WELCOME TO HEALING BREAST IMPLANT ILLNESS

 

This site was created because it is the information I wished was concisely available to me while identifying and recovering from my own long term breast implant illness.  Experience is the foundation of wisdom and may the words of this site benefit you.  Please be advised I am not a medical or legal professional and this website is in no way medical or legal advice (please see LEGAL for complete website disclaimer information).  It does not take a medical degree to understand that two large bags of toxic chemicals implanted in the chest leaking over crucial organs and glands will cause profound illness in our bodies.   Please be advised that this website is protected under copyright law.  It cannot be copied, distributed or exhibited in whole or part without permission.

The focus of this website is not about proving how unsafe breast implants are but rest assured all the information and more than you want to know including the science is here in BREAST IMPLANT SAFETY .  Unfortunately, no matter how much information comes to light about the negative health consequences of breast implants, manufacturers and plastic surgeons are still peddling breasts implants as safe.  There will be many cases of breast implant illness in the future.

The focus of this website is on the timely identification of breast implant illness and then guiding you toward steps whereby you can hopefully recover your health.  The body, when treated well, has an amazing healing and regenerative capacity.  Trust in your body’s ability to heal. 

It is not a matter of if you will get sick, it is a matter of when you will get sick, as breast implants cause endocrine and immune system dysfunction and steadily deteriorate in your body since the first day of implantation and silicone particles and toxic chemicals and heavy metals in the silicone interact with your body tissues, glands and organs.  All types of breast implants cause illness, none are safe and especially not the cohesive gel implants which contain very aggressive chemicals and heavy metals.  How do breast implants cause illness?  What is silicone toxicity?  What are the symptoms of breast implant illness? Please see BREAST IMPLANT SYMPTOMS .  I  had many of these symptoms and women who have breast implant illness have these types of symptoms and perhaps others depending on the progression of the illness and the type of implants they have.

Unfortunately, you will not get help identifying breast implant illness from your doctor and especially not from your plastic surgeon.  This illness is not acknowledged by the medical community yet.  In fact, the medical community clings to the false belief that silicone and breast implants are safe.  Your plastic surgeon may even deny breast implants cause illness or refute your symptoms in order to avoid liability.  Mine did. Plastic surgery is big business built on silicone and breast implants are their greatest source of revenue.  Plastic surgeons will refuse to admit that breast implants are unsafe and will actively refute the truth in order to protect their cash cow.

Many women suffering from breast implant illness are misdiagnosed with other diseases that have similar symptoms and have been repeatedly told their breast implants are not causing their symptoms.  Some women will go on to develop serious diseases and may even die because their breast implants are not removed in time.  Don’t waste your precious time on misdiagnoses. Time is of the essence to your health.   You know what is right for you. Your body is telling you that the implants and the toxic chemicals in silicone are poisoning you.  Trust your inner wisdom. 

After identification of symptoms of breast implant illness, the next and most important step is timely and proper Explantation (removal).  Check out EXPLANT which goes into details you need to know.  Proper removal of your breast implants as quickly as possible is the most important step to your recovery.  Breast implants should be removed En Bloc (in a manner which does not contaminate you) and with a Total Capsulectomy (remove all capsule tissue).   You may hear differently from your plastic surgeon.  He may attempt to talk you out of removal and instead suggest replacement or a different kind of implant because he wants to make more money.  He may delay or refuse booking a removal.  Mine did.  He may tell you that a Total Capsulectomy is not necessary.  Mine did.  Do not believe this, in fact, we suggest not going to your original plastic surgeon for removal unless he readily acknowledges breast implant illness, silicone toxicity and insists on a Total Capsulectomy and is experienced at removing implants En Bloc. Here is a list of world wide plastic surgeons which are known to explant breast implants properly EXPLANT SURGEONS.

After proper explantation of breast implants, the next step is clean, nourishing diet that supports detoxification of chemicals and heavy metals and elimination of bacteria, fungi, viruses, parasites in your body.  Because breast implants significantly impair the immune system certain opportunistic organisms such as bacteria, fungi, viruses and parasites can take hold and without elimination of the overgrowth of these organisms many women will continue to have symptoms after explantation.  Please see DETOXIFICATION for steps and suggestions to assist your detoxification process.

Thousands of ladies have breast implant illness and as such we created a Facebook support group Breast Implant Illness and Healing By Nicole where you can chat with 20,000 other ladies who have been through the same symptoms, finding a surgeon, surgery, recovery, detoxification and healing.  Or you can click the Facebook button at the end of any page of this website which will also take you directly to the support group.

Under RESOURCES we have compiled other supports and information which will assist and contribute to healing breast implant illness.  Step by step you can heal.  

There is breaking news in regard to breast implant litigation, please go here to BREAST IMPLANT LAWSUITS, lawsuits have been filed against Mentor Worldwide LLC due to illness caused by their silicone breast implants.

We welcome your comments and questions via the contact form below or directly to info@healingbreastimplantillness.com.  There is no need to login to leave a comment or question on this site.  Recent comments, after approved, appear first. Most questions  will receive a reply.  Best wishes in your recovery,

Nicole

 

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668 thoughts on “WELCOME TO HEALING BREAST IMPLANT ILLNESS

  1. Rebecca

    Hi, first I would like to thank you for this site! Words can’t describe the gratitude I have. I have been suffering for the past 8 years. For the first 4 years my doctor told me I was just getting older, I was 33, and that was why I was losing hair by the handful, gaining weight that I’ve never been able to gain even pregnant, and losing all muscle strength. Then my hands began to swell and turn purple. He then ran blood work and I was diagnosed with mixed connective tissue disease. Since then I have undergone all types of medication, including methotrexate. I still got worse. Headaches, muscle aches, joint pain, shoulder pain, and about 95% of the other symptoms you list. I have been to several specialist who all chalk it up to the auto immune disease, fibromyalgia and raynauds. In my mind I knew it was something else. I even have an upcoming appointment with a functional medicine Dr. 2 days ago I had another flare up, which is severe pain throughout my body. I started looking up mold as I had exposure as a child. I found an article about mold in saline implants. I’m now certain this is the issue. I had my implants put in in 2002, 8 years ago would have put them at 7 years. It all makes sense now. I could never understand how I could only have a few symptoms from each of these diseases. I have been telling my husband for over a year I though it was some sort of fungal infection as I also have yeast infections more than not. After reading your website it’s been a rough 2 days. Lots of crying, anger and even depression. Yes, I’m slightly vain, that was why I got them to began with. I was 100 lbs and looked like a boy. My boobs made me feel like a woman and gave me the confidence to conquer my life goals. I went to college 3 times. I didn’t want attention so I got the smallest size, I just wanted to feel like a girl. I am now 40 years old and have 6 children who I can’t play with due to this. I have already scheduled an MRI and consultation to get them removed. I know my health is more important and this is the only option. I’m not getting new ones. But I have to admit I’m sad. But I think it’s ok to be sad, as long as I’m on the road to a solution nothing else matters. My questions for you are do you think it went too long? What are my chances to recover once my blood says I have this terrible disease? Can i do anything in the meantime to slow the progression? Again, thank you from the bottom of my heart for all the info. My family thanks You! My kids are so happy to have hope for once. And I am beyond words for describing my gratitude. For the first time in 8 years I have hope. Thank you.

    Reply
    1. admin Post author

      Hi Rebecca,
      I had my cohesive gel for seven years from 2005 to 2013, I explanted in 2013 and followed my detox regime on the Detoxification page of this website. I also found out that I am MTHFR positive which hampers my ability to detox by as much as 80 per cent. But I still detoxed and recovered, it just took me a lot longer than most and you will too. You will recover and heal but it won’t happen overnight, it will unfold over a few years. What is crucial to your recovery is that you have an En Bloc/Total Capsulectomy explant and then follow my detoxification advice on the Detoxification page. You will need mold treatment too, follow Dr. Richie Shoemaker’s protocol for mold removal and diminishing chronic inflammatory symptoms. I suggest also testing for MTHFR and supporting yourself with the proper methylated B vitamins and Hydroxy B12 shots which most of us will benefit from as toxicty depletes our B12 and low B12 really messes us up. Don’t worry, it is not too late.

      Reply
      1. Rebecca

        I just want to clarify, when I asked if I could recover I was referring to the autoimmune disease. My blood has shown positive for mixed connective tissue disease for 4 years. I still need to do tests for mold, scheduled with 2 Dr’s in 6 days. Have you seen anyone with this degree of infection heal? I know I might not, but is it possible or do you think the implants caused this incurable disease and I cant reverse It?

        Reply
  2. sonia

    I had silicone gel implants in Jan 1975 and started having symptoms soon after. It took 36 years to get a doctor to remove them. I was sent for mammograms which don’t show rupture and even though I had painful lumps since 2002, it was a battle to get anyone to order an MRI of my breasts. Both had ruptured and were coming apart which could be seen on the MRI. The Dacron shield, which is on first generation implants, was almost totally detached.
    I want to file a claim for VA compensation since the implants were done while I was in the military by military doctors, but I need a doctor to state that there is a connection between silicone gel and autoimmune disease.
    Do you know of a doctor that I can see who believes that there is a connection? I have thousands of documents stating there is a connection, but it isn’t acceptable by the VA…I have to see a doctor who will fill out a specific VA form. All the doctors I saw back in the 80’s and 90’s are no longer practicing.

    Reply
    1. admin Post author

      Hi Sonia,
      Dr Yeshuda Shoenfield haas demonstrated the link between breast implants (silicone) and autoimmune responses in the body. Also Dr. Frank Vasey a Rheumatologist has a body of knowledge about silicone and autoimmune diseases. Sonia, it is well known in the medical community that silicone does cause autoimmune responses, symptoms and diseases, they put silicone in vaccines in order to increase the immune systems response to the virus in the vaccine. It is common knowledge that silicone is an adjuvant – something that stimulates the immunes system strongly.

      Reply
      1. sonia

        I saw Dr. Vasey but he is no longer practicing and I have not been able to contact him at all. The records from my visit with him are not acceptable by the VA. The Veteran’s Administration wants a special form filled out . Do you know where Dr Shoenfield practices?
        Thanks for the information.

        Reply
  3. Angela

    Hi i had my implants put in in 2006 within the 1st yr i noticed i was getting weak..brain fog ..i had them removed in 2011 ..not enblock..i live in he uk and my health is not good can you advise me what to do ….thankyou. x

    Reply
  4. Fiona

    Just now

    Ladies, I really need some advice. I explanted with capsulectomy 6 months ago and am still struggling with enlarged and painful lymph nodes. I have just returned from seeing my surgeon who wants to admit me to hospital to run yet another battery of tests, including ANOTHER biopsy on the lymphs. I had a biopsy done on the lymphs under my arms at the end of October and it came back disease-free (including ALCL) but inflamed. My question to you is should I undergo another battery of tests or wait and see if things start to settle down? I’m tired of being in pain and I feel I need answers. I had silicone under muscle for 26 years and one of them was leaking slightly. I am still struggling with sore joints, brain fog, colitis, stomach ulcer and the lymphs.

    Reply
    1. admin Post author

      Hi Fiona,
      Are you sure your surgeon removed all of your capsule. If you are sure and your implants were textured and you have swelling and swollen lymph then I suggest a test for BIA-ALCL just to rule it out, please see this page for more information: http://healingbreastimplantillness.com/bia-alcl-breast-implant-associated-lymphoma/. However it is most likely just detoxing. In general it takes a couple years for us to heal fully from decades with breast implants and while your body detoxes your lymph will be working hard. Also rule out the possiblility of a chest infection in the breast area and lymph. Nicole

      Reply
  5. Sharon Illman

    Hi

    I’ve had my saline implants for 16 years. Have been steadily getting sick and more ill over time.

    Read your information last week and realised just what the issue has been!

    I’m seeing plastic surgeon here in Adelaide next week. I’m booking in for explant/removal. I’m fifty soon but hoping to recover afterwards. I know it will be up and down but at least I will be recovering!

    I feel so sick.

    Just have to hang in til see surgeon and get them out.

    Sharon

    Reply
  6. Nadine

    I need help please. I have been experiencing most of these symptoms. I am struggling to get help in South Africa. Please may someone help tell me where I can get tests done that could tell me that my symptoms are caused by my implants. I have already done a heavy metal test and they show that I have high amounts. I would like to do a silicon test but don’t know where I can get this done.

    Reply
  7. Susan Swenson

    An employee of mine has Florida Blue..ACA.
    She had cosmetic surgery 37 years ago and has silicon implants. MRI has confirmed a rupture in both. One is leaking outside her body. She is in constant pain. She has been denied insurance to have them removed. I understand that insurance will not want to pay for either new implants or reconstruction, but how can insurance ethically deny the removal of implants that are leaking into hee body, causing pain, and making her ill? I am working with her to escalate this as medically necessary, but due to the pain, etc, she may just end up in an ER.

    Reply
    1. admin Post author

      Hi Susan,
      Some insurance polices exclude coverage for explant for implants placed for cosmetic reasons and some do cover explant for cosmetic implants. In general insurance covers for pain, rupture, capsular contracture and infection necrosis but some policies cover for more too. Most insurance denies the first time and ladies have to appeal and many win on appeal. Here are the codes you may need:

      Procedure Codes CPT:
      19371 – 50 Periprosthetic capsulectomy breast, the 50 is the modifier for Bilateral

      ProcedureDiagnostic Codes ICD10:
      T85.49XA – Mechanical complication of breast prosthesis and implant
      T85.79XA – Infection and inflammatory reaction due to other internal prosthetic devices, implants, grafts.
      T85.84XA – Pain due to internal prosthetic devices, implants and grafts.
      T85.44XA – Contracture of Breast Prosthesis
      T85.43XA – Rupture of Breast Prosthesis
      N64.81 – Breast Ptosis
      N64.4 – Mastodynia

      Reply
  8. Barb Benson

    I have the majority of these symptoms…
    Can you recommend a dr for me to go to?
    Is the removal surgery covered through insurance?
    OMGawd….I want them out. NOW!

    Reply
  9. Barbara

    Two questions:

    Please help if you are aware: If one was treated with radiation for head and neck cancer 5 years ago but had implants prior to that, will healing from explant surgery be impacted or will it take longer and perhaps cause more problems? (Unfortunately I had implants two years prior to being diagnosed)

    It is now May 2017. No doctor on the list is near me. Is the list of qualified explant surgeons updated.

    Reply
  10. Kathy

    I need advice I have so many if the symptoms you have listed. But I live in New Jersey don’t know who to go to to have the explant. I’m very afraid and don’t know what to expect having them taken out. Any advice for me ! I also read the article in the New York Times about implants causing cancer! Ready to get them out of my body.

    Reply
  11. jillian weaver

    There seems to be so many tests. Which is the best one to help see if there are any toxic levels in my body. I had my implants removed and am ready to start detoxification diet.

    Reply
    1. admin Post author

      Hi Jillian,
      We suggest a hair elements and hair toxicities test to show your mineral status and show heavy metals. There are not really many affordable tests for chemicals in the body and definitely not the array of chemicals in silicone. Fungus or mold biotoxin testing may be of benefit to you if you have that. Other than that I would not waste money on toxicity testing and rather spend it supporting your detox. Nicole

      Reply
  12. Wendy Mark

    Nicole,
    I was a member of the last group. My recommendation would be that type remain to the group as “founder” the same as the CEO of a large corporation may have to do in inststances of large corporations exposing of situations of these without legal backing or protection. People will always be able to make false identities and come on as trolls especially if they think they are losing money. Greed is a horrible thing. You may also be able to keep the other group up and quietly exit and create a quiet founder identity. The same people will find this group and come on as different people. You as your same name will not be safe. We have the second amendment to protect us and this group. Thank you. Wendy Mark

    Reply
  13. Lynn reno

    I believe I am a person with toxic symptoms. Do you know how and if it possible health insurance will pay for the removal? If so, please help with information as to how to go about .
    Lynn Reno
    lynnreno0@gmail.com

    Reply
  14. Carey Klain

    I began having extreme itching of my right breast in 2012 or 13 and asked my regular doctor, my gynecologist, and a dermatologistand all recommended a cream but I kept explaining it was under the skin. With increased significant illnesses/ symptoms I’ve had stress test, repeated CT scans MRIs, bloodwork etc. for numerous physical issues, I now see a neurologist for unexplained dementia/early onset Alzheimer’s (no family history). A friend recommended I check out this website and I just called Allergan to see if there were any recalls on my implants and to see what my warranty is. The representative actually had my name in their system and advised my warranty is for 10 years unless I paid for an extended warranty (I didnt) My 10 yrs will be up this September. They said they’d replace both implants if there is a rupture of either implant at any time, and that if it’s before the 10 year warranty expires, they pay $2400 for the surgery. I’m assuming I can have the surgery and just not receive the free implants but I didn’t think to ask and they didn’t say. My card shows my implants are an INAMED Device Allergan silicone filled breast implant – Style 15? I am trying to find a surgeon near Louisville/Lexington KY who does the explant w the Embloc ? I’d love to have this done before the 10 yr expiration. Can you advise any surgeons? Any and all information, insight, recommendations are greatly appreciated! Thank you!

    Reply
    1. admin Post author

      Hi Carey,
      In general the manufacturers do not pay the $2,400 toward your second surgery unless you are reimplanting which we suggest not to do.

      Reply
  15. Susan Malcolm

    I cannot believe I found this site. Everything I’ve read. Is everything single thing I’ve been experiencing. I know I’m over due and need mine removed, it will. E 17 years on 14 June 2017.
    Breast implants 2000
    Sick from bleeding 2007
    2008 thyroid problems–nodules
    Auto immune condition
    August 2013 gall bladder removal
    Oct 2013 Bell’s palsy
    2014 general anxiety disorders
    Chest pains, fatigue. The list goes on

    Reply
  16. Crystal

    I have saline implants that are about 21 years old. I am interested in viewing your list of symptoms, but could not figure out where to access it? Can someone provide the link?

    Thanks!

    Reply
  17. Nisha Tanna

    I have had implant following intensive breast cancer treatment and mastectomy. It’s difficult to know what the cause of illness/seroma is?

    I live in the UK and am not sure where to go/what to do..

    Reply
    1. admin Post author

      Hi Nisha,
      If you have swelling, pain, seroma, breast mass, capsular contracture or swollen lymph nodes and especially if you have textured implants please push hard for BIA-ALCL testing. Surgeons should consider the possibility of ALCL when they have a patient with late onset, persistent fluid around the implant (peri-implant seroma). When testing for ALCL at the time of explant, surgeons should collect fresh seroma fluid and representative portions of the capsule and send for pathology tests. The test is called CD-30 Immunochemistry and few plastic surgeons are knowledgeable about BIA-ALCL at this point so it will be up to you to educate your plastic surgeon and persist in getting the test if you have any symptoms and/or textured implants. Nicole

      Reply
  18. Donna ward

    I’ve had my breast implants for 10 years and sick on and off for the last 2 years body aches muscle aches headaches chest pain fatigue headaches I need to know if anyone knows a doctor to take them out I live in Fort Mohave Arizona I had my implants done in Havasu City thank you this was a real eye-opener for me with all of my pains in my joints sometimes I can’t stand on my legs with pain I’ve laid in bed with so much pain and always thought if it could be my implants please help if you can thank you

    Reply
  19. Saray

    Thank you. I had a consult with a PS for facial laxity and he talked me into getting gummy bear implants. I was excited for sure but had done no research prior because I had never considered breast augmentation. I will cancel the breast implant surgery, everything you say resonates with truth. In particular about the medical community’s refusal to accept certain illnesses, been there and done that with Celiac. 8 years of symptoms and doctors just giving me pain pills, one even called me crazy when I complained about knee and hip joint pain. A rheumatologist finally diagnosed me. Autoimmune symptoms are debilitating to say the least, brutal if left unchecked. I wish all you ladies the best.

    Reply
  20. Diedre

    Could I please get the medical codes for the explant procedure? I would like to move forward with getting these taken out. I appreciate your help and information.

    Reply
  21. Joanie Walker

    Nicole,
    I had a bilateral mastectomy 15 years ago at the age of 34 because of cancer. I had reconstruction and saline implants placed under the muscle.
    I was diagnosed with cancer again in 2013 and doctors were concerned about implants and radiation to my chest.
    Just this last year I have been diagnosed with Lupus.
    All my symptoms go along with BII.
    I have a June 1st date to have implants removed.
    The plastic surgeon wanted to do a 10 hour plus surgery with my own tissue for reconstruction. I know I am not strong enough to go thru that.
    I have told the surgeon that I just want the implants,scar tissue and any hardened areas removed and this pain in my chest to stop.
    I ask the surgeon if she believed the implants could be making me sick and she said that there was not enough medical studies and info to prove that. So she said”No not really”.
    I to!d her I was not willing to risk my life on that info.
    I really have no other surgeon options with my insurance.
    What do I need to tell this surgeon to do to ensure proper removal to help me get well?
    I don’t care about having breasts anymore. I just want to be healthy again and get my life back.

    Reply
    1. admin Post author

      Hi Joanie,
      I am so sorry for all you have been through. Just tell your surgeon that you want your implants removed En Bloc/Total Capsulectomy meaning removed in manner that will protect you from contamination from silicone and remove all the capsule tissue for your best recovery. Nicole

      Reply
  22. Kerry maclean

    I could not believe it when I came across this site , I have been suffering now for approx two years with over 70%of the symptoms , I had implants which one ruptured so they replaced them then I got notified that my new implants were pip implants which again got exchanged I was them told both of my sets had been pip and had leaked I now have replacement implants in! I am currently under the doctor for various symptoms and cannot seem to get well they thought I may have lupus but reading this site I cannot believe the coincidence just do not know what to do pr we’re to go I just want to get well and feel like myself????

    Reply
  23. Fran

    Nicole,

    I had my breasts injected with silicone back in the early 70’s without any encapsulation to try and correct a birth defect . That Doctor is dead now. I suffered with most all the symptoms mentioned on this forum . I need to remove the silicone. Does this list of explant surgeons also apply to this situation? Any recommendations?

    Reply
  24. Shawna

    Hi Nicole,

    Thank you for making this website, it has helped me realize what has been going on with me medically is likely my implants…
    I have a consultation scheduled with a plastic surgeon, and I would love to bring in those insurance codes you mentioned in another comment below. Would you be able to send those to me as well? I would truly appreciate it!

    Reply
    1. admin Post author

      Hi Suzanne,
      Yes saline implants are made with silicone shells plus saline have the added feature of valve ports which collect tissue and body fluids and then become colonized with micro-organisms which can pass through defective valves and colonize the inside of the implants leading to biotoxicity from mold. Nicole

      Reply
  25. Dixie Belle

    Nicole, I am just now getting acquainted with your very needed information.
    My implants were put in the early 1980’s. I am now 73 years old. I have avoided mammograms for several years now because of the fear of rupture. last year. At that time I was under a lot of pressure from family members to get a mammogram.
    I got the mammogram and shortly thereafter receiived a phone call saying “everything is normal”.
    Then, exactly one year later, I was at my Dr.’s and he asked me if I had seen my mammogram report, and I said no, I had to reschedule. He then said, no I mean last years. I told him they said it was ok and he said no it is not ok.
    He said he would order a MRI of my breast and when they called me a week later, I was told that I had to have a mammogram before I could get a MRI. I told them that I refused a mammogram so she said she would call the doctor, which she did and he said to skip the mammo.
    When he received the report back, he scheduled me an appointment with a plastic surgeon. I am now waiting for approval from my Medicare insurance. In the meantime, I received a check back from the mammogram lab for $275.00 and when I inquired, I was told that I overpaid for my MRI. I told them, I did not overpay, but was overcharged. This is where I am today.

    Reply
  26. LaChablis Patterson

    Nicole,
    Thank you​ so much for your response. I greatly appreciate it.
    I hope you have a great day.
    Chablis

    Reply
  27. Ann Stutts

    I got my implants 40 years ago and have suffered ever since. I don’t know if fatigue is one of the symptoms or not, but I believe the implants caused it. Also, the encapsulation Has caused severe discomfort for all these many years. I never had the money for removal until I finally got a college degree and entered the work force at age 50. More than anything that anyone could wish to afford, my wish was the removal of these horrid implants. I saved some money found a surgeon and allowed him to discourage the removal claiming terrible disfigurement. He recommended removal and replacement with saline. They hardened in scar tissue also. I resigned myself to accept my misery would be my lifelong consequence for bad judgement. I’m glad to learn that I am not crazy for believing the implants were the cause of so many ailments. I now, more than ever believe in my intuition. Thank You

    Reply
  28. LaChablis Patterson

    Nicole,

    Thank you for all your efforts to inform and educate all who have implants or know someone with implants and the toxic effects implants have on our bodies.
    I have tried to join the Facebook group and don’t know if I am not doing something correctly so I can join, or if I am not being patience.
    I have had my smooth saline implants for almost 14 years. Oh my, I had not realized that until I just did the math! I have symptoms, just as every woman with implants has, and in reflection, they began early on. I am very blessed that they are not as severe as other women’s, however, I have noticed in the past couple of years that the severity of my symptoms have increased, dramatically. My implants have not ruptured, thank God.
    Since mine have not ruptured, if I understand it correctly, I do not need an En bloc, just the encapsulation removed along with the implants?
    I have not gone to any doctors for my symptoms as I chalked them up to the stresses of, a divorce, leaving my children in childcare for the first time, getting married again, combining families, dealing with ex’s, new babies, moving, allergies, getting older, and life.
    I have looked at your list of doctors and I desire a recommended Dr. that other woman in my area have used, Utah, to do the removal of my implants.
    Thank you again for all that you do on behalf of women.
    Chablis (phonetically Shab’lee)

    Reply
    1. admin Post author

      Hi Chablis,
      Your implants may not be ruptured but they are very likely degrading and may be colonized. For saline implants Total Capsulectomy is sufficient. Total Capsulectomy means that your surgeon will remove the implants nd go back in and remove all the capsule tissue. Ensure that you choose a surgeon that is dedicated to removing all capsule tissue from your chest as leaving capsule tissue may prevent full healing. Nicole

      Reply
      1. Carolyn

        I am in same situation, 14 year old saline implants with the usual cocktail of symptoms. Met with a surgeon today that does Enbloc however he says there are some cases where he has had to leave a very small part of capsule attached to chest wall (i think that’s what he said). Was not safe to remove due to proximity to pleura. Any thoughts on this?

        Reply
        1. admin Post author

          Hi Carolyn,
          It does happen for some that a small piece of capsule is stuck to the rib and a surgeon chooses not to damage the rib and leaves it. That is fine the body will detox a small piece of capsule like that. Nicole

          Reply
  29. Art Varga

    Nicole, my sister had saline implants about 14 years ago. For the last six years, she has had many of the symptoms for implant illness. She’s seen many doctors and has been told that everything is normal, but has been diagnosed with all kinds of “other” diseases. I sent her a hard copy of the Breast Implant Illness Symptoms portion of your website. She denies that her problems are related to her implants. I am very worried about her. She does not have a home computer, but she might respond to a text inviting her to join your Facebook group. Her name is Audrey. Please send a text to her at (708) 307-3693.

    Reply
    1. Joan

      I know how you feel. My cousin’s health has continually gone downhill the last few year and I’m positive it’s from her breast implants. I think she’s in complete denial and doesn’t want to think that they have been the cause all along. She has Colitis-Crohn’s disease, gets bladder infections frequently, random body aches, poor immune system, always complains about being tired and feeling weak, insomnia, and horrible horrible anxiety. Her anxiety is borderline crazy. I’ve brought breast implant illness up to her before but she gets really strange and weird about it. It’s almost like she knows but doesn’t want to believe it? I want to help her but she doesn’t want to listen so I’m at a loss on what to do 🙁

      Reply
  30. Doris

    So what are some of the signs and symptoms of the Brest illnesses I had my implants for 10 with know problems then in November this year I got sick and have been hurting it’s mostly in my neck shoulder and under my arms I can’t lift my arms above my head can this be a sign of the illnesses are could it be something else

    Reply
    1. admin Post author

      Hi Doris,
      Yes pain and inflammation and frozen shoulder is a symptom of breast implant illness, please see the rest of the symptoms on the Symptoms page of the website. Nicole

      Reply
  31. Shannon

    I feel like the light bulb just went off! I just found this website and am still in shock that it never occurred to me that my implants from 2005 are making me sick. I have almost every single symptom listed above.

    Reply
  32. Joseph Parks

    I am a plastic surgeon in Jacksonville Florida with a broad experience with breast implants and explantation. I am very familia with many of the scenarios described on your website and would like to be added as an explanation surgeon. It looks like there are no others listed in Florida. Please let me know what I can do to help support your site. Thanks-
    Joseph Parks, MD
    Board Certified by the American Board of Plastic and Reconstructive Surgeons

    Reply
  33. Carolyn Jones

    Hi…I would love to join the Facebook page but not sure what my settings need to be on to be approved. I have friends only right now. Do I have to make it public and if so for how long?
    Thank you! And thank you for this site!!

    Reply
    1. admin Post author

      Hi Carolyn,
      We need to see your facebook temporarily to ensure that you are a woman and who you say you are. Then you can adjust your settings back. Nicole

      Reply
        1. admin Post author

          Hi Carolyn,
          Change your settings so we can access your facebook profile and to verify who you are. Nicole

          Reply
  34. Brandi Morrell

    Hey all,
    I am so glad that I stumbled across this website. After reading a number of your posts, I soon realized that I am not alone with this. In September 2015, I had a breast augmentation. I chose the silicone breast implants because they looked and felt more natural to me. However, since my surgery, I have been extremely ill. I have had 27 staph infections from head to toe, my immune system is extremely low causing me to catch anything and everything, developed a latex allergy, constantly suffer from joint and muscle pain, my knees, ankles, feet, back, and wrists constantly swell up and cause a burning sensation, I have headaches all the time, and my ADHD medicine does not affect me whatsoever anymore causing me to drift all over the place. I had to get braces in February and two weeks later I had an emergency appointment to have them removed because the infections had spread inside my mouth. I wasn’t able to eat or really drink anything for three days. Since then, I have seen 9 ER doctors, 5 dermatologists, 3 primary care doctors, multiple walk-in clinics, an allergist, psychologist, psychiatrist, etc. I was even seen by an Infectious Disease Specialist at Vanderbilt. Each physician has sent me home with an antibiotic each time and basically throws me off and never has an answer for me. I don’t know how many times I have cried my heart out to doctors and nothing seems to change. I have been severely allergic to 3 of the antibiotics and the steroids have made me gain 35 pounds within the past year. I also graduated from graduate school in December 2015, and since then I have lost two jobs due to illness. I am finally going back to see my plastic surgeon in the morning since everything seems to add up in time. I just pray I don’t get ignored, rejected, or told that he has no idea what could be causing this. Nothing has shown up in my blood work for physicians to be concerned about. If anyone has any advice for me, I would really appreciate it. All I want is to have my normal life back, and to be physically, emotionally, cognitively, and socially healthy once again.

    Sorry for long post, it’s been a terrible year and a half for me.
    Thanks,
    Brandi

    Reply
  35. Holly Andersen

    I just had my breast implants removed. I have not felt well for a long time. They came out completely black in both sides and I am waiting on the test results to find out exactly what caused them to turn black. The scar tissue was also very thick and my surgery lasted over 4 hours. I had en bloc procedure. It has been a few days now and I am still very tired m, but glad that part of my life is over.

    Reply
    1. admin Post author

      Hi Holly,
      Get your implants tested for mold, often when they are black it can be due to mold. A couple labs test saline implants for mold Mycometrics or Real Time labs in the US. Nicole

      Reply
    2. Melanie Bradbury

      I’m sorry to hear you are going through so much. I’m with you when it comes to having toxic implants in our body. What kind of implants did you have? Like manufacturer name? And when did you originally get your implants put in? We all have to be our own advocate. Thank you for sharing. God Bless you!

      Melanie

      Reply
  36. Christy Bogs

    I am seeking breast implant explant. I have so many aches and pains from the implants. Neck, back, shoulders….tingling and numbness. I am on Ambien to sleep, antidepressants for being so depressed, Vyvanse to focus!! It is endless! I am against pain medication because I do not want to travel that road. I simply just want the implants out. Unfortunately it will cost a lot and I will require a lift due to the 525 cc’s that I chose to implant into my body. If anyone had any information that will help me with insurance please advise. I am seeking medical attention for RA, nerve damage, and depression. All of my blood work came back good which is a blessing!! Thank you Jesus!

    Reply
    1. admin Post author

      Hi Christy,
      Get a copy of your full insurance policy and read how you may be covered for explant. In general insurance covers for rupture, capsular contracture, pain and infection/necrosis and you have pain and that is often the best symptom to approach them with. Sometimes some insurance policies have exceptions and some do not cover if your implants were for cosmetic reasons. I will send you the codes you will need via email. Good luck!! Nicole

      Reply
      1. Rachel

        I would love to get the codes via email as well! I’m needing to get mine explanted soon, I’ve been dealing with all these health issues for years and I’m ready to be done! If insurance could help cover in any way, that would help a lot. Would you email me the codes?

        Thank you!
        Rachel

        Reply
      2. Fran

        Nicole ,
        Please send me the codes . I have had suffering since the early70’s when they simply injected the breasts with silicone. Chronic Fatigue, dizziness, pressure in the head, digestive issues,brain fog, dry mouth, sleep issues waking up a lot, skin issues, lyme, slow starting in morning, short term memory loss, etc. Looking to do explant surgery.
        69 years old on Medicare with Blue Cross(texas)
        Thanks for your list. Currently experiencing pain, swolleness , and fever in the breasts along with pain between the shoulder blades. Can you please send code recommendations to help get Medicare and insurance coverage?

        Thanks
        Fran

        Reply
    2. Rikki L.

      Hi. I was hoping to join the Facebook group in the hopes to get more support and education. I just made a new Facebook account only to join this support group (not big on social media). I hope I did the request right???? Anyhow, I’ve been interviewing doctors and am so nervous to act hastily. I feel I was impulsive with getting these nightmares and have lived that consequence for nearly a decade. Nicole, I can’t thank you enough for all the hard work you have put into this website and what you are doing for those of us who thought we were just sick and that was the way it was just going to be. I have fought tirelessly for the last two years to regain my health, thinking it was maybe my diet or lifestyle. I’ve never cared so much for myself as I do now and the frustration comes every morning when I shower and have to untangle more hair from fingers. Not to mention the debilitating pain that runs from shoulder to finger tips in my right arm. And many other symptoms, that I’m now understanding, is due to implants that I never enjoyed to begin with. The frustration. The anger. The fear. It’s real. And I’m not alone. And I am so grateful for this site. The vanity in me is scared to see my loss of curves but my desire to really live, and feel alive again, is what brought me here. Thank you

      Reply
  37. Kym R

    BTW, I would like to express my sincere thank you for all the invaluable information on this site. It has truly been a godsend, there’s so much pertinent information that I would never have known about especially what to communicate to the explant surgeon. Again, thank you so much from the very bottom of my heart for sharing all you know about this life altering, dream stealing, death seeking, horrible disabling ‘silicone incompatibility’

    Reply
  38. Jennifer Billman

    Thank you for your consideration. I have been dealing with a multitude of illnesses due to breast implants. I reached out to Mentor 7th times about issues that I’ve been dealing with with no response back from them. I received my first set of implants in 2005. They were smooth, round, and saline, 270 on one side and 300 on the other. I had them for about 9 years before I started to develop symptoms. I starting having serious difficulty breathing at all times, and especially when laying down at night. I could not get a deep breath. My PCP checked all labs and my heart and lungs and everything was normal. This was something physical. I also developed tingling and pain in my hands and itchy palms and a numb right thumb. I had a foggy brain and extreme fatigue and difficulty concentrating and depression. Finally, I developed a goiter, an adrenal problem which is a documented adverse reaction to implants.

    I had the implants removed at the end of 2015. Immediately, my breathing was cured! I no longer had shortness of breath. I know it was the implants pushing on my chest, due to the capsular contraction. They were hard as a rock from the beginning and extremely uncomfortable. The other symptoms were almost completely gone.

    I decided to try silicone this time because they are suppose to be softer and I figured they would not press on my chest and make it hard to breath and maybe I would not have a bad reaction to them since they are silicone and a more updated FDA approved medical device. Immediately and every day since my surgery 3 weeks ago, I’ve had ALL of the same symptoms reappeared. I want them removed as soon as possible because I know they are toxic and my body is reacting to them.

    There should be some kind of warning about the dangers of breast implants. I’ve read stories and studies about how the outer shell is full of toxins and heavy metals and silicone that leak into the body. I’ve been reading endless stories online and I know it’s what is making me sick, esp since I had them removed for a year then new ones implanted.

    This has cost me a lot of money, pain and suffering, both mentally and physically, not to mention my now destroyed breasts and self esteem.
    Even my surgeon said there is nothing that can be done to fix the muscle deformity left after explanting. So I feel ruined for life. This should be a warning as well, that you will NEVER have even slightly normal breasts after removal. It destroys your pectoral muscles so you can never work this muscles again 🙁

    I even reached out to J&J and the FDA because Mentor never responded. J&J said they would forward my story to Mentor and the FDA never responded. This all seems so criminal.

    Thank you for your time and listening.

    Sincerely,
    Jenny

    Reply
    1. Christy Bogs

      That is what I have is mentor. I have saline and I had mine for 12 years. I just recently started noticing a multitude of problems and one of my instructors from college shared her story. The first thing that caught my attention was the fact that she had ringing in her ears. So did I from about 5 years previous!! Things have started to come to light. I have everything you mentioned and all of my labs came back normal as well

      Reply
      1. Melanie Bradbury

        I have mentor too. Saline, I got implants in around 2002. I am dying slowly. I just want my life back.

        Reply
    2. Tamara

      Seriously, don’t worry about a lift, the surgeon can mold those babies up in nice tight bra , allow body to heal tissue to contract and wear a support bra maybe a t shirt bra, let your natural beauty show…Then if later, you can revisit a lift.. but,it’s possible you won’t even need it… I know several ladies, that thought they would be ruined…But no , they had beautiful natural breast.. After implant removal. Right now it’s about getting those posion bags out and your body healthy

      Reply
    3. Tamara

      Not true, many women get implants removed and get pretty close to their before appearance, there is even an option of fat/stem cell augmentation that can be done after your body has time to heal. Make sure to wear proper post surgical bra to help mold and shape

      Reply
  39. Danette

    Hello Nicole, Can you please email the Guidelines and Indications for Breast Implant Capsulectomy document to me? I see Dr. Schembri in Edmonton Alberta Canada on Wednesday March1, 2017.
    Thank you,
    Danette

    Reply
  40. Frances M.

    Hello, I have had my saline over the muscle implants for 16 years now. I have been detoxing for the last 1.5years under a holistic doctor’s care because I have had a number of health issues. I never thought they could be related to my breast implants. Do saline implants cause the same toxicity in the body as the others you have mentioned? Do I need to get mine removed?

    Reply
    1. admin Post author

      Hi Frances,
      Yes saline are the same as silicone, the shells of saline are silicone too and further saline are sometimes colonized with mold and other organisms.

      Reply
    1. admin Post author

      Hi Marie,
      Yes saline or silicone the symptoms and the illness process are the same. Saline have silicone shells and also get colonized with mold and other microorganisms due to faulty valves. Nicole

      Reply
  41. Arthur E. Brawer, M.D.

    The ASIA criteria (Schoenfeld’s syndrome) has been discredited in 2015 by the special masters (judges) in vaccine court in Washington, D.C., and they will no longer allow it to be referenced by any experts testifying on behalf of vaccine injury claimants. Investigators who utilize the ASIA criteria to define and/or report on silicone toxicity are well-meaning in their desire to verify the existence of silicone-induced disease, but the ASIA criteria will never withstand the white hot lights of scrutiny in any court case litigating this matter. There are at least two dozen mechanisms causing silicone toxicity, virtually all of which disrupt the body’s biochemistry, and virtually all of which have nothing to do with autoimmunity. The ASIA criteria are a gross oversimplification of what is clearly a much more complicated problem, and Dr. Pierre Blais is in agreement with this. You might want to read a 1998 peer-reviewed published manuscript in Medical Hypotheses entitled: “Silicon and Matrix Macromolecules….” As an example, at least 75% of symptomatic silicone recipients have markedly dry eyes and dry mouth, and Schirmer tests are quite abnormal in these patients. However, their biopsies of salivary tissues are completely normal, because this ailment is likely due to dysfunction of the receptor for acetylcholine (which normally stimulates these glands). As another example, silicic acid (which is a breakdown product of silicone) crosses the blood brain barrier and can chelate neurotransmitters (such as dopamine) – hence, cognitive dysfunction occurs but MRI scans are normal. As a third example, silicon forms four bonds like carbon but behaves like a metal at times. You cannot expect energy production and energy utilization in mitochondria and the interior of cells to proceed normally after silicone exposure, because phosphorus is metal-ion-bound in energy systems. Hence, weakness and fatigue occur, but muscle biopsies are normal. As for joint pain and arthritis in silicone recipients, any synovial fluid analyses reveal less than 1,000 cells (non-inflammatory) – think of substance P in nerve endings, and also think of the matrix macromolecules in cartilage. The most recent peer-reviewed manuscript on silicone breast implants was published online (ahead of print) in LUPUS on January 29, 2017, entitled “Destiny Rides Again: the Reappearance of Silicone Gel-filled Breast Implant Toxicity.” Its sister article, also published in LUPUS in 2012, is entitled “Bones, Groans, and Silicone.” After reading these, you probably will appreciate that (1) silicone gel-filled breast implants are indeed quite toxic to the body, and (2) scientists with a PhD degree in biochemistry need to get involved in the research. Arthur E. Brawer, M.D., Associate Clinical Professor of Medicine, Drexel University School of Medicine, Philadelphia.

    Reply
    1. Sheila

      I am a colleague. Love to talk to you in this matter. Would you kindly contact me at my email address.

      Sheila

      Reply
  42. Alex

    I found a more recent published scientific I’d like to share:

    http://www.eenvandaag.nl/uploads/doc/asia-syndrome.pdf

    Also would love to get some of this info onto wikipedia if possible. Silicone toxicity and breast implant illnesses aren’t even on there, with the breast implant main page under complications saying that illnesses and platinum toxicity are simply “alleged” which really just made me so angry because so many uniformed people will read this and continue to perpetuate the lie that they are safe.

    I’m not an article writer but I already sent a request for this SIIS study to be added. I really find so much info on this website to be helpful and informative (and freaking scary) I think if you can get any of the scientific articles or info on wiki it would just help spread the word faster and to more of the ‘disbelievers’ who are too arrogant and stubborn to read this website and get informed about REAL implant/silicone issues happening to women everyday…

    thanks & love to everyone dealing with the sh*tshow that is breast implant illness. the struggle is real :/

    Reply
  43. Judith Malitas

    I AM SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO UPSET WITH THESE BREASTS….OVER THIRTY SOMME ODD YEARS WITH THE SILICONE IMPLANTS……MY original plastic surgeon said he would not even charge me for removing them only the operating room and anesthesia…..he changed his mind on his price from nothing to five hundred dollars to a grand of which I cannott afford and my insurance won’t cover the operation….I AM DESPERATE….I AM READY FOR MY GRAVE…I AM 7O YEARS OLD…….I am alone living under my x-brother inlaws deceased parents house or I would not even have a roof over my head!!!!!!!!!!!!!!!!!!!!! AND even if I did have the operation….I have NO ONE to help me AFTERWARDS!!!!!!!!!!!!!!!!!!!!!!!! I had an MRI done and they found ruptures in both breasts….and EVERY DAY I AM IN DISCOMFORT if you can call it that……PLEASE….PLEASE HELP……WILL THIS BE “THE DEATH OF ME” I ask myself…..do not know WHERE TO TURN TO????????????? i LIVE IN Phila Pa…….I am not even sure where to find a surgeon who is able to do this kind of surgery properly??????????

    Reply
    1. Casey

      Hi Judith
      I’m so sorry to hear you are very ill from your implants. There are many women in your same shoes, fighting for their health, and Dr’s telling them it’s all in their head. Do you have a facebook account? There is a wonderful support group of over 15,000 women who have become ill, or think they are becoming ill from breast implants. The group is https://www.facebook.com/groups/Healingbreastimplantillness/?ref=bookmarks
      I’m sure the many women on their could help you and give you suggestions on how to get the explant covered and possibility find you help for after surgery.. Hang in there!

      Reply
    2. Kym R

      Please speak with your insurance company, many of them are paying for explanation. I heard even Medicare will pay for explanation. They rather pay for explanation than for a lifetime of medical bills and test and medicines. If your insurance declines at first, seek an appeal and fight it until they pay for it.

      Reply
    3. Kym R

      Judith, I also have been sick for six years now. I am waiting for my explanation. I’m not sure how much more you can endure but once I get even a little bit of energy back, I would be willing to help you somehow.

      Reply
  44. Cindy

    after doing much research, I believe my 27 year old daughter is suffering from Breast Implant disease. She has them 5 years and was diagosed with Lupus a year ago. I need to know the specific tests she needs to undergo to prove if she is suffering from this disease. who can help me?

    Reply
    1. admin Post author

      Hi Cindy,
      There are no specific tests to prove definitively that her breast implants are the cause but they are. I bet she has cohesive gel/gummy bear implants and these implants are highly toxic due to the aggressive chemicals that they put in the implants and they make us sick very soon. Most of us once we realize go right to explanting and we start healing and recovering. Nicole

      Reply
  45. Victoria Dunn

    hi Nicole. I called dr fengs clinic today and waiting to hear back but they are booking in September. Since Christmas night I’ve been having fevers, nausea, brain fog, cold hands feet, high blood pressure(im 5’qand 115lbs never had bp issues before) my blood pressure has been running 140/90, headaches and fatigue, neck pain, dizziness, passed out and had to call 911 I have been tested for every auto immune disease, CT of my abdomen and MRI of my brain an echo of my heart Everything has been normal. My questions for you are, I am pretty sure it is my implants what do you think ? My second question is do you think I will last until September or should I try to find a different highly recommend a doctor to do it sooner ? And last after the removal will my blood pressure go back to normal and will I feel normal again ?

    Reply
    1. admin Post author

      Hi Victoria,
      Yes it is your implants. I would try and wait for Feng, she is one of the best surgeons, surgery with her is as good as it surgery can be. I would try and get on a waiting list if I was you and perhaps they can get you in sooner if someone cancels which happens often. Yes your blood pressure will go back to normal. We don’t heal overnight but we do heal after we do a proper explant and detox. Nicole

      Reply
  46. Rita

    Hi Nicole, my insurance denied the request for preauthorization for my explant. I thought I read in the documents that you would share procedure codes which might get the procedure approved. I would appreciate having the codes. I am proceeding with the surgery, but it would be nice to have the insurance pay for the procedure (over $11, 000 with the mastopexy and lift).

    I sent a request to join the FB group.
    Thank you.

    Reply
  47. Wendy

    I’ve had a root canal crack which lead me to pull tooth since then I’ve gotten more symptoms…I’ve had three surgeries on extracted tooth still have so much nerve issues and burning mouth I saw a dentist that specializes in muscle testing of your body…..he said that its my silicone breast implants and by muscle testing its in my jaw,joints,spleen,and nervous system…I’m very confused I had silicone implants for about seven years following breast cancer…have you ever heard of implants causing nerve issues in teeth,jaw,and burning mouth and mouth numbness and joint pains?

    Reply
    1. Janey

      yes I have exactly that now. I live in the uk and been struggling for the last five weeks. It’s happened all of a sudden and my nervous system has been affected. Im going to travel to see dr feng and hoping she can help me but not sure I’m even fit enough to fly.

      Reply
  48. Mary-Jo

    Hello, and thank goodness you are here and I found you!
    I have had one set of implants from 1985 to 2005 when I found out through a mammogram that one of them had a leak. I had them removed and replaced with another set in 2005 and then in 2007 had one removed and replaced with a breast lift. I am now 61 years old and for the last couple of years have been contemplating to have them removed.

    About 10 years ago I started to notice that I had memory loss, foggy head, dizziness, neck pain, shoulder pain, back pain, and heart palpations. I was in school at the time and working full time and had just lost my husband to brain cancer; I chalked it up to stress and severe depression. As the years progressed I have had severe neck pain, should pain to a point where I could not move my neck and my arms without screaming out from the pain. The aches in my joints and muscles, cramps in my feet and toes, hands aching and stiff, have been close to intolerable. My memory has been getting worse and worse over the years, to a point where I have been so scared that I have early onset Alzheimer’s disease. Constipation plagues me.

    The last four years have been the worst. I have been to my doctors, physical therapy, psychiatrist and cardiologist complaining about all of these symptoms with no relief. My MD took a number of blood tests to check for autoimmune diseases and they all came back negative. He finally diagnosed me with fibromyalgia because he couldn’t come up with a definitive diagnosis. The orthopedic doctor couldn’t find any reason why my shoulders were frozen; at one point I could not lift my arms above my waist or pull on my pants. I had 3 MRIs and countless X-rays. There was nothing found wrong with my shoulders, although they did find some degeneration of the cervical discs in my neck. I went for cognitive testing and they found no reason why my memory and recall has been getting progressively worse. My cardiologist cannot find out why I have palpations, and says I do not have arrhythmia. Despite all that has been going on, my doctors tell me I am in great health?

    It has been maddening. My doctors’ think I am nuts, and honestly I thought I was kooky also. I am so troubled by all of this. Most of all I have been scared about the memory loss, because it doesn’t get better. It has been affecting my job. I have days where I am able to have a conversation without consistently searching for words, and I call that a good day. Other days I come across sounding like a blithering fool. The pain is always present, but gets worse as the days progress.

    I cannot believe that all of these symptoms are happening because of the implants. I have already made appointments with two surgeons for consultation. One of them I found on this website that was highly recommended, the other is the surgeon that has done my implants.

    Has anyone reported back regarding memory loss correcting after removal of implants? I am very concerned.

    I cannot wait until I talk to these doctors and schedule the surgery. I want these toxic waste vessels out of my body.

    Thank you so much for being here for me, for us.

    Reply
  49. Melanie Bright

    Hello. I am fairly new to this site (about 1-2 months) and I feel blessed to have found it. I received my first set of implants in 1990 (saline over the muscle). In 2000, I had them replaced with textured silicone under the muscle. I have decided to explant because I have at least 21 of the BII symptoms. I do not know the manufacturer of my implants and my PS is no longer practicing so I have no records. Does anyone know if any of the recommended doctors on the explant list are highly recommended in Texas? Specifically, Drs. Boynton or Yarish in Houston? I’m in the Houston area so If there’s a doctor that comes highly recommended/specializes in BII, I would prefer to have my explant done here. If not, I’m willing to travel to Dr. Barnett (15 hours away from home). I understand there’s a list of questions on the site to ask potential surgeons. Thanking you in advance for your advice and/or recommendations. May God bless you all during your journey to better health!

    Reply
  50. Kim

    Hi, I’m only just looking into this ex planting again, and come across this site. I had my 1st set I had at age 28, they were the PIP implants, the scandal all over the news. I still have an ongoing court battle over this, my left one ruptured and leaked under my armpit into a lymph node. I went to a surgeon and he talked me into having another set saying the reconstruction surgery is horrific I’ll be totally flat chested and at my age ( 38 at the time 41 now) the recovery is horrendous and you have a 2 year old to care for etc etc, my mum also said to get another set you’ll hate having no boobs again when you want to wear nice dresses and bikinis and so I guess I felt scared of the explant because it sounded so terrible! And vanity played a part as I was a double aa b4 the surgeon said id literally have zero breast tissue left. However I now feel I wish id gone with my initial gut feeling and explanted. I’m always unwell and blame my endometriosis but just lately I’ve been getting a ‘feeling’ just something telling me it’s them they need to go.
    I’d like to hear from those that explanted about recovery period (I mean actual operation not detox as such) excess skin removal, how long is it before your up,and about and able to be mum again? I’m at college at present studying anatomy and physiology because I’d like to know how my body functions better, so need time off for that too?! I’m so scared about all of this and I also want to ask: can implants affect our babies during pregnancy? My boy of 5 now really suffers with constipation and is dairy intolerant, he also shows signs of sensory processing disorder. Thanks in advance xx
    I’ve also asked to join you facebook page please

    Reply
    1. Kym R

      I understand your questions and concerns Kim, but honestly you’re looking at it all wrong ! your first and foremost priority is your HEALTH, never mind how long everything is going to take, if you going to have sagging skin or not. What you want to know is that you will be HEALTHY and available for your children. Everything else is subsequent.
      Take it from me, I have been been bedbound for six years because of these implants and lost some of the most important years with my daughters. I would do anything to get those years back now, even if it means being flat chested with sagging breasts (which is why I got the implants in the first place) so listen to all of us on these pages and get your explant done ASAP

      Reply
  51. Amy Gardner

    I have had implants for 8 years since I have been diagnosed with Hasshimotos thyroiditis. Had syncope spells and also recently diagnosed with Chiari malformation. I was having seizures and they noticed the malformation on my MRI. I was in great health before my implants. I never would have thought my im take may be making me sick until I came across this on Facebook.

    Reply
  52. Tania

    P.S I would like to thank all the brave woman who have posted on this site and for sharing your stories. Nice to not feel all alone and helpless. I wish you strength and love to get through this. You will get through this and regain your health and life back. Be dilligent with the diet and care for you self. tell your self every morning that you are healthy and getting better every day. Keep all negative thought away. Your ciells listen to your brain. no matter how crappy you feel, just keep teliing your self your are heakthy and healing. Reread this website to it’s entirety and click on all links. The information is so good and answers almoat all questions. We have a long ways to go but we can do this. I look foward to sharing a success story with you in the future 🙂

    Reply
  53. Tania

    Hi Nicole,
    Thank you so very, very much for providing this excellent website with such a great source of information, understanding and knowledge. You are changing lives and I feel mine will change now for the better. I just found you after brainstorming all my illness and deteriating health. Long story short…
    I had silicone rough textured oval implants in april 2014 at age 48. With in 8-10 months, anxiety, fatigue and slleepness crept in. With in 1 year (April 2015) I was taken over chronic yeast indections. I experience all the symtoms on your list and all my doctors said I was crazy and prescribed AD’s. I said no way. Now 3 years later in 2017 January , I have been diagnosed with Chronic Mono, Hep B, CMV, Severe candida overgrowth. My body is full off toxins, virus, baceria and fungi. I’ve been to a functional doctor here in Naples fForida who treats me with glutathione, B-12 and now starting Ultra Viiolet Bloodd Irridation to treat these. Had no Idea that it was my implants being the cause of this. I was completely healthy and energetic before the implants and never filled with illlness untii after implants. Feel like I’m dyeing. I have completely change my diet to a Candida Diet and Paleo. No alcohol, coffee, sugar, gluten or dairy or yeast ,wheat etc..
    Thank you so much for the Angel that you are. I have booked an appointment with your recommended surgeon in Sarasots FL to have my implants removed ASAP. Their 1st appt is not availble until end of April for my surgery. I look forward to getting these nasty things out of my body and getting my life and health back again. I’m not happy to be flat chested again. just like others,…But….Who cares!!!! Right? I want to live the rest of my life happy, healthy and get back to being me and get out of bed and the house due to sickness. I would never have had this understanding and choice if it were not for your great knowledge and information you shared. Thank you from all that is me .and I’ll keep you informed on my progress. God Bless 🙂

    Reply
  54. sad Emily

    My heart just stopped when I read Sarah and your comment below about getting Crohn’s after getting implants. I also was diognossd with Crohn’s about 2 years after getting my implants in. But now that I think about it I didn’t feel the best a year before the doctor told me what I had. I never linked the 2 together. I feel crappy and tired, anxious, depressed, just plain weak a lot. I don’t sleep well. I just figured it is from my Crohn’s. Has anyone else gotten Crohn’s after they got their implants? I’m in such shock right now 🙁

    Reply
      1. Angela

        I have a friend who just got colitis out of the blue shortly after she got her implants. Coincidence? She’s a miserable mess now.

        Isn’t colitis a lot like Crohn’s?

        Reply
        1. admin Post author

          Hi Angela,
          Implants can cause Colitis, Crohn’s, IBS and SIBO, they wreck our gut health. Gut problems are listed as a possible risk of implants in some of the patient information from manufacturers.

          Reply
  55. MIMI

    Hello!!!! Nicole
    It finally happen i got my Explant Surgery on 1/26/17 it is 6 day’s today everything went well and after 6 hours did not needed any more pain killers , but i still had the drains and that is uncomfortable to sleep with…. they where removed on Monday
    Every day is a new day looking forward to my healing , but is great relieve to me to know they are out of my body
    My breathing has improved and when i walk i feel like a feather
    I’m changing my diet because my gut is very damage , so i started the beef bone broth twice a day , and is working already
    I must say it was not an easy path , but the worst is over Thank You Jesus
    Love to u all MIMI

    Reply
  56. Jamee

    Hello and thank you for your sight. It is incredible. I am anticipating getting my highly cohesive implants removed within the next couple months. I put them in three years ago s/p mastectomy. Naturally I have tons of symptoms within 2 months of implant. I also have the MTHFR gene, leaky gut, diagnosed with Hashimotos since implant and the list goes on. I have been on a cleansing program and taking supplements, probiotics, AIP diet for the Hashimotos . Somehow, miraculously, i stumbled upon your site! I have 9 amalgam fillings, but upon metal testing I come up low thankfully, Slightly elevated Cadmium (not sure what that is from? -IMPLANTS?) in any case, i started adding spirulina in my supplements. I home made capsule a day. Then I read not to take chlorella if you have fillings. Is that the same for spirulina? You have shared the same knowledge as my functional medicine doctor with me. You are one smart cookie! Any advice is appreciated. I am to over detox. Also, recently my extremities and tongue are quite swollen and my histamine levels are super high. Any advice about this? Would love to have as much info prior to my PS appointment to have explant consult. Will see PS 2/23 for consult.

    Reply
    1. admin Post author

      Hi Jamee,
      Very happy that you found the website and I hope you will come to the facebook group. You are getting your implants out soon which is good! Please ensure that all the capsule tissue is removed when you explant ideally En Bloc/Total Capsulectomy. Right now, I want you to order and read Andy Cutler’s book called Amalgam Illness. Then, I want you to plan to have your mercury amalgams removed about six months after you explant or so. A test low in mercury means very little for several reasons which you will read about in Andy’s book. Find a holistic dentist that removes mercury fillings using proper mercury removing protocols which means a separate air source for you and a dental dam and very little drilling (just quickly scoring the filling down the centre with the drill and then quickly popping it out and cleaning up the tooth after and refilling using resin). Follow Andy’s detailed but easy method for detoxing mercury using oral low dose chelation. You will have mercury toxicity with nine amalgams and MTHFR, no doubt in my mind, I did with eight amalgams and MTHFR. Amalgam mercury does not show up in either hair testing or unprovoked urine or blood testing. You have to provoke mercury from its storage places with a chelator in order for it show up on testing. Do not take chlorella or spirulina now, later in your detoxification they may have a place but right now they will most likely cause inflammation in you. You have to periodically empty your histamine bucket by avoiding histamine foods and doing green veggie juicing for a few days. Fungus will also be a factor for you with implants and mercury, watch for yeast/Candida in the gut and else where and you may have to take antifungals. Nicole

      Reply
  57. MIMI

    Hi! Nicole
    I wrote back in September telling you how i had to canceled my Explant Surgery
    Well!!!… after a a long and very stress full 4 months of nothing but frustration after frustration from back in September to now, still having to have more clearance from this Dr’s , I was giving clearance from my PCP but the Pulmonary DR, who really only found an infection like a Broncattisis and has no idea where is coming from gave me antibiotics and almost all clear with the antibiotic… but since the source still there meaning the [THE BREAST IMPLANTS] is not going to go away completely .
    All right … yesterday I called the PLS and now have a surgery day for 1/26/17 , BUT…. this is another BUT… he got all the clearance faxes from all the DRS my PCP is recommending a fallow up with the Pulmonary DR before the surgery
    So I have a PRE-OP with the Pulmonary DR on 1/18/17 OK… how ever when the PLS was discussing my situation he mention that my be,… it will better for me to have anesthesia by injection instead of the tube and gas in the mouth you know …..
    Nicole I think the injection is the way to go in my case , but not sure what do you think???? and how effective it is? I have some concerns .Please do you have any info about this???

    I Thank Y and waiting for you reply
    MIMI

    Reply
  58. Kay Pearson

    Dear Nicole –

    I have been very sick for the past 6 years. My implants are silicone and they are 30 years old. I’ve been to multiple neurologists and gastrointestinal doctors from Mayo to UCLA. I’ve had migraines that started after I first got the implants but the headaches are now everyday instead of once a week. I have been through numerous medications that have not helped but did change the way food and drink tastes and that has left me in a fog. I have had botox injections in my neck and head on two occasions that insurance would not pay for. I have had massages, physical therapy, acupuncture and more and there has been little improvement. Unforunately I had to stop working due to the headaches and extreme fatigue.

    I also have been diagnosed with idiopathic gastroparesis, and I have undergone procedures to inject botox into the opening of to my small intestine and various drugs. At best I can now only address through a very bland diet (no fiber) and I struggle to maintain any weight.

    We have asked our doctors many times if the implants could be causing my poor health. They always stated quite matter-of-factly that they are not causing the problem. I have had mammograms over the years and at least one MRI that indicated that supposedly everything is okay with the implant.

    My niece, talked to someone who had some of these symptoms and conditions and had her implants removed. Her health improved dramatically and her story of success is inspiring.

    Obviously, as the implants are 30 years old and need to be removed regardless, I have made an appointment with a doctor in Mesa, Arizona recommended on this site. My consult is in 3 weeks.

    I have one question that perhaps you could speak to. I was so flat when I had implants that they were put in through my armpits and under the muscle. When the are explanted will their be any complications because of this for the doctor or procedure.

    I will keep you posted as we move along. All of this was typed by my husband, Ken as I am not very tech savy and I avoid computers as much as possible. If the facebook group sees a friend request from Ken Pearson, that is my husband so please let him join the group on my behalf.

    Regards – Kay Pearson

    Reply
    1. admin Post author

      Hi Kay,
      Please have your husband add your name on to his facebook profile too so it would be Ken Kay Pearson and change the fb profile sex to female so we can approve this profile into the group. We don’t allow men into the facebook group. Your surgeon should have no complications explanting you. In my humble opinion, incisions under the breast give the best access to explanting properly. Nicole

      Reply
  59. Marcia Shell

    Hi Nicole,
    I came across this site when doing research on symptoms related to breast implants. I am 54, turning 55 on 27 January and have had the same saline implants since 1992. I am scheduled for a mammogram on 23 January and afraid they might rupture because of their age. I’ve been pain free until recently and concerned they need to be removed. Please advise when you have time! Marcia Shell, Marcia.shell@nnsa.doe.gov

    Reply
    1. admin Post author

      Hi Marcia,
      Breast implants are recommended to be replaced every 8 to 10 years. You have had a good, long run with them and if I was you, now that symptoms are appearing, I would get them out and be done with it. Please ensure that your explant is Total Capsulectomy which means the implants and capsule tissue is removed from your chest. Nicole

      Reply
  60. Elaine Anscombe

    My name is Elaine Anscombe, I’ve just had my inplants removed by a NHS sergen. She and my doctor have denied that they can make me I’ll. They have. I have alot of the Illness. please can you help me. How will help me to get better or is it just to late for me now .please contact me on 07907645023 as not good conputer. Thank you so much.

    Reply
  61. Grace greene

    I have ruptured implants for two years or so, I’m always unwell now, headaches nervousness, parasites in skin, kidney infections and a smell of metal coming out of me I feel like I’m loosing my mind what will I do

    Reply
  62. Terry Manley

    Dear Nicole,
    Thank you for all your amazing work in gathering all of this critical information for women suffering with implant sickness. I cried as I read through your site that I am not alone! I have suffered for many years and am ready to have them removed ASAP. I have scheduled a consultation with the Sarasota Doctor that is recommended by women here on your website.

    I had my original silicone implants put in about 30 years ago. They were just replaced in 2013 because one had ruptured and the other one was leaking. I was totally ignorant and can’t even come up with a good excuse of why I waited so long. I had suffered a fall about 10 years before they were replaced but because the breast still looked the same (didn’t feel the same though) I didn’t think it had ruptured. So who knows how long the silicone was floating around inside of me.

    6 months after the old ones were taken out and new saline implants were put in I developed a mysterious infection in my left breast that was very painful. The doctor said I had mastitis. I went from the family doctor to the gynocologist to a breast specialist and was just put on antibiotics over and over. Finally I did feel better. They did an ultrasound and everything looked good. Or so they say, not sure how much shows up on an ultrasound.

    I went back to the plastic surgeon who did the explant and implant and he was “highly offended” and defensive when I told him about the infection. So that went nowhere.

    Almost two years passed and although the left breast felt better, I was still sick a lot. Just two months ago I came down with another case of “mastitis” and am still on antibiotics. And feel a little better – now the breast is just tender to touch. They did another ultrasound and said everything looks good.

    I feel sick overall as if I have the flu, just want to stay in bed, plagued with cold and cough symptoms, and much more.

    I will definitely have them removed as soon as I can. I see the doctor in about a month for a consult. I was wondering if women ever have a mastectomy while having an explant if breast cancer is in the family on the maternal side. I am ready to just be done with breasts altogether. I would hate to have the implants removed and down the line be told I have breast cancer and have to have a mastectomy later. Especially with silicone in my body for years and years, I would think my cancer chances are a little higher. Just wanted to ask if this is something that women do too, appreciate your feedback.

    Terry Manley

    Reply
    1. admin Post author

      Hi Terry,
      Usually it is plastic surgeons that are explanting and so I have yet to hear of a mastectomy being done at the same time as an explant by a plastic surgeon. If a mastectomy is desired likely a breast surgeon would be what you are looking for. Personally I would just properly explant and anticipate the best but here is a link to a listing of breast surgeons if you are interested: https://www.breastsurgeons.org/new_layout/index.php. Nicole

      Reply
    1. admin Post author

      Hi Diane,
      Breast implant illness applies to both saline and silicone implants. There are no safe implants. Nicole

      Reply
  63. Holly Stoddard

    Would you please email me whatever will be helpful in getting my explant approved. I am under Medicare. I had a double mastectomy in 2001 and reconstruction with Mentor Saline implants. Although I did not have cancer I had severe fibrocycstic breast disease, dense breasts, many needle and surgical biopsies, and calcium deposits. A oncologist recommended the double mastectomy as they could no long properly diagnose if or not I had breast cancer. It would also be helpful to know if there are any surgeons in Wisconsin that have done this procedure.

    Reply
    1. Marcy Saad

      Yes please me as well im in california and on medicare also i have silcon one is ruptured one capsul contrapture i havent been feeling well for awhile i have had other issues not from the implants but the pain i been feeling for quit sometine leads me here and to beleive this maybe my problem..i called dr to get them out then i was pregnant so surgery canceled just recently called them again and told them i want them out but they are trying to get me to just replace i want all the way out im tired of the pain in hips back shoulders knees thank you in advance

      Reply
  64. Leah

    Hi Nicole! I recently found this page while searching the internet. I’ve been getting progressively sicker and think it could be from my implants that I’ve had for about 4 years now. I hope I can be accepted in the Facebook support group. Thank you so much for bringing awareness to this awful thing!

    Reply
  65. Crystal Brubaker

    I got my saline implants in 2006 and I have been sick since 2010… been to hundreds of doctors visits and the doctor pretty much told me I was insane and tried to push antidepressants on me… (and other drugs which Ive always refused until 2016) I was finally referred to a neurologist in 2015 and have been diagnosed with ms… arthritis and fibro as well… supposed to see a rheumatologist but I can’t really afford it… I have so many symptoms, some that coincide with these illnesses, yet some dont… I just feel like I’m dying… and I believe it’s my implants!!! I’ve had extreme fatigue, extreme muscle and joint pain, muscle twitching and spasms, feet and hands are numb and tingly, from elbow to fingers are tingly, nerve damage, extreme headaches in the back of my head, neck pain, upper back pain, chest pain, eye pain, eye dryness, mouth dryness, skin dryness, kidney infections, kidney stones, bladder infections, frequent urination, yeast infections, cuts heal slowly and sometimes get staph, hair doesn’t grow and has become thin, I’ve aged horribly in the passed 3 years, I have a horrible taste in my mouth, my glands hurt, sore throat, digestive bowel problems, weakness all over, trouble walking, shortness of breath, brain fog, memory loss, heart palpitations that hurt at times, and the list goes on… I feel like I’m dying… and my neurologist seems to not give a damn… he sees me for 10 minutes, writes me a new med (which I refuse to take most) and sends me on my way… he doesn’t like explaining anything to me… I have a million questions and he just doesn’t listen… This sickness has ruined my life!!! My life, my children’s life… and my poor husband has to do everything for us, because I’m bound to this house by this disease, or whatever it may be… I’ve seriously contemplated suicide a million times, but I could never do that to my family… I just hate suffering and not getting answers… :'( I do have an appointment with a new doctor on Jan 10th and I’m going to suggest all the tests recommended for BII… My husband and I have come to the conclusion that either way, if tests say I am contaminated or not, that we will have them removed to see if there is any improvement… which they’re due to be changed out anyway… I’m just ready to be me again!!! Ready to not be sick and in pain every day…

    Reply
    1. Kym R

      Wow, I feel like I could’ve written that. I have just about everything you have mentioned and very similar experiences with the MD. I have silicone implants and I am hoping to have them removed within four weeks. Best of luck to you, I hope you find health and happiness soon.

      Reply
  66. Danielle Valoras

    Nicole,
    I have been seeing a structural massage therapist that has seen / worked on many women with breast implants and he often finds that they have similar (negative) symptoms. He would like to talk with someone so he can further formulate his findings – gain more understand and ideally get published and bring awareness to the breast implant community.
    Would you be willing to talk with him and/or provide contact information to some one he can reach out too.
    I look forward to your reply.
    Kind regards
    Danielle Valoras
    His name is Tom Archer

    Reply
  67. Sarah

    I have had my implants in for about 12 years now. About 10 years ago I was diagnosed with Crohn’s disease. I feel weak a lot. I also have battled tiredness and also terrible spurts of insomnia. I always thought these symptoms were from my Crohn’s.
    I’ve had friends tell me my symptoms sound like breast implant illness but I don’t want to believe it. Is it possible my implants gave me Crohn’s disease or that the doctors misdiagnosed me?

    Reply
  68. Florence Dellapenta

    My silicon implants burst after 16 years; I waited about 2 years to have them removed. I had been experiencing severe joint pain all over my body. I had the burst implants removed and the joint pain I had been experience was totally gone. The surgeon told me he thinks he got all the silicon out of my body. He also replaced the implants with saline implants which are still in my body today but were deflated since then at my request. About 5 years later I noticed a fatty mass on my upper chest below the collar bone. I had it looked at and the surgeon told me it was just a fatty mass and he recommended not removing it. Since then, I have been experiencing severe joint pain again for the past two years. I had been told it was arthritis. I had a mammogram that was diagnosed as such “possibly residual silicon as a result of my bursted silicon implants.” That was it. On Jan 3, 2016 I am having another mammogram and will ask the doctor about my concern that this is in fact displaced silicon and is the reason I am experiencing such severe joint pain as I did years before. I will let you know what comes of this. Hopefully I can have the residual silicon removed from my body and my pain will go away as before. Stay posted. Any comments or suggestions would be appreciated.

    Reply
  69. taylor

    OBAMA CARE caused me to loose my insurance ( didnt mean to shock you! ) i had a wealthy boyfriend/ politician who had a “thing” for big boobs…lets just say he put a lot of miles on them in a short period of time. Well…one leaked completely….bet you cant guess what happened next? 1) he slowly became distant and 2) its been 6 months of misery…physical mostly. Im scared, my mom is dieing and doesnt care if i go with her to say the least and i have no resources..Sure…i understand responsibility and living with choices but I still have the right to be angry, bitter, scared, and disappointed. I have been researching and asking questions hoping for a miracle but nothing. If anyone that reads this has had any luck with this issue please share. Would the e.r. take them out???

    Reply
    1. Kym R

      As an E.R nurse, I can tell you with certainty that they will not remove implants in the E.R.
      As Nicole, has stated you want the explanation done correctly and by a surgeon with explanation experience.

      Reply
  70. Leslie

    Hello,
    I have had saline implants for just over ten years, and have been gradually thinking more and more about removal. I am having pain around and under my breasts daily, not severe, but strange and disconcerting. It’s difficult or impossible to find a locus for the pains, but I suspect my implants.

    I want to see a surgeon for a consult about my options. Like someone else said, I can’t imagine going back to life as a flat chested woman. I went from a AA to a full C, and it completely changed my life. Finally, I looked normal, felt like a real woman, and didn’t feel insecure and inferior. I would love to know if there are any safe ways to augment the breasts. I never cared whether they were large (in fact I chose the size I did partly because I was pressured by the surgeon. I wanted to be a full A or a B cup, like I was while breastfeeding).

    Anyway, I’m just getting started researching. I would join the fb group but I wouldn’t want my friends to see that… it doesn’t appear to be a private group, just closed.

    Thanks for listening.

    Reply
    1. admin Post author

      Hi Leslie,
      All posts and communications of the group are private and only seen by members of the group. Fat transfer seems to be the safest option but even it is not without risks. Nicole

      Reply
    2. Kirsteen

      Hi I’ve just started researching breast implant illness, my health also has been deteriorating. I have had mine for 7 years. It never crossed my mind that implants could be causing all these symptoms. Morning stiffness, achey joints pain in the left side of my back daily. I feel like an old woman and convinced I’m delevoping some sort of disease. Heavy chest in the morning shortness of breath, palpitations I could go on and on! I also went from an A to C cup and can’t imagine having them out let alone the cost. It is really frightening all this information but also a relief that this is possibly the cause of all these symptoms

      Reply
  71. Marie

    I had implants placed and after 3 months started to develop horrible panic anxiety, fatigue, dizzy/lightheaded, general unwell feeling. I was hospitalized at which time they found thyroid nodules small no need for treatment, and extremely low cortisol levels. I explanted 3.5 months after having them implanted and still haven’t paid that bill off and could not find anyone locally who would willingly remove the capsule due to risk of complications like bleeding and having such little breast tissue, side note I also developed capsular contracture stage 4 in one breast. With such a short time in the body will I still end up needing more surgery to ever get better again?!! Doctors do not think the implants caused this however this is the only change and deep down I know this is what it was!

    Reply
    1. admin Post author

      Hi Marie,
      Likely not so much capsule tissue was built up that it would not dissapate on it’s own so give yourself some time to recover from the surgery, detox and heal. You should recover without additional surgery but if you do not after approx six months, write me back. Nicole

      Reply
  72. Laura

    Hi I had a breast implant 1 year ago. My eyesight has deteriorated. I now have to wear glasses. I also ocassionally have migrains and itchyness all over my body which is like an allergy. Could this be cause by my implants.

    Reply
    1. admin Post author

      Hi Laura,
      Yes, those can be symptoms of breast implant illness. Many ladies with bii have a decline in vision, headaches and all over itchiness plus other symptoms as listed on the Symptom page of this website. Nicole

      Reply
  73. Sarah Chiling

    I have saline implants for 9 years . My symptoms started 4 years ago constant fatigue, my lymph node hurt on one side of my neck. I went to all kinds of doctors and they did all kinds of tests first they thought I have autoimmune disease then they said I don’t after so many other tests. But my titer was coming in high they thought I had lupus then rules out I don’t. I have been to a hand full of doctors and they can’t diagnose me. Now I get pain under my armpits, overall weakness, stiff muscles, lower back pain and immflamation always show ups on my blood works. I just had a mammogram they found a lymph node on one of my breast but after additional ultra sound and repeat mammogram they said I am cleared for the year. I still have all these symptoms that either mimick lymphoma, fibermayalgia, and autoimmune disease. I am so scared that I have something seriously wrong with me. I want to do a mold test and my doctor reffered me to an allergist. This is my last resort. The thing is my lymph nodes are not swollen but they hurt lasting 2-3 days with those other Symptoms and it goes away. Then it comes back and forth. Can you please refer me to an good explanat doctor Please. I live in the Los Angeles area. I had my implants done in Glendale CA.

    Reply
    1. admin Post author

      Hi Sarah,
      Please see the Explant Surgeons list on this website for a list of surgeons known to remove implants properly. Nicole

      Reply
  74. Katherine

    I had my first implant surgery in 2005 and had to have them removed in 2012 because they had become completely encapsulated. The doctor assured me that that did happen from time to time but was nothing to worry about and recommended that we swap the old implants out for new ones. So now I am on my second set of implants which were NOT supposed to become encapsulated but have. Not only that but I have been able to extract a sticky brown substance from my right nipple, both breasts are starting to feel itchy, I have chronic joint and back pain, fatigue, depression, my hair has recently started falling out, I have chronic bladder irritation which is not an infection, hypo thyroidism and I am seriously worried about my memory and brain fog. I have not wanted to think about removing my implants because I was always completely flat chested and hate the thought of going back to that. I need some moral support which is why I decided to leave a comment. : (

    Reply
  75. Andrea

    Hello! I originally had saline implants put in back in 2000. Then in Dec 2014 I had them replaced with silicone implants. Prior to the silicone I had dizziness and headaches. Since the silicone I still have the other supmptoms but I’ve been having joint pain, muscle pain aching pain in my arms, hands, shoulders and neck. I just don’t feel well all the time. I’m tired constantly. I get sharp pains in my breasts too. Ive had all kinds of testing done and my ANA came up positive and they thought I had lupus but it came back negative. I’m scared and not 100% it’s my implants but what are your thoughts? ?

    Reply
  76. Kristi

    Hi Nicole,

    I had BA in April 2014 by Dr. Whidden in Calgary. I saw Dr. Whidden about explant last week and he insists it is not necessary. I told him I am going to meet with Dr. Sinclair in Canmore and Dr. Whidden suggested he won’t be able to get 100% of the capsules out and I’m putting myself at higher risk by doing that. I am so confused/worried/drained. Please help.
    Thank you for this wonderful site.

    Reply
    1. admin Post author

      Hi Kristi,
      Most placing plastic surgeons will refuse to take out implants they placed because doing so is an admission that they are causing problems for you and it infers liability on them. Most of us have to find another surgeon to remove our implants properly which means En Bloc Total Capsulectomy. I am not impressed with Dr. Sinclair lately, he is leaving too much capsule in ladies. I am thinking I will remove him from the Explant Surgeon list. I assure you that the greatest risk to your health and life is leaving those toxic bags inside of you. Get them out now, properly before the do too much more damage. I left mine in for seven years, I had three pages of symptoms and was diagnosed with two autoimmune diseases and was bedridden. I wish I had taken mine out after a few years. I explanted in 2013 and it has taken me just about four years to regain my health back. Some of us have permanent damage too. Nicole

      Reply
  77. andrea monotya

    Please comment on breast MRI’s that show no gross leakage from the implant? Do you still think there is micro leakage?
    What metals do you think are released?

    Thank you very much!!

    Reply
    1. admin Post author

      Hi Andrea,
      Yes MRI’s, mammogram and ultrasound all miss the microscopic sweating/bleeding that occurs from very early on from silicone and saline breast implants. We always suggest to pass on the mammograms which are well known to rupture implants and spread silicone through the body. We suggest to pass on the gandolinium contrast that is used in MRI’s as it is a real toxicity for us. Ultrasound and Thermography appears to be the safest radiology for us however it regularly misses that actual leaking and ruptures that occur in breast implants. If you are symptomatic just have them properly removed. Various metals are used in breast implants, platinum and tin are two known ones but the recipes contain all sorts of metals. Have a hairtest that shows metals and see what comes up. Nicole

      Reply
  78. Claire Meredith

    Please send me the information I need to get the right explant done. Ive flt concerned for some time now that its he implant causing my increasingly poor health asI’m getting sicker even though im looking after myself better. Thankyou for starting this page.
    Warm regards
    Claire Meredith

    Reply
    1. admin Post author

      Hi Rene,
      I know an organization that is working on a study and I know a facebook group too. The organization Birth Defect Research for Children Inc is collecting data on disabilities that may be related to breast implants through an ongoing research project, The National Birth Defect Registry. To contact them go to http://www. birthdefects.org. Also there is a facebook group that I sent your info too and they will reach out to you. Thank you for all you are doing in regard to kids affected by toxic breast implants. Nicole

      Reply
    1. admin Post author

      Hi Heather
      Look on the Explant Surgeon list on this website, you will see Dr FN Schutte of Netcare Hospital in Sunward Park, Boksburg, South Africa. Nicole

      Reply
  79. M

    Has anyone been to doctor Eileen Black in Metairie, la for there explant? I have been having symptoms for three years seeing multiply doctors but all say I am extremely healthy all blood work perfect. After doing research I now know it has to be the silicone cohesive gel implants I have. I went to see my PS who put them in and he says that they do not cause problem and he will only remove them not do enbloc. I have made a appointment to see Dr. Black hoping she believes this does cause problems and will remove them the proper way. Wanted to get some advise and also see if anyone knows any PS in New Orleans area who believes women can get silicone sickness and has experience doing explant properly.
    Thanks M

    Reply
    1. admin Post author

      Hi M,
      I think Dr. Eileen Black is a very good choice in a surgeon for explanting. She is very knowledgeable about breast implant illness and explants properly and tests for possible microorganisms. Nicole

      Reply
      1. michelle

        Thank you very much Nicole! I am looking forward to my consult with her ,as well as having my implants removed and praying that I will feel better.
        Thanks, M

        Reply
      2. M

        Hi Nicole,
        I had my consult with Dr. Black and felt so much relief she is very knowledgeable about breast implants illness. I am looking forward to getting the ok from my primary care physician so I can have my Explant. One question I have is the nurse from my pcp called me with my last lab results of my thyroid it show I now have a Normal TSH 1.33 but Low Free T3 1.2 could the implants be the cause?? I have had multiply thyroid test done this year all were normal until now. Any information regarding this would be greatly appreciated.
        Thank You, M

        Reply
        1. admin Post author

          Hi M,
          Yes, several of us suffer from thyroid T3/T4 conversion problems. Get a full thyroid panel done by someone that understand how to treat thyroid. Nicole

          Reply
          1. M

            Thank you for everything !!! I explanted yesterday with Dr. Eileen Black in Louisiana and everything went well she is a amazing doctor. I already feel better just very sore which is normal. She did proper removal. I am so happy to have them out and everything looks good!! Now ready for my journey to heal.
            Thanks M

  80. Cindy

    Hello! First, I would like to thank everybody that has shared their stories. I was nearing rock bottom when I stumbled upon this site and reading about all of your life experiences with implants was quite comforting, to say the least. I have been told that my concerns with my implants is unfounded and that there is absolutely no connection with them and any of the symptoms that I have been experience. Chalk it up to timing, they say…coincidence, perhaps!?

    Here is part of my story… I had my first augmentation in the late 90’s after several bouts with mastitis while tandem breast feeding my daughters. I was reassured that the saline implants that were to be used, “were perfectly safe” and that there were very few complications that could occur. Around 2000, one of my implants ruptured and I became physically ill, vomiting a black substance for a few days. I made an appointment with my surgeon and he informed me that the very best thing to do would be to replace the implant and that he did not think that my vomiting episodes had anything to do with the implant and blew it off.

    I hesitant, but scheduled the replacement surgery. After this surgery, while I was still waking up, the PS told the person that brought me that he had found a large amount of a yellow substance in my breast tissue and cleaned some of that out, but all was good because he made my breasts even larger than before (which I had stressed that I really did not want since the size I had now sometimes seemed to large for my neck and shoulder to support). When I woke up, the PS told me about this mysterious yellow substance as well. After my surgery, I seem to be sick all of the time and completely exhausted. I continued to question my PS and General doctor about the implant that ruptured inside of me, since that seemed to be a changing point in my life, at least as far as my health was concerned. The answer always seemed to be the same, “you had saline implants and there is nothing in a saline implant that could have possibly caused any of your issues”. Since the time of my implant rupture, I have been extremely ill. I have spent numerous days and hours with doctors and specialists who can’t seem to explain what is wrong ith me. I have since been diagnosed or developed vertigo, heart palpations, macrocytosis, sinus disease, bowel and stomache issues, trouble swallowing, pains throughout my arms, chest, and legs, low grade fevers, migrane headaches, blood pressure changes, enlarged and painful lymph nodes, irregular and erratic menstrual cycles, Joint and bone issues, vitamin deficiencies, my hair falling out, and nightsweats (to name a few). I have been tested numerous times for Thyroid Issues, Auto-Immune Dieases, Lyme Disease, TB, HIV, Kidney and Liver Function issues. blood disorders, leukemia, cancer, etc. I have had CT scans, MRI’s. Ultrasounds,and even removed part of my reproductive system. Gallons of blood have been removed and tested! I have now, in the past few years developed capsular contracture and these hard bands that run from the middle of one of my breast all the way up to my throat and under my arm…this band is VERY noticeable and extremely painful. My PS told me thata he has never seen this before and recommended yet, another replacement surgery and the use of silicone implants this time. He proceeded to tell me that the band on my chest was very noticeable and NOT very attractive! I told him that I was not concerned about my body cosmetically, I was cond=cerned about my health and needed to live and wanted the implants out…I am a single mom with 3 daughters and I am the only person that my girls have in this world…his comment completely rubbed me the wrong way! I used to be a very active person and have worked in the construction industry for years. I had to leave my job a few years ago, due to mobility issues and not being able to lift or put my hands above my head. I have now been trying my best to sell anything I possibly can to raise the money to have explant surgery. I have gotten quite a bit of slack about deciding to go with explant surgery and opting out of having the implants replaced. My apologies for this book, but your stories, have truly made me feel that there might actually be a glimmer of hope, afterall! Thank You~

    Reply
  81. Aubrey

    Hello Nicole,
    I am the office manager at Tarola Plastic Surgery, and we have had several patients contact us due to your site so thank you for listing Dr. Tarola as an explant surgeon. For accuracy purposes, our fees are closer to $5,000 rather than $6,500 like you have listed for removal of implants/capsulectomy. Of course, it is time dependent, and every case is different. However, $5,000 is the median cost.

    Thank you for your time!
    Aubrey Preston

    Reply
    1. Cindy

      Aubrey,
      Is this price for an En Bloc Explant? I am desperately looking for a highly recommended surgeon anywhere near NC. I cannot seem to find many PS’s that actually believe that BII exists or that can remove my implants using the En Bloc Method.

      Reply
  82. Cecilia Hernandez

    I have mentor breast implants and since I had them notice a number of symptoms like dizziness palpitations panick attacks and don’t know why. I have gone to the ER several times primery doctor and no answer I don’t have the money to get another surgery since they where a gift from my husband which was aginst my dissition at that time don’t know what other step to take

    Reply
  83. Angie Blake

    Hi Nicole, I’ve been trying to join your FB group but have not yet been accepted. I’m planning on having my salines removed within the next few months (hopefully no later than January), but need recommendations on en bloc surgeons in northern Virginia/Maryland/DC area, or in West Tennessee (Jackson or Memphis area). I also have questions about if others have total body numbness from their implants like I have experienced for 3 years now. 26 specialists couldn’t figure out the cause, expect that it could be from Lyme. After 1 year of Lyme treatment, the numbness has not improved, and I suspect it is he implants. I really need to join the FB group to discuss and learn. I’ve joined other FB explant related groups, but they are not as good as yours according to some people. Please let me know what I need to do to be accepted. Thank you very much!

    Reply
    1. admin Post author

      Hi Angie,
      The only reason that you would turned down is because your facebook profile is too sparse to prove who you are. We look for profiles that have been in existence for years, have pics of yourself and family and that you have friends. All of that proves to us that you are who your facebook says you are and we will let you in. Nicole

      Reply
    2. Felicia

      my surgeon is in Richmond Va, name is Dr DeWire. He is amazing. Not sure if its allowed to recommend a doctor here, just found this site, but he has a full LARGE website

      Reply
      1. Kelly Sherman

        Hi Felicia, Dr. DeWire did my Transax Saline implants 3 years ago. Did he do an explantation for you? Does he believe in BII? I don’t think I would go back to him for this, but I was happy with my outcome before I became so ill.

        Thanks, I’m looking for any info! Just found this group.

        Reply
  84. Sally

    At this very moment I am in hospital on heavy duty antibiotics. I’ve been here 5 days with no end in sight.
    For months I felt unwell, dizziness, fatigue, aches, pains, overall just BLAGH.
    My augmentation was rather unplanned.ill break it down;
    1.Breast cancer
    1a. Mastectomy
    2. Chemotherapy
    3. Radiation
    4. Breast reconstruction.
    All of this took 5 years. I thought I could at last put it all behind me; Finally! But no. My breast implant is leaking and I’m confined in this darn hospital until God knows when.
    I’m not getting many explanations from from hospital staff. It is very much a ‘ wait and see’ ethos. I on the other hand can’t afford to take that approach. I want to start living again.
    What on earth do I do? My questioning is met with brick wall responses.

    Reply
    1. admin Post author

      Hi Sally,
      Many women are starting to explant their breast implants in order to clear up these infections and in order to regain their health. Inquire with your reconstruction surgeon about explanting you. Please ensure that you are explanted En Bloc/Total Capsulectomy to ensure your best recovery – all capsule tissue must be removed. If your reconstruction surgeon will not explant you, you may have to find another surgeon to do it. The body is not meant to have two bags of toxic chemicals in it. Nicole

      Reply
  85. Andrea Rose

    I am wanting to support my cousin who has recently joined by also joining your group. I myself have not had breast implants but think that there isn’t enough information for ladies wishing to have implants and the risks they aren’t told about, before having surgery! I hope this is ok!

    Reply
  86. Tina

    I had saline implants over 15 years ago they have been so awesome and I have absolutely no scar my surgeon was awesome for the past 10 years I have had a strong fatigue which seems to get worse daily it is so bad that I have no desire to do anything but sleep and I have insomnia too I have been to every doctor there possibly is and all tests have been negative I have spent 1000’s of dollars on energy fixes it has really affected my family especially my young children I never thought it might be my implants they are just water I went back to my surgeon for a checkup and he said they were beautiful so I am going to a breast surgeon next week she has said that she would replace them and since it was medically necessary my insurance will pay I have gone from a double a to a c cup and don’t know if I can have them totally removed for good what have other women done after haveing theirs removed

    Reply
    1. Felicia

      I am having a multitude of symptoms. Ive had my saline implants for approximately 16 years and I want mine replaced. I cant imagine having them removed totally. Just curious how its considered medically necessary for insurance to pay for it. I have great insurance and am hoping maybe mine can be seen as the same. My fatigue is so profound, I can barely function, the night sweats, just not feeling “right”, etc. Can you PLEASE tell me how insurance can view this as medically necessary? I am hoping to have mine replaced. I dont want larger, I just want healthy implants. Thanks.

      Reply
    2. Lisa

      I would have them removed and look into fat transfer where they liposuction fat from other parts of the body and put it in your breasts. It’s a much better solution

      Reply
  87. Flat & happy

    I had my explant surgery 5 days ago. Besides feeling a little sore and tired I feel good. I feel light and free.
    I can breathe deeply, I didn’t realize how constricted my breathing was before.
    I have noticed that my mild bladder problem seems to be gone! Pre explant I would go to the bathroom before getting in bed. Almost as soon as I would get comfortable I would feel like I needed to go again. I would get up and go, barely anything would come out. I drank plenty of water throughout the day, trying to make it better but it didn’t help. I also had occasional bladder leaks. Hopefully that is gone as well.
    My question is how were the implants effecting my bladder? I have read about this before but I can’t remember where. I am not on Facebook anymore. Thank you for your hard work!

    Reply
  88. Faye emordeno

    Where can n I find info. On how Bils effects the joints and why it causes deteriation in the joints hips, knees, shoulders , neck ect! I’ve been explanted and part of the group but I can’t remember where I read the info. On the joints

    Reply
    1. admin Post author

      Hi Faye,
      It must be in the files of the facebook group. I know that many of us get diagnosed with Nonspecific Connective Tissue Disease, RA and Fibro, their are many studies showing the link and these symptoms are even listed in some of the patient information that comes with implants. Nicole

      Reply
  89. grammie711

    I am looking to have my implants removed in Denver Colorado and am taking the steps to find an excellent surgeon specializing in explantation.
    I am 68 y/o and have had the implants since I was 35. They are making me Ill.
    Thank you!
    Sara

    Reply
    1. Em

      I can not recommend Dr. Linda Huang in Demver enough! I traveled from another state to have her do my explant. I just had it done August 30. She is amazing and an absolute expert. They even needed an additional hour to complete my surgery because she wasn’t satisfied with the results at the end of the estimated time and she stayed in there until it was finished which I know a lot of surgeons would not do. My results were unbelievable in a good way given how bad my breasts were before. I would go to her a thousand times over. She is the best. Also I heavily researched an interviewed surgeons all over the US for a month before I decided on her and I am so glad I did.

      Reply
  90. Bernadean Picard

    Good morning

    Just wondering why some doctors on this list are highly reccomended while others are only reccomended and some are not either? How do they qualify for recommendation on this list?

    Thanks
    Bernadean

    Reply
    1. admin Post author

      Hi Bernadean,
      In order to be on the list the doctors must be able to do En Bloc/ Total Capsulectomy explant of breast implants. Highly recommended means many ladies have recommended that doctor to me, recommended means some ladies and not recommended means that so far no one has recommended that doctor to me but the doctor is known to explant properly via other implant awareness sites. Nicole

      Reply
      1. Em

        I want to say I just explanted with Dr. Libda Huang in Denver on August 30 and she was amazing. I can’t believe how well my results turned out as I was a mess before. She could not have been better. She even stayed an extra hour in the OR because she wasn’t satisfied with the results after the estimated surgery time. I know a lot of other surgeons would not do that. She is a true artist in this work.

        Reply
  91. MIMI

    Hi Nicole my explant surgery was schedule for 9-29-16 but my PCP ordered a chest X ray when I went for my Pre-Op and came back with this results.
    The chest bilaterally demonstrates parenchymal infiltrates predominating on the left there appear to be multiple granulomatous appearing densities and bilateral increased interstitial lung markings with thickening of the horizontal fissure. There is relative sparing of the apices bilaterally.

    So my PCP is referring me to a lung specialist . What is your advice ? Nicole
    this is adding stress on top of stress, the PLS Postpone the surgery till I get clearance from my PCP
    I’m scare that I will not get clear for surgery I know that what ever is in my chest and lung is been caused by the breast implants , BUT…. and this is a big BUT…. this DR’s are not connecting the dots
    Please let me know what you think I can’t eat or sleep is like a bad dream
    Thank You

    Reply
  92. Amanda Walczak

    I’m not on Facebook and am an RN with many breast implant illness symptoms. I just flew to Cleveland Clinic and MS was ruled out. I have an appointment tomorrow back in Florida with a PS to discuss explantation. I’d love to speak to someone (Nicole). Thank you for creating the page to help others.

    Reply
  93. Elizzabeth

    Hi, I got my implants silicone under the muscle not sure that makes a difference? In 2008… I’m actually very upset with my RA dr. He signed off that I could have this surgery and I all ready had RA and I’V treatment every 30 days it was so bad. Knowing silicone immune diseases I don’t understand how a Dr does this? I did not know this until I found this site. I started researching when my husband came to me and said I think your implants are why your so sick. I pretty much have been sick most of my life with different issues had RA and FMS B4 surgery, had hysterectomy at 26 and 4 sinus surgerys hand surgery and 3 feet surgerys for RA issues. My ovaries and ependix out. But by 2009 I was even more ill I starting losing weight was down to 80lbs my IBS became so bad I would go 40 to 60 days with out going to the bathroom. I have terrible CFS , insomnia,depression, had to have my sinuses reconstructed. Got blood on the brain and lost almost all the spinal fluid out of my spine had a spinal head ache for 4 months. None of my RA treatments were working anymore the pain and flares are out of control so in 2011 had to start pain managment. In 2012 I lost my large intestines and have a ileostomy my colon just died. My back is deteriating and herniated and bulging disc they placed a spinal stimulator in 2014 but my body rejected it litterly it was protruding out my back and I had emergency surgery my spine as infected in 3 places and I had to have I’V antibiotics for 4 months at home. I keep going down hill day by day I have logs and pictures of the flares . In 2015 I started with hives all over one day I woke up and my whole body was covered eyes and tongue so swollen I couldn’t swollen went to ER was kept over night. They sent me to allergist and I was given tons off needles to check NO allergies no reason for Chronic hives so they just call it CHS… I’m on 2 prescription drugs and one over the counter for the hives. In April I fell and couldn’t breath a few days later went to the ER and my lungs were filled with blood clots and pneumonia. I also get infections over and over sinus, strep, UTIS kidney infections.
    My flares in my joints which they always call RA flares are 4 to 7 times a week. I either can’t walk can’t use my hands or my elbows or my back no matter what parts of my body are swollen ,red and very very painful and 99% of the time I did nothing because I can’t do anything if I even cook dinner I can’t move the next day. I have wanted to kill my self for the past 2 years but I have 2 son’s one 26 and one 14 and a husband of 28 years, but I have NO life at all and I am just making my family’s life miserable every day. I can’t have sex with my husband because not only does it hurt my whole body but my cervix closes up almost like it’s in flamed to . I can’t do this much longer and I’m not sure removing my implants will help?? I’m terrified I will have them removed and nothing will change and then I will take my life and my family will suffer, I don’t want that pain for my family we have had 2 suicides in 10 years in our family. I had my surgery because all I had was skin I didn’t have it just to be bigger. How do you go from 8 years of having breast back to just skin? Do they fix you or just so you up and leave you? Please anyone who can help in anyway at all I tried to join the support group on FB but it didn’t go through. I’m so lost so depressed I don’t know own what to do anymore.
    Another thing is I live in MD I noticed the surgeons listed don’t say they are extraction surgeons they just say surgeons 🙁 also one works with my plastic surgeon and I know my surgeon does not believe they hurt you. Also if there is no way for me to detox the poison there is no help for me no hope. And can some one please tell me what the talk Bouton the mercury fillings is ?? What do they have to do with this and how do we know if we have any?
    Thank you

    Reply
  94. Adri

    Pls Everyone I need help! Silicone Breast Implants done in 2009. R breast pain, swelling along with hair loss and very heavy menstrual period. An MRI WITH and without contrast was ordered.. The contrast gave me horrible side effects Headache numbness in my head that travels around my body, my vision is becoming blurred, and I can’t function.. I am not my self.. pls help.. my plastic surgeon is saying she has never had any patients with those symptoms… really? none of them never have any kind of pain or swelling? Also she said that the capsule is not always possible to be removed.
    want to remove them asap. I live in New Jersey
    Thanks so much
    God Bless all of you

    Reply
    1. admin Post author

      Hi Adri,
      You have gandolinium toxicity from the contrast. Contrast is very contraindicated for ladies with implants and even after they are explanted, as we cannot detox the gandolinium like healthy people. I am so sorry you were toxed, please try and find a doctor to help you detox gandolinium. And find another plastic surgeon that is committed to removing all capsule tissue when you explant, you implants are silicone and so your explant should be En Bloc/Total Capsulectomy. Nicole

      Reply
  95. Patricia McHugh

    I’m hoping to help a friend who needs explant surgery. Can you recommend a surgeon in Sacramento, California? Or San Francisco? Or Northern California? Thank you

    Reply
  96. Debra Nickerson

    Hi, I had breast cancer in 2010. Double mastectomy. Reconstruction. I live in Red Deer Alberta. Can you recommended a Dr in Edmonton or Calgary . Thank you.

    Reply
  97. yvonne

    Hi Nicole my name is Yvonne and I need your help on how to begin explant process
    I have saline breast implants by naturalle for 6 years. I am so sick and know they have to get out
    or I am gonna dye. Please help me thx Yvonne

    Reply
    1. admin Post author

      Hi Yvonne,
      The first real step is to find a PS that removes implants properly which means En Bloc/Total Capsulectomy. On this website is a list of Explant Surgeons that are known to remove implants properly. Nicole

      Reply
  98. Karen

    Hi there
    Is there an actual forum for the where ladies can talk to each other please?
    I have a ruptured silicone implant that I believe gas been leaking for possibly 5 of the 7 years I’ve had them and I’ve just learned that it is now in my lymph nodes and I need them out ASAP.
    I have complications due to a recent medication reaction that has made me extremely ill so I actually cannot take any anti fungals or anti biotics at the moment. Infact the only drug that I can have is the propofol to put me to sleep 🙁
    I am guessing it will still be worth having them out though even though I can’t take these other meds ?
    Also I am going to have an uplift- can anyone pls tell me if I will be able to bare the pain without many or any pain meds pls?
    I’m also allergic to local anaesthetic so again I won’t be numb when I come around:(
    Thank you very much for any comments .

    Reply
    1. admin Post author

      Hi Karen,
      Yes the forum is a facebook group called Breast Implant Illness and Healing By Nicole. Please come to the facebook group where we will coach you one on one. Nicole

      Reply
      1. Sue

        Hi, I have a question about joining the Facebook page please. Will my friends be able to see that I am a member of this page? I know that I’m not supposed to feel ashamed of my surgery but I would prefer not to have it known so publicly so thought I should check to see if it will show up in my liked groups list. Thanks

        Reply
        1. admin Post author

          Hi Sue,
          The facebook group is closed so your friends on facebook will not see that you are a member and they will not see your interactions in the group. You will see the posts of the group on your newsfeed but your friends will not see them. Nicole

          Reply
    2. Em

      Ask for a long lasting local injected while you are still under and following finishing surgery. I used this and all I needed was Tylenol and an occasional Valium to sleep for the first 4 days. This what I did and I was sore but very beatable. I can’t use narcotica because I become extremely ill. I had an explant lift and fat transfer so I had a lot done and this pain management strategy worked wonderfully.

      Reply
  99. MIMI

    Hi! I’m a 69 year old woman who is in need of a Explant surgery yesterday i founded your site by calling Dr Feng office in OH.
    And for the past week all I done is research and read reviews about PS’S in my area found 3 PS that more or less have a good background so…… yesterday was my first consultation with one of the PS
    Not too make it too long and pain full, but let me start with this THE MAN defended silicone implants as well as saline, said that the capsule if… is left inside will not cause any harm that with time it will dissolve in the body , during the course of the consultation became aggressive,defensive and argue with me. I had 22 Q’S for him i was prepared…. AND FLAT OUT HE TOOL ME he was not going to answer 22 Q’S for me

    When i got home i was very upset and depress to hear this PS talking this way about such a sensitive subject to a woman like that he is completely disconnected’ i think it took him by surprise he was not ready for me
    I have another consultation tomorrow i need the surgery very soon, having pain inflammation on my left breast feeling like i’m going to get the flu but i don’t my ears are hurting me and more….. the PS from yesterday toll me he will charge 4300. dollars ,is this a good price ? Please let me know

    I don’t have the money for this surgery i have a fix income if you know of any organisation that can help with finance will help me a great deal.

    I really like this site and thank you for helping women find the truth about breast implant illness, now i know the POISON INSIDE OF ME !!!!

    Thank You!!!!

    Reply
  100. Kristin Devine

    I’m new to the “Breast Implant Healing & Illness by Nicole” on FB. I want to ask the group for advice about my illness, but I don’t want my FB friends or family to see my comments, since they do not know I have implants. Is there a way to ask the group questions w/o my FB friends seeing my comments on your fb page. I desperately need help & am really sick. Thank you!

    Reply
    1. admin Post author

      Hi Kristin,
      The facebook group is closed which means that your friends on facebook will not see your posts or comments in the group. You will see the information from the group in your feed, but your facebook friends will not. Nicole

      Reply
  101. Caroline

    Hi!
    Thank you for this website. Do you know the prices for European doctors? Also when you write “recommended”, what is it based on?
    Thanks
    Caroline

    Reply
    1. admin Post author

      Hi Caroline,
      No I don’t know the prices of explant in Europe however, I will add them if they are shared with me. Recommended means that ladies have recommended their surgeon to me to add to the list. Nicole

      Reply
  102. Ellen Reynolds

    Just wondering how long ago this was written.
    I need to have mine taken out because I’ve been sick for years
    and suspected the implants and no one will listen to me about it,
    meaning the Dr’s. I have never been able to afford to have this
    done and wanted to know if the $5,000.00 was a total bill.
    Thank you,
    Ellen

    Reply
  103. Ann

    So in regards to Mercury fillings …I have one ….does it need to be removed first or can it be done have explanation surgery?

    Reply
    1. admin Post author

      Hi Ann,
      You can remove your one mercury filling after your explant, make sure you go to a dentist that is knowledgeable about the proper protocols for removing mercury safely from your mouth and follows them. Nicole

      Reply
  104. Samantha

    I have breast cancer and i have been treating it for the past 2 years. I went for different therapy sessions, took different drugs but there was no cure . Until i contacted a doctor that treats cancer and he sent me cannabis oil (marijuana) and gave me instructions on how to use it, and after a few months of usage the lump in the my breasts dissolved completely and vanshed . You can reach him via email on davidcancertreatment@gmail.com

    Reply
  105. Diana

    I am sick and tired everyday can barely get out of bed. Went to a naturopath and after doing testing was told my body is toxic with what would amount to soaking in a tub with pesticides. Have no $$$ to have explanted, any info on resources ? Thank you????????

    Reply
  106. K

    My mother needs explant surgery as well as Mercury filings removed. She is having the Mercury fillings removed (correctly) first. How long should she wait to schedule the explant surgery? Can she do the surgery 2 weeks later or will that send her into too much of a detox? Thank you!

    Reply
    1. admin Post author

      Hi K,
      As long as her mercury fillings are removed properly and without contaminating her with more mercury, it should be okay to remove her breast implants two weeks after. Her explant should be En Bloc/Total Capsulectomy, please ensure that all capsule tissue is removed. Nicole

      Reply
  107. Lisa S.

    Hi, I am 54 years old and have had my saline implants for 20 years…they look great (although a little bigger than i wanted) and no problems. I have many of the symptoms listed on this site, but never believed they could be from my implants…I just thought I was getting older and going through menopause. How can you tell the difference?
    I have terrible back pain with degenerative changes due to age, spinal stenosis, etc. and thought that maybe my implants could be aggravating that. So I had a consultation today with my original plastic surgeon that placed them. He said he would remove them but only remove the anterior capsule. He also said I would not need a lift, which I am happy about. All seems good, but I am having trouble making this decision….
    I am afraid that I won’t see any change in my physical symptoms and be sorry I have two empty, droopy sacs on my chest! What should I do? I could potentially have the surgery on Aug. 18th. Please help!

    Reply
    1. admin Post author

      Hi Lisa,
      You likely won’t see any change in your symptoms if you do not ensure that all the capsule tissue is removed along with your implants. Nicole

      Reply
      1. sarah

        I’m just curious because I am trying to make the decision on how to best get my implants out but how do you know for a fact that removing capsule enbloc is the ONLY way to relieve BII. There are only a handful of Dr’s that are claiming this. I’m not disvaluing what you say I’m just trying to find hard evidence that pores this is so. I have smooth saline 13 year old implants.

        Reply
        1. admin Post author

          Hi Sarah,
          There is lots of information available as to why capsules need to be removed for your highest and best recovery. I will send you some via email. Nicole

          Reply
  108. Gloria

    I call the plastic surgeon that did the silicon surgery 9 yrs ago and explain the systoms look into my file and mention the surgeon could not do the removal because he no longer remove implants that I had to find other surgeon. Any recommendations plastic surgeon.

    Reply
    1. admin Post author

      Hi Gloria,
      Please see the Explant Surgeon list on this website for a long list of plastic surgeons known to remove breast implants properly. Nicole

      Reply
  109. Michele Amos

    breast implants cause endocrine and immune system dysfunction….

    Do they cause Hashimoto’s disease?

    Reply
  110. morgan austin

    Any recommendation on a good explant surgeon in Lincoln or Omaha, NE? thank you for all your work and information.

    Reply
    1. Em

      Hi Morgan,
      I also live in this area and I am going to Denver to Dr. Huang. That was the closest expert in en bloc I found and she does a ton of these and has for years. Wishing you the best!

      Reply
      1. Taylor

        Hi Em, wondering if you have gone to see Dr Huang yet? I live in Colorado and want to get an explanation due to all the pain and illness i am certain is from my silicon implants. I’m very scared and wanted to see what you thought of her. Thanks, Taylor

        Reply
  111. Angie

    If your PS will not take your implants out and insists on replacing them, WALK OUT! You are not with the right surgeon!!!
    Explant surgery with fat transfer on August 9. I had a bilateral mastectomy in 2004 with silicone implants… First rupture in 2009-replaced them and now feels as if there may be another. I am very sick and praying that this is the answer, IT JUST HAS TO BE!

    Reply
    1. Eva

      How was your surgery? Do you feel better? I had mine put in 2007 due to double mastectomy and wondered how it was to take them out and do fat transfer instead.

      Reply
  112. mOLLY

    I had some breast work done and I used the Dr Max Powers Scar Serum on one breast and the scar treatment they gave me at the doctor’s office on the other breast. The Dr Max Powers Scar Serum worked so much better I wish i would have used it on both sides now!!! I didn’t use it on both sides because I didn’t know what the reaction would be on an semi open wound ( stiches). I am using it now however and it is working…but its taking much longer to fade the scar.

    Reply
  113. Vicki

    I had my Breast Implants inserted in 1986. My left Breast Implant ruptured in 1994, and I immediately went into Adrenal Exhaustion due to the Silicone going throughout my entire body! I was truly in a “Life Threatening” situation after my left Breast Implant ruptured! I had both of my Breast Implants removed after my left Breast Implant ruptured and did not get another set of Breast Implants!

    I have been working with Alternative Medical Doctors since 1987 trying to remove the Silicone from my body which has saved my life! I would like to connect with other women who have had their Breast Implants removed and are using Alternative Medicine to heal.

    My e-mail address is azcelene@gmail.com

    Thanks!

    Vicki

    Reply
  114. Vicki

    Just diagnosed with leakage of very old silicone implants. Wanting to hear about any recent experiences with Florida surgeons as soon as possible. Greatly appreciate this website.
    Thank you.

    Reply
  115. Lili Kramer

    Thank You Nicole and Ladies for opening up this Web site, which is long over due. I am in this Dow Chemical Law Suit for over 20 years now, when Big Money Corporations has a Law suit pending, the breast implant victim could and does pass away before she sees any compensation for her inflicted injuries…which are atributed to numerous diseases and health problems. It will be interesting to hear from the thousands of women being put on hold, involved with this Dow Chemical lawsuit and their health problems and sacrifices in their lifestyle from toxic implants. I have acquired PLS, a pre ALS condition from having a saline implant in my left breast after a Cancer scare, Family history of breast cancers instigated this “scare” which Dr’s suggested a mastectomy, after surgery, mass was found to be benign Yes most Dr’s won’t enter into treatment or give a healing plan, or even sign a diagnosis pertaining to implants causing their health problem..For fear of losing their license. AMA…. and Big Pharma does control how LIFE is lived with the nation. To survive Women have to be assertive and persistent in their healing program… Lili from San Diego, Ca.

    Reply
    1. BETTY F. LEET

      You need to get them as much bad publicity as possible. That will hit them in their deep pockets too. And…it makes them want to settle a bit faster.

      Reply
  116. lili

    Hi Nicole, I am in a dilemma, I have two implants of silicone, inner legs thighs 2004, and BI 2005, I heard a lot of breast explanation and I happy to learn about it which is great!! I will persue to do soon. I urge to explant both they bother me a lot . how difficul is the leg ecplantatoon ad what type of surgeon should perform the leg surgery? i am sorry I do not know who to ask, Thanks for your answer.

    Reply
    1. admin Post author

      Hi Lili,
      I assume, a plastic surgeon implanted the leg implants too and should be able to remove them as well. Please ensure that any capsule tissue is removed from the legs as well. Nicole

      Reply
  117. Roxanna spencer

    Does all this information pertain to saline as well? I have had implants for over 30 years. The right one shifted upward about 5 months ago, and now, just 2 days ago, the right one has either ruptured or has deteriorated bc I have quite a bit of a light yellowish sticky substance coming out. My daughter is coming now to take me to er. Is this where I should go? I’m in houston Texas.

    Reply
    1. admin Post author

      Hi Roxanna,
      Yes, all this applies to saline implants as well. The shell of saline is also silicone and further saline implants are regularly colonized with microorganism due to defective/leaky valves allowing in human fluids and tissues and providing a home for bacteria and fungus to thrive. Those microorganisms produce biotoxins which are highly toxic to us. Saline are no safer than silicone. Nicole

      Reply
      1. roxanna

        update: I thought I had saline, they were silicone. About 4 months ago, my right implant shifted upward. I ignored it. About a month ago, I noticed a sticky substance under my right breast, didn’t have a clue what it could be, guess I wasn’t even going to allow my mind to entertain the thought that hey, you have implants, maybe one ruptured. Shortly after that, I noticed it again. The next morning I got up to go to work and couldn’t. I was running a fever. Daughter took me to er. They discovered my right implant did rupture. I had surgeon remove both, but I didn’t know to ask about capsule tissue? Its been 2 weeks since my surgery, I go tomorrow to get stitches out. What should I be asking the surgeon? And how do I test my body to see if I have silicone throughout my body?

        Reply
        1. admin Post author

          Hi Roxanna,
          Enquire with your surgeon if he completed a Total Capsulectomy on you which means removing all capsule tissue. Ask for the operative report which should describe exactly what he did and ask if pathology was done on your capsules as pathology should also describe the capsule tissue size, shape condition. Ask what he did to clean the silicone from your chest pocket. I think you can assume that you do have silicone throughout your body. Inositol removes silicone from the body. Nicole

          Reply
  118. Julie McDonald

    Hello Nicole! I am a previous member of the yahoo implant support group and a new member to your FB group. It’s awesome and such a great resource for women!! I am interested in starting a website of my own to tell my story and have another resource for sick women. I was wondering if you have any advice, tips, suggestions, etc. for me. My father is a computer programmer and is going to handle the technical aspects of creating the site. I have never done anything like this before, but after being sick for many years, explanted, and better now, I feel compelled to do it! Thank you in advance!!
    Julie M.

    Reply
    1. Nina

      Julie, just my opinion, but why start a new website? I say strength in numbers and not “dilute” our strength! Consider staying on “our” fb page and this website and work through them. I’m just a member of the fb page and not one of the administrators, but I feel THIS website saved my life! Maybe you can contribute your story/info here. Or, perhaps add some other social media for more exposure and direct people to this site/fb page. Best of luck!

      Reply
  119. Roxanne Burk

    My 16 year old daughter just informed me of this. I have had every symptom you can think since 2006 few,months after I got implants .. Everyone is uncertain of what the cause is for everything . is there anyone in the Cleveland Ohio area you suggest

    Reply
  120. Anna

    Hi Nicole, would you mind telling me who you used for your explantation? I’m in Vancouver BC as well, and having trouble finding a surgeon. My original surgeon does not want to remove them without replacement.
    Thank you! ????

    Reply
    1. admin Post author

      Hi Anna,
      For my explant I used Dr. Thomas Sinclair in Canmore, Alberta. I cannot recommend him highly enough, he is a very skilled surgeon and has a wonderful bedside manner. Nicole

      Reply
  121. Elisa

    Hi,
    I just learned about Breast Implant Illness. If it wasn’t for Crystal Hefner’s story I would have never of heard about it. Reading her story was like seeing a light of hope go off. I have been extremely ill and all symptoms indicate Breast Implant Illness. I just found out that I need to have my implants removed. Although this is a medical necessity, it is also a huge expense that is way beyond my budget. Please check out my story by going to the link below. I am not one to share such personal information about my life but this is journey is one that requires support. Thank you Nicole. Best of luck to everyone women out there desperate to get better like me. My surgery is within a week with Dr. Kusuma in Florida. Has anyone used him before?
    gofundme.com/2fptdbhg

    Reply
  122. JGolds

    I have had a breast implant since I was 16. I am now 42 and have all of the symptoms listed. I was diagnosed with Fibromyalgia at 19! I have struggled with fatigue and joint pain my whole adult life. I now have severe pain in my right shoulder above the breast that has the implant. I have had MRI’s and xrays that shows nothing is wrong with me. I have went to specialists that insurance did not pay for to try and figure out the source of inflammation in my body. I have Adrenal issues which also keeps me up all night and has created insomnia. I have been miserable for a long time and feel much older than I am. If I have this implant removed, I will not have a breast on that side. I did not develop correctly. Can they reconstruct me a breast from my own tissue and are there risks involved because of the damage from the implant?

    Reply
    1. admin Post author

      Hi JGolds,
      You can have reconstruction that does not include an implant or even better consider fat transfer which is producing beautiful results in the ladies I have seen in the facebook group. Nicole

      Reply
      1. Cerys

        Hi. What is the reconstruction surgery without implant called? I have never come across it in the UK. I can think of anything more depressing than having my implants removed and going back to my flat chested self. I’m not as lucky as many women who at an A or B. I literally have nothing there and it really effected my life so if love to har of any other ways to increase size even just a little. Thanks xx

        Reply
  123. Maris B.

    I have silicone Mentor implanted 2010. I’m a RN who went from working full time, volunteering, riding a bicycle 40+ miles a day (religiously), & being both extremely cheerful while giving of my time & being very socially active with our friends & family alike to being basically isolate & strictly home bound. Heath challenges were not new to me. I’ve had numerous surgeries in the past including including several 360 degree spinal surgeries one in ’06, ’12, ’13 with an abdominal surgery falling in there somewhere (my memory…I can’t recall). I’ve always bounced right back. I do have titanium hardware but no problems presenters until this. The majority of dabilitating disorders are post strokes. The one I have the most difficult time with is pain. Having always had such a high pain tolerance that every time I was pregnant the dr stressed to my family & myself the importance of my coming in at the onset of any pain what-so-ever as he feared I wouldn’t recognize the onset of labor (sans water breaking) until it was too late for a hospital delivery. Two things stand out to me here while typing this 1) I only went to the dr if I was pregnant or needed some type of surgical intervention. Now it feels as tho we have weekly appointments with… Hepatologist, liver biopsies are no fun. Neurologist, Hematologist, Opthamolagist, Allergist, Physical therapist & the list just goes on. The 2nd thing that stands out is I’m allergic to basically every narcotic as well as other meds. We had a Metabolic Panel Study done I order to find a med because it was thought the strokes were caused by the high blood pressure who chic was being caused by the inability to control the pain. Going in these Drs offices …each time being asked to fill out a stack of forms cause me such great anxiety… Anxiety that I never had before. I might recall it one minute but forever it the next. I have such brain fog it’s nearly intolerable and beyond embarrassing. My brain constantly feels as tho it’s going to spontaneously combust. I take medication in an attempt to prevent the migraines that more days than not, still present daily …so intense I become violently ill. My vision is so bad at times I just simply close my eyes rather than have them open. Not a day has passed since I can recall not feeling like I have the flu. Flu that makes every bone, muscle, hair & all your skin hurt. It takes everything I have just exist some days. For me to get dressed & go to church or anywhere for that matter takes hours & the saddest thing is I can’t believe I ever found joy in outings & gatherings. We miss a lot…& it’s so unfair for my precious husband! I have not driven a car further than 30 miles in over a year…most days I just go from the bed to my chair, to the shower & back to my bed. Repeating it all the next day. I look at the calendar knowing I’ll need a full days rest in between doing anything. Going to the dr in Houston will literally wipe me out. Five years ago, if I told my normal self this was going to be my life I would have 1) not believed a word of it 2) Said this is classic hypochondriac behavior …However, I’d have to ask this question… Why on earth would anyone give up my fabulous life to sit in a chair & wither away?! Who would give up spending as much time as possible with their precious recently retired parents who treasure each one of their three daughter’s as much as they do them? Who would trade a second of time they could spend with their tall handsome husband on the back of his Harley, wind in your hair, riding all the way to absolutely no where…& both loving every second of just being together. Who would miss out on spending every second they could with the greatest gift her son & DIL Ever gave her…their little miracle baby who calls you GiGig? And lastly but most certainly not least… Who on this Earth… Who in this Universe would trade a single solitary moment of sitting in a chair or being in a bed when they could be spending time with their gorgeous daughter. An angel on earth who lives five hours away completing her education but will drive or fly home just to help clean a closet. It was my adorable 23 year old daughter that found this site & in all capital letters she sent the words READ THIS NOW MOM!!!!! She so desperately wants her Momma back …
    I’d love to consult Dr Feng but with my medical history I’m not exactly sure how she would feel. Until I talk to someone…I feel I need to be in Houston near my Drs. & close to the medical center. Just a side note in case anyone is wondering… I do have full clearance to have the explant surgery done.

    Does anyone have a referral in Houston? A Very Highly Recommended one.

    Reply
  124. Syndi

    Hi there, I just became aware of this illness YESTERDAY and I can’t believe it. I’ve been unwell for many years and have had implants for 10yrs this year as I had tubular breast deformity as well as 2 hernias in each breast that prevented the development of breast tissue! Dr said that once he removed the hernias I would only have a nipple left. At 23yrs of age, this was horrific to hear … So we discussed implants and went forth with the procedure. I don’t want to be sick any more, but I don’t want to have just nipples at the age of 33. I’m feeling extremely defeated and confronted.

    Reply
  125. Shannon H

    I have had my implants for almost 6 years. I began having hip pain and elbow pain and I chalked it up to excercising. The last year I have been experiencing extreme fatigue, chest pain , joint pain……my doctor done blood work and my ANA test was positive therefore she sent me to a rheumatologist who do e more testing and he seems to think I have Lupus. I also have hypothyroidism. I’m convinced after reading this article that my problem is the implants. It’s scary but at the same time I almost feel relieved to have a answer

    Reply
  126. Karen Hetu

    Thank you so much for this information. I had my implants removed (as best as the doctor could) 2 years ago. I learned that both silicone implants had ruptured at some point about five years ago, but had trouble finding a plastic surgeon to remove the silicone.

    I finally found one, but he couldn’t get it all because it was spread all over. He also did a breast lift at the same time. I am so glad to have most of the silicone out of my body!

    Reply
  127. Dawn

    Will insurance pay for explant?

    I have all these same issues, BUT I did test positive for Lyme disease, hashimotos, 2 kinds of arthritis, adrenal fatigue, so how do I know if the implants caused any of this?
    I don’t want to explant if I don’t have to not to mention I don’t know where I’ll get the money if insurance doesn’t pay

    Reply
    1. admin Post author

      Hi Dawn,
      Some insurance plicies cover for rupture, pain of the breast, chest, neck and back, capsular contracture and infection/necrosis. Read your policy and see what they cover. Insurance usually does not cover for autoimmune diagnoses as they got a waiver for autoimmune diseases related to implants because there is a direct link between autoimmune and breast implants and the patient information warns of autoimmune symptoms and diseases from implants. Nicole

      Reply
  128. Amanda

    I only got my gel implants 5 months ago. Slowly symptoms such as ibs, digestive distress, brain fog, fatigue & depression have cropped up. It seems most on here experience symptoms later on. Are these symptoms most likely due to the implants, and is a recovery possible? How long do you think it would take to heal given I’ve only had them a couple months. Thanks.

    Reply
    1. admin Post author

      Hi Amanda,
      The earlier you have your breast implants removed, the easier and quicker you heal. Please ensure that your explant is En Bloc/Total Capsulectomy. All capsule tissue should be removed for your best recovery and choose a surgeon committed to getting it all out. Nicole

      Reply
  129. Concerned Woman

    Hi,
    I recently got my explant done. But I have a major reason to believe that the doctor left the capsule inside, eventhough we agreed he would take it out entirely implant and capsule as a whole.
    He never showed me the capsule after surgery he said he disposed of it. There is no way to know if he really extracted it. I am extremely concerned that the capsule that was left inside is still contaminating my body as i’ve had a severe headache since surgery. I’m not sure what to do. Any one have any recommendations or has been through this?
    Thank you!

    Reply
  130. Shelley

    I have been suffering with most of these symptoms since probably 2 yrs after getting silicone implants! The past 2+ yrs have been nearly unbearable, with debilitating, multiple joint pain, insomnia (I only sleep a total of a few hrs per night) dry eyes, fatigue. I have been to multiple doctors and had every lab test possible, only to be told time after time that my labs are normal and there’s nothing we can do for you except pain meds. I cry myself to sleep most nights, have had to give up basically all hobbies and exercise due to the pain, and have nearly destroyed my relationship with my husband because I never feel well. I’ve been put on high doses of Prednisone because is the only thing that gives me relief so may times, that I now have Avascular necrosis in both of my hips. I must admit, the thought of the culprit being my implants has crossed my mind and occasionally over the yrs, since my symptoms all started after getting them, I never really gave it any serious thought until today after seeing a woman from California who specializes in alternative medicine. I have been researching this topic since I got home and am now very concerned that it’s the implants, however I am also excited to think I may finally be able to get help after soon many years of suffering!!

    Reply
  131. Lindsay

    Hi everyone, I had mentor smooth saline placed in 2003, in 2012 I started getting real sick, though thinking back the chronic fatigue and interstitial cystitis may have been associated too. Since 2012, I have been diagnosed with fibromyalgia, refractory dermatomyositis, relapsing polychondritis, and ankylosing spondylitis. I am only 35. I am scheduled for explant on August 10. I was wondering if anyone else has had so many diagnoses and if after explant got any better. If so, would you be wiling to talk with me about it? My email is dakota288@msn.com.

    Reply
    1. PSwolfie

      Hi,
      I just was explanted 5 days ago. I had saline Mentor also for 26 years. I got interstitial cystitis months after the implants. I didn’t get a diagnosis for at least 5 years at first and really just stumbled on all this info this year. Well, 5 days in, I feel some IC symptoms today. Not sure what’s going, trying to join the facebook page to learn about detox. The silicone bag/case bleeds into your system supposedly. I will keep you posted. I am also on real self PSwolfie.

      Reply
      1. Twiggy11

        Hi I have talked to you on real self. So glad you are done with your surgery. I had to step away for awhile just so consumed with what to do next with healing. Good to be back looking forward to sharing our journey.
        I too have IC and was hoping that out of all my symptoms that breast implant removal would help. Happy some symptoms subsided but unfortunately still having bladder issues and food sensitivies. In fact day after surgery I had a new symptom! A swollen stomach that won’t go away! I’m Thinking it is from Candida getting worse from meds etc that I needed for the surgery. I started 5 wks after surgery taking anti fungals and probiotics which are helping with bladder symptoms. Looking forward to hearing your progress.

        Reply
  132. susan

    thanks Nicole. I have seen Dr. Izzadoost here in Houston and will be having an explant procedure on January 9. I really didn’t want to wait but because of trips and business am having to wait. I hope you are doing well. thank you so much for your site.
    Susan

    Reply
  133. Racel

    I had just gotten a double mastectomy with with immediate reconstruction and was involved in a small fender bender. I instantly did not feel right but couldn’t describe what was wrong. Was then taken by ambulance to the ER and there they did ex rays and found 3 broken ribs. Which nothing could be done about. 24 hours later I notice cle as r reddish drainage through my right breast incision along with complete swelling of my right breast that was double in size compared to my left. I called my surgeon and told them what had happened and they informed me to go to the hospital and to prepare for surgery and not to eat or drink anything any longer. So they went in and stop the bleeding cleaned up the breast implant and then went ahead and we closed it. When I went home to sleep. Woke up 8 hours later and was itching like crazy. Couldn’t figure out what was wrong I know is that I hadn’t ate or drink anything you haven’t took in any form medication that would have caused an allergic reaction. So I went ahead and took Benadryl but Benadryl wasn’t doing it I had to go to the emergency room once again where they administered with some type of cocktail to help with the itching and hives and anaphylactic reaction that I was having. I was sent home with a dose prednisone and 3 rounds of those over next couple weeks. That has been 3 months ago and I am still dealing with the rash hives on a daily basis I’ve been taking Allegra instead of Benadryl because that does seem to help better but no one can explain to me what it is. Is there anyone out there that can help me or let me know if this is some type of autoimmune disorder that I’ve sir come to after this fender bender?

    Reply
    1. Raquel

      I have had implants put in (gummy implants) and about 3 days from the surgery I broke out in hives and the most horrible itching. The surgeon refused to belive it was the implants and told me I had scabies. After passing out twice and my chest started swelling I started researching. Dr. Barnett in sarasota fl is well known and helped me explant. It has been a year now and I know for a fact what I was dealing with was my implants

      Reply
  134. Beth Poore

    Hi and thank you for making this information available!! I was wondering if anyone else has also had silicone lip implants? If so, what was the outcome? I’m concerned about how they can fix this and what my lips with look like after. I’m also worried about how my chest will look but am better prepared since I know more about the explant in that area. I hope I’m able to have fat transfers to both areas!
    I am also concerned about being on Humira for Crohn’s and Rheumatoid arthritis. This is supposed to make my immune system weak so my body will stop fighting against it’s self. My concern is if I stop the meds I will be sick n deformed if I dont stop I’m afraid my body heal wont heal well after explant! I was diagnosed with Ulcerative colitis before any implants about 30yrs ago. It’s most likely Crohn’s instead. (Long story) My son has Crohn’s n my mom was never diagnosed but I’m sure she did too. My concerns about having autoimmune disorders and not knowing which ones are hereditary and which are from the implants n what meds are best… so confused. .. I will be looking forward to your response, ~b

    Reply
    1. admin Post author

      Hi Beth,
      First I would like to ask if you have a mouth full of mercury fillings that may the initial cause of your Ulcerative Colitis, leading to Crohns and RA? Second, I suggest testing for all the genetic variants of MTHFR which hampers our ability to detox toxins and heavy metals and may make the difference as to why your family is getting autoimmune diseases which in general are from toxins. Approx 40 per cent or more of the population has MTHFR genetic variants that interrupt/block our ability to detox by 30 to 70 per cent and so those people collect toxins and eventually come down with autoimmune conditions and other diseases. Secondly, I would also look for an underlying fungal/microbial condition in your gut too and treat it asap. Next I would remove all the silicone from your body properly ensuring that all capsule tissue is removed too. I would then get off the Humira so you can heal and recover. Specifically, I don’t know much about removing silicone from the lips. Nicole

      Reply
  135. stacie

    I recently read an article stating the longer the implants have been in, the less likely you are to recover. I have had mine 16 years and am going to consultation next week to have then removed. Have you found this statement to be true? The percentage was something like only a 30% chance of recovery after that amount of years.

    Reply
    1. admin Post author

      Hi Stacie,
      Of course the longer implants are left in the more damage they do however some ladies have silicone or saline implants for decades and have very few symptoms so it is not a given that indwelling time will affect healing. The article may be referring to ruptured/leaking silicone implants if left in the body for years may spread silicone and cause an autoimmune disease that will continue even after the ruptured implants are removed as the silicone is difficult to remove. For the most part most will improve/recover after explant and continue improving for months and even years. If silicone implants are suspected of leaking or rupture they should be removed as soon as possible. Most silicone implants are found to be leaking and or ruptured around the six to eight year mark after implant. Nicole

      Reply
      1. stacie

        I have the Mentor smooth saline implants. I know they have the silicone shell. I was just discouraged to read that. I’m having them removed and hoping to start healing. Thank you for your reply. That helped encourage me.

        Reply
  136. Christina

    I am 31 and because of a friend and suicide I do not use Facebook anymore. Is there another way I can join the support group? Are you able to email me directly? Thank you, I am suffering greatly and never ever thought it could be my implants. The system is so flawed it’s terrifying.

    Reply
    1. Paula Lawrence

      Hi Christina,

      I don’t do Facebook either but if you would like to call me or email me directly my numbers are: cell 715-205-4255, home 715-865-2925 or email chaslawg@gmail.com. I live in Central time. I had my explant surgery on 5/9/16 and am doing great!! It’s always nice to be able to talk to someone????. Paula

      Reply
  137. Susan Redwine

    Does anyone know of an explant surgeon in Mexico that is also educated in replacing implant with fat and lift. Also using alternative treatments such as hyperbaric, stem cell and/or plasma? Thank you.

    Reply
  138. Jill Heshka

    Hi Nicole,
    I can tell you are a very busy lady keeping up with all these questions and comments! Speaking of comments, I posted one about a week ago asking about a private phone consultation. You mentioned you’d contact me by email. I was going to respond to the comment but now I don’t see it. Just wondering if we can still connect? Thanks so much for your time and I look forward to hearing from you!

    Reply
    1. admin Post author

      Hi Jill,
      Sorry, it slipped my mind. I will email you privately later today. Thanks for your patience. Nicole

      Reply
  139. Glenda

    Grateful that I found your website. I got the implants several years ago and need to get them removed. I do not want to get any other implants. Was wondering if you know of plastic surgeons in Arizona. Thank you for your time.

    Reply
    1. admin Post author

      Hi Glenda,
      Yes there are several surgeon in AZ, please see the Explant Surgeon list on this website. Nicole

      Reply
  140. Stephanie Van Doren

    Hello my name is Stephanie,
    My mother in law has found all of this info as I have been very sick. I have saline implants for 9 years and in January I thought one started leaking. I went to the cosmetic surgeon who said he thought it might have a pin hole leak. It’s still in there. I have had all over pain, swollen lymph nodes, joint pain, swelling of my pituitary gland, spontaneous milk production of my breast, distorted vision, pain in the abdomen, spine pain, extreme tiredness, weight loss and migraines. I have had MRI’s of my brain, spine, neck, chest , CT- of my chest, abdomen, and pelvic area. All showed incidental findings nothing to make me this sick. MRI of breast was clear but was hard to breath due to engorgment. No one listed spontaneous milk production Endocronologist said prolactin level was normal. Anyone will milk production?

    Reply
    1. admin Post author

      Hi Stephanie,
      Yes, lactating and other abnormal breast discharges are a symptom for some. Come to the facebook group and talk to other women who have had this same symptom. There are over 3000 of us in the group. Nicole

      Reply
    2. Gina Barkley

      Hi Stephanie,
      I am also having problems with milk production or so the ER Dr has said. He blamed my ovary (only have 1 left), that has 3 cysts on it, for “tricking” my body into thinking i was pregnant and therefore needing to produce milk but im 45 and more menopausal then pregnant. I have had tubual ligation with oopherectomy of my left ovary and dont think my body is telling my milk ducts that im needing milk and therefore a clogged milk duct because I can’t produce milk!! The infection isn’t coming from the nipple, it is coming out of the side of my boob and on the aereola. I was so swollen and red from all the toxins, that I’m assuming, may be stemming from the implant. The Dr instructed me to do hot compresses on my breast. Well that only made matters worse because the compresses actually made my “little white spots” of infection burst open and now they are a continual open sore but just ran across this information and now wondering myself if my implants are the cause of my ovarian cysts with cancer cells?? Not from clogged milk ducts…my breast implants have been in 10 yrs and do not want to have them removed but the constant draining of nasty yellowish blood stained smelly liquid oozing out of my breast is very painful and inconvenient as well as debilitating to the point of not being able to wear any clothing or bra. I have to miss work and stay in bed due to fatigue, lower abdomen pain, back pain and very tender breast to say the least..I haven’t been diagnosed as of yet but hope to get more information soon!! Please let me know if you find out anything concerning milk production.
      Best of luck,
      Gina Barkley

      Reply
  141. Svenja

    I have my explantation next week.
    My surgeon said he maybe can’t remove the whole capsule because my implants are submuscular and maybe the implants stuck in my ribs. I am so afraid that my symptoms will stay forever and I’m still sick when the implants are out.

    Reply
    1. Judy

      I had the exact same thing happen to me!!!!! PAIN, gosh! Awful. There was “gunk” attached to my ribs, lymph nodes, down my arm, everywhere .. My doc scraped and scraped to remove it all. I could feel the hard ball of saline and whatever the outside was made of. It reminded me of a contact that had closed together. Recovery was hell…. For days.

      Reply
  142. Robbie

    Please accept me on website. I am so very sick, I have silicone implants for 30 yrs. I have been extremely sick for seven years. Had MRI and it shows implant leaking on the left side unnder arm the implant scar pocket rupured, right leaking within scar pocket. I have been searching for a surgeon and not found a syrgeon who accepts Medicare. I am receiving social security disability due to illness. It continues to get worse and I’m not sure what to do. Please I need help!

    Sincerely,

    Robbie

    Reply
  143. Alison Kendall

    Hi , I live in the uk and am amazed that there are hardly any UK based websites like this one. It feels like the UK is not allowing this information to be traded by women in the UK. I hope my story helps someone. I had mentor saline breast implants in 1999. I was told that they are not lifelong devices but, at that time, I did not let that worry me and went ahead as I was told that saline were safe. I was young with a 32a bust and had no self confidence at all. I must say that I didn’t have any problems until about 12 years after implants when, out of the blue, I got a Seroma on one side, a huge one!! I went to a ps who immediately advised removal and replacement with just a 5 minute consult… No exam, no medical history, nothing. I was totally unhappy with this and immediately felt uncomfortable. He would not even say WHY this had happened. My insurance paid for a scan and the sonographer showed me the fluid collection and then said he could drain it. He did this and after that things went pretty much back to normal and I got on with my life. At the back of my mind I kept wondering why this happened but was constantly assured it was nothing to worry about. A year and a half later I felt a lump had developed at the front of my right implant and went to my dr who sent me for a scan at the local hospital. They insisted that it was just the port of the implant which must have moved round over time … I knew this was wrong as the implant was fixed by the capsule surrounding it!!! But no dr would believe that anything was wrong!! I kept going back as I was so worried and I was also feeling that my right arm was pulsating!! Finally it was noticed that my underarm lymph nodes were very swollen and eventually I had to have 2 removed which were the size of walnuts!!! I was told that it was just an infection which had nothing to do with my implants as they were ‘intact’. At this point I started to google all this stuff and of course came across ALCL (lymphoma). I took all this info to my doctor who completely dismissed it, as did every ps and dr I saw after that. I was told to just get on with my life as everything was fine. I continued to live with the doubt but, I’m sorry to say, even after all this, was too scared to even consider getting the implants removed… So, I stuck my head in the sand, and tried to forget all about it. Fast forward to March 2016. I had regularly still felt that pulsating in my right arm (even spoke to my dr about it a few times and was always dismissed). I woke up one morning and I could feel my right implant had become hard overnight! No other symptons at that stage. So I started to Look at ps’s for replacement. It was nigh on impossible to find someone who would exchange with saline. I was continually told that no one uses it anymore as silicone is the best and 100% safe!! I could not believe my ears. At this point I was still under the impression that saline was safe… A week or so later a great big painful red rash appeared under the right breast in the crease line. I went to my dr who did not even examine me and was referred to a private breast dr a week later. He took one look and said I had a nasty infection which could lead to scepticaemia and necrosis. I spent 4 weeks on very strong antibiotics… But it could not be shifted. He said the only way to treat it was by removing my implants… I was gutted but knew it would come to this. He said I could not replace them for 6 months and that if I do replace that I should have silicone !!!! So, three days ago he explanted me. They are both out including capsulectomy. When I woke from the surgery and put my hands on my chest I was devastated. BUT… after now reading everything I can find on the internet I actually feel relieved … My breasts are as flat as pancakes but I am relived to have them out… I really had no idea how toxic they were and I am so grateful that I have not had all the other complications and illnesses I have read about. I am traumatised that I obviously had mold and bacteria in my body (although I know that no dr will ever confirm this). This stuff must have been floating around in there since at least when I got the Seroma all those years ago and I feel ashamed that I have done this to my body. I have other friends with implants and I want to shout them from the rooftops about all this … But the problem is, when you have them and you don’t think you have any problems, you mistakenly believe you are all ok and it’s the others that are unlucky…. You kid yourself that you will never have any problems like the others had. I have realised that it is all a conspiracy, a cover up, a money making machine for ps’s. No one tells you the truth and you are supposed to be able to trust these people. It is a travesty and one day it will all come out… But in the meantime thousands of woman (and men?) will be affected and have their health ruined. My heart bleeds that this can be allowed to continue. Woman that have gone through the trauma of Brest cancer, reconstructed with these toxic devices, destined to go though more surgeries and more trauma… Seriously… What is wrong with these doctors, the companies who make these devices … The government!!!! When will it end… When will they be banned for ever!!???

    Reply
    1. Sue

      Thank God I found this site and the BII group in fcbk ..I had my silicone implants done in the Philippines 2007 And now I know why I’m so sick … I have a very low pain tolerance and so scared to undergo any kind of surgery but then I want to get well so I decided to go ahead and call Dr Chun as he’s highly recommended. No wonder I’ve been very sick trying to cope up w my everyday life…I just need to help myself to be strong and to have courage to do it …
      Again I’m so thankful I’ve found this site and hoping that I will be able to pass this stage of agony in my life …never thought there’s so many of us who are sick because of these implants …may God help us …

      Reply
    2. Shelley Hart

      Hi Alison I’m also in the UK & having many health problems since having cphesuve gel silicobd implants 2011.
      Need them out now. Have been reseaeching and trying to fnd a reputable surgeon who will guarantee taking them out en bloc. So far none want to undertake this.
      Can you message me the surgeon who did your removal & would you recco them please???
      Would really appreciate. Thanks so much.

      Reply
  144. Laura

    Hello,
    I’m looking into getting my breast implants removed including the capsules, I am symptomatic, one implant feels deflated and feels like it has air bubbles, I laso have a small cyst in the chest are that my doctor feels is not related to the implants but I wonder about that. I recently had a mammogram and ultrasound that didn’t show abnormalities according to my doctor. My implants are around 25 yrs old I believe saline, behind the muscle. I’m in the Southern California area, I was looking into Dr Gyu S. Chin in Ontario CA, he is on your list. I’d like to know if anyone has a personal testimony they can share regarding Dr Chin or another doctor they recommend in the area.
    Thank you,
    Laura

    Reply
  145. Jennifer

    Like so many of you ladies here, I have been experiencing breast implant illness. In 2 wks. I will finally be explanted, en bloc, capsulectomy, and lift. I found a wonderful breast cancer surgeon who agreed to do the surgery…I believe she will be saving my life. In 2005, I was implanted w/ smooth saline (everyone said they were very safe). I had a rupture in 2012 and should have been explanted then (though at the time, believing the plastic surgeons, may have opted for replacement). They said there was plenty of time and a saline rupture was fine since it was “sterile.” I have since had growing symptoms, which I am finally realizing are all tied into these toxic implants. I have chronic chest pain, shortness of breath, adhesive capsulitis (frozen shoulder) as of 3 months ago, neck problems, nerve problems, etc. I finally realized I have had infections going on in my chest wall for years (though plastic surgeons have always told me infection is impossible since the skin is sealed…bullshit, the infections started the second they placed the implants in 2005). My body has been screaming at me for years that there is a big problem, and for 11 years I was placated by plastic surgeons who said to just replace them when I am ready. At last I have realized the truth, am listening to my body, and counting down the days until 6/14 when I will begin to recover my health and my life. Damn all breast implants (and saline are NOT SAFE)…women are beautiful as they are and I am going to be a part of sharing my story so hopefully other women don’t have to go down this road to hell. It has been a nightmare and I just want it to end. Plastic surgeons kept telling me they were safe and they said Dr. Kolb was a nutcase.

    Reply
    1. Judy

      You are the First Lady I have run across having some of the problems I have and are quickly dismissed by doctors as just part of having so many chronic illnesses. I had my shoulder “unfrozen” couple years ago. Said it was from blow drying my hair!!! Chest soreness never leaves me. Weird headaches. Etc. My memory scares me at this point. I will be 60 in December , but a young 60! Ha. I noticed u mentioned nerves….I have started this involuntary shaking from head down. Mimics Parkinson’s , even though I know it probably isn’t . Do u have that?

      Reply
  146. Pam Godfrey

    Scheduled for August!! Can’t wait!! I couldn’t wait to get them, not I can’t wait to GET RID of them. Good lad, will be such a relief!! Thank you so much of this site!!

    Reply
  147. SHARON CORNWALL

    Hi, I had breast implants 9 month ago and 5 weeks after the op got out of bed one morning and my lower legs were aching badly. I had been out dancing the night before and put it down to the exercise but they have never gotten better. They ache in the night and day, stiff, really hard to walk at times, stairs are a nightmare. If I sit on the ground I cannot get up without hanging on to something, even trying to sit, get off the toilet is very painful. The pain is always there I don’t get a rest from it.
    I take pain meds to function. I have always been very healthy until this happened.
    I have no other symptoms mentioned just the lower legs but am worried if I don’t have them removed it will spread to other parts of my body.
    This is making me very depressed and was wondering if anyone else may have a similar story.
    Sharon

    Reply
    1. Jennifer

      I would have them explanted a.s.a.p. Besides the symptoms, they are proven toxic infectors and will be ruining your immune system over time. You may feel it is a waste of money and worry about have a small chest (like I did), but women watch their health decline and their immune systems weaken…read their personal stories…some even die from their implants, though they may call it a lung infection or something else. In no way does the body benefit from implants, and in fact it suffers every day from the chemicals, infection (which do enter with the implantation), and a weakened immune system. I wish I hadn’t waited so long to make the right decision (my explant will be in 2 wks.).. I want my health and my life back and you should too. Women must love their natural bodies and appreciate their natural health…no breast implants are safe!

      Reply
    2. Tina Pellegrino

      Hi Sharon I am going through the exact same thing. If you can please call me as I don’t have a computer except for my phone and I don’t know how to use it very well. My phone number is 508-450-7181. Thank you Tina

      Reply
    3. Sue

      I have the same situation and been having a hard time coping up w it.., lower back pain hips and weak legs … Hard to get up when I lay down sit and even standing for a long time … Shooting pain too and tingling … although I’m scared to have these implants taken out I think I have to otherwise i know it’ll get worse …

      Reply
  148. Ruby

    Hi, I am a mother of 3. I accidentally found this site while searching for the causes to my recent being diagnosed with hypothyroidism. Though its under the mild elevated level, but I do hv symptoms of fatigue, dizziness and more so I hv saline breast implant 8 years ago. Being a very health conscious, I do hv mammograms early of this year and result shows normal. After reading all yr experiences, I am scared and do concerns about what if My implant causes this symptom. First. Who should I consult with? I had flat chest before implant, if I opt explant, I don’t know how it would look like. So concerned now.

    Reply
      1. Ruby

        I tried to join the Facebook group but it came back as ” the page you requested cannot be displayed right now. It may be temporarily unavailable, the link you clicked on may have expired, or you may not have permission to view this page.” Not sure why.

        Reply
  149. Kay ardilonge

    I have Celine implants and I really would like to have them removed can you give me any advice of any doctors that are located in the Lake Worth Florida location that would do this for me

    Reply
    1. admin Post author

      Hi Kay,
      Please see the Explant Surgeon’s list on this website for a list of surgeons in your area. Nicole

      Reply
  150. Carolina Darling

    After years of hell, especially last 3 years, I had the implants removed 5 days ago, had almost all of the symptoms, looking forward getting my life back.

    Reply
  151. Maria

    So what are you supposed to do when you need a masectomy? I am in that situation right now and was planning on going straight to implant.

    Reply
    1. kim

      If I had to do it all over again, I would not get implants. I am having mine removed. I will be flat chested, no breasts. But I won t be sick. It is worth it.

      Reply
    2. Robbi Nuss

      I would like to see the response to this question, however, I’m thinking the answer would be to opt out of having implants. I’m having a double masectomy and plan on reconstructive surgery. I have already had the consultation with my surgeon. I’m starting to wonder if that’s not a good plan. I’m praying about it and reading this group of ladies comments. With the number of women testifying it’s hard not to take note.

      Reply
      1. Leslie Tanner

        Hi Robbi,
        My name is Leslie and 2 years ago I was in your same shoes. I went for it all.. Bi lateral mascestomy, silicone expanders, Chemo and finally Silicone implants. After 25 months of MISERY 6 days ago I had my explant surgery. Within 24 hrs so many of my symptoms were gone. My advice to you is get all the facts from your plastic surgeon, then straight from the manufacturing of the best mplant the Dr will implant you with. Your mind will be crystal clear after reading the facts. Cancer and Chemo were a breeze compared to breast implant illness.
        Best of luck
        Leslie
        P..S. Your health looks way better than fake boobs..Flat is Fabulous

        Reply
    3. Jen

      Women who undergo mastectomy should especially avoid implants. My grandmother had a double radical mastectomy in the 60s and (being the smart woman she was) declined the offer of reconstruction (which were, at the time, silicone). Silicone and saline are all toxic and they both cause tons of symptoms, poor health, and even possible death. They mask any future growths. My grandmother had a mastectomy bra, silione gel inserts that went into pockets (she was a D, but really could choose whatever size she wished for comfort). My grandfather loved her and didn’t care one iota about her breasts….he loved HER. They were married 50 years (until his death) and she, my smart and amazing Nana, lived until 92. I don’t believe she would have lived nearly that long had she opted for reconstruction. Not worth it. Health is #1!!! Women are BEAUTIFUL and they are not their breasts! Nobody will ever know, either, if they have a bra w/ inserts. Nobody knew about Nana’s inserts except her family, and we were always so very proud of her (and loved her w/ all our hearts).

      Reply
    4. Vicki

      Marie,

      I had a Bi-lateral Subcutaneous Mastectomy in 1986 and had Breast Implants put in at the same time. I was told that my doctor did NOT use “Silicone” so I felt that I was “Safe” with saline. In 1987, my immune system started falling apart! It was not until my Left Breast Implant ruptured in 1994, that I found out that I had Silicone in my body! I almost died after my left Breast Implant ruptured due to Adrenal Exhaustion!

      If I known then what I know now about Breast Implant Illness, I would NOT get Breast Implants for medical or cosmetic reasons.! If you do not have your health, you have NOTHING!

      I have been doing Alternative Medicine for years which has saved my life to help remove the Silicone that has gone throughout my body!

      If you would like to communicate privately, you can e-mail me at azcelene@gmail.com

      I wish you the very best!

      Hugs!

      Vicki

      Reply
  152. Marianne Fazioli

    Hello Im a little worried Ive recently noticed a dent in my left breast, I have gummy bear implant for the past 8 years and really never had a problem with them before. Im uncertain if this problem is my natural breast or my implant. It doesnt hurt it feels more like a sensation like a tugging. im going to get a mammogram to rule out anything serious. My question here is does a mammogram detect if something is wrong with the implant at all? The last time I had my mammogram done which was a year ago they pulled the implant away from the natural breast so I’m not sure how they can tell if it’s the implant ruptured. Do I need to pay a visit to that plastic surgeon that did the operation.

    Reply
    1. admin Post author

      Hi Marianne,
      Sounds like you have capsular contracture. Please get it checked out by your PS. We highly suggest removing breast implants and not replacing. Please ensure your explant is En Bloc/Total Capsulectomy. Nicole

      Reply
    2. Jodi

      A mammogram is to detect breast cancer it is not to check for a ruptured implant, you actually have to sign a waiver because a mammogram can cause the implant to rupture. your doctor can probably tell by looking at and feeling your implant.

      Reply
    3. Joani Andros

      I am 73 years old and have had my implants for 34 years. 3 years ago, I had a mammogram done, the technician was rough with me, as she was doing whatever to put more pressure on the paddles, it really, really hurt, but yet, I didn’t stop her, I endured it.!! The results of that test was that the left breast implant was ruptured. Went to a plastic surgeon, conferred with my primary doctor, who told me that it would encapsulate if I just left it alone. I really didn’t have the money. I always felt, that the ruptured occurred as a result of that mammogram. I had one mamo after that, and made sure that SHE would not be the technician! Down the road I read somewhere, that implants should not be subjected to a mammogram. A few months ago, felt a large mass on the top of R breast. Had an ultra sound test done, which showed this implant is ruptured. Have been to a plastic surgeon, who feels they should be removed asap. Upon her examination, she said my breasts are full of scar tissue, which a tumor could form. I am waiting now for my surgery date. I am going to have to beg and borrow enough money, $4500.00 which I don’t have. After finding out my first rupture was present in the L breast. I researched and found alot of manufacturers of the implants were paying for removal and replacement. However, in my case, the corporation that made mine, and closed off any more claims. I am being told now, yes, it is medically necessary, but my insurance won’t cover it, due to my implants being put in was for cosmetic reasons. Dr’s office told me that I had to pay up front, that they will bill my insurance but do not know if they will pay. It was suggested that I could call my insurance and ask, but they couldn’t, said insurance would not give payment information to them. I am trying to raise the money, and have decided I am not going to call the insurance company, perhaps it will serve as a red flag to them. I asked the office if the doctor would write a letter, was told thanks to Obama Care, everything is done by “codes”. Any opinions out there for me? Joani

      Reply
  153. Joanne Tomlinson

    I was in a mva and my implants were ruptured.aug will be 2 yrs.since the accident.my lawyer has let me be like this until my case is settled.im getting so sick .i know if they dont help me im going to die.

    Reply
  154. April

    My sister-in-law had nearly every one of these symptoms. She was on so many pills we couldn’t keep track. She died at 50. Her implants were put in for reconstructive purposes after being burned. One ruptured was replaced then she had it removed because she was so sure it was the reason she was so sick.

    Reply
  155. Asma

    Hi Nicole ?

    I thinking about having breast implant . I have been told that the gummy bear implant is much safer and I can have rest of life !
    That’s confusing for me…..
    I found one co worker whom works with the surgeon in Turkey.
    She said stop researching on the net because then you will be confused.But I want to make the right discission for having a breast implant.
    The new generation implants are they safe ?

    Reply
    1. admin Post author

      Hi Asma,
      All breast implants cause profound illness and by far the worse kind are the gummy bears or cohesive gel implants. The chemicals used to make the silicone cohesive are very aggressive and toxic to our body and damage our endocrine, immune system and gut health. If you must augment get Fat Transfer instead. Nicole

      Reply
  156. Karla simpson

    I have experienced severe illness for the last twenty years after implantation of the “Meme” implant was inserted. It is fibrous and fuzzy feeling on the outside. The idea behind these is that the breast will adhere to the tissue in the area and prevent sagging over the years. I was young , flat as a board and stupid. I worked for a plastic surgeon who put them in for free. He was board certified.
    Dow Corning manufactured these meme implants and after five years on the market women began to get sick. They were yanked off the market quickly.
    I was not symptomatic at the time until five years later. Mildly symptomatic and scared I had saline implants placed instead. My surgeon at the time was president of the American Academy of Plastic Surgery. I though he’d be able to help me but he didn’t believe me.
    A lfamily friend who was an attorney involved with a class action suit against Dow Corning contacted me and urged me to opt in. I did. After five years of fighting we opted out to a personal case as my symptoms were progressing and the implants I had were in question. Dow Corning filed bankruptcy to get out of the suit and then opened back up shop under another division name. I ended up with $56,000.00. That was not near enough to treat a now lifelong progressing illness that would slowly take my life away. My attorney advised that we could not continue to fight such a large and powerful company and win. The costs would be too much. I settled out of court with my tiny little bit of money but things were about to get really bad.
    Back to the removal surgery. I had the best surgeon at least but removal was difficult because the implants had adhered to my breadt tissue and muscle underneath. I basically ended up getting a mastopexy which is basically scrapping the implants out of the tissue leaving deep pits and deformities. I looked terrible. People stared and thought I’d had breast cancer or an accident. I wore a prostesthis and spent a lot of money on special bras. I couldn’t even go to the pool with my three children. I was in pain too.
    I finally had the same surgeon remove the scarring the best he could and place saline implants because he assured me they were safe and if they leaked my body would absorb the “salt water”.
    I got very sick in the next year loosing my job. Visit after visit to doctors with no diagnosis. It mimicked rheumatoid so I got a rheumatologist. He sent me to the head rheumatologist at Mayo and UAB. And they just said it was fibromyalgia and chronic pain syndrome. I became bed ridden. Home bound. In and out of the bed. Rarely getting to do much at all. I won’t go any further than to say that I am not well today but after trying everything in the world f medicine. Nothing worked and still no real diagnosis. I don’t know how I was able to raise my children. I was denied for disability three times because there was no diagnosis.
    I am still in severe pain in all my joints and connective tissues. I heal slow, have autoimmune disease and many many other terrible issues. Depression set in too. No one believed me. I was on my own and still am. I will stop there. My whole story would take an hour to tell. I fear I will only get worse over time bum at a loss.

    Reply
    1. leticia garza

      To whom it may concern,
      I have had my implants since 2000, right now I’m so sick I can’t ask for help and longer..I feel as if in the brink of dying..I have all symptoms ..including diagnosis..including am at the point that I only have a discounted rate at a University of San Antonio medical Hospitals. .I have to to quit work and,be placed on full disability..my implants ruptured in September of 2015. I am in a urgent turmoil with decrease of functions..I no longer have appetites,and have been asking for help from many people.. Again, I am in the brink of extreme pain constantly and have been placed only on pain medications.
      I need assistance and do not have any longer the strength to do so..I feel as if I am giving up and letting my body die off ..this has been extremely depressing and I feel no hope for me but a statistic..I have called the manufacturers and was told since its,passed 10 years and I have been symptomatic since 2005. I have no more strength to fight this..
      If anyone can assist me would be a brink of hope for me cause I just can’t anymore and feel at a complete loss.

      With all sincerity

      Sincerely,

      LETICIA GARZA
      Letgarza6990@gmail.com

      Reply
  157. Paula Lawrence

    Dr. Arthur Brawer, Rheumatologist from Long Branch, NJ contacted me regarding the damaging truth about silicone. He is tirelessly working as an advocate for us with implants. He is trying to get law firms on board to help us get justice. He is sending me more information regarding breast implants via the mail. He wants this information to go viral. PLEASE CONTACT DR. BRAWER SO WE CAN PUT A STOP TO PLASTIC SURGEONS NOT DISCLOSING THE TRUTH TO US ABOUT THE HISTORY OF AND WHAT BREAST IMPLANTS ARE MADE OF. IF YOU ARE INTERESTED IN CONTACTING DR. ARTHUR BRAWER PLEASE CALL 732-513-2577 (cell) or his office at (732-870-3133). If you’d like to contact me: (715) 205-4255 (cell), (715) 865-2925 (home), chaslawg@gmail.com. Thank God, my explant surgery is 24 hours away!!

    Reply
  158. Karen

    Hello Nicole:
    My name is Karen, I don’t know if you remember me, I was in the Facebook group too. But I decided stop Facebook and all social media for now.
    I have a question I hope you can help me. I was taking Liposomal Gluthatione for 41 days, at first I felt so good but after a month I started to feel more allergies. I was sensitive to everything and my asthma got worse and depression. I stopped taking Liposomal Gluthatione for 7 weeks and I still have many symptoms but the worst is depression. I have appt tomorrow to treat depression because I can’t handle it.
    I feel so sad. My question is is it normal that Lipo gluthatione cause all this effects? Can Liposomal Gluthatione drag mercury from my amalgams and cause toxicity? I have 4 amalgams left just wondering!!

    Reply
    1. admin Post author

      Hi Karen,
      Yes, Liposomal Glutathione will detox mercury, other heavy metals, chemicals and biotoxins. It is probably the heavy metals detoxing which is causing you the increased symptoms especially the negative mentalism. I would continue the detox however at a pace that you can manage it symptom wise. Nicole

      Reply
  159. Danielle Farris

    Hi, I had silicone implants placed on May 6,2015. A few months later I started to develop a hard capsule on my right breast. Now that I’m almost a year out from my surgery, my doctor is recommending replacing my implant and putting in Alloderm to help not develop another hard capsule. During he past month, I have joint pain throughout my entire body and fatigue. It has been happening once to twice a week and lingers from 2-4 days. The last thing I want to do is remove my implants but I do not want to go on feeling this way. I’m wondering if replacing the implant will help with my symptoms. if I do a removal at such an early point in time, is an ENBLOC removal necessary?

    Reply
    1. admin Post author

      Hi Danielle,
      We do not recommend replacement of your implants because your problems will not go away but rather increase. Please ensure that your explant is at least Total Capsulectomy, En Bloc is the most ideal however Total Capsulectomy (removing all capsule tissue) will probably suffice as your implants are only one year old but will have a developed capsule by now. Nicole

      Reply
  160. Karen A. Henderson

    I have joined the face book site and am very grateful to be able to read and share with others who are suffering from and hopefully recovering from Breast Implant Illness. I have been sick for at least 5 years and had the exact same experience of one M.D. specialist after the other tell me that I was within normal limits in their testing. About a year ago I asked a rheumatologist, after he told me my immuno-globulin tests were below normal, could I be toxic from Silicone. All he ever said is yes you probably have it in other places. He never went any further in his explanation. I have asked several other Doctor’s
    the same question even after I was diagnosed with Hashimottos. I was always
    told how controversial it is and there was no concern. I was never led in the direction that the implant could be the offender. I went through many G.I. tests and CTs scans. Finally, I was contacted by a very distant acquaintance that had heard how ill I have been. I live in Florida and she Lives in Texas and I have only met her once. She shared with me her experience and told me
    about Dr. Susan Kolb and her book. Dr. Kolb did her explant over a year ago and she said she has almost totally recovered. Her implants were Saline and had been in for over 30 years. When they were explanted they were black with mold! Her testimony and Dr. Kolb’s book opened up an entire new world to me.. I had arrived to a point of illness that I have been disabled in any quality
    of life and had become fearful that I was dying. My husband was extremely
    concerned when my weight dropped to 95.5 lbs. The intestinal disorder has given me malabsorption and many food sensitivities. After reading Dr. Kolb’s book, The Naked Truth about Breast Implants, I became alarmed and felt urgent to get my implants out. I could not find a Dr. in my area that thought
    there was a problem. I did have a plastic surgeon order a MRI and both implants were leaking.so he agreed to take them out and asked if I wanted to
    replace them. I was desperate to be done with this poisoning and was not sure if he would do enbloc removal. I called Dr. Kolb’s center in Atlanta and was told they could see me not until June. That was too far away for me
    because at this time it was the first of March. So I scheduled with the local surgeon. But then a week later I was told Dr. Kolb had a cancellation and I was
    scheduled for March 24. I am now 4 weeks today post-explant. She took out 4 nodes under my arms also and they were negative for cancer. My implants were Silicone gel. and the cultures were negative. However, the fear I have
    now is due to having received my first implants in 1984 (after weaning my last baby. ) Unfortunately, I went years with the right breast encapsulated and finally found out it had ruptured. No Doctor, during my annual breast exam for cancer, ever alerted me to a problem. So, 21 years later I scheduled a replacement. The surgeon said he had a difficult time cleaning out the silicone
    but never expressed a concern about the possible effects. He warned me of none. He replaced them with Mentor silicone gel in 2005. Strangely, 6 years
    later I suddenly became ill on a family vacation with high fever and becoming barely responsive with severe vomititng. I was air lifted and was soon diagnosed with herpes encephalitis. My family was told I was critically ill and I
    might not make it. I was in a coma for 2 weeks. I also remained in the hospital for 42 days. A year later we thought I was on the road to recovery but I began to manifest other symptoms. We thought it could be related to the encephalitis right temperol lobe injury. But over time I began to become progressively more ill with other autoimmune symptoms. We now wonder if the encephalitis
    was the beginning signs of my compromised immune system? So since 2011 I have been slowly becoming sick with a “mysterious” illness. After my
    explant on March 24th, Dr. Kolb sent me home a week later on a massive amount of supplemnets for detox. I have been doing my best to follow her advice.. However, I am still not feeling very well. I still have the same digestive
    problems, ringing in my ears, body and joint aches, disturbed sleep and “brain fog’. I have heard so many testimomies of explant improvement and keep
    hoping things will begin to improve for me. I still have to have hair tests for metals and wonder if there is hope that these toxins and metals can begin to move from my brain. I was exposed to silicone for 32 years. Now I am
    concerned if the Mentor implants exposed me to Platinum or Tin. I would love to be guided through this very difficult time of detoxing. I am sure my age is a factor to slower healing. I will turn 69 this April 22. But I am hoping for the restoration of my health. I am thankful for your attention and will be grateful for help.

    Reply
    1. Nancy Coleman

      Dear Karen,
      Could you look for a Functional Medicine doctor in your area? This kind of doctor is educated in detox and many other forms of care.
      I see one in Boulder, CO. I also see a chiropractor in Longmont, CO.
      When I do my explant they both will help me with the detox.

      Nancy

      Reply
  161. justine havens

    I’ve had implants since 2008. I have a feeling inside that my health is getting worse . how can I get help now. People act like I’m crazy when I mention this.

    Reply
    1. admin Post author

      Hi Justine,
      Don’t waste time and energy trying to convince others such as family members or your doctor. Just start planning your explant and get your breast implants properly removed which means En Bloc/Total Capsulectomy. Please ensure all capsule tissue is removed. Nicole

      Reply
  162. Diana

    Linda, do you know if the surgeon who preformed your removal in Alvin is still practicing? I looked up surgeons in Alvin and the only one I thought may possibly be the one is Dale Messer. Is this possibly the right one?? I’ve been sick for 14 years with Lyme disease. I Got my implants 6 months before I got sick. ???? Have often wondered if I would feel better if I had the implants removed. I’m almost convinced I would.
    I didn’t get implants to have bigger breasts, my breasts were literally deformed.
    Think I need to really consider getting them removed and will not do it without a referral to a dr that did a great job from someone who has actually had it done.
    Thank you, Diana

    Reply
  163. Amanda

    Hello, I have done my research and am scheduling soon to remove my 20 yr old saline implants after declining health. Im not sure if I have a slow leak and was wondering if anyone would recommend a MRI, 3 D mamo or ultrasound to investigate. I have never had any and I am 39yrs old. TIA

    Reply
    1. admin Post author

      Hi Amanda,
      We don’t recommend mammograms because they can and do rupture implants. MRI’s are fine as long as you don’t have the gandolinium contrast with them which will become toxic to you. Ultrasound is best in our opinion. Nicole

      Reply
      1. Amanda

        Thank you. I will have my Dr order an ultrasound before I schedule surgery, if there is anything abnormal I am hoping to get insurance to help out. My Dr is writing a letter to recommend removal along with my history and symptoms. Any other suggestions to get support from Ins co??

        Reply
    2. Linda

      If you are in a support group, some should know of doctors who still believe breast implants are dangerous..why would dow pay the first ill lady $25 million, she moved away and no one was to contact her. I did, but did not know I was not supposed too, I got a call, a threat, not to ever call her again, a different b i lady. This is why dow and other b i manufactures had to get a class action lawsuit started, they could not pay all the ladies that much, for the women left, this is what they did.
      I had my silicone implants from 1977 to 1994, at the very start, I could tell things were not right, worst things, first, I hand NO energy. Then other things started to happen, was at a doctor’s office about every two weeks.
      AMANDA: There is a test where the tech will place your breast into breast like forms, there is no pressure, looks like a ultra sound machine. No mamo ! No pressure ! More than likely you do have leakage, the silicone envelope leaks small amounts of silicone every day, the saline will lose it’s strength, it will be bacteria and fungus in with the un-strengthen saline. All needs removed, you may have different kinds of illness when taken out, but I had two doctors from Houston, TX. tell me: “if you do not get them out, you will die”. My last delima, I could not walk, I went to my foot doc. he sent me to a foot specialist, they could not find a thing wrong. This was the last draw. I do walk now. I had several close b i friends to leave this cruel world when it came to breast implants. I had a GENERAL SURGEON remove my implants. He took out the implants where they were put in, under the breast. Back then we were told they were not dangerous, but they really are. Many b i ladies have been paid settlements for their illness, but our health is more important. Please get them removed and not by a plastic surgeon, I went to a plastic surgeon, he told me “i will be sunken in where the implants were, scars..for me to come back for saline implants, then I met a lady who went the the General Surgeon, I went to him also. I was very pleased with the out come of his surgery ways.
      This was in Alvin, Texas. God Bless us all who got into thinking we needed or wanted bigger breast, now I can be little or I can be big, Walmart has air bras, water bras, Victoria Secret, Fredricks, they will help you with the right fit. DO NOT BREAST FEED IF YOU HAVE BREAST IMPLANTS, more generations are ill now, people still having implants put in, young ladies, who will want to have children, have b i’s, there is NO MILK in the breast ~ I wish you all the best of health but the implants must be removed. Thanks for reading some of my years living with the dangerous implants.

      Reply
      1. Amanda

        Linda, thank you for your story and all the information. I had saline under the muscle 20 years ago and was fine for many years or so I thought. Did have trouble breast feeding my 2 kids and had to stop at 6 weeks for both. About 2 years ago weird things started to happen but I was under a lot of stress so I just dismissed it all until I was made to search for answers. I am not as bad as some women, I have been diagnosed with a mold infection, candida, adrenal fatigue, food sensitivities/leaky gut, allergies, estrogen dominance which caused severe eczema type rashes all over and low thyroid ect. All while going into menopause at 38 yrs old. Can not wait to go to the other side and get these darn things out! Thanks again for sharing.

        Reply
  164. claire

    Hi Nicole,
    I am trying to sign up for facebook, but have never done this before, can you please guide me on how to sign in to facebook for your support group, thanks

    Reply
    1. admin Post author

      Hi Claire,
      You need a facebook account. If you have a facebook account you can go directly to the group by clicking the link to the support group on the welcome page of this website or clicking the F button located at the bottom of any page of this website, both will take you directly to the group. Otherwise you can search the group by searching Breast Implant Illness and Healing By Nicole. Nicole

      Reply
      1. Merita Haley

        Hi Admin: I found this page on a Google search for autoimmune and saline implants; I have both. Just put in a request on your Facebook page.

        Reply
  165. ccccccc

    I have brest implant for three years. I explanted today. Since I have got it, I made an peculliar asthma, I have anxiety since one year. I felt this is somethig wrong with my implants, because I was healty before.
    I hope symptoms will disseapear.

    Reply
  166. Andrea

    Hi Paula,
    I sent a phone text to the # listed inquiring when would be a good time to call you. Maybe your # is a land line? If you would still like to talk let me know. I am excited for your upcoming surgery to renewed health. ????

    Reply
    1. Paula Lawrence

      Hi Andrea –
      Yes, that is my land line – I am on central time and I will be home on Friday, Saturday all day and Sunday afternoon if that works for you – I’m an early riser so call when it works for you 🙂 Otherwise, my cell number is 715-205-4255. Looking forward to talking to you! Thanks, Paula

      Reply
      1. Andrea

        Hi Paula,
        I left a text message on your land line #. Glad we figured it out. Let me know if you prefer I call your land line or cell and at what time. I will call this weekend. I look forward to talking with you. I am at the horribly chronic stages of this illness right now, but am pushing forward…barely. Knowing each day brings me closer to my Explant on June 1st is the only thing that is keeping me going! Talk to you soon. ????

        Reply
        1. Paula Lawrence

          Hi Andrea – if you want to call me at home 715-865-2925 tomorrow at 10 that would be great – but try anytime that works for you. The waiting for our appt is agonizing – I so agree with what you said!!

          Reply
  167. Susan Tedrahn

    I have had my saline implants for about 8 yrs. They both ruptured about 3 yrs. ago. I have never had any acute symptoms. Anything that was happening to me I chaulked up to just getting older. I’ll be 69 this May Any Dr. I spoke to told me that as long as I wasn’t having any symptoms there was no rush to have them removed. That worked for me because I didn’t have any money to have them removed. Now that I know better I’m trying to rectify the situation

    Reply
  168. Emily Thode Valdez

    My name is Emily Thode Valdez and I’m a reporter with the ABC affiliate in San Diego. I am looking for someone locally who has suffered and become sick from her implants, ruptured or not.
    If anyone knows someone, please call me at 619-455-2791.

    Thank you!

    Reply
  169. Linda

    My name is Linda, I had silicone B Is’ put in the year of 1977. I slept two weeks sitting up, or trying, the worst pain, I was with a bandage for two weeks wrapped around me, the implants were put in under the muscle. Over the first month after the bandage was removed they started to get HARD, the one on the left would contract upward if I was in a stressful situation. I would not recommend Silicone (chemicals), Saline (saline in a hot body will lose it’s strength, therefore causing bacteria and fungus, check on bags of saline in hospitals, look for expiration date. (I would advise not breast feeding with any implant), saline with antibiotics: all the implants leak daily into the body, the antibiotic/saline; the antibiotics will become immune to your system therefore, if you ever need antibiotics for whatever reason, your system will be immune to the antibiotics ~ fat from your tummy section to place in breast: this fat rarely catches onto what is there for the fat to cling too, the fat more or less will just be a clob in your breast ~ any foreign object in the body will form encapsulation, such as implants, it is not know, as for me, why other implants like pacemakers do not cause diseases or encapsulation I do not know? I was told to squeeze the implants so they would not get hard, this was just one of the instructions which should not be given, the silicone is in a silicone envelope, the silicone also leaks from the envelope, this is one reason the implants get hard, if there are other reasons, I am not aware. I had my B Is’ taken out in 1994 this was after years of going to many, many doctors, for yeast infections, I was diagnosed with rare connective disorders such as: lupus, MS. I was NOT diagnoised with scleroderma (the worst of bi patients diseases, hardening of the skin and organs) MS. Fatigue, Chronic inflammation, colds, deep pain in arms and legs. etc. “ONE” doctor, a Rheumatologist in Houston, TX., he yelled at me saying “if you do not get the implants removed, you will die”. I did not then, I went for a annual physical at my workplace, the doc. there could not believe his eyes and told me I sure should have them removed. Before these two doctors, I did not realize my problems were from the implants, I waited a couple years more, still being ill, used all my vacation and sick days the last year of my employment, what got me to have them taken out, one day I got up from my desk and I could not walk. I had to drive myself to the foot doctor as it was my feet causing this, he could not explain, he sent me to a specialist., he could not explain ~ after test and x-rays. This was the final draw: In 1994, I met a lady at one of the rheumatolgist , who believed implants were/are a problem. She was with her spouse, I was with mine..We started talking ~ she told NOT GO TO a Plastic Surgeon for the removal of implants. She showed me her breast, and said they were the way they looked before she had hers put in, no scars showing and same size ~ both the lady and mine were taken OUT (mine in 1994, had them for 23 years and ruptured) where they were put in, under the breast, she advised me NOT to go to a plastic surgeon, they are only looking for you to come back for more reconstructive surgeries or talk you into a different implant. She gave me her surgeon’s name, was in Alvin, Texas, I called his office, mad an appointment with him, he removed the implants, I too look the same as I did before BIs’. Plastic surgeons are looking for patients for more money, general surgeons are for you to be well and have much to do without a patient coming back for more surgeries. In BusinessWeek magazine dated Oct.. 2. 1995, there is a article written by, I am sure by now a former employee of Dow Chemical located in Houston, Texas, The front page: TRAPPED. His wife was suffering from the results of breast implants and here John Swanson worked there. Instead of telling all the bad which comes from BIs’, his point was to get the Informed Consent form signed from the doctor, the plastic surgeon. He also wrote a book: Informed Consent, what this book is about the end line, is the doctors should inform the patients of the risk of BIs. They don’t, they do not tell ladies (some men have then also), they have to be replaced ever ‘5’ years, and problems which will come, if implanted.
    I thank the good Lord I have a wonderful husband and daughter who have put up with me when I am not up to par most days..as for detoxing, I found a doctor in T J, Mexico who treats with chelation IV, gluethyeon (spelling ?)IV and Live Stem Cell shots. Mineral foot baths are good for detoxing akso.. I live in California but people go to this doctor all over the world for treatments, not only Breast Implant patients, but cancer, many other illnesses. When the doctors give up on you in the US or other countries, they go to him.
    You will find when and if you have your implants taken out; doctors do not like to hear these two words: Breast Implants. In fear of a lawsuit. I still have my implants in my garage: they are in a plastic bucket like with skull and cross bones. I believe all lawsuits have been filed and paid the first payments, then in 2014 there was a partial, now there is another partial to come and if the early BI patients get worse, they can file for another disease, if worse. My disease is General Connective Disease. You might phone the manfacturer who made your implant and see if they will pay to have them removed. After a lady from Houston was paid $25million, the manfacturer figured they cannot pay all BI patients this much so there was a classs action lawsuit. There was about 5 catagories of diseases which one would have to meet the criteria, we needed medical records, the manufacturer who made your BIs, and a Rhumatologist and Neurologist will be needed for a catagory, or was needed. Please check with the manufacturer, if you do not have the money to pay for explant, ask them to pay. Keep all medical records.
    I don’t know what my life will become in the future, my main problem now is fatigure, deep pain in my legs and arms. I have a friend who went for a Mammagram recently, they told her she has silicone still globs in her breast, her implants have been removed, but they had ruptured.
    I feel for each of you! I lived in Houston, TX. most of painful years, there were many BI ladies there, many were/are my friends to this day. Some are o k, some are bedridden some of my very close friends did not make it through this tragic ordeal. One of my best friends was given a check to sign on her death bed. GOD Bless you all, just get them out, the longer they are in your body, the worse it will be for you. I could write more, but I feel I have written too much as it is. We did everything to stop ladies from getting implants, some did listen, maybe some never thought to ask? This was in 1994.
    NO PLASTIC SURGEON!
    One other thing, don’t always trust the people who have never had implants, they could be working for a plastic surgeon or an attorney. If I can be of help, please let me know. Linda

    Reply
    1. Linda

      Ruth, contact the manufacturer of your implants, hopefully they will pay for removal. I wish you well <3
      You will have to give them the I D number of your implants, which will be on your doctor's record who implanted you ~

      Reply
  170. Ruth LEONARD

    Hi, i kept having pre-cancerous tumors,
    coming faster, larger , & harder than the previous ones before. 3 different m. d. stated i should have a double mastectomy &. reconstruction surgery.
    That procedure were completed in the mid 1980.
    I had Saline Implants. Both have burst. the implants are still in my body. I am on disability/Medicare, & do not have the money to have the implants removed.
    I am suffering from GERD, IBS-D,
    Ankylosis Spondolitis –
    ( Rheumatoid Arthritis -HLA-B27 positive ), OsteoArthritis, COPD with Chronic Bronchitis , NASA Cage with Titainum Plate & Screws,
    2 Anyurism , 3 Strokes, Cataract Replacement Lens (Both Eyes) , Right needs TKR,
    Migraine Headaches,

    Reply
  171. Susan

    Also you listed all physicians at Baylor Houston – you just listed the entire department. What physicians would you recommend at Baylor? Many thanks

    Reply
  172. Susan

    Who would you recommend in Houston? Saw that dr. Fortes has no recommendation after his name. also can you please email me the Guidelines & Indications for Breast Implant Capsulectomy? Thanks for all this info.

    Reply
  173. Susan

    Hi! Wow finding this site blew my mind! Thanks so much for your information.
    I am 59 years old. I had my first silicone implants in 1984 and a larger set in 1993.
    So I have silicone on my chest for over 30 years, same set for 23 years.
    I have never had any capsule formation or problems with the implants that I could see or feel. So I just went on with life with the “if it ain’t broke don’t fix it” attitude, even though as time went on they felt grossly overblown, clumsy, difficult to fit clothing, painful during exercise, and with 25 pound weight gain I totally felt like a fat whale. As I matured, I came to realize how dumb it was – what the heck is wrong with small breasts? ? Life is NOT about body shape – it is about ME, my love, family, intelligence, etc.
    The plastic surgeon never discussed pros or cons. What would happen to these foreign bodies in me over time. Nothing. I never heard of FDA warnings, no public statement of silicone leak hazards, no media news broadcasts to advise women to get checked asap if they have breast implants.
    I never even thought about the silicone that may be hurting my health!
    My symptoms increasingly over the past years of brain fog, severe cognitive impairment, frequent upper respiratory infections, fatigue, depression, low motivation, general malaise were attributed to old age, menopause, weight gain, etc. Many trips to doctors. No medical professional ever connected my implants to all my symptoms.
    Now that I know – I want them out RIGHT NOW!
    Ok thanks for listening – I need an ex plant surgeon Philadelphia area please. I looked at the lis and the closest is Hershey.
    I am positive my pcp, plastic surgeon and other hcp’s will think I’ve lost my mind
    Help!
    Susan

    Reply
    1. Marlene

      Hi my name is Marlene and I had silicone implants in my body for 29 years.
      July 2015 I had them replaced with new silicone implants my plastic surgeon told me that he removed all the silicone from my breast area. Three weeks after my surgery I had this burning sensation in the bottom of my right breast I had an ultrasound month prior to my surgery that show that I had a silicone leak in the right implant, last week I had a mammogram, ultrasound and MRI it shows that he left chunk silicone in the right breast. And my plastic surgeon has been on The doctors 2020 and Barbara Walters interviewed him Dr. Oz The view entertainment tonight the list go on. He’s wrote books on plastic surgery. He won’t except responsibility of leaving that silicone chunk all he says is when I go see him all the time they look so beautiful I did a good job. Now that I got that MRI done now I need to do something about it!

      Reply
  174. Holly Dauphin

    Hello – I have been very sick for about 18 months. I was recently diagnosed with Shjogres and arthritis. I was hospitalized last summer and initially everyone thought it was lupus. I get rashes with, have heat sensitivity, pain on my right side under breast in rib area, muscle weakness, joint pain, mouth and nose ulcers, dry everything, brain fog, neuropathy in limbs, vertigo and the list goes on & on. I have been sent to a rheumatologist, dermatologist, Gastrointologist, Endocrinologist, Opthamologist, and now immunologist all in the past 10 months. I keep getting sicker & put on more meds but no one can come up with a root cause for all my symptoms. I am only 46 years old and wonder how all of this could happen to me in less then 2 years when I was always a healthy person. Oh I also now have high blood pressure, insomnia, food sensitivities & stomach issues. I learned of breast implant surgery from a member of my Sjögren’s syndrome support group. I have had my implants for about 8 years they are saline. I saw a dermatologist in November because I devolved a raw raised itchy rash on my left breast. She biopsies and it came back inconclusive some type of psoriasis with unknown cause. I went for my annual mammogram in January and the tech asked if I noticed that my right implant was smaller then the left, I hadn’t but told her I had pain under it near ribs, she took extra films and then shouted radiologist to see if ultrasound was needed. She said he said no, I didn’t question it at the time. I believe my illness is due to my implants and that all my mysterious symptoms are tied to this illness. My insurance company is BC/BS & Breast Implant removal is listed as Required for Pre-authorization. I need to find a doctor who can diagnose me with this illness and tell the insurance company removal is a medical necessity to prevent further illness. Can you help me locate a doctor in Connecticut. Please I am so sick and tired of being sick & tired…any assistance is appreciated.

    Holly Dauphin

    Reply
  175. Linda barbano

    Hello my name is Linda I would like to join the group please I had mcghan breast implants put in in 1993 and I’ve been suffering from one ruptured 10 years ago and I can’t get any help either. This is such a terrible occurrence it’s changed my life extremely I have health issues I feel awful and disfigured I certainly hope some time before I’m gone we can get help with this matter

    Reply
  176. Marie Davies

    Nicole,
    Thank you for this site and info!! I’m 53 years old & have had silicone implants over 25 years. I’ve had multiple sinus surgeries, including fungal infections, and I’m very sick now. I had to stop working to try to find out what’s wrong with me. I’m usually very energetic & now I have to stay in bed all day on some days. I have chronic post nasal drip and thought I might need another sinus surgery. The rhinologist & ENT say I don’t. Then I looked into mercury fillings; I don’t have any. I’ve been to SO many doctors and I still do not know what is wrong with me. When I read this, I thought this might be my answer. I recently started going to a naturopath & had thermography done & other testing. These are some of the results: severe sinus problem, severe lymph block, severe breast blocked spot, inflammation, my sinuses & entire right side of my neck lymp are severely blocked, severe global immune stress, adrenal stress, severe systemic virus, allergies, vitamin deficiencies, food sensitivities, etc. ; I’ve tried so many doctors,etc. such as acupuncture, acupressure, chiropractic, lymph drainage, essential oils, ENTs, etc.

    Does this sound like it could be the implants to you?

    I mentioned it to naturopath & she said:
    ” Silicone is “inert” and thus it is asserted that it is harmless, but anything can trigger the immune system. We are going to continue to improve your lymphatic circulation and reduce the stress on your immune system… getting you to a better level of health!”

    Will an MRI confirm if my implants are unhealthy for me? Are there other ways to confirm? If I have the implants removed & continue my alternative treatments, should that “fix” me?

    I would appreciate any advice!! I live in Plano, TX.

    Sincerely,

    Marie

    Reply
    1. admin Post author

      Hi Marie,
      I recommend explanting properly asap which means an En Bloc style Total Capsulectomy – all capsule tissue should be removed for your best chance at healing. Your symptoms are very common to breast implant illness. With a proper explant and support of your detoxification you will recover your health in a few years. Nicole

      Reply
    2. Marlene

      I had an MRI and they will confirm what’s going on if they’re leaking and what’s going on with your breast tissue.

      Reply
  177. Andrea

    Hi Paula,
    Your generosity & kindness means the world to me. More than you will ever know…Thank you for your support. I will reach out to you. I am going this journey alone so I am beyond blessed & forever grateful to have found support & kindness from people like yourself & this group/site.
    Andrea

    Reply
    1. Paula Lawrence

      Hi Andrea,

      Yes, please call me so we can actually talk – there are very few people I can actually talk to as well. I am excited for you to have your surgery with Dr. Feng. Each day gets us closer to our explant date! (715) 865-2925. Paula

      Reply
  178. Christie

    I wish I could afford the explant. One implant recently burst and I’m fairly sure that my severe skin rashes, , itchy liquid filled bumps, hive looking bumps and perioral dermititis are linked to this somehow. I went to a plastic surgeon yesterday for a consultation and before I left I agreed to let him deflate the other. He jabbed a needle 5 times into my breast while making large circular motions to do so. I almost passed out from the experience.

    Reply
  179. Andrea

    I see the link where I need to join Nicole. ????

    Nina-thank you so very much for your post. I have 360 cc as well. They have doubled in size since implanted over the muscle 18 yrs ago. First surgery was with mentor textured saline that my body started rejecting as I was coming out of anesthesia in the hospital! I just found out I have the MTHFR gene. The replacement allergen textured silicone implants have become swollen obviously due to scar tissue & probably leaking/possible rupture as I have a protrusion poking thru my skin on my top right breast. It looks like an arrow. I have been told by countless doctors & PS it is only cosmetic even tho I am bed ridden except for going to work and straight home!! Everyone would only exchange not Explant. My whole being kept saying NO!!! I am scheduling my Explant today with Dr Feng in Ohio. I am traveling a great distance by myself to see her. Very excited. Your post gives me great comfort. I can wait to walk for miles and workout like I used to. I can’t wait to live again and be free of these toxic deadly bags that are not only trying to take my life, but make me look like a 45 yr old “Barbie” wanna be. I am excited to see the world again!! I have been very symptomatic for the past 7 yrs and debilatingly ill for the past 3. I am excited to live again!! Thanks again for your post Nina.

    Reply
    1. Paula Lawrence

      Hi Andrea,

      I am having my explant done by Dr. Feng on 5/9 – we can stay in touch if you’d like – my number is 715-865-2925. I’ve had my implants for 11 years and, like you, can’t wait to get them out and just be me and get back all of my energy. Please call if you’d like to talk! Thanks, Paula

      Reply
    2. Linda Beug

      Hello Andrea- I live in the Cleveland area and have a consult app with Dr Feng on 4/26. I found this site 2 wks ago and made up my mind immediately to have my 26 yr old implants removed. I’ve been diagnosed with RA 12 yrs ago and fibro 3 yrs ago and know in my heart that the implants are mostly to blame. Anyway if you want someone to confer with or maybe meet you when you fly in to Cleveland I could possibly be available for you. My name is Linda and my email is lbeug70@yahoo.com

      Reply
      1. Andrea

        Hi Linda,
        I am excited for your consult. I’ll reach out to you via e-mail. I am counting down the days to June 1st. Never thought I would be so excited to go to Ohio! ???? I will be there for extended stay from May 30th thru June 6th. I am doing ultrasound & mapping there as well. I will leave earlier if drains are removed, but doing my whole care there. I have no room for chances anymore & want Feng to remove the drains. Talk to you soon. Andrea

        Reply
  180. Andrea

    Hi Nicole, WOW!! I read through this website top to bottom over and over again all last weekend. This website is how I put 2 and 2 together about my horrible illness with my 18 yr old toxic implants. I would have never made the connection without all this information. What are the support groups I should join again?? This is you ???? ????

    Reply
    1. admin Post author

      Hi Andrea,
      The facebook group is called Breast Implant Illness and Healing Official Group. See you there. Nicole

      Reply
  181. ashley

    I just had my implants removed. I’m still feeling tired, moody and so on. I need help detoxing now. How do I start this process? I have three small children. I need to get myself back.

    Reply
  182. Sheri Prejean

    Thank you for sending me this. I do believe I suffer with some of the symptoms. Unfortunately I do not have my husbands support as he doesn’t think any of this is true. My PS nor Gyn don’t believe it exists either.
    I will continue to read up on all of this and act according to my belief for my body!

    Reply
    1. Nancy Coleman

      Dear Sheri,
      I’m sorry you don’t have your husband’s support. Move forward anyway. There are most likely more ‘things’ for you to learn through what you’re experiencing. Go inside of yourself, ask “what is there for me to learn about myself?”, and move forward. Stay with your convictions….and most importantly find your personal power and stay with it as best you can. Don’t be too hard on yourself. It’s an experiencing and learning process.
      Best to you and your health.
      Nancy

      Reply
  183. Rio Duro

    Hello
    its been less than a year since I started noticing problems, had mentor, saline implants with mya uk in 2013. First started noticing aches in my back, hip and pelvis which then felt like trapped shooting nerve pains in groin and hip area and lots of bloating. things started to improve for a month or so only to come back a whole lot worse. I then began to get pins and needles in my legs with awful nerve pain and pain around pelvis attaching muscles, plus awful back pain asthough it wernt sitting properly, also the dizziness and shakes appeared on and off. The chronic back and leg pain carried on only then to have neck problems, trapped nerve pain and muscle aches on and off. then I suddenly began to get nerve and muscle pain down arms and hands and have developed raynauds recently; however what’s proving most scary atm is ive developed a shudder whenever I move any bones especially in my back and neck! I feel so weak and my limbs feel floppy and shaky. Infact forgot to mention been getting numb hands/arms during the night for almost 2 years, plus anxiety/panic attacks, skin rashes. I have gone from working 11 hour days running my own business to not being able to the supermarket in the space of months. Seen doctor countless times, they have now referred me to neurology with a huge waiting list! Sure there are other symptoms I have missed too but can’t think of right now. I had no idea implant illness existed until a matter of days ago, I’m not sure what to think to be honest but im so worried and just wanted to put my story forward, thank you, Rio.

    Reply
    1. Sharon Ribando

      I was where you are one year ago! EVERYTHING ! This illness is life changing became completely bedridden before i found this site.

      Reply
  184. Anne Hultin

    I’ve had my implants for over 30years.lately I feel like I have Body aches, back aches, whenever I bend over when I come back up I get dizzy and feel like I can’t breathe. I want them out but can’t afford the surgery. Does insurance cover implant removal.?

    Reply
    1. admin Post author

      Hi Anne,
      Some insurance does cover removal of implants. Pain and capsular contraction Bakers IV seems to get covered the most. Check out the link to insurance information on the Resources page of this website. Nicole

      Reply
  185. Penny

    Hi , I just found your group and can not thank you enough! I have had implants for over 20 years. Starting experiencing capsular contracture about a year ago. My health had been “delicate ” for many years but I am high functioning so always pushed ahead. But over the last year my health has been deteriorating. Finally diagnosed with fibromyalgia. Does anyone know of a surgeon in CT who performs explanation en bloc? I called Dr James Lyons office in Westport and spoke with his assistant. It does not appear that he believes in this illness since they said that usually they do not “need to take the capsule out with the implants”. Thank you. Penny

    Reply
    1. admin Post author

      Hi Penny,
      Most plastic surgeons will not admit that breast implants cause illness because they derive so much income from placing breast implants. The most important is to choose a surgeon committed to removing all the capsule tissue which we knows correlates to a good recovery. Nicole

      Reply
  186. Allison B.

    I am having explant surgery next month and have questions with the detox process? When should you start the detox and is there an exact program to follow telling me what to eat?

    Reply
  187. claire

    Hey Paula,
    Thank you for the blessings for my surgery, I am counting down the days. Wishing you the best on your surgery also, hope it is a blessing for both of us.
    Thanks again, Claire

    Reply
    1. Paula Lawrence

      Hi Claire,

      Only 6 days until your surgery! If you would like you can call me at 715-865-2925 so we can stay in touch. Thanks, Paula

      Reply
  188. Kristi

    I need a really good Doctor in Southern CA. Los Angeles, Newport Beach, San Diego areas. I am having a myriad of symptoms. I want someone that is good at implant removal. Thank you.

    Reply
  189. Paula Lawrence

    Hi Nicole,
    Do you know if there are any plastic surgeons in Minnesota that you would recommend that do explants? I’m waiting to hear from my P.S. in Edina, MN – one of his nurses said he doesn’t do a lot of those…so I’m a little leary about going back to him for that – but I have a consult appt on 3/11 to discuss. In the meantime I looked at the explant surgeons you recommend on this site – but I thought I’d double check to see if you know of any in MN? Thanks, Paula

    Reply
    1. Paula Lawrence

      Claire, I am so happy that your explant surgery is on 2/24! I just got my explant date with Dr. Feng on May 9! It seems like an eternity to me. The worst symptom that I have is migraine headaches which before I realized my implants were the cause I’ve been trying to figure out the cause through diet for the past 9 years or so! Ugh – this is a nightmare – but I know it could be worse. Blessings to you for a wonderful surgery! Paula

      Reply
  190. Claire

    Hi Nicole, Thank you for our website and all the information you have provided for the many women like myself who are suffering from implant toxicity. I am scheduled for explantation on Feb 24 and looking forward to getting my health and my life back. Recently had MRI of breast which indicated implants are intact (silicone which were inserted in 2009 replacing saline originally inserted 1992 S/P bilaterally mastectomy), PS doing explant with capsulectomy. Due to my declining health, extensive body mass loss and wt loss, PS unable to do fat transplant or flap at this time, but at this moment I just want to be healthy again. Besides being dx with Hashimoto’s in Sept I have been experiencing increased neuropathy, headaches, fatigue, palpitations, blood pressure fluctuations, itching all over my body and intense itching under chest wall/implants. PS denied implants cause autoimmune disease but did state he has seen these similar symptoms in 4 women who he removed implants and had significant symptom relief, so I am hopeful. I have been on gluten free diet since dx of Hashimoto’s in Sept and PS has recommended vitamin therapy and protein shake supplements prior to surgery. Would appreciate any information/advice that will help me prior to surgery, I have read your detox protocol for after surgery. Do you know if the physicians ever start patients on antifungal therapy prior to surgery, the itching worries me that I may have fungal infection. My primary care MD, endocrinologist, cardiologist, allergist and neurologist have all ruled out underlying causes for my symptoms and admit they had no idea implants could be the cause and encouraged me to follow thru with PS.

    Reply
  191. Anne

    Hello-
    I underwent surgery in May 2015 for cohesive gel implants. All was well until the first part of December when I experienced a highly inflamed lymph node in my arm pit area. It has since settled down but is still somewhat enlarged two months later. Approximately one month after experiencing the inflamed lymph node I noticed a tightness from my arm pit to my elbow and every now and then it continued to my wrist. It felt like scar tissue that prevented me from full extending my arm. That has since subsided but I do have a sore spot on my lower – interior bicep muscle. It’s primarily one sore spot that gets my attention when I press on it. If I extend my arm out to the side and press backwards I can feel a soreness in my bicep muscle. Has anyone experienced similar symptoms? I’m wondering if the ‘scar tissue’ feeling was drainage from my lymph node? Thank you in advance for any information you may be able to provide.

    Reply
  192. Debra

    Hi Nicole,
    I had my forty five year old silicone implants removed six weeks go, and I have a question about the detox program. I have been tested for heavy metals and mold with nothing being out of order. My biggest concern is the difficulty I have in walking, weakness and wobbly sensation. I don’t know where to begin in the detox, I’m completely overwhelmed with all the suggestions online. Do you happen to know where I should begin considering this very disabling symptom, or what protocol is being used for this?

    Reply
    1. Dollie Bush

      Debra,
      I am where you were probably 2 or 3 months earlier!
      I’m just starting the process (consultation appt) on explant…mine are also 45 years old!
      Needless to say I’m trying to do research and feel scared. My age isn’t helping (76). My referral is to a General Surgeon not a Plastic Surgeon.

      Reply
      1. Janice phillips

        I am also 76 have had them since 82 .I have many of same illness as most women with implants.I feel as tho I need to have them out. I cannot bring my self to do this. Do I believe I would be better off without them. Age and expense is also a factor. Thanks for reading

        Reply
  193. Tara

    I got my implants in September 2014. I am suffering several of the symptoms (foggy mind, memory loss, extreme hair loss, heart pulpitations, mood swings, anxiety, lathargic and joint pain), however i had the copper IUD inserted  6 months ago and have been reading these are all symptoms of copped toxicity also so i don’t  know  if it’s  the IUD or the implants. I had bloods taken for my copper levels last week but all “normal” According to my GP. I have  been to a naturopath  and he said heavy metals hide in your tissue not blood, so blood test results wouldn’t show this accurately? He said I should have the copper IUD removed straight away.

    I get strange pains in my left implant (armpit)  and they feel as of they have shrunk dramatically  in the last 3-4 months  (i have also lost 6k while traveling so i know ive lost alot of natural breast tissue weight)
    Any advice is greatly appreciated
    Thanks in advance 
    Tara

    Reply
    1. admin Post author

      Hi Tara,
      Both your breast implants and the IUD need to come out. I would get the IUD removed asap and then come to the Facebook group and learn more about breast implants and copper toxicity. In the FB group we have a file on copper toxicity as some of us that that too due to high estrogen correlating with high copper. You can join the our facebook group Breast Implant Illness and Healing Official Group by searching us on Facebook or clicking the F button at the bottom of any page of this website. Nicole

      Reply
  194. Steph

    Hello I had a breast implant put in my left Breast 6 years ago I was lucky enough to get full sensation back and everything seemed fine. 6 months ago I noticed I had lost all feeling in the breast. Iv been to the doctors who said I will receive a letter to go and see my surgeon. What could this be im worrying and can’t wait any longer for some answers.

    Reply
  195. Nina

    I am 4 weeks post explant. My “fibromyalgia” symptoms are better, and the best way of describing my overall feeling is that my body feels a lot less stressed. I’d compare it to having an allergen removed after years of reacting to it. I’ve been following the detox diet and supplements and have been trying to get to the steam room in my gym as often as I can. My worst symptoms have been the fibromyalgia, joint pain and foggy brain. I am hoping that staying with the detox diet (raw organic foods, unprocessed, grass fed, etc.,) I’ll be able to keep improving. I felt so sick pre explant that honestly I didn’t/don’t even care what I look like, but surprisingly it’s a great relief to be back to an A after being a small D with the implants. Pre implant I was a 34A, had 360cc implants which made me a 34D and now …. well, I’m a small A and LOVE it. If feels great not having those things stuck on my chest and feel that my clothes fit much better. I love the natural look! Wishing the best of luck to all of you suffering and for those who are thinking of getting implants – DON”T do it!!! Read about how many of us got sick from them.

    Reply
  196. Stephanie

    I am 6 days post explant, (January 11) capsule removal and lift. My implants were silicone under muscle and had been in for 25 years. I used my local plastic surgeon, the same one that placed them so long ago. I was in surgery 2.5 hours and have been on the mend since I got home. I have not had much pain, just a little soreness. I have been wearing a sports bra, and sleeping elevated on pillows. I am to do this for 10 days.

    My pre implant breast size was 34 B, post explant 34D,, and now I am not sure. I think I will be 34 B+.

    Before I had the explant I had many unexplained symptoms (brain fog, joint pain, back and neck pain, tired all the time, psoriasis, afib, just to mention a few) Since I awoke from surgery I have had absolutely no neck, back or joint pain. The psoriasis on my leg is better. Not sure about the afib. Don’t want to take a chance and get off meds just yet.

    Having my implants removed was the right decision for me. I had a lift and so my breasts started out looking like flat donuts, but each day gets better, and they are beginning to soften and drop a little. I am sure in a few months, they will look awesome.

    This is a short synopsis of my story. Hope someone out there finds it encouraging. I would love to hear from anyone who has had their implants removed with lift. How do your breasts look 1 month out, 3 months out and then 6. Also when were you able to resume sleeping on your side or stomach.. These are the questions that I need answers to most.

    Thank you

    Reply
  197. Claire

    Hi Nicole, can you or anyone recommend an experienced surgeon in the New Orleans, La are to perform explantation?

    Thank you

    Reply
    1. admin Post author

      Hi Claire,
      There may be one there but I don’t know of him/her yet. Please read the Explant page of this website and see the Explant Surgeons page for a list of surgeons we know remove implants properly. Nicole

      Reply
  198. meredith edwards

    Dear Nicole,thank you first for your imformative text,it was the first imformation that allowed me to acknowledge that I did have breast implant illness.Yesterday I was explanted after having my textured coesive gel implants in for 18 years,the last 6 months have been a living hell,and I hope now I can start my healing,I won’t go into all my symptoms,as the list is too long.Today is the first day after explant,yes I’m sore normal,but I have an excruciating headache,maybe because of all the toxins racing through my body.I want to heal,should I be taking anti fungal treatment straight after my op,or any other medication,I shall eat organic and do what I can nutritionally,should I make an appointment to see a toxicogist,as I’m sure I have heavy metal poisoning as well.Thanks again for making me realise the gravity of my illness,and I wish you very well,and hope that you are fully recovered.I feel sadenned that there are many women who when they decide to implant,are blind to what will happen to them,and that one day in the future,all implants will be banned.best wishes,meredith edwards.

    Reply
    1. admin Post author

      Hi Meredith,
      Come to the Facebook group Breast Implant Illness and Healing Official Group where we can coach you through your detoxification. Nicole

      Reply
  199. Kimberly Simpson

    I have been sick for about 3 years and the recent year my symptoms have gotten worse. I was watching a TV show last night with Yolanda Foster in it and she just had her implants removed by the surgeon listed #1 on your list of explant surgeons. I asked my husband if he thought my implants could have anything to do with all my illnesses. He googled symptoms of implant illness and found your site. He then began to read to me all the symptoms of breast implant illness and my mouth dropped! I have pretty much every single symptom listed with exception of a few. Your site has been very helpful and I have to say I’m a little terrified of what my next few months entail. My one question to you is after the explant surgery, did you have a lift? I’m wondering if reconstruction will be needed or does the surgeon just remove and patch up? I’m not concerned about the size, a perky A cup will be fine with me as long as I get my health back. Thanks for all you have done in helping so many ill women.

    Reply
    1. admin Post author

      Hi Kimberly,
      I did not need a lift and many don’t but some do. It depends on the size of your breasts, the size of implants, aging, weight loss and gain. Your surgeon will tell you if you need a lift for the best result. Many ladies get lifts too and they turn out well. Other than lifts for those that need them no reconstruction is needed after explant. Nicole

      Reply
  200. tammy

    HI, I have a few questions. I have had silicone breast implants for 8 yrs now. I am 40 yrs old. Since getting them, I have developed arthritic changes in my joints, fatigue, menopause, flu like symptoms once a month or two months,and depression. I have been tested for lupus, RA, both negative. Sed rate normal. I have bone spurs in my back, one taken off my shoulder. In the last month I have begun having burning, electrical tingling in both breast with intense itching. Not to mention, a skin rash on torso and arms with no explanation. Im looking for an explant doctor, hoping my symptoms will go away. All illnesses that I have started after my implants. Just curious if anyone else has experienced any of these things.

    Reply
  201. cheryl

    I am in the pain category now. Its Sunday. Last week i had xrays for possible broken ribs from coughing so much. replaced 22 year old implants march 2009, with silicone. Heathy as can be except for the past two months (and last year same chest pains with flu symptoms)

    pain is radiating from my left breast area rib cage everywhere. this morning i woke up with left-sided numbness and tingling in my head and arm going down from my breast to my stomach. my mind thinks its silicone just dripping down my ribs and chest wall/ body. i told the doctors last year when similar pain from coughing happened it was happening again. last year had MRI, CT Scan, Mamogram, Ultra Sound. all came back with no implant rupture. my doctor says i have costochondritis. they gave me second round of anti-biotics, norco for pain on monday. i have only taken 3 of the norco as i don’t like pills. self medicating with alcohol.

    Los Angeles area. called and emailed doctor today. waiting for MRI to be scheduled for tomorrow. almost every post i have read today is the same as i am going through. what are the odds if the silicone has leaked that it can all be removed? i read that if it goes into your lungs it can never be removed (how would it get in there) i am i writing this i have a sharp pain my left temple when i open my mouth. should i go to emergency room or wait for monday morning? UUGGHHH

    Reply
  202. Madelin

    So glad I found this site! I’ve had hives since August. I’ve been to over 5 dermatologists, a hematologist, allergist and last being treated by a university of miami dermatology research doctor. All tests performed come back negative. No food or environmental allergies, no liver issue, no auto immune disease which is all great but I still keep getting rashes and continuous itching. I’ve spent over $4,000 in a 5 month peruod on copays for doctors and medicines. Just last night I thought of researching if my implants could be the cause, since my rashes only occur in my torso area from my breasts to pelvic bone. I’m now convinced this must be the problem. I had my saline implants put in, in march 2001, however I was told my implants don’t ever need to be replaced after 10 yrs. I would love referrals for doctors in the Miami area that explant and are familiar, and honest, about implant illnesses. Still surprised a class action lawsuit is not in place at this point. Thanks Nicole for this site and to all who comment to help others out.

    Reply
    1. tammy

      I have developed a skin rash in the last month or so. It is on my torso and arms. My breasts itch as well as my body. My breast feel like they are on fire with tingling. What have you done for your rash?

      Reply
    2. Tracy

      Madelyn,
      I too have been experiencing major allergies to everything. I’ve done all the allergy testing (and cat scans and MRI) and blood work and it comes back with nothing. About 2 weeks ago I broke out in a rash that started on my chest and has spread to my whole body but my face. It is not itchy. This rash is only one of the issues that I’ve been having for the last 6 months. (Extreme headaches, dizziness, anxiety, depression, not “myself”, and allergies to everything.) I’m starting to believe that it’s my silicone implants (2 years old) that are causing all of these problems. I believe that I live in your area and would love to know if you find a doctor that specializes in removing implants.
      Thank you!
      Tracy

      Reply
  203. Sheila

    How do we get sick if capsule forms around the implant? We have mold, biotoxins and lots of chemicals, heavy metals, etc. But, if the capsule is enclosed,, how does this cause our health problems like autoimmune disease, burning from inflammation, brain fog, disabled, etc.
    My plastic surgeon said it’s impossible to get sick from them because of the capsule. I KNOW they cause illness. I’m convinced. But, don’t understand how. Thanks

    Reply
    1. admin Post author

      Hi Sheila,
      The capsule tissue is not impenetrable rather it is permeable and silicone particles, toxic chemicals and micro-organisms pass through the capsule tissue all the time and even aided by our own immune cells called macrophages which attempt to carry these particles away. Plastic surgeons are ludicrous. On one hand they tell women you don’t need to remove capsule tissue because it is thin and will disintegrate and on the other hand they portray capsules as impenetrable and holding all the toxicity of breast implants inside the capsule which in reality is untrue. Plastic surgeon will say anything to keep their cash cow rolling at the expense of women’s health and lives. Nicole

      Reply
  204. Luba

    HI, I had a breast implant surgery done on 12/31/15, following mastectomy and lymph nodes removal on 12/11/15 with tissue expander inserted. It lead to excruciating pain and infection, therefore tissue expander removed and implant placed. However, a capsular contracture developed and I was recommended massage therapy , but not sooner than at least two weeks from 12/31/15. Will the massage therapy help? or the implant should be removed right away? Or should another implant placed above the muscle (usually not recommended after mastectomy)? Also, I was told that the healing process can take up to four month (for all the swelling to go away)?!! Hope, not too many questions at once… Thank you.

    Reply
    1. admin Post author

      Hi Luba,
      If it were me, I would remove the breast implant as soon as possible and not look back. Nicole

      Reply
  205. krista

    Hi I’m new to the site. Serious problems going on need some help if any. I am 49 years old. In 1991 I had silicone implants put in and still have them. I never ever knew I should of had them removed. I now am so ill and wondering if that could be due to my implants. I have developed a very serious skin disease that is the most painful thing ever. Huge sores deep, bleeding and looks like my blood is crystallized and blackish reddish clumps come out in my blood. My upper back pain is so severe along with the left side of my chest. I sweat constantly, my weight loss is ridiculous. Nausea. Always feel feverish it’s just crazy.

    Reply
    1. admin Post author

      Hi Nikmak,
      Yes we can highly recommend Dr. Lu Jean Feng in Ohio for explant. Her information is on the Explant Surgeon page of this website. Nicole

      Reply
  206. Timeca Seretti

    I am so glad to have found this website.!!!

    I got saline implants in 1998, I don’t recall if I had any problem with them. But when I came upon the 10 year mark I decided to have them replaced. I wanted to replace them with saline, but the surgeon talked me into the smooth Mpp silicone gel implants. I didn’t really want them, but he said that they were better and smoother than saline. Right after surgery I had that burning, searing pain and painful scar tissue build up. And then shortly after that I started having symptoms like back pain, which I told the doctor about and I said I felt it was from the implants, but they dismissed me.
    I had to have a full hysterectomy about 3 years ago (endometriosis and tons of fibroids) and since then my symptoms have just gone through the roof.
    I thought most of my symptoms were from the hysterectomy, and being forced into early menopause.
    But since I have found this page and read everyone’s story, I’m pretty sure what I’m dealing with.
    I have a practitioner who heals hormone imbalance (which is what I thought I was dealing with) adrenals, chronic fatigue, fibromyalgia and auto immune disorders. We did an extensive blood panel and saliva panel. We found that my WBC is low and has dropped since the last test. And I have low vitamin D, Low hormones and my cortisol is low and my adrenals are shot. Though I have tested negative for all of the autoimmune disorders, my sedimentation rate is double what it should be and my CRP is high. Which means I have all of the inflammation markers.
    Not to mention most of the symptoms….

    vision loss
    easy bruising
    constant yeast infections
    rashes ( had hives for 8 months and no one could explain it)
    muscle weakness, stiffness
    allergies
    sore aching muscles
    aching backbone
    vertigo
    dizziness
    night sweats
    fog brain
    memory loss
    carpal tunnel
    insomnia
    cording
    and pain around my ribs, under my breast.

    Looks like after 7 years of having these implants I will be having them removed.

    Reply
    1. Tracy

      I’ve had all of these symptoms with no explainstion, plus severe upper back pain every morning. It’s horrendous.

      I’ve had saline implants since 1998. Never connected the two – neither have any of the many doctors I’ve seen.

      I was exposed to mold, including stachybotyrs due to a hidden water leak behind drywall near ductwork that spread it throughout my home.

      Where do I start finding out if my implants are infected?

      Kindly,
      Tracy
      MINNEAPOLIS, MN

      Reply
  207. Nina

    Had my 9 1/2 year saline implants removed 12/21/2015! En bloc removal by the PS who did the implant. He doesn’t believe the implants are the cause of my health problems (joint pain, arthritis, fibromyalgia-type symptoms are the worst, carpal tunnel, brain fog….) but was very respectful of my belief that they are and I think he is actually concerned about the possibility that they are the cause. I am so relieved that they are out and at the possibility that I will get my health back. THANK YOU Nicole and all participants on this site for giving me all of the information on these life-endangering implants. I will post updates with, hopefully, my successful detox.

    Reply
  208. Lisa

    Wow talking about this and see your Facebook page now I’m starting to have more clarity and what’s going on with my body. I’ve been suffering so much with my breast I can’t even breathe. I’ve been suffering in silence been way too long I can’t sleep I can’t work it just drives me totally mental. I always believe there was something wrong with everything else going to my body and the last two years my fingers and toes have gone totally numb numb. I have been to the doctors and they say that I have a pinched nerve I don’t believe that at all. I went to one of the most prominent plastic surgeons in Texas and they always say that I just need a lift. That’s not what I need I need to take him out no one should have to live this way. ????

    Reply
  209. Oneisha

    Hi there please help me help me help me i have been really ill to the point of cant go on my doctors tries to help but i think they are clueless i have all these symptoms and more my hands and feet or numb and dead especially at nights hair loss severe fatigue crazy headaches back pain chest pain breast pain heart pain shooting underarm pain ,fever or hut flush for no reason;dry eyes, urinating often my worry is i dont have the money for explant and since these doctors clueless and refuse to think implants are causing sickness will the doctors in england give an enbloc style will they prescribe anti fungus anti bacteria since in their eyes im just a crazy girl my kids are tired to see me cry please help

    Reply
    1. admin Post author

      Hi Oneisha,
      Please come to the facebook group Breast Implant Illness and Healing Official Group. There are many women from England in the group that can help coach you on how to get an explant. Nicole

      Reply
  210. Marielle

    Is there any medical tests that we can do to see if we have all this toxins in our body? Can we always relate chronic pain to silicone implants?

    Reply
    1. admin Post author

      Hi Marielle,
      Inflammation markers are probably the quickest and easist tests of toxins in the body as toxins cause inflammation which causes the pain. There are also biotoxin illness tests and mycotoxin tests (mycotoxins are produced by micro-organism co-infections of bacteria and fungus etc). In breast implant illness our body pain is from various sources, our own autoimmune system attacking us such as RA, toxic chemicals causing inflammation and co-infections producing biotoxins. Our pain can be RA associated, toxic associated from chemicals and fibro associated from biotoxins. Nicole.

      Reply
  211. Crystal

    Hi there. About 1 year ago I got my silicone implants removed. I went back to the same doctor who implanted them. Like you said he said my capsule was very thin and not necessary to remove it. Now a year later both my breasts mainly my nipples and areolas are always itchy and have little scabs on them as a result. I am very concerned now after reading this article that I didn’t get the capsule removed. Do you have any feedback or suggestions. I feel very worried & would truly appreciate a response. Thank you kindly. Best wishes to you.

    Reply
  212. Jennifer

    I want to know if there is a class action lawsuit on the saline breast implants, I had the surgery in 1992 and within a month was sick and I have only spiraled down ever sense, never knew that this caused such health issues. I live in Eagan Mn. Please help with any advice that you can give me Thank you.

    Reply
    1. admin Post author

      Hi Jennifer,
      There is no class action lawsuit yet (other than the Dow class action lawsuit many years old now) but there may be soon in the future. Keep an eye on the lawsuit page of this website for further information. Nicole

      Reply
  213. Barb G

    Hi…I have had my saline implants for approx 11 years. I believe within 1-2 years I started having medical issues (a handful are on the list!!!) and I have been saying all along that it has something to do with the implants. In the past 24 hours I have found articles about breast implant illness.

    A few years ago I did go to a surgeon to see the cost of removal because of the pain I have with the one. The pain when my daughter lays on the one breast feels like a knife and then I have the pain that goes into my armpit & sometimes shoots down. Also that same one has shifted and rippled (that happened w/in 1 year). It is also tender to touch. When I go for mammograms and they do that breast, the pain is unbelievable. I was informed it would not be covered by insurance even though I am having issues and it was so much money.

    My gynecologist was aware of the issues I have been having and made it a point to always document it in his progress notes just in case for me.

    I have wanted them removed for many years and now I am hoping that 1) I can figure a way to get the insurance company to pay and 2) a qualified surgeon to do this. Unfortunately the list provided above didn’t list any in Philadelphia.

    Maybe ones I am approved for the FB I can see what the key words are to say for the insurance company & a surgeon in my area.

    JUST WANT THEM OUT & TO BE HEALTHY AGAIN!!!

    Reply
  214. Rhonda Jones

    I Had MY IMPLANTS DONE March 2010. I began having problems with health but just thought it was natural since I had turned 40. I now have an endocrinologist, a Rheumatologist, an orthopedic specialist and just referred to a Neurologist. I was diagnosed with Graves disease Dec. 2011, had to have a hysterectomy in 2011, my thyroid was destroyed with radioactive iodine Oct. 2013. I still have autoimmune disorders, my PCP has tested me for Lyme disease, Lupus, Rocky Mountain Fever, all test for adrenal gland disorders. The list goes on. I have chronic joint pain, can hardly stand up or walk at time, left shoulder hurts so bad that I wish it would just fall off.

    Reply
    1. Rhonda Jones

      I have been diagnosed with fibromyalgia, Inappropriate sinus tachycardia, rheumatoid arthritis, anxiety disorders and depression. I haven’t work since July 2013 I stumbled on an article this week And contacted my PCP and she agreed that implants causes autoimmune disorders. She was was willing to find me a surgeon. I have an appointment next week to get info. Regarding removing saline implants.

      Reply
  215. Wendy Weintraub

    I am wondering how your health has changed since explant. I have recently been dx with breast cancer. I can go with a lumpectomy and removal of lymph nodes but wonder if now is the time to have them removed since the insurance company will pay for reconstruction. I could choose the type where they remove tissue from your abdomen and us it to reconstruct breasts.

    Thank you for your feedback. Especially wondering how you feel now.

    ~Wendy

    Reply
    1. admin Post author

      Hi Wendy,
      I am almost fully recovered from my breast implant illness, I would say about 90 per cent but I still have to adhere to a good diet, no sugar or alcohol. My recovery from the chemical and biotoxicity of implants has taken almost three years and a lot of work with directed detoxification measures such as intense nutrition, oral chelation for heavy metals, supplements, infared sauna and other therapies. Nicole

      Reply
  216. Lynna

    Nicole, I have a friend who has suffered dearly from this disease. My Mother also had implants (double radical mastectomies). She’s passed away, now, but so many of the symptoms sound like her many complaints.

    My questions are, especially since it is becoming commonplace, what percentage of people with implants are exhibiting problems? Also, has anyone been using essential oils to help?

    Thank you for your expertise!

    Reply
    1. admin Post author

      Hi Lynna,
      We don’t have accurate statistics on how many women as a percent of implanted women are affected. We do know that many tens of thousands of women are experiencing symptoms and explanting. The trend seems to be toward explanting now. Yes, women do use essential oils to heal themself and it gets talked about in facebook group called Breast Implant Illness and Healing Official Group. Nicole

      Reply
  217. backtoself

    I just made an appointment to have explant surgery on Dec. 4th!! Got the implants in August of 2006, and started getting symptoms/illnesses within several months. I was also going through a divorce, peri-menapausal and chalked it up to that. Most immediately and progressing since then: connective tissue problems; joint pains especially in my feet, ankles and knees; sensitivity to gluten and many other foods; brain fog to the point that I worried that I was getting early alzheimers/dementia; carpal tunnel and other symptoms. Physicians thought i had lyme/fybromyalgia, etc. I am SO GRATEFUL for this website!!! It all made sense after I spent hours reading different comments/histories and post-explant recoveries. Read Dr. Susan Kolb’s website and others. Since then, I have seen three plastic surgeons, a breast surgeon (a slight blip on my mammo, which turned out to be nothing), rheumotologist and my internist telling them of my symptoms and that thousands of women cannot be wrong. They all have the same reaction: “there is nothing in the literature/studies to support such claims”. Ladies, DO NOT BELIEVE THEM – all of our symptoms cannot be coincidental. I got my insurance company to pay for the explant. At first I was told that because I had them put in for cosmetic reasons that I would not be covered even if I had “problems” now. My response, in writing, was that they cover lung cancer, diabetes, etc. caused by known dangerous lifestyle choices (smoking, excess sugar consumption/obesity) – why wouldn’t they cover something I chose to do which is supposedly harmless?
    LADIES, you may have to bend the truth a bit to get coverage (pain even if you don’t have visible capsular contracture, but you should be covered to begin with…
    We must continue telling every doctor we go to about these symptoms and how (if they did) they started after the implants. At this point, I cannot wait to get them out. Another thing I have told every physician, is that the implants were a great success cosmetically – 360 cc round (I am 5’6″ 125 with “good” shoulders) and look very natural/tear shape – they look great, so why would I choose to get them out if nothing was wrong. I am convinced that I have been sick for the past nine years because of them. I am also looking forward to having my body back to normal – small breasts, that actually flatten out when I lie down. I will post updates post surgery. Wishing everyone the strength and the opportunity to get the implants out and get your health back! Those who are considering getting implants – DON’T.

    Reply
    1. Daryl nelson

      Please, please come to the Facebook page and help some of the ladies that desperately need advice about health Ins. covering implant removal.
      I do not even know if you will see this message-..
      Thank you for posting on this site-
      We are all so blessed that Nicole is helping us find each other on her website.
      Bless you!
      Daryl,
      Las Vegas

      Reply
      1. Rhonda Jones

        I would like to know how to get health insurance to cover explant of my saline implants. I haven’t been able to work force years and cannot afford to pay for the surgery.

        Reply
      2. backtoself

        Thanks Rhonda, but I will not join the fb pages because my postings can still come up on my personal, work or other pages I belong to. I am not embarrassed about the situation, but I have teenage daughters who would be. I wish all of the dialogue/comments could be addressed on this site. I so appreciate Nicole for having this site and all of her time/effort to it, but I really think that the non-private nature of fb is keeping women from getting the info/support they need.
        ALSO after first approving the survery “informally” – even the PS booked it and scheduled pre-op testing, my medical insurance company pulled the coverage for the explant!!! I felt devastated, but am not appealing it – can’t spend the time as I am getting sicker by the week. I went ahead and booked with a PS not in network, who will do en bloc procedure – I am paying for it myself as I have no choice but to try to regain my health. It is scheduled for Jan 6th – will give updates. I am so desperate to feel better….

        Reply
        1. nancy hayes

          back to self: i know what your going through.. it is a mirror of me… and i had my explant surgery on jan 18th…! I am told not to start using detoxing agents until your surgery is a month behind you…
          I have terrible sinus ??? headaches.. and told mold is major… inside your body.. so when it is damp or rains… i have a sensitivity and maybe everyone else. ?
          I plan on doing green drinks… and no junk foods.. to give my body a chance to fight .
          please give us updates.. as we out here.. are watching you heal… and you may be our example. God Bless ,

          Reply
  218. Bronwen Falko

    Hello,

    I left a message about a month ago. Since then i have every test in the book and every thing came back normal. I even was diagnosed with lyme disease, which im pretty sure I don’t have. I was bitten by bed bugs at a hotel about a month before being sick. What I mean by sick is 24-7 drunk feeling. Especially worse with sunlight, florescent lights and cell phone and computer. My G.P is not ruling implant illness out, but I’ve been through every test and she often just sits in the doctors office with me and stares at me, saying ” I don’t know what this could be?” Im wasting so much money on Natural Doctors and Craniosacral therapy sessions, herbs, antibiotics for lyme. Im not able to live this was anymore. I wouldn’t care if this was on and off but its 24-7. I was completely healthy before this.
    I booked an appointment with my surgeon and they told me its impossible that my implants are causing these symptoms. And cohesive gels dint rupture unless your in an accident. I don’t know what to do. I’ve been on the Facebook group. Got two surgeons numbers. Dr. Rice isn’t covered under OHIP. I live in Ontario so its supposed to be covered. Ive called Dr. PETRA schiller everyday since my last post and the officr has never returned my calls. Sometimes i call over 20 time’s a day. I know that excessive but if anybody else was going through this, they would too. Every other office I called that was named on this website said its onky covered under ohip is if you have a rupture and my surgeon won’t even look for a rupture unless I was in an accident. Someone please offer me any advice. Ive only had these in for 8 months and ive beem sick for the past 2 month’s. Im pretty sure my lyme test will come back negative and if it does, I know for sure I want these out. But I feel stuck. I will oay for it but I know en-bloc style will be too pricey for me. Someone from ontario on here that can give me advice please?

    Reply
    1. admin Post author

      Hi Bronwen,
      Cohesive gel are the type of implants I had and they contain very aggressive chemicals!! I understand that OHIP may pay for your explant under some circumstances, however if you can’t get it covered by OHIP, you may have to pay a plastic surgeon to remove them Enbloc, if possible, with a Total Capsulectomy. What does your original PS say? Is he willing to explant you properly (removing all capsule tissue)? It is not uncommon for some women to decide they don’t like their implants and have them removed by their plastic surgeon. Just ensure that it is a proper explant so you can recover your health. If he disagrees or says you don’t need a Total Capsulectomy, you have to look elsewhere. Nicole

      Reply
  219. Marissa Richardson

    Hi Nicole! Just requested the Facebook page. Scheduled my explant surgery for this month. Been chronically ill for 15 months now and can’t wait to get healthy! Thank you for this site!

    Reply
  220. Jillian

    Hi, Nicole! I just asked to join your Facebook group. Since I’ve been sick, I don’t have much of a profile. Just my kids. And no picture. Rest assured, I’m not a troll. Just very sick with saline implants with valves. I’ve had them for 15 years and have been very sick for 13.5 years. And , now I know why.

    Reply
  221. Michelle

    Hi Nicole, I have gone to the FB page and requested to join 3 times and I am not being accepted for some reason. My FB name is Michelle Lee. Am I doing something wrong?

    Reply
    1. admin Post author

      Hi Michelle,
      Sometimes we filter out profiles if they appear suspicious (brand new, no friends, no pics etc) because there are a lot of weirdos and false profiles trying to join. I am sorry that your acceptance has been delayed. Please apply again and I will pop you in immediately. Nicole

      Reply
      1. Michelle

        Hi Nicole,
        I sent another request on the fb page. I am business owner so my personal profile is on lock down.
        I look forward to joining the group!

        Reply
  222. Pattie Lastovica

    Your info was sent to me this morning as I have been having these symptoms for 3 years and the last 8 months my illness has became very debilitating.. Do you have a list of drs that recognize Breast implant illness and that can diagnose it
    Looking for answers Thanks Pattie

    Reply
  223. Judy

    Teena – I am the same way. I had tumors in my breasts when I was young and had to have them removed. I was young and thought I had to have boobs, therefore I had the implants to put me back normal. I have been sick ever since. If not one thing. Then another. I hurt all the time in my feet and legs. I have some kind of knots that are under the skin all over my body and they hurt. I had open heart surgery in Dec of 2012, and I have been diagnosed with hypo throidism and fibromyalgia, arthritis and several other things. I sweat from my head every day. It’s so bad i have to dry my hair 3 or 4 times a day. It is nothing to do with hormone. I went thru all that. I feel sure after reading this article that it is my implants since I’ve had lots and lots of problems ever since I got them. I’m scared but I really want them taken out immediately! I’m 67 years old and I have 3children and 15 grandchildren and 4 greats that I am not ready to leave. I know that if I don’t get this done I won’t be here a whole lot longer. That’s what scares me!
    I wonder if anyone knows if these explanat doctors will take Medicare and my supplement, which is AARP. ?? I am in South Central Louisiana if anyone has suggestions of a good nearby explanat surgeon I would greatly appreciate the info!

    Reply
  224. Tonys

    Your website was my last stop in my search to find out just what the heck is wrong with me. This past almost 1 year has absolutely been the worst of my life and I have now contributed it all to these dang implants that I got 7 years ago. I have been sick with so many things and my symptoms always lead to no definitive cause for any of them. I consulted with a plastic surgeon a year ago and then got pregnant a month later. Well, fast forward thru about 20 ECG’s, 6 trips to emergency room, losing the baby at 5 months, lots of radiology for various hunches on what could be wrong, a FNA for thyroid with nothing conclusive, several Holter monitors, a cardiac ablation, a couple echo cardios & stress tests, countless office visits, too many lab tests…..I can FINALLY say that I’ve been implant free for 18 days. I truly hope this was the right step towards my healing. I felt so relieved to find this site and to know that I’m not alone and not crazy about thinking these implants could be causing a lot more problems than people know. I found your site on 15 August and had surgery 6 October. I just could not wait any longer. Thank you so much for sharing your experiences. I was so tired of people thinking I was crazy!

    Reply
  225. Teena

    I had silicone implants nearly 30 years ago and recently had an ultrasound and told they have both ruptured, I have to wait for public health system which could take a long time and where I live I’m sure there is no good surgeons to remove them. I was diagnosed with CFS and fibromyalgia after the implants were put in, I also have chronic migraines, 2 frozen shoulders which I now believe has been from the rupture of the implants, I have so many health problems and getting worse. I am also terrified of getting them removed as they are behind the muscle and I worry there will be complications if not done right. I wish I never got them, I was never told about the dangers or having them replaced because they wont last..I just want them out cos I believe they are the reason why I’ve been so sick all the time

    Reply
  226. Allison Riley

    I am so happy to have found this information. It’s like I am finially found out what is wrong with me and now need to find a way to get these things out of my body. I have had my implants in for 15 years being told once they are “fine” I have had so many of those symptoms and it never occurred to me it could be my implants. I currently live outside of the US and need to find a proper doctor who can remove them in Singapore.

    Reply
    1. admin Post author

      Hi Ivy,
      Please do not breast feed with implants. Please do not allow your children to be second generation victims of silicone toxicity. Nicole

      Reply
  227. Dawn

    Thank you so much for your website full of information. I got my silicone gel implants 3 years ago and for the last year and a half my health has steadily declined. I have always been healthy with no medical problems but began to have extreme fatigue, vision changes, really dry skin,this weird brain fog, frequent urination, hair falling out, and very labile emotions. My Gyn (male) doctor suggested it was just perimenopausal symptoms as I was 43 but ordered labs at my insistence. He diagnosed me with hypothyroid and from there I found a family doctor to treat my new disease. I asked what causes this randomly and was told it just happens. On thyroid meds with increasing dosage over the last year some of the symptoms have improved but I am just not what I was. I quit working out and have no desire to do anything. I had at one time thought could it be these implants and dismissed the idea as they are supposed to be safe as long as they aren’t leaking right? So it is now the three year mark for me and new MRI is recommended at this stage but put off contacting my surgeon until a couple of weeks ago we were in a car accident and that pushed me to go. He said everything looks good on exam and to come back in a year. I had decided to let it go until I had a patient Friday tell me of her explant and many illnesses over the years and something clicked. I came home and did a google search and found your website. I have researched all weekend and got in today for another visit with my plastic surgeon. I am happy to say that I have my Explantation scheduled for Nov 2.
    Although he denies that my illness is at all related to my implants I am convinced. He is very supportive and agrees that explant is the right way to go for me.
    For anyone reading this prior to Breast Aug w/implants please ….. I cannot stress enough. You are perfect just as you are and no breast is going to change your life. I was always dissatisfied with my AA size but healthy. Now I couldn’t care less what my chest looks like I just want to be healthy again. Praying for a full recovery. I really appreciate everyone who has shared and thank you for putting this info out there for those of us who think we are alone and going crazy!

    Reply
  228. Sydney McKinstry

    I can’t afford to have my silicone implants removed right now. Is there anything I can do to help my body until explant? I’m having migraines, extreme brain fog, metallic taste in mouth, fatigue, rashes, slurring of words, and the constant need to pee. Any help is appreciated.

    Sydney

    Reply
    1. admin Post author

      Hi Sydney,
      A clean, organic, nonGMO, whole foods diet including some protein will, perhaps, be the best way to manage your illness until you can explant. Concentrate on improving gut health so your gut and digestion is as well working as possible because our healthy gut controls the pace at which we detox. Some of your symptoms may be from fungal/Candida infections which is common in us. Antifungals and a low mycotoxin/antifungal diet will also help you feel better. Don’t put off your explant though, healing will not begin until those toxic bags are removed properly. Read all the pages of this website for information that you need. Come to the Facebook group called Breast Implant Illness and Healing Official Group. Nicole

      Reply
      1. Tracy Bennett

        Not trying to sound vain, but I was a AA before implants and now a small C. What do they look like after explant?? Can you make them look decent again or are they just flabby pieces of hanging skin??

        Reply
        1. admin Post author

          Hi Tracy,
          More women that you expect are happy with the way their breasts look after explant. The implants often expand our breast size somewhat. If you are not happy with the way your breasts look you can always consider fat transfer which is evolving quickly now. Nicole

          Reply
  229. Renee

    This last ctscan of abdomen has shown a “soft mass” probably a cluster of lymph nodes… (thats what the report says) so Im doing an endoscopy but not until December 14th.

    Reply
  230. Kay

    Thanks so much for your helpful research. I have Lyme disease(diagnosed in 2012) and silicone gel implants (since 2002). Many of the symptoms of silicone toxicity overlap with Lyme disease. I have brain fog, brain seizures, memory issues, heart issues, tingling in hands and feet, vision impairment, headaches, muscle and some joint pain. My implants can definitely be something that is not letting my Lyme get better. Getting mine taken out soon and hoping to feel better soon. Now if someone can figure out Lyme disease, it would be miraculous!!

    Reply
  231. Alexandra

    I have two Appts. One with Dr Kolb in Atlanta, Dec. unless a cancel comes up, and another the same time Atlanta, wijth Dr. Snodgrass. I would like to see pictures of before and after Explant. I’m not sure I could go to anyone that couldn’t show a few shots of what I might expect. You don’t see the head , so who could care if they shared pictures? Anyone that is a Breast Cancer Survivor could not possible care if they took pictures, they took enough going through treatment. ????????????.

    Reply
  232. kate

    Hi Nicole,

    I had my saline implants put in about 11 years ago. I slowly started having symptoms over the years but had a major health crash about 6 months ago. My daughter was gravely ill before that so we were already searching for answers. We discovered that we had toxic mold in our home. We lived there for 12 years. We have since left, but my health has continued to decline. I recently was put on Cholestyramine(CSM) to begin detoxing from the mold and it has caused my symptoms to increase intensely. What was interesting and disturbing was that as soon as I started taking the CSM, my implants started hurting. It felt like it was pulling out toxins from my breasts and it has set me off on a major health crash. I am feeling like my first step should be to have my implants removed but I am worried that surgery could set off some other unforeseen issues since my body is so full of toxins. The implants are not the only source of toxins for me. Do you know of anyone else who has gone through this plus toxic mold exposure? I am planning to travel to Dr. Kolb asap. Waiting to hear back from their office. Thank you for your site

    Reply
    1. admin Post author

      Hi Kate,
      Due to immune dysfunction caused by breast implants, opportunistic organisms such as mold and fungus take hold in our bodies. Most ladies with breast implants have mold in the chest wall especially with saline implants but also with silicone too. Mold and fungus are ubiquitous in our environment and so who knows if it originated in/on the implants or entered our body and took hold because our immune system could not fight it off. Many ladies with breast implants also do take a severe decline in health after encountering mold in a building which causes biotoxin illness in us and even others without breast implants. You will not overcome bio-toxin illness from mold/fungus without removing your breast implants which cause the immune dysfunction which allows the organisms to take hold causing the bio-toxin illness. The first step is removing the implants properly, then treating the mold/fungus/yeast with prescription antifungal and other methods, and addressing other co-infections if they exist, then detoxing chemicals, heavy metals and silicone. In this process you must also support your immune and endocrine system (especially thyroid and adrenals) system and heal your gut because the gut is the basis of our health and where most of our immune system dwells. The CSM increased your symptoms due to dieoff. I do not doubt that CSM was interacting with the mold/fungus in/on your breast implants. Good luck with your explant. Nicole

      Reply
  233. Tuesday Algeo

    I had the new silicone gel implants removed and replaced with saline. Both shells were intact. However, my surgeon said they were bleeding through the shell so bad he could barely pull them out. I was very sick before removal. I couldn’t shut my hands they were so numb, the muscle twitching woke me up constantly, I have Raynaud’s disease and so many other health issues that would take to long to write. I was curious if it was bad to chelate with DMSA while having saline implants in. I’ve done two cycles so far and have had an excruciating headache from it. So bad I’m starting to think it may have caused brain damage. I know you aren’t supposed to chelate with the amalgam silver fillings in your mouth and am starting to think that may be the case with the implants to since I can’t seem to find an answer as to what’s causing this god awful migraine. Can you please help me?

    P.S.
    It was your site that helped me make the decision to remove the toxic silicone implants. I probably shouldn’t have exchanged them for saline and am preparing myself to eventually remove these as well. It’s sad that our society gets poisoned on a daily basis and the government pretty much allows it. They poison us through toxic implants, toxic food, toxic medicines, toxic dental fillings, toxic vaccines and toxic water. It’s so much that I’m starting to think they make us sick on purpose as a form of population control. They want us sick and they don’t want us to know the truth!

    Reply
    1. admin Post author

      Hi Tuesday,
      I suggest not chelating until you know you have a heavy metals toxicity that needs to be chelated. A good investigative test for heavy metals toxicity is a hair test of hair elements and toxic metals and then follow that up with a provoked test to be sure of specific heavy metals. I suggest your symptoms are more likely mold/fungus related. Almost 100 percent of the saline ladies have mold in the chest wall and most of us have yeast/Candida in the gut and systemically. Prescription antifungals are needed to overcome the mold/fungus overgrowth which occurs due to our immune depletion. Best to get those implants explanted, Enbloc if possible, with a Total Capsulectomy. All capsule tissue must be removed for your best recovery. Several rounds of antifungals may be necessary and even a rotation to different antifungals. Of course, you will have to follow a low mycotoxin/antifungal diet and cut out all sugars and carbs which feed the fungus as well as optimize your gut probiotic. Nicole

      Reply
      1. crochbano

        I’ve had silicone removed and replaced 18 yrs ago with saline. I have suffered with many of all the symptoms in these posts. I have Hashimotos for 18 years , macular amyloidosis skin condition, joint and muscle aches. Can you recommend a plan of action to get explanted? I live in Baton Rouge, La and need suggestion on surgeons for this. Should I do a hair sample before ?
        Also, need information on who recommends chelation process!
        Thanks,
        Stephanie

        Reply
        1. admin Post author

          Hi Crochbano,
          Please see the Explant Surgeons list on this website for a list of all plastic surgeons that are known to remove implants properly. The plan of action is to properly explant see the Explant page of this website, then treat co-infections such as fungus if present, heal the gut and detox chemicals, shore up your minerals and nutrition which are needed for healing, please see the Detoxification page of this website. Your recovery will take place over a two year period (more or less). We suggest a hair sample after explant and co-infections are brought under control. Nicole

          Reply
  234. Nichole Bridges Jones

    Could you please send me a copy of the Guidelines and indications for Breast Implant Capsulectomy, Thank-you so much!

    Reply
  235. Tess

    I can’t thank you enough for writing this. I got my saline breast implants 13 years ago when I was 20. About 6 years after the surgery I started to feel ill. I had ALL of the symptoms you listed here. I have been to SO MANY doctors. Gastroenterologists, Rheumatologists, Oncologists, you name it. I found this article and I immediately knew. THIS. This is what is making me sick. I am about to schedule the surgery to have them removed. My question for you now is, how do you feel? Like a million bucks?

    Reply
    1. admin Post author

      Hi Tess,
      I am about ninety per cent recovered 2.5 years after my explant and still improving. I had substantial heavy metals toxicity from various sources which I am slowly chelating out. It takes about two years to recover from breast implants. As you had saline implants, after your proper explant, you will need to treat yourself with several rounds of antifungals in order to overcome the mold/fungus in the chest and the systemic Candida that most of us have. Nicole

      Reply
  236. Shelley

    Hello Nicole,

    Breast Implant Truth FB sent me here, thought I was going to die last night with heart racing so fast/thyroiditis etc, etc a year after explant and thought I’d be all better by now. I’m going to check out your protocols as they suggested.

    I have a very good long distance plan so I can call you sometime? let me know when are good times for you, give me a day or so to get familiar with your site and see what questions I might have.

    I’m in BC, Canada – anybody else from BC out there, pls send a friend request on FB.

    Thanks for being there! and for sharing.

    Shelley

    Reply
    1. admin Post author

      Hi Shelley,
      I will write to you privately. You most likely have some co-infections that need to be treated as well. Fungus biotoxin illness is very common in ladies with breast implants due to immune dysfunction and this can cause heart palps and your other symptoms. I will friend you on Facebook and please come to our Facebook group called Breast Implant Illness and Healing Official Group or by clicking the facebook button on any page of this site. Nicole

      Reply
  237. Anelia Paspaleva

    Hello to everyone. My name is Anelia, and I’m from Bulgaria. I don’t have a story to tell, as I had fortune to find your web while serching for breast implants information. Many years I wanted to have breast implants due to a smaller breast size, but this was a dream for me, because I can’t afford it. Now I have the money but I found this web, and I’m reading and scared, from all bad things you all had due to the implants. It this possible? So much wen has this implants…….. This is nightmare.! My sister had breast implants in 2009, Nagor, gell. I’m so scared for her, as she had some of this simptoms. I know something for shure, I’m not going to have them, and will stay with small breast, but in goid health. You helped me see the real truth and danger. Thank you! God bless you!

    Reply
  238. Sharon Turner

    I am 2 weeks post explant, from Mentor smooth saline implants that I had for 14 years. Thank God for women like you! It was this very site, that helped me to determine what was making me ill. You gave me the information and encouragement to get these terrible things out of me, as soon as possible. You also directed me to Dr. Kolb, who is amazing!!! I thank God for her. She did an outstanding job, and I am so blessed that she is right here in Atlanta.

    Reply
    1. Patt

      I am explanting with Dr. Kolb next month. Any chance you can contact me directly with a few questions I have?!
      Thx!
      Patti

      Reply
  239. Caroline White

    I had augmentation in 1983. Silicone gel implants (Dow) I realize that 10 years should be the max time for implants of any kind to be in and better yet explant. In 1991 I gave birth, had my breast milk tested, was told it was ok and I breast fed for 3 months. I had breast exams a couple of times (at age 40 and 50) No problems. Most doctors couldn’t even tell I had implants…UNTIL for sure the past 8 years but probably long before that. In Dec. 2014 I was hospitalized (I have pulmonary hypertension) I had many tests (because of my illness) MRI showed rupture and just a couple weeks ago I fainted and ER visit ran x-ray, showed calsification of implants. I have had numerous chest x-ray in the past 9 years, this is a first that showed anything. I was diagnosed with idiopathic primary pulmonary hypertension Mar. 2006. I didn’t think there could be a correlation between implants and disease. But in the past 5 years I have so much trouble breathing. I actually hold up my breasts to get a little relief. I want them out and have mentioned it to several doctors. The problem I’m hearing is, because of having PH it might not be a good idea to explant because of anesthesiology issues. I have not been put out since my dx. I have had 3 heart caths. and a few colonoscopy’s with just sedation. I did fine. I also have GI problems….diverticulosis, off and on bleeding. I lived in So. Cal. on this site I see a listing for a Dr. in Newport Beach for explantation. I have medical (because of the extreme cost of meds I take, private insurance wouldn’t touch me as pre-exisisting condition) None the less I have LA Care health insurance. I have no way to afford any other way to pay for explant, if my insurance won’t pay. Any info. regarding my specific insurer coverage and the Dr. listed here? I will research further to see if I might be lucky enough to get explant and start feeling better. Thank you C. White

    Reply
  240. Connie Ailshie

    I would like to join in support of my Best friend Gina Davis, it has 1 1/2 weeks since she was explanted, and it is going to be baby steps and a process— but she will heal and be much stronger.
    I saw first hand how it crimped her and the fear and pain she still has ……but with each day there is a Smile and a Laugh and Thanking God…..she is one baby step at a time claiming her life back. And I Love and will support her….this web site and all the woman on it are so Beautiful and the Support they have for each other. You are all Amazing and Wonderful and so Strong to go through what you have been though and the help you each give one an other. Blessing and Hugs to all of you.

    Reply
  241. jodi villanueva

    Hi Nicole. I’m having all of the same symptoms. I’m going to start looking for a Dr. to remove my saline Implants of 10 yrs.
    My biggest concern is that I nursed my 2 year old up until he was 15 months and I’m also currently nursing my 9 month old. Should I stop right away?
    Also, do you happen to know if Insurance covers, or helps cover some of the cost of the explanation surgery?
    Thanks for taking time out of your life to help all of us ladies. You’re an angel and are greatly appreciated.

    Reply
    1. admin Post author

      Hi Jodi,
      If I was you, I would wean your nine month old from breast feeding. Some insurance companies do cover explant or portions of it. If the implants failed, you have a Baker’s IV capsule or if the implants are causing you illness and a doctor is willing to put that in writing and fill out necessary paperwork for the insurance company you may be able to have your explant covered by insurance. Nicole

      Reply
  242. cally bowden

    I had implants put in 1 year ago.. They were in for 3 days before I got a life threatening infection and had to have them removed.. this was a year ago.. My breasts are still so sore I have to wear support bras 24/7 even at night time.. If I go bra less even for 20mins I’m in sooo much pain.. Also my breasts have sagged its like the muscle isn’t attached to my rib cage anymore.. (The implants I had were under the muscle) what do u think could be going on? Also my nipples are numb and terribly sore too.

    Reply
    1. admin Post author

      Hi Cally,
      I suggest seeing your surgeon and asking him what is going on and to correct it. You should not be experiencing these symptoms. Perhaps there is still an underlying infection or you had damage done to your chest tissues during the implantation/explantation surgery. Whatever is going on needs to be rectified. Nicole

      Reply
  243. Ali

    I had my implants removed 11 years ago ….they were in for 9 years and I have many residual symptoms. I was deathly ill prior to getting them out with at least fifty symptoms including local infections near the implants. I have been on a raw vegan diet for 8 years and I have some signs of health —great energy mental clarity, glowing skin, hair growing fast and thick. At the same time, I have severe muscle pain mostly in my back and neck, balance problems, constant swollen glands, pain when swallowing, constant sores in throat, arthritis, raynauds, etc. It is very disheartening to know that I am the “picture of health” but suffering simultaneously. Are those 2 things mutually exclusive ? In other words, is there irreparable damage that has been done? The body totally regenerates every 7 years, so I may be missing an important healing modality that goes beyond detox. (If I have any control over my healing at this point) I have been reading that these should resolve within a year or two of explant if you are detoxing and I know that I am doing many of the right things because of my other signs of health. What are the specific things that I should do (protocols; therapy) that would benefit someone 11 years post explant? I am looking for optimal health or something very very close. Am I delusional?

    Thank you.

    Reply
    1. admin Post author

      Hi Ali,
      Vegans are impaired when it comes to detoxification in regard to breast implant illness and heavy metals as the vegan diet is missing vital nutrients such as amino acids, protein and certain B vitamins required by the liver and the endocrine glands in order to heal. If you are not eating protein from animals, saturated fats from animals such as butter and eggs your thyroid and adrenals won’t heal. Also, another key to healing is eating enough calories each day. You should be getting at least 2,500 calories or more a day in order to heal the serious illness that you experienced. Intense nourishment is required to heal the body. Nicole

      Reply
  244. Monese Christensen

    I just got my implants removed on March 18th after having them in for 7 years. Two and a half years ago I started getting very sick with all of the symptoms listed on your site here. I have been to specialist after specialist with no help. I managed to find a plastic surgeon and had them removed but I am still sick and I am trying to recover. The surgical aspect went very well however I am getting no medical assistance from my primary care, or any of the specialists that I have seen. I believe I need a toxicologist at this point and probably a neurologist, however the one neurologisst I did see completely dismissed me and wanted to give me another psychotic medication. I have BC/BS insurance, I can’t afford to pay out of pocket. Like these other women I have lost so much, work, time, money, etc. I desperately need to see someone who can help me. I have had doors slammed shut on me at every turn. Do you have any resources for someone like me, here in Maryland to assist me in getting better before I end up loosing my house and job and anything little thing I have left. Monese

    Reply
    1. admin Post author

      Hi Monese,
      If you have a facebook account, please come to the facebook group by clicking the facebook button at the end of each page of the site or going to Breast Implant Illness Healing Official Group where we will help you through your detoxification and recovery. Nicole

      Reply
  245. Tammy

    Thank you for this blog, I’ve been reading for a year after I cried out to God for help. He showed me this great blog and I found Dr Barnett in Sarasota. I’m pleased to say, my implants are out 2 days now!! What a relief and wonderful Doctor. She advocated for me beautifully!! Helped me get my insurance to pay some. The capsule on right from so much scar tissue was pulling on a nerve on my right arm for a long time. Both arms, back and neck were in bad shape. I feel lighter and more flexible already. I had them 8 years and was a big mistake. I thank Nicole and God’s Grace for my continued healing.

    Reply
  246. Sarah

    Omg! I just had silicone implants surgery on Monday of this week and now reading all of this so frightening. I reallyhope i dont get sick.

    Reply
  247. Lisa Treece

    Hi,
    I’m so glad I found this site. I had saline implants placed 20 yrs ago. About 2 yrs later I began having symptoms that are listed in you breast illness symptoms list. Over the past 20 years I have 95% of those listed…. I was diagnosed with fibromyalgia about 3 yrs after having the implants placed and told I would just have to learn to deal with it. I’ve had endometriosis and underwent a hysterectomy. Diagnosed with hypothyroidism, and 3 months ago underwent knee replacement at the age of 51 and need the other knee replaced as well. Since undergoing this last surgery my symptoms of severe fatigue and all over muscle / body pain has doubled. My hair has been thinning but is now falling out by the handfuls. I am miserable and feel I can’t possibly continue to live like this. I am a registered nurse and work full time. Thank God my job is mostly a desk job now or I wouldn’t be able to physically do it. But I’m having great difficulty forcing myself to push forward everyday. I’ve had sleep problems, bad brain fog, and like I said 95% of the symptoms you listed. I’m ordering Dr Kolb’s book. I talked to my husband about this tonight and he agreed this description of breast illness was me!! I live about 3 hrs from Atlanta, so I’m seriously thinking about contacting Dr Kolb. I’m just worried about the cost because I’m sure my insurance will not cover this explant surgery. Do you have any idea of the cost?? And do you have any advice for me – I’m am desperate at this point, I have pushed myself to point now that I feel I am crashing. This has stolen the last 17-18 yrs of my life. And I’m so tired.

    Reply
    1. admin Post author

      Hi Lisa,
      I do suggest to see Dr. Susan Kolb in Atlanta Georgia, you are so close to her and she is the most experienced doctor explanting and healing ladies from breast implant illness. Your saline implants need to removed Enbloc style with a Total Capsulectomy. You likely need antifungals as fungal overgrowth is very common with saline implants and causes real toxicity in our bodies. If you explant properly and treat the fungus and adopt a detox lifestyle you will get your health back in a year or so. The cost varies depending on whether you need a lift or not but I believe it is in the range of $8,000 and up which includes her ongoing guidance during your detoxification and healing period. You won’t regret choosing her. Please let me know what unfolds for you. Nicole

      Reply
  248. NinaL

    Oh yes, can you please send me a copy of the Guidelines and indications for Breast Implant Capsulectomy, Thank you. I’m also thinking that search engine optimization for this wonderful site may help save some women from going through the hell most of us on here have gone through. “target” words which would bring this site up for women searching for having implants might include “best implants”, etc. Thank you.

    Reply
    1. admin Post author

      Yes, I will send you the Guidelines, I used to get a lot higher ranking on google on all my key word searches and pages but google has now ranked the government sites higher than the truth telling sites in order to hide the truth about how dangerous silicone, breast implants and chemicals made by chemical companies are. Soon we will need a search engine separate from google in order to get the truth out to the public.

      Reply
  249. NinaL

    THANK YOU so much for all of the information, advice and help you give to those of us who so need a source of information, guidance and support! It is amazing that so many PS do not have a clue about the dangers of implants! I am scheduling my explant surgery ASAP after 8 years of autoimmune (joint/muscular PAIN) problems which no regular MD could diagnose. After reading your site I know that the implants are the cause. The PS doing the surgery (doesn’t believe that the implants are the problem) knows what a complete En Bloc capsulectomy is and agreed to do so advised that I will need drains (my implants are submuscular 360cc). What will my recovery time be like? I am self-employed and need to plan accordingly. Thank you to all!

    Reply
    1. admin Post author

      Hi Nina,
      Plastic surgeons do know that implants cause illness but they refuse to admit it because implants are their biggest source of revenue and silicone is the basis for plastic surgery (that is why they call it plastic). Plastic surgeons use the junk scientific studies created by the chemical companies to promote the dubious idea that silicone is an inert substance in the body while completely overlooking that it is made up of over 35 highly toxic chemicals and heavy metals that are known endocrine disruptors, neurotoxic and cytotoxic to cells while promoting bacterial and fungal overgrowth. Please ensure that you are getting a enbloc style explant with a Total Capsulectomy which will ensure your best recovery. Many women have to treat with antifungals as well in order to recover due to immune dysfunction caused by breast implants. Depending on what type of work you do, I would plan to take at least two weeks off work for a desk style job. If your job is physical and includes bending and lifting you will need more time to heal. Please join the Facebook group Breast Implant Illness Healing Official Group so we can support you through your detox. Nicole

      Reply
  250. JANICE

    Please send me an email copy of the Guidelines and Indications for Breast Implant Capsulectomy published in September 1998 by the Washington University School of Medicine which details the numerous reasons why a Total Capsulectomy is highly recommended.

    Very Sincerely and Very Grateful,
    Janice

    Reply
  251. Yasmin

    Thank you so much for this site. I have been looking for answers for quite some time. I have had silicone implants for three years. Been very sick for almost a year. I must remove them ASAP I know. But my skin all over is so inflamed with horrible painful oozing eczema. The dr. said he can’t operate like this and prescribed cortisone and immunosuppressive drugs to calm down my skin. In fear of side effects I have not taken the drugs. But I cant control the symptoms and inflammation with detox alone. It’s getting worse everyday. Is there any supplement that I can take or special detox I could use?

    Reply
    1. admin Post author

      Hi Yasmin,
      Anything that lowers inflammation will help your eczema rash. Inflammation is caused from the oxidant process in your body due to toxicity and our immune system attacking our own body due to the breast implants. Antioxidants interrupt the oxidant process and lower inflammation in the body which will bring your rash down. Antioxidants are Vitamins A, B, C, E, selenium, CoQ10, Turmeric and Ginger. You can make a tea from Turmeric and Ginger. I added a tsp of Turmeric to my soup everyday and it did wonders for inflammation in the gut. If I was you I would also use hydrocortisone cream just to get the rash under control so you can get the breast implants removed. Hope this helps. Nicole

      Reply
      1. Melissa

        Anyone get their rash biopsied and the results came back
        Positive that you have lupus ? My sister is so sick with lupus and has implants. Medicine is not helping . She can’t even get out of bed. I wonder if it is her implants they have to be over 10
        Years old . She seeing a lupus specialist in ny now because the Drs in nj can’t help her. Just doesn’t make sense !

        Reply
        1. admin Post author

          Hi Melissa,
          Lupus is an autoimmune disease and silicone is a known adjuvant causing autoimmune symptoms and diseases such as Lupus, RA and even MS that improve or disappear after they are explanted, detoxed and heal. Your sister needs a proper explant which means Enbloc with a Total Capsulectomy. Implants are not recommended to last more than ten years. Most implants are deteriorated, leaking, bleeding gel or ruptured well before ten years according to accurate breast implant studies. Contrary to what doctors are telling patients, implants cause great toxicity and illness in the body several different ways. Please read all the pages on this site which will give you all the information you need to act and help your sister. Nicole

          Reply
  252. Barbara

    Hi Ladies and Nicole,

    Thank you SO much for this site. I wanted to ask if anyone could help with my symptoms. I had saline under muscle implants for 10 years and was just explanted 2+ weeks ago (april 1) by dr. Feng in Cleveland. My main symptoms over 3 years were tingling, arthritis in some joints, and low white blood cells and platelets and low natural killer cells and of course chronic fatigue. I also have bad pms, spotting, night sweats and a low/normal free t3. I wanted to know if anyone had similar symptoms that resolved and what they did specifically in terms of testing and detox. I plant to follow the protocols on this website but am so anxious to be healthy again and want to do this right! It difficult enough having NO chest whatsoever and large scars now, I want to gt over this illness.

    Some things I am considering that I’d appreciate comment on are:
    removing rest of my amalgam fillings
    Computerized Electro Dermal analysis or EAV
    UV light blood therapy
    IV glutathione and or vit C
    Infared Sauna
    Lymphatic Drainage with Lymph Star Pro
    Colonics/Coffee enemas

    Any help would be greatly appreciated.
    Thank you! Barbara

    Reply
    1. admin Post author

      Hi Barbara,
      After ten years with saline implants you will likely need antifungals in order to fully recover. Most patients with saline implants have a broad fungal infection which needs to be addressed. You won’t be able to overcome fungal infections entirely if you don’t have your mercury fillings removed. As soon as you feel strong enough to remove your mercury fillings undertake it carefully, following proper mercury removing protocols with a mercury free dentist. EAV and UV light therapy is a waste of time and money. IV gluathione and vitamin C may help but I would wait until you have removed the mercury fillings first. I had three Vitamin C IV’s which included instilling 10 to 20 grams of vitamin C and other nutrients directly into the blood stream. Temporarily, I felt amazing because vitamin C is a powerful antioxidant and lowers inflammation however the effects wore off quickly within a day or two. The third Vitamin C IV harmed my kidney and made my legs swell up because vitamin C is very acidic and hard on the kidney. Infared sauna is useful for detox and killing bacteria and fungus. I felt better the day after a sauna which told me they are helpful. Please note, constant saunas can aggravate adrenals if they are weak already. Lymphatic drainage is a waste of time and money, better to get exercise such as walking or rebounding for lymph drainage. Coffee enemas can work well. Research them fully before you do one. Coffee enemas increase glutathione in the liver which helps the liver to grab toxins from the blood stream. Those toxins get emptied into the liver bile which goes into your colon and out of your body with a bowel movement that the enema stimulates. Try one and see how you feel. If they are for you I would not do more than one per day, even one per week is good. I was doing Gerson juicing and coffee enemas the first months after my explant but eventually got inflammation in my bowel and had to stop. My digestion and bowels worked better without them. Colonics do work to clean out a backed up colon however they also wash away beneficial colon flora too. If you follow the steps on the Detoxification page, you are following and assisting the bodies natural detoxification systems which is the safest and highest way. The body will detox at the rate it is supposed to if it is supported to do so. Nicole

      Reply
  253. Sharon Cameo Franz

    My implants are salaine with silicone implant inside: done in 1985. I have breast pain daily, often very “biting or stinging” nipple pain. Was told the right one has a slow leak but both are distorted and hard with scar tissue. I suffer from Chronic Fatigue, Chronic Insomnia, arthritis, and various other issues relating to Chronic Depression. I am 65. HERE IS MY QUESTION: My insurance said “breast implant removal is cosmetic procedure NOT covered by insurance”………how can removing implants and living without breast be considered “cosmetic”? Can you please help me to argue intelligent with my insurance company to cover this procedure? At my age I don’t care about new implants: this is actually like having a double masdatomy. Your advice is greatly appreciated. Thank you for all the advice. Sharon C. Franz

    Reply
    1. admin Post author

      Hi Sharon,
      I had a conversation with another lady last week from Oregon. To her surprise, she discovered that her insurance which does not pay for “cosmetic surgery” will pay for the removal of her implants if she has a Bakers Capsular Contracture Grade IV see definition here: http://en.wikipedia.org/wiki/Capsular_contracture which you most likely have after all these years. Insurance should pay for implant removal if they failed in some way meaning they are leaking, ruptured, bleeding gel or saline. If you have an MRI and it shows that they are leaking, they have failed and should be removed and paid for by your insurance company. If your doctor recommends they be removed due to your illness, insurance should pay. Would you like to connect with the lady from Oregon? Perhaps she can advise you how better to deal with your insurance. Nicole

      Reply
  254. Jason Hall

    Nicole we need your help please,

    My girlfriend Anette has been very ill since February
    25th. We found this site and have read it religiously. Reading the posts from all the women in the site has inspired my girlfriend to get her implants removed. She got her implants removed yesterday, a capsulectomy. We have some questions for you.
    During the recovery process, do you recommend her to take the pain medication that was prescribed by her surgeon?
    Or
    Do you recommend to take the supplements for pain relief on Dr. Susan Kolb’s website http://www.plastikos.com?
    We read that she should wait to start the detox after one month post operation in order to let the body heal.
    Do you have advice on what her process should be now that the surgery is behind us?
    Please, your urgency on this matter is much appreciative.
    Thank you so much,
    Jason and Anette

    Reply
    1. admin Post author

      Hi Jason,
      If Anette can do without the pain killers I suggest not taking them. Pain killers are often hard on the digestive tract and cause constipation and the less medications you take the better for your liver. If antifungals were prescribed do take those. Start the whole foods diet described on the Detoxification page. I recently added what I ate during my detoxification as an example for others. Take lots and lots of soil based probiotics now too. Rest and sleep as much as you can as healing and detoxification takes place during rest and sleep. You can start taking the basic supplements at this time too to support the body. Wait one month until you speed up detoxification. Nicole

      Reply
  255. vennesa

    I sit here with tears running down my cheeks, not only from intense pain, but from frustration as well. I had posted earlier, but found myself needing someone to talk to. I’m 45 and I’ve been a widowed mom of two boys since 2009. I got my saline implants under muscle back in the beginning of 2012. I thought it might make me feel “attractive” again. I know, sounds stupid lol. From day one, my right breast didn’t feel right. Like a hard lump between my ribcage and implant. So bad I couldn’t wear a bra. By end of 2012, started experiencing severe vertigo and pressure in my ears. That’s when everything started going downhill…fast. Had a partial hystorectomy. Then the burning knife of pain lodged in my right shoulderblade and neck, constant feeling like I have the full blown flu. Dr.s said possible gallbladder referred pain, so had it removed..Nope, that wasn’t it.. Also the BURNING!! It’s hard to explain to anyone. I have read the posts on here and it sounds just like me! The raging feeling of acid through my body and the flaming ball of molten lava I call a right breast. My right breast burning went into overdrive right before last xmas. All my symptoms are on my right side from neck to foot. When I lay flat in bed it feels like I’m laying on a bed of nails. Still constant worsening pain. Mri showed bone spurs in cervical spine. I now, as of Sept. 2014 have a titanium plate and six screws fusing my c4-6 together in my neck spine. Guess what. Didn’t help. I have had 6 ct scans, 7 mri’s , dozens of ultrasounds, neurologist, ent, neuro surgeon, etc. None of my scans or blood work show anything!! Not one abnormality!! As of almost 3 weeks ago, I’ve lost almost half my hearing due to extreme electrical high pitched ringing. It seems to get louder with the waves of burning in my body which is constant. My poor primary dr. is at a loss. He’s scheduling me for another brain mri and sending me to a breast surgeon. Today I had a dozen triggerpoint injections into my shoulderblade muscles and a refill of oxycontin & hydrocodone. No one seems to know what’s wrong. I’ve lost so much weight,I now weight a whopping 103lbs, and my hair’s falling out. I can’t stand anyone to touch me my nerves are so raw. So I sit here, with my ringing head and an icepack stuffed against my breast. I’m not feeling very “attractive” anymore 🙁

    Reply
    1. vennesa

      I forgot to mention the chronic fatigue, eyesight failing, painful burning down right side abdomon, and a strange night sweat only on my upper right quadrant. It smells bad and is really sticky? Not like normal sweat at all. I would wake up in the morning completely soaking wet only on one side, and I’d hafta peel my tshirt off my body. My right breast doesn’t feel very hard like capsular contracture. But it feels diseased/toxic. My poor kids keep asking when we can start doing things again like we used to…

      Reply
      1. admin Post author

        Hi Vennesa,
        Please don’t waste anymore of your precious time. Time is of the essence. Your illnesses and symptoms are from your breast implants, no need to keep suffering and going through test after test. You need an Enbloc style explant with a Total Capsulectomy. You most likely need antifungals. You will need to go through a period of detoxification suppporting your body to detox, heal and recover. Please start looking for a good explant surgeon in your area. Please see the Explant Surgeon page on this site. Nicole

        Reply
  256. AnitaStark

    Hi Nicole,
    I had my silicone implants removed and lymph nodes is my left and right removed on Thursday here in Portland Oregon. I have severe bruising in my right breast due to scar tissue removal but it is improving. I see infectious disease on Tuesday April 7th to deal with the fungus I hope. I have ringing in my ears and my heart palpitates and normally a resting heart rate of 58 is now 70. It “thumps” very loud at night while sleeping. For 2 months prior to surgery, I have only been taking a probiotic and a bioavailable buffered vitamin C which has C, Niacin, calcium, magnesium, sodium, potassium, l-lysine HCI, citrus bioflavinoid complex, tetrasodium pyrophosphate, L-cysteine, L-Glutathione, xylitol in that order. I have a very healthy whole foods diet but am lacking any energy and feel ok. We discussed you helping me get back on my feet. Any comments are welcome.

    Reply
  257. Starr Andrews Strong

    I made a comment before but can’t find it on my phone ! Do you have an office in Southern California? Or Can you recommend a doctor who does the breast implant removal from the sickness ? I’m in Southern California and I am so Ill ! My skin is flushing red hot to the touch and my body on fire like someone put lighter fluid on me and letter match my whole body is on fire
    Then my skin get bright red hot to the touch ! Last week my whole body went numb on on my face and my body ! I did my EpiPen but I had to write it out at home because I had no one to take me to the ER it was the worst two days of my life! All my teeth are rotted . I have to get them all out on the 7 th hey denture on the top and a partial on the bottom now I can say for teeth on the bottom I’m only 35 years old and the progression of my decaying of my teeth is been rapid since I’ve had this skin flushing attacks were my skin is burning on fire like somebody poured lighter fluid on me the symptoms I get with that is , shortness of breath, racing heart, trouble breathing joint pain, muscle pain ,nausea vomiting ,hot sweaty hot flashes the chills
    Feeling as if I going to die malice! I am sick daily and just getting worse and I can’t seem to find a qualified doctor that does this type of surgery my biggest fear is to get them out and I’m still sick! Everybody wants to put new implants and then I don’t want them I just want my health back he’s past five years my health as to teary aided to the point I can barely walk and take care of my daughter! I’m in debilitating pain on high doses of pain medication to be able to function to have quality of life but my skin flushing with the symptoms that come with it it’s debilitating and I need help and I feel like I have Kaiser permanent day as my health insurance and they won’t help me can you recommend anybody that can help me out here where I live?
    I’m sorry to post again I’m just feel helpless and I need help each day I’m getting sicker and sicker her and don’t know what to do or where to go
    Thank you
    Can’t wait for a reply
    Starr

    Reply
    1. Gabrielle

      Hi starr,
      Trust me girl I am in the same situation. I have such horrible symptoms I feel so poisoned I am not even functioning. I have talked to a few people on here. Get your implants removed. I get mine out tomorrow thank god and am hoping things will get better,i am not even functioning I cant stand to even be in my own skin. I also get the face flushing that flushes from my chest on upwards. I have every symptom of every disease, but the Dr cannot find anything wrong with me! Stay strong girl. Ever since I got my implants I started with extreme fatique and depression and then one day BAM I started having very scary symptoms. I can literally taste chemicals and have to be carried around to do simple things its very terrifying. If I am still alive after what I have been through im sure you will be too 🙂 Find a Dr to remove them ASAP. Nicole is a very helpful lady and has put my mind at ease because of course no one wants to think that it is your implants. How many ladies get them and are perfectly fine…a lot but unfortunately we are not! If you would like to chat more feel free to email me

      Gabrielle_j@live.ca

      Good Luck

      Reply
      1. STARR

        Gabrielle,
        Thank you and I hoping your surgery went well ! I found a surgeon listed on the website here that’s in the list of surgeons in Newport Beach I have a consultation May 5 so I’m looking forward to it !!
        please let me know how your recovery goes and how you’re feeling I’m the same every symptom of every disease and I’m sure they think I’m a hypochondriac but I’m not I’m sick I’m so unwell like you ! And knowing your sick like me with the skin flushing gives me hope I will email you
        Thank you
        Praying for your surgery go good in the speedy recovery I’ll send you an email thank you so much for your reply

        Reply
    2. Gabrielle

      also my teeth have rotted as well and I am only 24…they have turnt to mush, literally. I have to get top dentures until i am healed to get implants which will cost me well over $20 000. so your not alone on that one!

      Reply
      1. STARR

        Is he located in Newport Beach I believe he’s the surgeon I have a consultation with on May 5,2015! I’m so thankful I found your website and thank you for all your comments and explaining everything I just have a question when you get them out what exactly is the best way to detox your body? I saw a list of a million vitamins you have to take but is there a simpler protocol to detox your body and if I was to detox my daughter what what I do ? Since I was pregnant with her four years ago and I was very ill while pregnant with HG I’m concerned if she needs to be detoxed as well as she has ADHD and behave real and sleep issues and chronic fevers

        Reply
        1. admin Post author

          Hi Starr,
          Please read my Detoxification page on the website which gives a general detoxification guideline. From there, we can work together to overcome your specific illnesses and symptoms. Yes, your daughter does need to be detoxed, too, and I will direct you where to go for that. I suggest setting up skype on your computer so we can talk face to face. Nicole

          Reply
      2. STARR

        I have an appointment with him May 5 th I looking forward to it and will keep you posted Nicole,
        Thank You I pray this is my answer. your website been my saving grace

        Reply
    3. vennesa

      Hi Starr, It looks like we’re all in the same boat. How can we possibly be sooo sick, and no test results show anything. I keep telling all my doctors “Your missing something”! No elevated white cells, good platelets, cancer markers clean, brain mri shows no MS, fibromyalgia doesn’t pick sides..I just don’t get it! What kind of test can they do to check the implant/capsule? My breast feels like I have a burning stake all the way through by back. Why is it only one? What if I get it/both removed and I still have pain. I’ve been going through the process of elimination…after last weeks 3 hr mri of entire spine, I’ve just about run out of things to check lol

      Reply
  258. Tracy

    Had saline implants put in same time as mastectomy. One in 2009 and the other in 2011. Both have been deflated for 2 years. did not bother to have them removed because I didn’t want to be cut open again. Reconstruction surgery is much different than augmentation. Scraping all the breast tissues out etc. Implants were put just under the skin and held in by a product called dura something. Did this procedure because I wanted to feel somewhat normal. Now I am scared after coming across this site.

    Reply
    1. admin Post author

      Hi Tracey,
      You don’t mention if you are having symptoms, even if you are not I suggest explanting the deflated implants and all other foreign materials for your best health. Nicole

      Reply
  259. Gabrielle

    Also is it possible to just have a few symptoms and then bam hits you like a brick. Because I started with fatigue and stomachs problems and aching to feeling like I have every disease. I know it’s my implanys because they burn. Not a natural burn from healing like I have bleach running in my veins or something. Also I get this feeling like there is a syrup like substance flushing in my face and chest. Odd I know but true. I feel so stupid going to my Dr and explaining to them all my symptoms because they look at me like im crazy but I know I’m not. I had so many Dr tell me to go to a psychologist and I did and even the psychologist thought something else was wrong. I got a mri on my breasts and my plastic surgeon said the implants looked fine but I don’t belive that. At all. I keep telling the Dr I feel poisoned like I can’t even live like this. I went to the ER 12 times in the past 4 months because I fainted my heart would stop beating for a second and I counldnt breathe then I wiuld feel like I was having a stroke. I would wake up and my whole right side would be numb. Like dentist numb. Then everything in my body gets really dry and achy even all my organs. I get super dehydrated to the point where I have to drink 6 bottles of water and still no relief. And Dr can’t find anything. IM super scared right now and don’t know what to do:( I’m getting them removed

    Reply
    1. admin Post author

      Yes, you are a perfect example of what is happening to many, many women. The new implants contain very toxic and highly aggressive chemicals which are poisoning women immediately. The dehydration is because your kidney and adrenals are being damaged by the chemicals among other things. Let’s talk on the phone today. Nicole

      Reply
    2. nicoleroper

      Hi Gabrielle,

      You are not alone in this and you are not going crazy. I too have a lot of horrible symptoms and getting mine explanted on 9th April. If you want to talk via email we could help each other along the process. I really scared too, struggling with anxiety and worry badly! You will recover, I hope you find a surgeon and get explanted soon xxx

      Reply
  260. Gabrielle

    Hey I just wanted to post my story because it is so terrible. I am only 24 years old had cohesive gel first put in 1 year ago and then another set 5 months ago. Imeediatly after I got them my life went to shit got severly depressed. Never had this before. Any way I noticed my left arm was always hurting me as well as under my left breast( always thought it was the muscle) and where my heart is would always ache. I just thought it was from the streching. One day I ended up in the hospital because I started getting super dizzy after my left arm was aching for sure thought I was having a heart attack. Nope got all heart test done nothing since that day I not only feel every symptom you have named but I also feel like I’m high on acid or something 24/7 I know that sounds crazy I don’t do drugs I am very scared. I’ve been to so many specialist and Dr and all I get is everything’s normal. How is everything normal when I’m constantly dizzy can barely read would get stroke like symptoms everyday I feel differently. My sweat smells like chemicals. I can’t be around anything or I react to it. I didn’t think it was comming from my breasts until they started burning severly and the burning would radiate down my back. This is so scary to happen to you at such a young age DONT GET IMPLANTS LADYS. I can’t even walk or remember what I did 5 min ago. I was so Healthy before this never even had an allergy. I love the way they look and sad they have to go but I could care less. I’m literally dying. Everyday feels like I’m having a heart attack. I can’t exercise or barely walk a few steps without wanting to pass out on the floor and having severe tachyrardia. Also ever since I got these I started having heart palpitations. I did see my surgeon Dr toy in Edmonton Alberta and he was really good about it and said he’s never heard of it but anything is possible! I doubt that. When I went for my consult he told me nobody gets saline and silicone is the only thing he does and then offered to put saline ones in to replace. I get them out on wendsday and he is not charging me thank god. Considering he had to redo my lipo I got both times with my breasts and now I’m literally dying from these things. I’m so mad at myself. I have not been able to do anything but lay in bed and scream and Cry for the past 4 months and only be able to drag myself to the dr feeling as if I’m gunna pass out. Also my only smell is of chemicals. Everything smells like chemicals. I can’t digest food. I too had a Dr tell me that I prob have ms/ ALS IBS gerd lymphoma thyroid disease ulcers heart disease but all test prove negative. And everyone thinks I’m crazy lol. I’m so happy I found this site. I don’t even know if I will make it until wendsday 😐 its that bad. So for anyone wanting implants don’t do it. I read an article online saying that silicone got brought back on the market because there was a study shown that women with silicone implants are 4x likely to use our health care system.

    My question is. Am I going to feel like this forever and do I need a en bloc since I’ve only had them a year on my surgery date? And has anyone felt as if they were drunk or high all the time? I know that sounds weird but yea. Thanks wish you all an amazing recovery.

    Reply
    1. admin Post author

      Hi Gabrielle,
      I’m concerned that your implants won’t be removed properly. We can’t be sure how much capsule tissue you have but because you have had your implants for a year, there will be some capsule tissue and it must be removed entirely for your best and easiest recovery. I’ll write you another email with my telephone number and let’s talk on the phone. Nicole

      Reply
  261. admin Post author

    Hi All,
    Interestingly, I read the recent article by Angelina Jolie in the New York Times here: http://www.nytimes.com/2015/03/24/opinion/angelina-jolie-pitt-diary-of-a-surgery.html
    who has now also just removed her ovaries, in addition to her breasts which were removed and replaced with implants in 2013 due to fear of the potential for breast cancer. What instigated the latest ovary removal was recent tests that showed she has a number of elevated inflammatory markers which may contribute to future cancer. It did not occur to her doctors or her that the inflammation could be coming from the breast implants. Breast implants cause high levels of inflammation in the body. You cannot put two large bags of toxic chemicals in your body and not expect an inflammatory response. Most get sick from implants, even Angelina Jolie. I hope one day that manufacturers and doctors will admit that breast implants cause serious illness in the body. Nicole

    Reply
    1. Deborah

      Angelina is a very smart woman, BUT she is sending “mixed” messages regarding the removal of her breasts and the implantation of breast implants. I am sure that many decisions she makes involves her career, as she has been regarded as a “sex symbol” and I don’t know if she’s ready to “let that go” not quite yet anyway. You are very right about the elevated inflammatory markers, as I have them as well. That is all great and wonderful that Angelina has the money to do what she believes is ” best for her and her health”. But I would guess that due to her career and her own personal image of herself that she made a very poor decision in choosing to get those implants. Hopefully she will not go through the same “hell” as we all here have!

      Reply
  262. AnitaStark

    Thank you for the website. I have silicone implants and now have silicone in my axillary nodes. I am working to schedule the explant as soon as possible (next week). I don’t know if I should have the nodes removed which are 6 or more under each arm or can I detox the silicone from my nodes? I have severe symptoms and time is of the essence. I have contacted toxicology at OHSU in Oregon to determine if I can remove the silicone from the nodes after my explant or should the general surgeon remove the nodes with the risk of developing lymphodema. Please share your thoughts. I hope to remove my implants next week as I have severe burning. I have been detoxing with turmeric, garlic apple cider vinegar and taking astragulus. I have also tested one positive strain for A. niger (fungus). I have to be careful how much I boost my immune system as my symptoms (rash burning RA like flare which I am negative for) worsen. I know until I have the implants removed I am just being poisoned. I am a Bakers IV encapsulation in both and possible ruptures in both. Please share your insight. Remove the implants and nodes or just the implants and try to detox out of my nodes? Thank you all, Anita Stark

    Reply
    1. admin Post author

      Hi Anita,
      Dr. Susan Kolb says that contaminated nodes should be removed and she removes them however not all surgeons do. It is common sense that removal of lymph nodes should be balanced with the fact that these lymph nodes are there for a reason and should only be removed if absolutely medically necessary. I had cohesive gel implants with gel bleed/leak on my left side and several of my lymph nodes around my left breast were swollen and sore due to contamination from the toxic chemicals of the silicone. In fact, the lymph nodes in my neck and throat were also sore and swollen but my surgeon did not remove any lymph nodes and would not consider it. Over the course of many months after explant, my lymph nodes did eventually detox themselves and now they feel normal. A factor to consider is what type of implants you have? With cohesive gel implants, the toxifying factor of the implants is the aggressiveness of the chemicals used to make the gel cohesive and not so much the actual silicone particles. With textured implants, I think it may be important to remove seriously contaminated lymph nodes as those fibres flake off. With the more liquid silicone implants, again, I would remove seriously contaminated lymph nodes. I hope this helps you. Your surgeon will probably make the determination at the time of surgery which lymph nodes should be removed. Who is your surgeon? Nicole

      Reply
      1. AnitaStark

        Hi Nicole,
        Thank you! The implants that I had from 1991-2008 were MEME’s. They had disintegrated and encapsulated ~ I wanted no replacement but the surgeon (now retired) talked me out of it. He put in silicone Allergans in 2008. He did not tell me that they had leaked but the surgery was extensive when he removed the encapsulation and ensured my that he removed the silicone. I do not know if the silicone in my nodes is from the current allergen implants or from the old MEME implants. I had a mammogram that had a bad report on it in 2011 that stated they may be leaking and was sent to another surgeon who said not to worry your body will encapsulate and shore up the silicone. And any silicone leakage in the body would be absorbed and would not be harmful. I ask about removal and he stated I would not like the results. I should have gathered a second opinion. I have had odd skin rashes and general RA symptoms for many years. Now everything has become acute. I need to have them out immediately and I just don’t know what to do about all the affected nodes. If I take out the implants and then try to make a clearer decision on which and how many affected nodes to remove. They are all heavily inflamed at this point. My doctor is Dr. Richard Busby for the explant and Dr. Kim Swartz for the general surgeon who is experienced in removing nodes. However, I don’t believe either know anything about detoxing the body from silicone. I have a contact into the OHSU toxicology clinic to possible see if they can assist me with detoxing the nodes or my naturopath. I want to removed the implants next week as my symptoms are becoming extreme allergy reaction and I am controlling it with natural anti-inflammation ~ garlic, turmeric, apple cider vinegar. I have tested positive for one strand of a.niger. Would Susan Kolb consult via phone/skype?
        Thank you ~ I am advocating for myself at this point.
        Anita Stark

        Reply
  263. mariellen

    I just had my saline implants of ten years removed by Dr. Feng. I was told I had auto inflation. Has anyone else experienced this?
    Mariellen

    Reply
    1. admin Post author

      Hi Mariellen,
      You are the first that has mentioned auto-inflation of implants and it is quite rare. Here is a medical paper on auto-inflation:
      http://www.ncbi.nlm.nih.gov/pubmed/19554139. Did you notice the inflation yourself and is that what caused the surgery or do you have symptoms of illness as well? Nicole

      Reply
      1. admin Post author

        Hi Nicole, I did notice that my breast seem to be growing. Last May I woke up with severe nipple pain in the right one and when I looked it was deflated. I made an appt to see my PS that afternoon and by then it was back too normal. I actually thought I was crazy, then when I spoke with Dr Blais he said it did happen. My right one was actually 80+cc more and the left was110+cc more when she Explants. I have a mile long list of symptoms. I heard auto inflation was rare although I thought there was only nine known cases before me. Dr. Feng is now starting her own research on auto inflation. Thank you for your response I greatly appreciate it.
        God Bless
        Mariellen

        Reply
  264. Mikayla

    Saline breast implants ruined my health at the young age of 21. Within months I developed HORRIBLE insomnia, foul smelling urine, depression, brainfog, muscle stiffness and severe 24/7 pain in my head, neck, and back. Anyway, I want to SUE Mentor for saying their implants were safe and did not cause autoimmune when they had the studies proving that they did!!! I’ve noticed that the Fda admits that saline implants are linked to lymphoma cancer but I have been looking and have not seen any lawyer wanting to take on a case of saline implants *which are really SILICONE implants filled with saline which cause sickness just like silicone* This is NOT FAIR because just as many women get sick from SALINE as silicone and I don’t see anyone suing for saline implants ruining our health. Anyone know of any lawyers who could take my case on?

    Reply
  265. Shelley Young

    Hi I have had my silicone implants since 2003..i was in the mcghan study and have had them in 12 years. Just recently i was diagnosed with hashimotos, hypothyroid,nodule on thyroid,fibroids,hormonal imbalance(high testosterone and estrogen dominance. I also have burning itching pain under implant and in armpit. I live in michigan and I would like a recommended surgeon. I believe i have a leak. I could go to chicago but my insurance is health plus of michigan. I need to get these removed asap could you please help me find a doctor. I have an appointment with 3 but don’t want to waste time. Thank you

    Reply
  266. Tati

    Hi Nicole,
    First of all I want to thank you for creating this website filled with valuable information and telling us your personal ordeal with your implants. I want to share my experience with you and other women that are going through the same situation. I had my implants done in 2006 (texturized, gel silicone) back in my hometown in Colombia, did my research on them and my doctor, did not find much negative information on them. The surgery went great and I was very happy with the results. In 2009 had my regular breast exam with my OB/Gyn and he told me that I had a lump in my right axilla, so he send me for breast ultrasound and a mammogram, and I had my right implant ruptured. I went back to my PS and had them replaced by another set of texturized, gel silicone implants. She did mentioned that the previous implants were from a company in France and they were defective, so yes I had this implants from a company in France called PIP, where they used industrial silicone, the one they use to fill up mattresses with, to make breast implants. The scandal surface in late 2009 after I had mine exchanged, so I didn’t dig in too much. My PS told me not to worry that I had the ruptured implant removed, and everything should be ok. I didn’t experience any symptoms till then.
    In 2011 I became really sick, with non-stop fever I mean 24/7, excruciating pain in my joints, bones and muscles, my skin felt like it was burning, couldn’t bear to be touch, profuse sweating at night, my right arm lymph nodes started to swell to the size of a gulf ball, went from hospital to hospital, I was told 10,000 different things but no one would give me a diagnosed. At the time I didn’t have insurance, so my torture went on for almost 3 months. Till a saw this doctor that sent me for an MRI with contrast, and he couldn’t rule out cancer, so he referred me to an oncologist-surgeon one of the best in FL Dr Robert Donoway MD, I remember that I saw him on a Monday and he scheduled me for surgery the next day. I had partial removal of a few on my lymph nodes and a sample was sent for biopsy it was negative thank God for cancer but it had necrosis, I couldn’t had an infection in my blood or my lymphatic system. As the time went by my health started improving but at the same time had other symptoms hair loss, still have pain in my joints, lost weight, but I got better.
    A few weeks ago the nightmare came back, I got sick again, I had so much pain throughout my body I cried like baby, fever, chills, so I went to the ER and there I got admitted, my white blood count was very low, I got neutropenia, got isolated it, my red bloods and my plaquettes were abnormal too, they drew so much blood out of me it’s not even funny, got lymph node biopsy, again, got tested for leukemia and lymphoma, I had 3 doctors in my care, internist, infectologist and an hematologist-oncologist, they game a treatment, IV of 2 different antibiotics, pain killers, and also something to bring my white blood cells up. I got discharged from the hospital a week later, since my pain and fever improved and my white blood cell went up. Follow up with my primary and he said that my liver enzymes were high, liver ultrasound was normal, he sent me for anti SS a and anti SS b and that was positive with a value of 35. He referred to a rheumatologist, I’m currently wait on appointment for him. Last test he ordered was for Lupus. Followed up with my hematologist-oncologist my white blood count dropped again, follow up in 3 weeks. All this back and forth is driven me crazy. I have mentioned to ALL the DOCTORS of my implant ruptured and no one has even pay attention to this. So I started again to do my research and guess what?? I found more and new information about implant related illnesses, and believe me it is IMPOSSIBLE that women that are experiencing the same symptoms have breast implants, that is NOT a coincidence.
    At this point, I’m so angry, frustrated, depressed, and many more feelings. I take full responsibility of my decision to get breast implants, but there are other people involved in this situation that are responsible and liable for what’s ha