprctor who tested me also confirmed that the breast milk in my left breast is not healthy & that he has discovered parasitic activity in that breast. My immediate response was that the plastic shell in the implant is the cause of all of our issues & toxins in my body which has been transferred to my son via breast milk. I was wondering if I could get you input on this. I am definitely going to look into having my implants removed asap, but I need to figure out how this process is going to affect my son from getting breast milk. Thank you!

    Reply
  50. Liz

    Hello- I just joined and am reading all I can about the explant process and grateful for the Today Show segment! I have been looking for information on how they reconstruct the breast after explant surgery, Especially with little to no tissue at time of implant. Does anyone with that sort of situation whose had explant have detailed information on what the breasts will look like or how they reconstruct? Thank you in advance!

    Reply
  51. Lena Covel

    Just recently had one of my implants rupture and most likely it was the mammogram.. the cost of removal is about 6000 and I’m a single mom and there is no way I can afford that! As of now I’m left with this reputured 15 yr old implant in my body! I need them out !! Is there any where that can help with removal assistance?? Help!!

    Reply
    1. admin Post author

      Hi Lena,
      Rupture is a medically approved reason for explant in regard to insurance, are you covered by health insurance?

      Reply
  52. Sophia Hoerger

    Hello,

    Thank you for creating such educational informative site so we can learn. I had a saline breast implant about 20 years ago. I just noticed couple of day ago my right breast is getting smaller than my left one. I am very worried and not knowing what to do. I live in SC. I am planning to leave for Costa Rica in three days. Should I cancel the trip so I can have my implant removed here or should I look for a Doctor in Costa Rica to remove it. I saw you have one Doctor in San Jose Costa Rica on the list. Please adive me on what is the best thing to do. Everything you have done is appreciated.

    Sophia

    Reply
    1. admin Post author

      Hi Sophia,
      There is an excellent explant surgeon in Costa Rica, he is highly recommended. If I was you I would not cancel your trip to Costa Rica.

      Reply
  53. Janice Blocker

    Please send me the guidelines. I have capsular contracture left breast and wrinkle in right breast. Also having auto immune issues last 6 months.
    Thanks for your article!

    Reply
  54. Kathi Walters

    I have silicone implants from 1984. McCann implants I believe. Have always been told they don’t cause issues. I have blamed my stress, night shift work and aging on all my symptoms. Now my left breast hurts and burns including the axillary area being painful. I had a diagnostic mammogram and an US done and it showed a bulging area in the right implant. Scheduled for a breast MRI This Thursday and an appointment with a surgeon that specializes in En bloc and takes photos and returns implants and does pathology. She is also involved and sits on boards for illnesses caused by implants. I plan to have mine removed as soon as she can schedule the appointment and do lot plan on a lift or any further surgery. I look back and feel these implants have slowly made me sick. I am so looking forward to just getting them out and if I have bags for breast that is fine. :). Good luck to all of you. I live in Canton Ga and will be using Merisa Lawerence. I am a little scared because they are so old. Good luck to all of you.

    Reply
    1. Angie

      Hi Kathi. Have you had your explant yet? Curious how Dr. Lawerence worked out for you. I live in Georgia as well. I’ll be calling for consultations next week and wondering if you recommend her. Thank you in advance for taking time to answer.

      Reply
      1. Kristin

        I am in Georgia too! I am using Dr. Mark Walsh who has a lot of experience in explants. He does them properly, en bloc/ total capsulectomy and he is very knowledgeable. He is caring and I feel really comfortable with him. My explant is next week, April 17th. I will be posting on the facebook group to share my experience.

        Reply
  55. Tina

    Hello and thank you to everyone for sharing their stories. I had my 26 year old silicone implants removed before I came across this. I naively believed the PS and did not have any capsule removed. I was diagnosed with Lupus, Fibro, and RA several years ago by ANA dsDNA testing so I am certain I have the disease and not just the symptoms of it. I am planning on having a second surgery to remove my capsules and using a surgeon on the list. I was wondering if you had a list of doctors who specialize or have experience in BII? I’m pretty sure my lupus will not go away although I am going to do everything I possibly can to minimize the damage that has been done. I’d love to have a physician who could help me through this. Thank you in advance.

    Reply
  56. Sandi K

    could you please email me:
    Guidelines and Indications for Breast Implant Capsulectomy published in September 1998 by the Washington University School of Medicine

    Thank you so very much for all the the information you have on this website. It’s a lifesaver!!!

    Peace & Love,
    Sandi K

    Reply
  57. Jamie

    I am explanting my 3rd set of implants. They are silicone textured – 3 years old. I don’t know about the first removal, but the second one the PS removed all of the right side capsule but left some on the left. This PS doing the third said that if the capsule is too cemented to the rib he can’t remove it. I have heard of cauterizing the leftover tissue to prevent future problems. Have you heard of this? I have read so often that women go back in for a second surgery to remove leftover capsule, but if they were unable to remove it the first time, why would you go back? I’m very confused and want to get this sorted before my explant. Thank you for all you do for women everywhere.

    Reply
    1. admin Post author

      Hi Jamie,
      Lazy surgeons leave capsule tissue behind because they don’t want to spend the time to carefully pick it off the chest wall which is why women wind up with left over capsule tissue. Cauterizing left over capsule is not proper explant, all capsule tissue should be removed because left over capsule tissue can stall healing of symptoms which causes second surgeries. Choose an explant surgeon dedicated to removing all capsule tissue, not every surgeon is dedicated to doing proper explant but many are, keep looking.

      Reply
  58. Jessica Smith

    I see there’s a discrepancy on whether drains should be used or not even among the list of recommended BII doctors. Is there any evidence based research on either methods?

    Reply
    1. admin Post author

      Hi Jessica,
      It’s really up to the surgeon whether they use drains or not. Some use them and some do not. Some use them for a few days and some for much longer. Women heal with and without the use of drains. I myself did not have drains and healed well.

      Reply
  59. Gina Allen

    I do not have my paper work that was given to me at time of implant. Any advice to how I can obtain my information on my serial numbers, warranty, etc.? My PS does not keep anything over 7 years, and mine are 20 years old.
    Thank you

    Reply
  60. melissa

    I got my breast implant explant 2 weeks ago and for the past week I have been having breast sensitivity and numbness under the nipple. I did have drains for 9 days no redness. My breast are so sensitive even with the bra and a little itchy.I called my surgeon and she said its normal that it takes up to 3 months to heal I just what to know if you ever heard someone else had the same problem. PS she did removal the capsule

    Reply
  61. Pauline Meek

    I have had a double mastectomy and reconstruction with lattissimus dorsi and silicone implants. These are now hard, lumpy and uncomfortable after 14 years for left one and 9 years for right. I live in the UK and cannot find any help with finding any surgeons experienced in the en bloc removal. Can anyone help me with this please, thanks Pauline

    Reply
  62. Agnieszka

    I did an ultrasound. It showns nothing, but the pain is still there, in only left breast. It is burning pain in the same area. The pain comes and goes. When I touch this part of my breast it burns. I feel protrusin in this area. When I rise my hand I can see bulge trough the skin.
    Thank you for your comments Nicole.

    Reply
  63. Lise

    Hi.
    I got implants 2,5 years ago and started to get symptoms around 6 months in. I had an explant 4 days ago and immediately felt better. No more joint pain in my legs and my eyes were immediately whiter. (I still struggle with a sore lower back and a couple of other issues, but I hope that will also improve soon).
    I have a question about the capsules that I can’t seem to find an answer to anywhere. Post surgery the surgeon told me there was no capsule around the implant. After 2,5 years. He said he’d rarely seen it before. The nurse confirmed it to me. But since he was so reluctant to remove the capsules, clearly didn’t believe in BII and I had to insist for him to remove them, it got me thinking. Have you come across other women telling you the same thing or do you have any information about what no capsuling around the implant could do to the body or mean when it comes to symptoms?

    Reply
    1. admin Post author

      Hi Lise,
      No we have not come across other women who had no capsule tissue. Can you share with me who this surgeon was?

      Reply
  64. Valerie Lavoie

    Hello,
    I have silicone breast implants since 2011. I had many serious health issues since. I saw 3 different rheumatologists, different potential diagnosis from arthritis to fibromyalgia, but all came negative. I feel a constant burn in my body, especially my back, and I have chronic fatigue. I live in Quebec City and I would like to find a recommended surgeon for extraction. I am willing to travel if needed. I am hoping to have my implants removed in 2019.
    Thank you

    Reply
    1. admin Post author

      Hi Valerie,
      Please try Dr. Nicolaidis and Dr. Papanastasiou. Of the plastic surgeons we know in QB, they seem to be doing the best job at explanting properly.

      Reply
  65. Agnieszka

    Thank you very much Nicole.
    Is there any kind of examination to detect the left overs of the breast implant capsule tissue or should I direct undergo the surgery instead of wasting time for more examinations?
    Thank you for your website.

    Reply
    1. admin Post author

      Hi Agnieszka,
      MRI and or ultrasound may pick it up but not usually. When we asked Dr. Feng this same question she to obtain a copy of the operative report for your explant and read exactly what your surgeon did.

      Reply
  66. Agnieszka

    Hi Nicole.
    I have had removed my 8,5 jears old Mentor silicone textured implants about 7 months ago. After explant I had a strange heaviness feeling and pain in my left breast. The surgeon said it goes away but it didnt. The heaviness feeling is gone but I have unbarable burning pain in my left breast. The pain get worse and worse. I developed rib and spinal burning pain. It seems like the symptoms come back again. The left breast looks a bit different as the right one. There is no evidence something is going on there. I have done 2 or 3 ultra sounds since explant. When I touch the left breast I feel something is under the skin. When I raise the hand I see something is under the skin. Could it be that there are left overs of the capsule. Could all the symtomps come from the capsue, when she is still inside? Right after surgery I felt better apart from the pain in left breast. Now some of the symptoms are coming back.

    GOD BLESS YOU

    Reply
    1. admin Post author

      Hi Agnieszka,
      Yes, all these symptoms can come from left over capsule tissue and many women have experienced the same symptoms from left over capsule tissue and had to have a second surgery to remove all left over capsule so they could recover.

      Reply
  67. Colleen Paige

    Will you please send me a copy of the Guidelines and Indications for Breast Implant Capsulectomy published in September 1998 by the Washington University School of Medicine. I would like to have this understood before I see my surgeon for explant. Thank you for collecting and sharing this information. I was starting to believe I was going crazy since my symptoms are all over the place.

    Thank you

    Reply
  68. Lara

    Hello! I had bilateral mastectomy in September 2015. I had breast implants in February 2016 and then developed scar tissues. The implants were replaced in November 2016 (both textured Mentor). I have developed scar tissues again, and I’m secluded tohave the implants removed in February 2019. My plastic surgeon promised to do total capsulectomy explant. He’s not listed in your list, but I would like to ask if he’s recommended. He’s Dr. Dennis Hammond of Grand Rapids, Michigan.
    Your help is much appreciated.

    Reply
    1. jed Horowitz

      Dennis Hammond is a well known excellent plastic and reconstructive board certified plastic surgeon

      Jed Horowitz MD
      HorowitzMD.com
      Pacific Center for Plastic Surgery
      newport beach, ca

      Reply
  69. Susan

    I am wondering if leaving any of the scar capsule behind from textured implants will still raise your risk of BIA -ALCL cancer or if removing the implant and most of the capsule will be good enough. I’ve been told mine are probably adhered to my ribs and I’m trying to weigh the risks of leaving some capsule behind verses damage to ribs and lungs.
    Thank you!

    Reply
  70. Michelle Stith

    What if you had a Latisimusdordi with breast reconstruction with implants? What happens to that muscle if I have Explant surgery done? My health has declined since getting them but they kept telling me it was the Aromasin I took. I’ve been off that several years and my health has gotten worse. No doctor will listen to me.

    Reply
  71. Betty

    I’m thinking about have an explant and would like to know what questions i need to ask my surgeon when i go for a consultation, i have two scheduled between now and end of 2018. Also if i just have capsular contrature should i still get an explant?

    Reply
      1. Kelly

        Hi Nicole, I didnt have a place to post this except in reply.. Thank you so much for All this invaluable information, especially list of surgeons!!!😊
        Please email a copy of Guidelines and indications for breast implant capsulectomy to [email protected]
        Thanks Very Much!!!

        Reply
  72. Gisela

    Hi
    I am desperate trying to find a surgeon that specialist in breast implant removal.
    I live in London.
    Any recommendations?

    Reply
  73. Jaimie

    Hello-
    Where can I find out more information regarding what the recovery is like from an explant?

    Thank you!
    Jaimie

    Reply
  74. Isolda Cowan

    I am a breast cancer survivor seeking explantation of my
    Implants. I had bilateral mastectomy on 1/14. I had my recon on 6/2015 the implants used were Allergen 450 cc.
    I have developed undifferentiated connective joint disease in the last year. I have health insurance (anthem ppo of CA)
    I would like to use my insurance but it seems that the recommended doctor in CA is not taking insurance( Dr. Chun) he quoted close to $14,000 . How is it possible to get qualified surgeon that specializes in explanting implants if they don’t take health insurance? Do you know any plastic surgeon that does the above mentioned procedure and takes Anthem blue cross ppo of CA? It will be greatly appreciated if I can get a recommendation. I was totally missed informed regarding the safety of the implants. My insurance will cover explanting them if medically necessary. Thank you very much.

    Reply
    1. admin Post author

      Hi Isolda,
      If you don’t have any health insurance or if your policy does not cover the cost of explant surgery, now is the time to find an affordable insurance policy! If you live in the U.S. and have capsular contracture, chronic breast pain, or a ruptured or leaking silicone gel implant, there are health insurance plans that will pay the costs of removing your breast implants. Starting November 1, you will have the opportunity to choose an affordable health insurance policy through the U.S. government’s Health Insurance Marketplace. This Marketplace is only open November 1-December 15. For more information, read here: https://www.healthcare.gov/quick-guide/. If you want health insurance so that you can get your implants removed or for any other medical coverage at any point in 2019, Nov 1- Dec 15 is your deadline. If you would like assistance in choosing an insurance plan that is likely to cover the costs of removing your breast implants, you can email [email protected]. Dr. Diana Zuckerman is the president of the National Center for Health Research, which has a program that helps women with health insurance get coverage for their breast implant removal. If you currently have health insurance and would like assistance in getting your insurance to cover your breast implant survey contact them as well.

      Reply
  75. Shahidah Z Hardaway

    I have implants since 2005 and currently have capsular contracture in both breasts. My left breast is at a 4 and my right is about 3-4 due to exam my doctor. I am in extreme pain in my breasts and shoulders. I had tried to get my implants removed through my insurance and was told I had to have a history of breast cancer or have breast cancer. I am miserable!!! Do you know of any assistance programs or how I can get the implants and capsules removed?

    Reply
    1. admin Post author

      Hi Shahidah,
      Your insurance may cover explant for medically approved reasons which usually are rupture, capsular contracture, pain and infections. Get a copy of your full policy and read how you may covered. If you don’t have any health insurance or if your policy does not cover the cost of explant surgery, now is the time to find an affordable insurance policy! If you live in the U.S. and have capsular contracture, chronic breast pain, or a ruptured or leaking silicone gel implant, there are health insurance plans that will pay the costs of removing your breast implants. Starting November 1, you will have the opportunity to choose an affordable health insurance policy through the U.S. government’s Health Insurance Marketplace. This Marketplace is only open November 1-December 15. For more information, read here: https://www.healthcare.gov/quick-guide/. If you want health insurance so that you can get your implants removed or for any other medical coverage at any point in 2019, Nov 1- Dec 15 is your deadline. If you would assistance in choosing an insurance plan that is likely to cover the costs of removing your breast implants, you can email [email protected]. Dr Diana Zuckerman is the president of the National Center for Health Research, which has a program that helps women with health insurance get coverage for their breast implant removal. If you currently have health insurance and would like assistance in getting your insurance to cover contact them as well.

      Reply
  76. Kathy

    I am thinking of explanting my saline implant that I have had for 22 years due to breast cancer. What are women doing to to replace breast since implant is not option and when?

    Reply
  77. Krysta

    Hi Josette, were they able to see any capsule in your MRI? I had an explanation and supposedly a capsulectomy, but I’m not sure if the surgeon did the job as he was supposed to. I still have brain fog, extremely tired as well as my legs are covered with scleroderma scars that got worse after surgery. He never believed that implants made women sick and didn’t think I needed the capsule removed, but I insisted. His notes are very vague on my report so it doesn’t say much, but I saw your story and it related so much to mine. I see my rheumatologist on Monday and will be requesting an MRI.

    Reply
  78. Maria Berretta

    Hello,

    I am seeking legal action against Mentor but have no idea who to go to. I am a resident of Los Angeles, California. Do you have any suggestions for me? Thank you!

    Reply
  79. Beatrice Barkin

    Thankuuu
    I have been getting odd infections ,rare rashes
    Raynauds in hands and feet and now rumatoid authritis in my right knee
    I have textured high profile silicone implants for14 years
    I called my Dr for support in getting an MRI covered by my insurance
    He eventually complied – I had to scream at him
    After calling his office for the results
    He put his office manager on to tell me everything is fine …that was it!! He didn’t even ask me to come in for an exam AND I was in his silicone study group for 31/2 years
    I called the breast implant manufacturer to inquiry about the Heath of the other study members
    Here’s the best part-
    They destroyed any study preformed prior to 2007
    I said why …don’t you require to keep that info it’s your freakin study
    I feel like I’m dealing with subdafuge and corruption
    Anyway starting the process of explanting them

    Reply
  80. Crystal

    Hello I am new to all this I am needing help trying to understand the difference between explant removal en bloc & removing the capsules. I am in desperate need of removing my implants due to I have been feeling very fatigue lately with several other symptoms but I was scheduling for a consultation and the surgeon said that he could not do a full en bloc due to the size of my implants but that he could remove the capsules. I really need help understanding what I need to do cause I need these implants out of me ASAP!

    Reply
    1. admin Post author

      Hi Crystal,
      Simply put En Bloc is when the implants and the capsule tissue are removed as one intact unit with the surgeon making an effort to not break or open the capsule and risk contamination of the contents inside the capsule such as ruptured implants or textures or micro-organisms found inside capsules. Total Capsulectomy is when the surgeon goes in and opens the capsule, removes the implants and then goes back in and removes the capsule which risks contamination of ruptured silicone, textures and micro-organisms. The difference is explained fully on this page of the website: https://healingbreastimplantillness.com/explantation/.

      Reply
  81. Carmen

    I have had the breast implants removed and two weeks later my left breast is swelling up. What is the problem and how to fix it?

    Reply